Muscular Dystrophy UK - Vice Chair

The Organisation

Muscular Dystrophy UK is the leading charity supporting over 110,000 people in the UK living with one of more than 60 muscle-wasting and weakening conditions. The organisation connects people affected by these conditions—including individuals, their families, healthcare professionals, and scientists—ensuring that everyone can access the healthcare, support, and treatments needed to thrive both mentally and physically.

Muscular Dystrophy UK provides support across all stages of life, from diagnosis to living well. The charity:

• Shares expert advice and guidance to help people live well today.

• Funds pioneering research to improve understanding of different conditions and drive the development of new treatments.

• Works with the NHS to achieve universal access to specialist healthcare.

• Campaigns to improve rights, accessibility, understanding, and access to treatments for people affected by muscle-wasting conditions.

The Role

This is an exciting time for Muscular Dystrophy UK, which will soon publish a bold new strategy guiding its work over the next decade. With strong financial foundations, diverse income streams, and robust external partnerships, the organisation is well positioned to scale its impact.

The charity is seeking to appoint a Vice Chair to support the Chair and play a pivotal role in guiding the organisation forward, helping Muscular Dystrophy UK achieve its ambitious vision for the future.

The Vice Chair serves as a Trustee and, in addition to standard Trustee responsibilities, supports the Chair in leading the Board to ensure strong governance and strategic oversight. The Vice Chair acts as a supportive and critical friend to the Chief Executive and may deputise for the Chair as required.

Person Specification

Muscular Dystrophy UK is looking for engaging individuals who bring credibility, experience, and a genuine passion for contributing at Board level. Candidates should demonstrate:

• Proven leadership experience, ideally at Board level within the charity, public, or private sector.

• Knowledge of charity governance and Trustee responsibilities.

• Strong interpersonal and communication skills, with the ability to maintain relationships, build consensus, and manage differing perspectives.

• Commitment to the mission and values of Muscular Dystrophy UK.

• Strategic thinking, sound judgment, and integrity.

• Availability to commit approximately 20 days per year to the role.

The charity is committed to building a diverse and inclusive organisation that reflects the communities it serves. Applications are particularly encouraged from underrepresented groups, including individuals from ethnic minority backgrounds, LGBTQ+ communities, and those with lived experience of the conditions represented. Muscular Dystrophy UK believes diversity strengthens its work and enhances its ability to support beneficiaries effectively.