Advocacy & Information Officer – Wales

Join an amazing charity that makes a difference for the 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.

The Advocacy & Information Officer in Wales will ensure that service users receive high quality support and will assist them to access funding, equipment and care and support that they are entitled to. The Advocacy & Information Officer will join a team that makes a real difference to the lives of the people living with muscle-wasting conditions, and their families, in Wales and across the UK.

The role will be primarily home based, but there will also be a requirement to attend outpatient clinics in Wales, attend home visits where appropriate and to support those living across the UK through the helpline and information inbox. Some travel will be required to attend meetings and events across the UK. You will work with both statutory and voluntary organisations, clinicians and health, and social care professionals to ensure that people living with muscle-wasting conditions get the care and support they need to live well and independently.

About us:

Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions. We bring together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 110,000 children and adults in the UK. 

We share expert advice and support to live well now; fund groundbreaking research to understand the different conditions better and lead us to new treatments; work with the NHS towards universal access to specialist health; and together, campaign for people’s rights, better understanding, accessibility, and access to treatments.

Benefits:

We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We also offer a range of benefits including pension, life assurance, cycle scheme, health cash plan, financial wellbeing and an employee assistance programme.

Location: Hybrid – Home and community based within Wales

NB Interviews likely to be held Tuesday 8 April 2025

Please download the job description to see full role responsibilities.