Support Caseworker - Referral Service

About the Role

This is an exciting opportunity to join Muscular Dystrophy UK as a Support Caseworker at a time when we are delivering our ambitious 10-year strategy to transform the lives of people living with muscle wasting and weakening conditions.

As part of our Care, Information and Advocacy team, you will provide compassionate, person-centred support to individuals and families affected by over 60 rare muscle wasting conditions. Through structured conversations, you will help people identify their needs, access information and practical guidance, connect with peer support networks, and navigate relevant services, benefits and equipment.

Working closely with colleagues, healthcare professionals and external partners, you will play a key role in ensuring people feel informed, supported and empowered to access the help they need at the right time. This is a rewarding role for someone who is passionate about improving lives, building meaningful relationships and helping people overcome the challenges associated with living with a long-term condition.

Main tasks and responsibilities:

• Manage incoming referrals, making timely first contact, gaining consent, and ensuring accurate record-keeping on the CRM system.
• Deliver structured, holistic conversations to understand the emotional, practical, social and information needs of individuals and families.
• Provide high-quality, person-centred casework, supporting people at key stages of their journey and helping them access the right support at the right time.
• Develop and review support plans, working with individuals to identify priorities, agree actions and achieve positive outcomes.
• Signpost and refer people to relevant internal and external services, including peer support networks and other specialist sources of support.
• Build positive relationships with healthcare professionals, partners and other stakeholders to ensure coordinated and effective support.
• Maintain accurate records, monitor outcomes and contribute to service evaluation, quality assurance and continuous improvement.
• Identify and respond appropriately to safeguarding concerns, risks and unmet needs, following organisational policies and procedures.
• Ensure all activities are delivered in line with GDPR, confidentiality, safeguarding and professional standards.
• Work collaboratively across the Services and Support team to promote consistent, sustainable and high-quality service delivery.

This role may require occasional travel and some flexibility to meet the needs of the service.

Other responsibilities:

• To ensure all activity complies with data protection legislation, GDPR requirements and organisational policies.
• To represent the charity externally if required and to undertake other such tasks as required by the line manager.

Working arrangements

• Permanent Contract
• Full time: Monday to Friday, 35hours/week
• Hybrid working arrangement
• All necessary equipment provided

About Us

Muscular Dystrophy UK is a charity that connects a community of more than 110,000 people living with one of over 60 muscle wasting conditions, and all the people around them. So, everyone can get the healthcare, support and treatments needed to feel good, mentally and physically.

This is an exciting time to join the charity. We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won’t stop until we achieve it.

We believe that by creating opportunities for all, we strengthen our impact and better support the communities we are committed to serve.

What we offer

At Muscular Dystrophy UK, you'll have the opportunity to do meaningful work that makes a real difference to the lives of people living with muscle wasting conditions. We are committed to creating an inclusive, supportive workplace where colleagues can thrive and enjoy a healthy work-life balance.

In return, we offer a competitive benefits package, including:

• 25 days' holiday (pro rata), increasing by one day each year after five years' service, up to 30 days, plus bank holidays.
• Time off in lieu for approved out of hours work.
• Employer contribution of 5% with a minimum employee contribution of 3%.
• Death in service cover from your first day of employment.
   

Health and wellbeing

• HSF Health Plan, including cashback on healthcare costs for you and your family.
• Employee Assistance Programme (EAP) offering free, confidential advice and support.
• Health and wellbeing resources, including Healthy Living support.
• Access to osteopathic treatment through the UCO Clinic Community Partnership.
• Discounted gym memberships.
   

Lifestyle benefits

• Employee discounts at a wide range of high street and online retailers.
• Interest-free season ticket loans.
• Cycle to Work scheme.
• Discounts on cinema tickets, live events and much more.

How to Apply

Please complete our application and include:

• Your CV and Cover Letter (PDF or Word format).
• Responses to the application questions

Important information

• This role is open to candidates based in the UK who have the right to work in the UK.
• Applications that do not include all the requested information may not be considered.

Next Steps

Application deadline: Thursday, 19th November 2026

Please note that we reserve the right to close this vacancy early if we receive a high volume of strong applications
 

Interviews: Week commencing 23th November

Expected start date: December 2026/January 2027

We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups, including people from ethnic minority backgrounds, LGBTQ+ individuals, previous convictions and those with lived experience of the conditions we represent.

We are committed to fair and inclusive recruitment, with disclosure only requested where relevant at the appropriate stage

If you require any reasonable adjustments or additional support at any stage of the recruitment process, please let us know. We will work with you to understand your needs and make the recruitment process as accessible as possible.

Please download the job description to see full role responsibilities.