Fundraiser

About Us

The Marfan Trust is a small, niche medical charity and the only one of its kind in the UK, dedicated to improving and saving the lives of people affected by Marfan and Loeys-Dietz syndromes, which are inherited and life threatening due to heart involvement. We support patients and families through a personalised medical helpline, raise awareness and educate both the public and professionals through high-quality resources, webinars, and symposia, and fund cutting-edge research into improved treatments.

We are committed to championing equality, diversity, and inclusion across all aspects of employment and service delivery. We actively encourage applications from underrepresented groups, particularly individuals from ethnically diverse communities.

Fundraiser Job Description

Within a small, dynamic medical charity, the Fundraiser will play a pivotal role, engaging supporters through creative campaigns and cultivating strong relationships with donors, sponsors, and stakeholders.

The role is currently home-based in the UK, with remote staff communications.  Attendance at events across the UK is required, so the ability to travel is essential.

Key Responsibilities

Fundraising & Financial Management

• Monitor and track fundraising income in collaboration with the accountant
• Forecast income targets and plan campaign budgets and expenses
• Draft fundraising budgets and coordinate payment processing
• Analyse income trends and adapt activity during quieter periods
• Ensure transparency and accuracy in all fundraising finances

Sponsorship & Donor Relations

• Identify, approach, and secure new sponsors and major donors
• Develop compelling funding bids and sponsorship packages
• Maintain strong relationships with existing donors, demonstrating the impact of their support
• Act as a consistent point of contact for sponsors and supporters
• Acknowledge and steward donations appropriately

Marketing, Campaigns & Communications

• Develop and deliver marketing campaigns to support fundraising activity
• Create engaging content such as blogs, newsletters, brochures, videos, and appeals
• Write persuasive copy for donation pages and fundraising materials
• Maintain and update fundraising content on the website
• Coordinate with external designers, printers, and agencies as needed

Social Media & Digital Fundraising

• Develop and implement a social media strategy aligned with fundraising goals
• Create, schedule, and manage content across multiple platforms
• Promote campaigns, appeals, and events online
• Engage with supporters and monitor online conversations
• Track and report on engagement and fundraising performance
• Design and deliver online donation drives, Giving Days, and email campaigns
• Support paid advertising and collaborations with partners or influencers

Supporter Engagement & Community Building

• Share impact stories and donor recognition (with consent)
• Encourage peer-to-peer fundraising
• Foster an engaged and supportive online community

PR & Media Relations

• Forge relationships with local and national media
• Draft press releases and pitch fundraising stories
• Manage publicity for fundraising events
• Coordinate media opportunities, photo calls, and branded event materials

About You

You will be based in the UK.

You will have experience in marketing, ideally within charity fundraising, with a proven ability to deliver successful campaigns and grow income across multiple channels. You are confident writing persuasive copy, using data to inform decisions, and managing campaigns from inception to completion.

You are well organised, take initiative, and communicate easily with others. You work collaboratively, bring creativity to what you do, and pay close attention to detail. Confidence using Microsoft Office is essential. Most importantly, you care about the mission of a charity, and an interest in healthcare and medicine would be a welcome addition