Policy and Research Officer
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Job Title: Policy & Research Officer
Location: Remote (with UK and international travel, candidate must be UK-based)
Hours: Full-time
Salary: £30,000 - £33,000
Reports to: Head of Insight & Advocacy
About Us
Metabolic Support UK is the leading organisation for people living with inherited metabolic disorders (IMDs) and their families. We provide expert support and advocacy, champion research, and work with health services and policy-makers to ensure people with IMDs and their families get the care they need and deserve.
The Role
We are looking for a curious and committed Research & Policy Officer to help us build the evidence base to improve the lives of people affected by IMDs. Reporting to the Head of Insight & Advocacy, you will play a key role in delivering our research projects, keeping tabs on relevant policy developments, and helping shape our responses to consultations.
Key Responsibilities
Research (under supervision of the Head of Insight & Advocacy):
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Support the design, planning, and delivery of qualitative and quantitative research projects
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Conduct literature reviews, stakeholder mapping, and data analysis
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Contribute to survey development, focus groups, and interviews with people living with IMDs, families, clinicians and other stakeholders
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Assist with analyses and write up findings in accessible and engaging ways for different audiences
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Ensure all research is ethical, inclusive, and relevant to the needs of the IMD community
Policy Monitoring and Response:
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Track developments in policy relevant to rare diseases and inherited metabolic conditions
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Summarise key policy updates for internal and external audiences
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Support the drafting of consultation responses, position statements, and policy briefings
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Contribute to campaigns, stakeholder engagement, and policy influencing activities
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Help ensure the voice of the IMD community is reflected in national and local policy discussions
About You
We are looking for someone who is:
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Organised, analytical, and enthusiastic about improving lives through research and policy
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A strong communicator – able to write clearly and concisely for different audiences
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Comfortable working with data, both qualitative and quantitative
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Keen to learn, with some experience in research or policy (academic, charity, health, or public sector settings)
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A team player who enjoys collaborating and supporting others
Desirable experience:
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Background in public health, health policy, social research, or similar
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Experience working with or for people living with a disorder, carers, or people with rare or long-term conditions
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Familiarity with the NHS, health inequalities, or rare disease policy
What We Offer
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A chance to make a meaningful difference in a growing, agile charity
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A friendly and supportive team culture
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Flexible working arrangements
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Opportunities for learning and professional development
Registered Charity 
6 - 10
