Information Manager

The Information Manager is a pivotal senior role within The Migraine Trust—responsible for shaping and developing all health information produced by the organisation. This role ensures that our information is accurate, accessible, evidence‑based and meets the highest national standards, including oversight of our Patient Information Forum (PIF TICK) accreditation. The health information we produce covers a wide range of topics from migraine treatments, management of migraine, latest research and migraine triggers. There is also an ongoing need to scope new information needs and, where identified, produce new information. The depth of health information we currently have and will produce in the future ensures that this role will offer plenty of opportunities to work with a range of stakeholders on a variety of information topics. We currently hold PIF TICK certification, which will be part of this role to maintain. You will help us maintain the quality of our health information and ensure that we comply with the charity’s writing style and branding.

Acting as the charity’s subject‑matter expert on migraine information, the postholder plays a vital strategic role in influencing organisational priorities, ensuring the public, healthcare professionals, policymakers and wider stakeholders have access to accurate, impactful and up‑to‑date content.

This role directly contributes to the Trust’s strategic ambitions by:

• Strengthening public understanding of migraine
• Reducing stigma and misinformation
• Improving healthcare navigation and outcomes
• Supporting clinical and policy change
• Enhancing organisational reach

Key tasks and responsibilities

Producing and maintaining quality information

Manage The Migraine Trust’s provision of health information in line with the charity’s annual planning cycle and the PIF TICK accreditation.  This will include: -

·         Lead The Migraine Trust’s health information portfolio, ensuring alignment to annual plans, organisational strategy, and PIF TICK quality standards

·         Manage the full lifecycle of health information—from scoping and research to writing, expert review, design and publication

·         Reviewing and updating existing information content, ensuring it is accurate, up-to-date, accessible and produced in consultation with service users and people with lived experience, relevant medical advisors, health care professionals, the charity’s staff and other relevant specialists and organisations when appropriate

·         Identify emerging gaps in information and lead the development of new materials

·         Identify and engage with target groups identified in our three year strategy to identify need and produce associated materials

·         Support staffs learning and build knowledge of migraine

Build key strategic partnerships to assist us in disseminating information on migraine.

·         Champion the use of world class health information within the organisation, as well as displaying a high level of expertise around all our health information content

·         Build and maintain strategic partnerships with healthcare professionals, professional bodies, and charity sector organisations to increase reach and influence

·         Represent the charity externally as a health information expert at conferences and events

·         Help to support our busy communications team to help provide messaging content for videos, blogs, responses to media requests etc

·         Take responsibility for the provision of printed information materials to ensure we can continue to provide resources to suit demand, in a cost-effective manner

·         Work with the communications team to identify creative and accessible ways to disseminate our information to a variety of audience

·         Work closely with our valued volunteer group to gain feedback and direction on all aspects of our health information

·         Explore opportunities of coproduction with other charities to further our reach

Support the evaluation and impact reporting of our information provision by regularly monitoring its use using a variety of evaluation methods and produce timely and accurate reports for both internal and external use.

·         Updating and maintaining the health information web pages

·         Lead the monitoring and evaluation of all health information outputs

·         Produce impact reports and insights to inform strategic decision‑making, fundraising proposals, research priorities and service development

·         Maintain and continuously improve data‑driven approaches to evaluating reach, accessibility and effectiveness of health information

·         Keep up to date with relevant information and research on migraine

·         Work with external suppliers such as designers, printers

Research

A very small aspect of this role is to be the focal point for our research administration which will include:

·         Being the key point of communication and support for the research committee

·         Manage administrative duties relating to new applications for research funding and current grant holders

·         Co-ordinate and send out papers for research meetings (once a year maximum)

·         Liaising with researchers funded by the charity and ensuring project reporting is up to date

·         Liaise with the AMRC as and when appropriate

Other

·         Represent the charity at appropriate external events for both the public and healthcare professionals

·         Build relationships with healthcare professionals, external stakeholders and members of our community

·         You may be asked to work outside of office hours or travel within the UK

·         Be a supportive and participatory senior member of the team

·         Abide by the charity’s policies, practices and core values

·         Support diversity and equality of opportunity in the workplace.

• • nsuring project reporting is up to date
  • Liaise with the AMRC as and when appropriate