Research Involvement Manager

Shape how lived experience of those affected by Motor Neurone Disease (MND) is embedded in research processes and impact. As Research Engagement and Involvement Manager, you will lead engagement across a wide research portfolio, working with researchers, the MND Community, and external partners to influence decisions and outcomes that matter.

You will join the Motor Neurone Disease Association’s Research and Innovation team, where involvement is central to how research is designed, delivered and shared. The Research Engagement and Involvement Manager plays a key role in ensuring research reflects diverse experiences, participation and representation to support progress in MND research innovation.

Key Responsibilities

• Lead involvement and engagement across the research portfolio
• Design and implement research engagement strategies and activity, promoting awareness and understanding of MND research
• Manage and grow initiatives including MND Encourage UK
• Support researcher understanding and good practice in involvement approaches
• Organise and lead events, webinars, seminars, podcasts and workshops with researchers and the MND community
• Evaluate and report on the impact of initiatives, ensuring inclusivity and ethical standards
• Work with internal teams to ensure clear, joined-up messaging
• Represent the MND Association in external collaborations and networks

About You

• Degree (or equivalent experience) in biological sciences, public engagement, or a related field
• Experience leading or supporting public and patient involvement and engagement (PPIE) initiatives in research
• Experience leading or supporting involvement in research
• Strong understanding of involvement standards and methods
• Ability to communicate and interpret complex scientific research clearly
• Experience working with diverse and underrepresented communities
• Confident relationship builder with researchers and stakeholders
• Excellent organisation skills with strong project management skills

Hybrid working expectations: one day per week office attendance in Northampton

Further information about MND Association and full job description is available in the attached Candidate Pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

What We Offer

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies
• 24/7 GP access via phone and video
• Life assurance and confidential counselling helplines
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave)
• Access to Benefit Hub for discounts on everyday shopping
• Enhanced pension scheme
• Opportunities for training and personal development
• Hybrid working

About Us

Motor Neurone Disease moves fast. It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We campaign for better care. We’re here for everyone who needs us. Because with MND, every day matters.