Head of Health Information and Engagement - Maternity cover

About us:

Join an amazing charity that makes a difference for more than 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.

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We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, previous convictions and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.

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As part of our safer recruitment and safeguarding responsibilities, this role requires a DBS check and professional/character references. We are committed to inclusion and will consider each application fairly.

Muscular Dystrophy UK connects a community of more than 110,000 people living with one of over 60 muscle wasting conditions, and all the people around them. So everyone can get the healthcare, support and treatments needed to feel good, mentally and physically.

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This is an exciting time to join Muscular Dystrophy UK. We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won’t stop until we achieve it.

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Main purpose of role:

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The Head of Health Information and Engagement will play a critical role in delivering Muscular Dystrophy UK’s (MDUK) 10-year strategy by leading the development and delivery of trusted, accessible information and impactful engagement for both the muscle wasting community and the professionals who support them.

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This role will be responsible for shaping and evolving MDUK’s portfolio of health and lifestyle resources, training materials, and community and professional events ensuring they are evidence-based, user-led, and effectively meet the needs of individuals living with muscle wasting conditions, as well as healthcare professionals across primary, secondary, and tertiary care.

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Leading a dedicated team of three, the postholder will oversee the creation, maintenance, and dissemination of high-quality printed and digital resources, and drive forward MDUK’s programme of community events and professional training.

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Positioned at the heart of the Services and Support Directorate, this leadership role will ensure our information provision and engagement work is inclusive, strategic, and impactful empowering our community and enabling better care and support across the UK.

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Other responsibilities:   

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• To ensure that all actions comply with the Data Protection Act.
• To represent the charity externally if required and to undertake other such tasks as required by the line manager.
• Occasional evening and weekend work as required.

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Values and behaviours:     

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• A positive attitude and approach that reflect the charity’s values.
• Seek opportunities to contribute to the development of the charity.
• A commitment to and an understanding of disability issues, equality, diversity and inclusion.
• Always demonstrate role model behaviour.

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Benefits:

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We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We believe in supporting our people both professionally and personally. Alongside a competitive salary, we offer a comprehensive benefits package designed to promote wellbeing, work–life balance, and career development. Our offer range of benefits includes great pension contributions, life insurance, cycle scheme, health cash plan, employee assistance programme, instant retail and events discounts, and much more...

Location: We operate a hybrid model (home and office, London SE1). 

Closing date: Wednesday 1st July 2026 

NB Interviews likely to be held on Friday 10th July 2026 

Interview dates: NB: Please note that we are interviewing on a rolling basis and may close the advert earlier than the stated deadline if we successfully fill the role.

Please download the job description to see full role responsibilities