Remote jobs for the Disability sector

Do you have a passion for delivering training that really makes a difference?

At PWSA UK, we support individuals and families affected by Prader-Willi syndrome (PWS), a rare and complex genetic condition. With the right support, people living with PWS can lead safer, fuller lives. That’s why we’re developing specialist training for professionals in health, social care, and education.

PWSA UK is a small charity providing lifelong support to all those affected by Prader-Willi syndrome (PWS).

PWS is a rare genetic disorder that affects multiple aspects of a person's health and behaviour. Due to the complexity of the condition, specialised training for social care, health and education providers is essential to ensure proper support, care, safety, and quality of life for individuals with PWS.

We are looking for an experienced training manager who can lead our external training to make a real difference to the quality of care and support provided for people living with PWS.

We are looking for an inspirational, qualified trainer/practitioner with experience and knowledge of health, education and social care provision to develop and deliver external training for a range of service providers.

This is a new role with PWSA UK with opportunity to scope and develop PWS specialist training and increase our impact.

If you are skilled in developing and providing training and engagement activities to diverse audiences in a professional and collaborative way we would love to hear from you.

The role is for 3 days a week, is home based and you will need to be able to travel throughout the UK.

PR Manager
Home based, remote working 
£37,000 - £40,000 pa plus excellent benefits
35 hours per week

As one of two PR Managers, you'll be the key point of contact for all PR communications, helping to develop and execute forward-thinking PR plans and strategies. Responsible for implementing and managing a proactive PR activity schedule, you’ll craft compelling content to entice journalists and the media to support our work. Responding reactively to requests the charity receives.

Championing best practices in PR, you’ll drive effective, integrated campaigns across the UK, ensuring a cohesive approach to both traditional and digital media.

Diving into projects such as Deaf Awareness Week, our ‘It does matter’, access to Ear Wax removal services and major healthcare campaigns, you’ll raise awareness of the barriers facing the 18m people who are deaf, have hearing loss or tinnitus, getting these issues on the national agenda, starting conversations around hearing health.

You'll also be celebrating inclusion, working the UK's biggest TV shows, and campaigning for equal access to healthcare.

You will be responsible for:

• Coordinating our PR content calendar, creating and curating inspiring and shareable materials that resonate with our target audiences,reporting on performance against KPIs and making recommendations for continuous improvement.

• Managing media and stakeholder relationships, ensuring timely, engaging, and brand-appropriate responses to queries and feedback.

• Acting as the first point of contact for reactive media inquiries, providing prompt and effective responses to manage and shape media coverage.

• Overseeing PR project management for campaigns, collaborating with colleagues across the MarComms team.

• Championing PR best practices. Advising and assisting teams, applying insights from performance analysis to ensure all PR content is designed to maximise reach, engagement, and impact.

• Conducting media monitoring and PR analysis to identify trends and reputational issues.

• Tracking the success of PR initiatives, providing feedback to project teams on effective strategies and areas for improvement.

• Working with our Stories and Celebrity Managers to identify and engage new case studies and high-profile individuals, and deliver impactful stories or celebrity-led campaigns.

• Share success and media coverage across RNID, working with the Internal comms team to celebrate and show the value of PR and involve the whole organisation in our work

• Supporting spokespeople from across RNID, case studies, celebrities and influencers with high profile media interviews including developing media briefings and key messages and providing feedback

• Play a key role in the PR & Comms team, ensuring that PR, social media, celebrity and storytelling works together to deliver maximum impact

You will have experience of driving forward and managing a PR function and possess a thorough understanding of how various PR channels function and how content is best delivered, staying current with industry trends.

We are RNID: the national charity supporting the 18 million people in the UK who are deaf, have hearing loss or tinnitus. Together, we will end the discrimination faced by our communities, help people hear better now and fund world-class research to restore hearing and silence tinnitus. 

We are a remote working organisation, with colleagues based across the UK and NI. We come together in person  for our Staff Summits. We know our colleagues have responsibilities  outside work which is why we offer a sector-leading flexible working policy to all our staff from day one.

We champion the value of difference and equality and celebrate our diverse and inclusive workforce. We actively encourage applications from eligible candidates from BAME backgrounds or who are deaf or hard of hearing. With almost 20% of our employees having a disability we proudly hold Disability Confident Leader status and guarantee an interview for disabled applicants meeting the minimum essential criteria.

Closing date: 10 June 2025.
Interview dates: 25 and 26 June 2025.

Job purpose

The Clinical Lead will play a pivotal role in leading and developing Action for ME’s Healthcare Services with the Operations Director, ensuring the highest standards of clinical care for individuals affected by Myalgic Encephalomyelitis (ME). The postholder will be responsible for clinical oversight, service development, and leadership, working collaboratively with multidisciplinary teams to enhance outcomes for children and adults with ME and will be the CQC Registered Manager for the service.

At present, the Healthcare Services is a small team with two doctors (GPs) and two physios. Our counsellors are overseen by a Counselling Lead Supervisor and our multi-faith Chaplains are supported by our Lead Chaplain.

We are keen to develop and expand our services, building on the small amount of spot purchasing from local commissioning boards and exploring a diagnosing and prescribing offer. We are also keen to explore the potential of increasing the range of disciplines offered within the team. You will play a key role in driving the strategy for our Healthcare Services with the Director of Operations.

Key responsibilities

• Provide clinical support and expertise to Action for ME's Healthcare Services, ensuring evidence-based, person-centred care.

• Act as Registered Manager for CQC (Care Quality Commission) purposes and ensure that the service meets all required standards.

• Lead the development and implementation of clinical policies, protocols, and best practices in line with national guidelines and regulatory requirements.

• Supervise and support healthcare professionals within the service, offering guidance, mentorship, and training.

• Designated safeguarding officer for Healthcare Services.

• Collaborate with external stakeholders, including NHS services, researchers, and others, to enhance healthcare provision for people with ME.

• Ensure the service complies with regulatory and safeguarding standards, including CQC requirements where applicable.

• Monitor and evaluate service delivery, using data-driven insights to improve clinical outcomes and patient experience.

• Provide expert advice on complex cases, supporting staff with clinical decision-making.

• Represent Action for M.E. at external forums, conferences, and policy discussions.

Person specification

• A registered healthcare professional (e.g., doctor, nurse, physiotherapist, or occupational therapist) with active professional registration (GMC, NMC, HCPC or equivalent) OR an experienced commissioner of healthcare services with experience of quality assurance, safeguarding and compliance.

• Extensive clinical experience in chronic illness management OR sound understanding of clinical practice, ideally with expertise in ME or related conditions and a clear understanding of the challenges faced by people with ME.

• An understanding of Care Quality Commission regulatory requirements.

• Proven leadership experience in a healthcare setting, including team management and service development.

• Strong understanding of evidence-based practice and clinical governance.

• A sound understanding and experience of safeguarding children/young people and vulnerable adults.

• Excellent communication and interpersonal skills, with the ability to engage effectively with patients, carers, and healthcare professionals.

• Experience in training and mentoring healthcare professionals.

• Ability to work independently and collaboratively within a multidisciplinary environment.

• Commitment to patient-centred care and advocacy for people with ME.

• Knowledge of NHS structures and commissioning processes.

• An understanding of working within the third sector or charitable organisations.

We’re looking for a part-time Trusts Fundraising Officer to contribute their skills, experience, and personality to add value to our Trusts team within the Fundraising department at Blesma, The Limbless Veterans.

This home-based role is now available due to the current post holder moving on to new pastures. The Trust team has had incredible success in recent years, which we are eager to sustain and grow. The successful candidate will provide support to the Trusts Fundraising Manager and work alongside a fellow part-time Trusts Fundraising Officer within this ambitious team.

The role is a varied one, focusing on all aspects of the funding cycle – from identifying opportunities and building relationships, to writing compelling applications and providing high level stewardship. The team works collaboratively across the Association to ensure Blesma’s programmes and services can continue to help limbless veterans and their families.

Blesma is unique as a membership Association as well as a charity. Our Members are the heart of all our work – therefore, the impact of our fundraising is clearly visible in the experiences of our inspirational limbless veterans.

If you’re interested, please read the attached Job Description and apply with your C.V. and a Covering Letter detailing why you’d be an ideal candidate for the role and how your experience and skills match those detailed in the Person Specification.

If you are uncertain about your suitability, apply anyway and let us decide! 

Interview dates: 05 or 06 June 2025.

We may close the application down early if we receive a high volume of applications. 

Legacy Stewardship Manager
Home based, remote working 
£42,000 pa plus excellent benefits
35 hours per week

The Legacy Stewardship Manager will plan and deliver an ambitious new legacy stewardship strategy to bring about growth in future legacy income.  It will diversify the current legacy stewardship programme to convert more legacy prospects and maintain more pledgers using a combination of relationship and mass fundraising activities. It will be responsible for planning and delivering high quality communications and experiences which make supporters feel inspired, valued and deepen relationships with them over the long-term.

This role is critical in growing future legacy income for RNID, which currently represents 72% of RNID’s income. It will play a pivotal role in a Legacy Fundraising Team of four people, reporting into the Head of Legacies, working alongside the Legacy Marketing Manager and line managing the Gifts in Wills Specialist Officer.

This role is a new addition to a growing team in an organisation where legacy fundraising has a high profile.  It is an ideal next step for an experienced and confident legacy fundraiser wanting to make their mark by growing the legacy stewardship programme to a new ambitious level that matches an increased investment in legacy acquisition.

You’re an experienced and ambitious legacy fundraiser with the ability to think strategically as well as deliver a full and varied programme of operational activity. You’re ready to apply your previous experience, success and ideas to shape and grow RNID’s legacy stewardship programme to its full potential.  You’re confident, innovative and keen to use data and insight to improve performance. You’re a strong collaborator and able to influence internal stakeholders at all levels. You’re an excellent project and event manager, able to plan and deliver multiple activities simultaneously to agreed deadlines and budgets.

You will be responsible for:

· Working with the Head of Legacies to diversify and plan the legacy stewardship programme, applying test and learn principles to evaluate and improve performance.

· Operational delivery of a varied legacy stewardship programme including supporter care, supporter journeys, in person and online events.

· Overseeing all one-to-one interactions with legacy prospects and supporters, either directly or through senior colleagues such as RNID’s Chief Executive.

· Educating and training colleagues to confidently support legacy fundraising activities.

· Line managing and developing the Gifts in Wills Relationship Officer.

· Working with the Head of Legacies, contributing to annual operational planning, budget setting, phasing, reforecasting and contingency planning. 

We are RNID: the national charity supporting the 18 million people in the UK who are deaf, have hearing loss or tinnitus. Together, we will end the discrimination faced by our communities, help people hear better now and fund world-class research to restore hearing and silence tinnitus. We work with our communities and partners across industry, government, charity, education and more to change life for the better.

We champion the value of difference and equality and celebrate our diverse and inclusive workforce. We actively encourage applications from eligible candidates from BAME backgrounds or who are deaf or hard of hearing. With almost 20% of our employees having a disability we proudly hold Disability Confident Leader status and guarantee an interview for disabled applicants meeting the minimum essential criteria.

Closing date: 3 June 2025

C£50,000 per year
35 hours per week
Remote
Fixed term to cover maternity leave
Here at RNIB, we're searching for an exceptional individual to join us at a really exciting time. As part of the newly formed Supporter Experience team, you'd be in a new role which offers plenty of scope to help shape the teams future.

The team is responsible for providing exceptional stewardship to our supporters that will optimise their experience and grow retention, emotional loyalty and lifetime value.

If you have experience in customer or supporter retention, ideally gained in a fast-paced environment, then you may be who we are seeking. You will be responsible for managing our Individual Giving loyalty products, including our raffle players and our committed regular givers, and developing our upgrade campaigns ensuring we reach our ambitious targets to enable us to reach more blind and partially sighted people and provide the support they need, when they need it.

To be successful in this role, you don't necessarily have to have gained your skills in a charity - you will have a an excellent understanding of campaign management and marketing channels that drive loyalty and make customers feel special.

You'll need plenty of energy and a willingness to work as part of a developing team with some great colleagues - great communication skills and the ability to build relationships quickly are essential.

What We Offer

RNIB prides itself on being a great place to work with a positive, progressive culture. We offer a wide range of benefits including 26 days of holiday per year (plus bank holidays) which rises with service, enhanced family friendly benefits, a contributory pension scheme with an employer contribution of up to 11% and a rewards platform with employee discounts across over 800 retailers.

For more information on our available benefits, please visit our .

How to Apply

If you'd like to apply for this opportunity, please apply online, uploading your CV and supporting statement, telling us how you meet the essential criteria in the person specification.

Role: Business Development Manager
Salary: £42,000
Location: Wherever you are in the UK! We are more interested in your passion than your postcode because we want the best people to come and work for SignHealth. Occasional travel will be required
Hours: 37 hours per week, Monday-Friday
Report to: Head of Business Development

Closing date: 29 May 2025

About the role

SignHealth is a passionate and unique deaf-led charity, committed to creating a future where there are no barriers to good health and wellbeing for deaf people. 

Our work is varied and aims to promote easier access to healthcare and information. We partner with the NHS and other services and take on projects, carry out research, and raise awareness. We also deliver our own services to reach deaf people in our shared language (BSL) in their moment of need, through domestic abuse support, therapy, advocacy and residential services. 

As Business Development Manager, you will drive SignHealth’s growth by securing funding and building partnerships with government bodies, statutory funders, and key partners. Your work will help expand deaf-led services in mental health, domestic abuse, social care, and children and young people’s support.  

You will identify new funding opportunities, craft compelling bids and tenders, and support service sustainability through strategic development. Working closely with internal teams and external stakeholders, you will play an essential role in helping SignHealth thrive and deliver vital support for deaf people.  

Your key priorities will include: 

• Increasing bid capacity within the Business Development team to obtain more funding.  
• Supporting the growth of SignHealth’s commercial consultancy services.  
• Assisting in the business development of our social care services.  

You will be involved in income generation, identifying and pursuing funding opportunities from statutory bodies, government contracts, and commercial sources and assisting in monitoring the performance of secured contracts and funding agreements. You will represent SignHealth at events, foster strategic partnerships, and strengthen relationships with funders and stakeholders.  

Do you have proven track record in securing income from government and statutory bodies? 

Do you have demonstrated success in leading proposals, tender bids, or grant applications? 

Do you have strong project management, relationship management and stakeholder engagement skills?  

Why choose SignHealth?

We will work alongside you during your career with SignHealth to maximise your full potential with training and development to help you become the best you!

Working with your line manager you will receive an in-depth induction to give you great insight into our charity and what we do.

You will find out the role you will play in helping SignHealth deliver its mission.

Join our learning pathway with BSL, we offer paid training and development to further your BSL knowledge.

Wellbeing is at the heart of everything we do! It’s not just about our clients, it’s about you too.

Being a SignHealth employee you will also receive:

• 25 days holiday per year plus bank holidays (pro-rata)
• 2 wellbeing days per year (pro-rata)
• Company’s pension scheme with Standard Life from your first day of employment. Employer contribution amount: 6% of your salary, minimum employee contribution of 5%
• Eye care vouchers
• 5 days per year of paid study leave (CPD) (pro-rata)
• Expenses policy which allows payments for items when working away from home
• 2x salary life assurance scheme (death in service)
• Fully funded BSL training
• Sick pay policy
• Equipment and furniture desk/ chair to work from home.
• Refer a friend £200 voucher for both the referee and referrer!

To Apply

If this sounds like a position you would be interested in, please apply today!

To apply, please use our online application form.

We positively encourage applications from deaf people, disabled people, people of colour and people from the LGBT+ community. We will support all applicants along the journey of our recruitment process.

Offers of work are subject to: DBS check, Right to Work checks, satisfactory references and Medical Health clearance.

Job purpose

This is an exciting time to join Action for ME. With developments in research and policy alongside delivering services which are in high demand, you will enjoy working in a fast-paced and continually changing environment. You will be responsible for overseeing operational programme design and delivery, reporting of progress, and measuring the impact of all Action for ME work to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow. You will also assist the Chief Executive in implementing the organisational strategy, and by adapting and evolving delivery models on the ground. As you will have operational management and oversight for our Healthcare Services and hold the Designated Safeguarding Lead role for the organisation, you will bring considerable services-related experience at a management and leadership level. The Chief Executive will focus predominately on external matters and therefore you must have experience of managing an organisation to achieve high quality programmes with evidenced impact and motivated teams. You will act for the Chief Executive on topics, as agreed, and deputise during their absence.

Key duties

1. Leadership

• Ensure that children and adults with ME are at the heart of everything we do through meaningful engagement and participation to influence all aspects of our work.
• Deputise for the CEO and represent and promote the Charity at national meetings and events.
• Deputise for the CEO during periods of absence, and in relation to specific matters, issues or elements of operation as delegated from time to time by the CEO, ensuring a consistency of approach and decisions aligned with the organisation’s objectives.
• With the CEO and HR Business Partner, lead on implementing the People and Culture Strategy and ensuring our Equity, Diversity, Inclusion and Belonging plan is achieved.
• To provide support, leadership and coaching to the Management Team to ensure the smooth running of the organisation and development of the Charity.
• Contribute to the development of the overall strategy for Action for ME, ensuring that the best use is made of available resources within agreed priorities. Ensure that agreed strategy is delivered to target and in line with agreed budgets.
• Work closely with the Chief Executive and Trustees to ensure effective reporting to the Board and sub-committees.

2. Operations & management

• Manage the day-to-day operations of the Charity ensuring high quality service provision that meets all best practice, legal and regulatory frameworks and internal policies and procedures.
• Hold overall management responsibility for our Healthcare Services including the role of the CQC Nominated Individual, ensuring all regulatory requirements and compliance are met.
• Manage the staff and volunteer team, including holding regular meetings and ensure the efficient running of the office ensuring a culture that supports, inspires and motivates the team while ensuring required standards and quality are met at all times through effective performance management.
• Act as the organisational Designated Safeguarding Lead (children and vulnerable adults), working closely with the Designated Safeguarding Officers, colleagues and the Safeguarding Lead Trustee; facilitate the annual safeguarding audit (led by the Lead Trustee) and ensuring safeguarding standards across the organisation are maintained.
• Contribute to the learning and development of key personnel including coaching support (either directly or through the identification of external coaches) to enhance performance.
• Establish (where not already in place) and maintain a clear performance outcome-focused management system driving positive change and improvement across all teams.
• Ensure that policies and procedures are effectively implemented and kept up-to-date to enable the effective management of operations and support growth.
• Take the lead role for data protection, health and safety, compliance and risk management across the organisation and act as the Designated Safeguarding Lead.

3. Finance & income generation

• Hold financial leadership responsibility, working closely with the Finance Manager and the Fundraising Director to ensure sustainability for our work.
• Ensure effective financial management with procedures in place which are kept up-to-date and implemented accordingly.
• Provide support and engagement, where appropriate, to actively grow our income.

4. Working with others

• Lead, nurture and develop relationships with key stakeholder groups and partner organisations, both locally and nationally, supporting Action for M.’s place as the ‘go to’ organisation for people affected by ME
• Lead on new business ideas and pilot projects in line with the strategic objectives; with colleagues, develop the business case, identify and manage risks, lead implementation across teams, evaluate success and learning and make recommendations for future development.

5. Other key accountabilities

• Be proactive in keeping up to date with developments affecting operations and maintain and improve personal competence through continuous professional development.
• Take direction on projects and priorities from the CEO, which may vary from time to time.
• To ensure best value in all service delivery.

Person specification

Experience and Knowledge

• Proven experience in an operations, leadership, or senior management role, ideally within the charity service delivery or healthcare sector, with the ability to develop and implement strategic plans that drive organisational growth and reporting that demonstrates impact delivered. If you come from outside a support services background, you must demonstrate sound understanding of the regulatory and best practice requirements related to delivering support and/or healthcare services.
• An understanding of ME and associated/overlapping illnesses, the impact on people affected by it or a commitment and ability to understand the illness and lead services to meet the needs of children and adults with ME
• Experience managing multi-disciplinary teams, including remote workers, and fostering a supportive workplace culture where change is a constant.
• Safeguarding understanding at a management/decision-making level.
• Proven experience of building and nurturing strong relationships internally and externally at all levels.
• A sound understanding of outcome-focused, effective performance management, quality assurance and risk management.
• Strong financial acumen, including budgeting, financial planning, and resource management in the voluntary sector.

Skills and Behaviours

• Experience of governance, risk management, and compliance, including within regulated services, ideally within a charity and/or service delivery setting.
• Proven ability to think strategically, balance competing demands, use initiative to solve problems and actively seek innovative approaches to problem solving and delivering results.
• Strong interpersonal skills including motivational, negotiating influencing and networking skills which build strong internal and external relationships.
• An ability to understand, analyse and make effective use of data across all of our work.
• A proven ability to coach and motivate staff and to build and lead teams reflecting organisational culture and values, a respectful, constructive and energetic style.
• Proven, strong MS Office skills that supports writing, email, internet and database use.
• Demonstrable ability to work within our organisational values

Interview: The first round of panel interview scheduled to take place in Bristol on the 24th of June 2025.

Vision of adventure, a small outdoor charity based in the Lake District , is seeking an experienced fundraiser to join our team. We specialise in working with people with visual impairments facilitating outdoor adventures, social connection and access to specialist coaching. To achieve this the organisation partners visually impaired individuals with sighted guides for residential weekends focusing on: long walks, canoeing, climbing, tandem biking, and more. The team comprises five part-time workers, numerous volunteers, and the board of trustees. We all work remotely, use each others first names, and have flexible scheduling.

The role of a fundraiser is paramount to our continued sustainability. You will be solely responsible for our fundraising initiatives. The charity has a commendable track record of raising funds, and you will be expected to surpass these targets as a professional fundraiser. An engagement officer will support your role by gathering feedback and preparing draft funder impact reports.

You will have extensive demonstrable fundraising experience. You will be personable, be an excellent communicator , make appropriate use of information communication technology, and capable of managing your own time and workload. 

We are open to applications that combine this role with that of the engagement officer, which is also advertised at this time.

The role may suit someone who may be stepping back from a busy office environment, have a disability, or caring responsibilities where the remote nature and flexible scheduling would be an asset.

We are looking for an Engagement Manager (East of England) to join us on a fixed term contract, for 12-months, to cover maternity leave.

About the role

The key purpose of the Engagement Manager role is to deliver regional Sight Loss Councils across the East of England and to engage with blind and partially sighted people across the region.  We currently have two Sight Loss Councils (SLCs) in this region, so the postholder will be expected to care-take and develop both SLCs, focusing on the retention of the volunteers engaged and making sure the projects and work they are involved in, continue with success. You will also be managing and developing stakeholder relationships across all the areas in which we work including transport and health sectors, as well with local authorities and arts and culture venues in the region.

About you

You will have the passion and ability to use your lived experience or experience to influence change, for the benefit of blind and partially sighted people. As an experienced volunteer manager, you will engage and lead Sight Loss Council members in the implementation of the region’s business plans to bring about change across transport, health and the built environment, as well as areas of local interest such as arts and culture or retail.

You will be a self-starter and work well on your own but will also enjoy being a part of a team of other Engagement Managers across the country, with whom you can learn from, as well as share good practice with.

About us

At Thomas Pocklington Trust, we’re promoting equality and inclusion blind and partially sighted people in every aspect of society. One of our many missions is to establish Sight Loss Councils across the UK, to tackle local issues and work with businesses and service providers to improve the accessibility of their services.

Pathfinders Neuromuscular Alliance is seeking a strategic and creative Communications, Engagement and Policy Manager to lead our outreach, advocacy, and communications efforts. This part-time leadership role is ideal for someone passionate about empowering disabled communities, building influence, and shaping impactful campaigns in a flexible, supportive work environment.
 

Job Title: Communications, Engagement and Policy Manager

Location: Flexible (with occasional travel required)

Reports to: CEO

Salary: £17,280-18,720 gross per annum (£36,000-£39,000 FTE)

Hours: Part-time, 18 hours per week 

About Pathfinders Neuromuscular Alliance

Pathfinders Neuromuscular Alliance is a charity dedicated to empowering, supporting, and advocating for individuals living with neuromuscular conditions. Our mission is to ensure that those affected by these conditions have access to the resources, representation, and information they need to live fulfilling and independent lives. 

Job Summary

We are looking for a creative, driven, and collaborative Communications, Engagement and Policy Manager to lead on internal and external communications and to deepen engagement with our members, stakeholders, and the wider community. This is a key role in growing our influence, raising awareness of our work, and supporting our mission to empower people with neuromuscular conditions. Your work will ensure that our user base remains actively engaged, well-informed, and central to our projects and campaign planning. You will oversee an Engagement Officer, Social Media Officer, and Campaigns and Advocacy Officer, working collaboratively to amplify our impact, strengthen user connections, and further our mission.

Key Responsibilities

1. User Engagement and Relationship Management

• Develop and implement strategies to enhance engagement with our users across projects, events, and online platforms, ensuring their voices are integral to our work.

• Work with the Engagement Officer to design and coordinate events, workshops, and other engagement activities, both in-person and online, that support community connection and provide valuable resources to users.

• Gather and analyse feedback from users to ensure our services, content, and campaigns remain relevant and responsive to their needs.

• Manage the CRM and membership of the charity in line with the membership policy.

 2. Content Creation and Communications

• Develop and implement a communication strategy for the organisation to set our key messages, approach and KPIs for engaging with individual, community and professional audiences as well as for internal communications.

• Support the Social Media Officer in developing and implementing a communications plan in particular focused on our social media based activities and content creation.

• Oversee and produce high-quality content for digital platforms, newsletters, reports, and publications that engage and inform our audience.

• Lead on creating and placing feature articles, policy briefings and press releases, and serve as the main media contact to ensure consistent, clear messaging. 

3. Policy, Campaigning, and Advocacy

• Work with the CEO to develop and implement, through the Policy and Campaigns Team, a campaigns strategy that responds to the needs of the neuromuscular community and creates positive, meaningful change for our community.

• Collaborate with the Campaigns and Advocacy Officer to formulate and promote evidence-based policy positions, engaging key stakeholders in government, healthcare, and related sectors.

• Support the Campaigns and Advocacy Officer to expand the Pathfinders advocacy service and drive referrals to the service.

• Represent the organisation at events, sector meetings, and forums to build our profile and increase our influence on policy issues relevant to our community.

 4. Team Leadership and Development

• Manage, support, and foster the professional growth of the Engagement Officer, Social Media Officer, and Campaigns and Advocacy Officer, building a collaborative and empowered team.

• Set team objectives and KPIs, monitor progress, and provide regular feedback to ensure alignment with organisational goals and impact.

5. Stakeholder Engagement and Partnership Development

• Cultivate relationships with relevant stakeholders, including influencers, partner organisations, funders, policymakers, and the neuromuscular community.

• Work closely with the CEO to manage community partnerships, ensuring alignment with organisational goals and expanding opportunities for user engagement.

  6. Organisational management

• Support the CEO with the overall running of the organisation by attending meetings of the management committee as a member of the Senior Leadership Team, taking on additional tasks as agreed.

• Provide contingency support to the  Senior Leadership Team to cover essential tasks such as reporting hours to our payroll team in the event of staff absence.

• Maintain an overview of projects and teams across the organisation to provide short-term management and HR support in the event of staff shortages or incapacity.

• Review, approve and document payments in the charity using our software and finance process.

• Support the development of funding bids and project plans for introducing new projects.

• Represent the Senior Leadership Team at external events and in meetings with Trustees and Members.

Qualifications and Experience

• Bachelor’s degree in communications, public policy, engagement, or a related field (or equivalent experience).

• 3-years experience in a communications, policy, or engagement role, ideally within a charity or non-profit setting.

• Experience engaging directly with user communities and developing outreach initiatives.

• Strong writing and editing skills with experience producing content for a variety of platforms including Youtube.

• Experience managing a small team to achieve strategic objectives.

• Knowledge of or strong interest in the healthcare, disability, or neuromuscular sector is desirable.

• Lived experience of a neuromuscular condition is desirable but not essential.

Skills and Attributes

• Strategic thinker with the ability to balance advocacy, engagement, and communication initiatives effectively.

• Strong interpersonal and communication skills, with a demonstrated ability to build relationships across diverse audiences.

• Ability to manage multiple projects, prioritise, and maintain high standards under tight timelines.

• Proficient in social media management, content creation, and analytics.

• A commitment to advocating for and advancing the rights of individuals with neuromuscular conditions.

What We Offer

• The opportunity to make a meaningful impact within a purpose-driven, supportive organisation.

• Flexible working arrangements to promote work-life balance.

• Ongoing professional development opportunities and the chance to lead impactful campaigns and user engagement efforts.