Head of Campaign, Policy and Public Affairs

As Head of Campaigns, Policy and Public Affairs, you will lead our work in securing policy changes that makes things better for people affected by Motor Neurone Disease (MND).

Too many people affected by MND are not getting the right level of care and support. So you will be responsible for the policy development, political and governmental engagement, and campaigning to address this. So along with a compassionate and nurturing leadership style, you will approach the role with pace and ambition, and a real impatience to deliver meaningful change.

MND awareness has increased dramatically, including among policymakers. So this is an opportunity to use your skills and experience to make a real difference to people with MND and their loved ones.

Key Responsibilities

• Lead, manage, develop and deliver impactful campaigns, policy and public affairs activity with impact for people affected by MND
• Set priorities that reflect evidence, lived experience and political opportunity
• Develop relationships and influence decision-makers across Westminster, the Senedd and Stormont
• Build strong relationships with policymakers, the NHS and sector partners
• Ensure campaigns are planned, bold, creative and urgent in delivery
• Strengthen and support our community of campaigns volunteers
• Chair our internal access to treatments group
• Lead, support and develop the Campaigns, Policy and Public Affairs team
• Act as a key external spokesperson for the Motor Neurone Disease Association

About You

• An exceptional level of drive and ambition, and an infectious sense of impatience for the policy changes that will make life better for people affected by MND
• Proven success securing policy change through campaigning
• Excellent understanding of the policy landscape and a good understanding of how policy decisions are made
• Sophisticated influencing skills and political insight
• Experience leading, motivating and inspiring teams
• Clear, confident written and verbal communication
• Commitment to shaping work with people affected by motor neurone disease
• Experience of partnership or coalition working
• Experience of budget planning and financial oversight

Hybrid working expectations: London office attendance one day per week

Further information about MND Association and full job description is available in the attached Candidate Pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

What We Offer

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies
• 24/7 GP access via phone and video
• Life assurance and confidential counselling helplines
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave)
• Access to Benefit Hub for discounts on everyday shopping
• Enhanced pension scheme
• Opportunities for training and personal development
• Hybrid working

About Us

Motor Neurone Disease moves fast. It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We campaign for better care. We’re here for everyone who needs us. Because with MND, every day matters.