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As the Chief Operating Officer (COO), you will play a critical role in shaping the operational future of Mermaids. Working closely with the CEO and wider team, you will lead the development and delivery of robust finance, people, income generation and operational strategies that ensure we are well equipped to meet the needs of the communities we exist to serve. Mermaids is a charity with deep meaning and purpose for our beneficiaries, and the work we do has never been more important.
We are looking for someone with a track record of delivering meaningful transformation across finance and operational functions, ideally in a charity or values-driven setting. You will bring a collaborative and strategic mindset, with the ability to lead teams through change while maintaining focus on care, impact and accountability.
This role is fully remote, full time with a four day working week (32 hours).
Mermaids is an equal opportunity employer. We encourage applications from those with lived experiences (directly or indirectly) and/or close ties to the LGBTQ+ community. We actively support and encourage people from a variety of backgrounds and experiences to join us and shape what we do. We are particularly keen to receive applications from BPOC (black and people of colour) and/or disabled and trans candidates.
Supporting trans, non-binary and gender-diverse children, young people and their families since 1995
The client requests no contact from agencies or media sales.
Role Overview
The Talent Set are delighted to partner with CleanupUK on a fantastic Trusts and Philanthropy Fundraising Lead role. This is a key member of the income generation team, responsible for securing funding from trusts, foundation, Lottery and other non-corporate grant-making sources to support their work in deprived communities.
Key Responsibilities
- Implementing existing and future annual workplans, complemented with your own input into maximising CleanupUK’s revenue from trusts, foundations, The Lottery and other appropriate sources
- Raising the non-corporate annual budgeted fundraising revenue
- Managing the part-time freelance Local/Regional Trust and Foundations Fundraiser to help them maximise their revenue
- Managing the part-time freelance National Trusts and Foundations Fundraiser to help them maximise their revenue
- In conjunction with the Chief Executive, nurture the key existing funder relationships
- To develop strong and close relationships with new key trust and foundation funders
- To optimise the relationships to ensure good communication between CleanupUK teams on fundraising matters
- The role will involve both hands-on fundraising and also significant involvement in planning CleanupUK’s future strategy
- Contribute to the exploration of appropriate new revenue streams for CleanupUK
Person Specification
- Experience in trusts and philanthropy fundraising, ideally within the charity sector.
- Excellent written and verbal communication skills, with the ability to craft creative and compelling proposals from diverse programme areas.
- Strong relationship-building and networking abilities.
- Proven track record of securing 5 and 6 figure gifts from trusts, donations, lottery, statutory or major donor fundraising
- Organised and detail-oriented, capable of managing multiple projects simultaneously.
- Self-motivated with a proactive approach to identifying opportunities.
What’s on Offer
Salary: £42,000 - £45,000 (depending on experience)
Location: Remote, with travel for occasional internal meetings and to meet funders
How to Apply
To apply, please submit your CV demonstrating your suitability for this role by clicking the 'apply now' button (please do not apply via email). We aim to get back to all successful candidates within 48 working hours.
Commitment to Diversity
The Talent Set are committed to diverse and inclusive recruitment practices, ensuring equal opportunities for all applicants regardless of race, religion or belief, sex, sexual orientation, gender reassignment, marriage and civil partnership, pregnancy and maternity, disability, or age. We actively encourage applications from a wide range of backgrounds and are always happy to make reasonable adjustments to ensure a fair recruitment process.
- Travel required: 15 days / year (approx.)
- Location: Home-based in either UK, Germany or Spain.
We are seeking a Researcher to support the activities of the Patient Evidence Department of Myeloma Patients Europe (MPE).
Please send your CV and cover letter at recruitment @mpeurope. org. Applicants must have the right to work in the UK, Germany or Spain. Applications without a cover letter will be rejected.
The following tasks and core responsibilities are non-exhaustive and subject to change depending on needs of the organisation.
Job Purpose
The Researcher will support the Patient Evidence department in generating, analysing and communicating patient-centred evidence to inform clinical, regulatory, industry, academic and policy decision-making, and to fuel progress across MPE programmes and activities. The role involves working with qualitative and quantitative data, supporting research projects and contributing to evidence-based outputs that amplify patients’ experiences and needs. The Patient Evidence department conducts our own patient-focussed research and collaborates on external projects with patient and medical organisations, universities, clinical teams, industry partners and regulatory bodies.
Main Duties and responsibilities
Perform the following duties in conjunction with and under the guidance of the Head of Patient Research:
- Independently design research projects and develop research protocols aligned with MPE’s research strategy, including surveys, interviews and literature reviews.
- Support the development of proposals to secure public and private funding to support research activities.
- Independently conduct assigned research tasks in accordance with project deliverables and timelines.
- Conduct and analyse qualitative (interviews, focus groups) and quantitative research (surveys).
- Conduct desk research (systematic and non-systematic literature reviews) on topics such as patient experiences, health systems and psychosocial impacts of myeloma.
- Maintain accurate records of participant data, safeguarding the confidentiality of participants and patient data, as necessary.
- Write up research results and prepare visualisations of data for different audiences (including for patients, clinicians, academic journals).
- Disseminate research results including presentations at international and national conferences, internal and external meetings and workshops. Represent MPE at internal/external meetings when needed.
- Collaborate with communications colleagues to design strategies to disseminate our research to wider audiences.
- Collaborate with relevant stakeholders to develop recruitment and involvement strategies to enhance participation from underserved groups and from different parts of Europe.
- Engage with patients, families, clinicians, patient organisations and other stakeholders involved in MPE patient evidence projects and other myeloma research.
- Provide administrative and organisational support for the Research Advisory Committee.
- Contribute to our member research support training programme including delivering workshops and training events on research design and methodology.
Other responsibilities
- Undertake any other reasonable duties as required by the Head of Patient evidence.
- Critically appraise and provide advice to the wider MPE team on research and evidence requests.
- Build good relations with members, internal and external stakeholders (including doctors, researchers and medical representatives within companies).
- Respond to external patient organisations’ requests on research and evidence topics.
- Attend scientific congresses and meetings and stay abreast of important developments related to myeloma patient evidence.
- Develop content for MPE website, social media and other communications.
- Participate in advisory boards for the pharmaceutical industry.
- Engage with training and continuing professional development.
Essential criteria
- An undergraduate degree in a relevant subject (such as psychology, social sciences, health policy, health and social care, public health or related fields)
- Master’s degree in a relevant subject (MRes Health Research, MPH, or health-related subject MSc with substantive research component)
- A minimum of 3 years experience conducting applied health research
- Knowledge and experience of qualitative and quantitative research methodologies including surveys, focus groups and interviews applied to health-related research
- Strong skills in qualitative, quantitative or mixed-methods analysis.
- Understanding of principles of Good Clinical Practice in research.
- Proficient at Office suite – Word, Excel, PowerPoint (or equivalent), and specialist quantitative/qualitative analysis software (e.g. SPSS/R, or Atlas/Nvivo).
- Ability to work from home in a virtual setting with a team spread across Europe.
- Strong listening, communication and presentation skills.
- Rigorous work methods and high attention to detail.
- Demonstrated excellence in writing, proofreading, and editing in English.
Desirable criteria
- A PhD in a related field
- Project management experience
- Experience in cross-national research
- Experience in working with patients, researchers, doctors and representatives from the pharmaceutical industry desirable
- Experience in systematic or non-systematic literature review
- Publications in peer-reviewed journals
- Familiarity with patient-reported outcomes (PROs) and patient experience data
- Knowledge/expertise of cancer patient experience research
- Knowledge of drug development process and clinical trials
- Knowledge and experience of ethical review procedures
- Fluency in additional European languages
Personal attributes
- Organised, with excellent project management and time management skills.
- Ability to lead and work independently on assigned tasks and take appropriate initiative.
- A motivated and self-aware team player, who can work independently or collaboratively with equal success.
- Ability to explain complex scientific terms and knowledge into lay language.
We offer:
- Opportunity to contribute to impactful, patient-centred work at a European level.
- An exciting position in the emerging field of evidence-based patient advocacy, working together with key patient advocacy leaders across Europe.
- Permanent position with flexible hours giving the opportunity to progress and to integrate in a dynamic, friendly and multi-cultural team working from different European cities.
About MPE
Myeloma Patients Europe (MPE) is a pan-European organisation representing 57 myeloma and amyloidosis patient groups from over 35 European countries. It is registered as an international non-profit organisation under Belgian Law. A Board mainly composed of patients and caregivers is elected by the membership to oversee the strategy and governance of the organisation. A team of 14 staff members runs remotely the day-to-day operations, programmes and services within 4 divisions: Access and Policy, Medical Education and Scientific Engagement, Patient Evidence and Member and Patient Community Programmes.
MPE’s vision is a world where every person affected by myeloma has access to the knowledge, diagnostics, treatment and care they need to have the best possible outcomes and quality of life.
Our mission is to drive advocacy by empowering the myeloma community through research, education and collaboration.
Read more about our strategic goals for 2025-2030 here: w ww.mpeurope.or g/about-mpe/our-goals/
About the Patient Evidence department
The MPE Patient Evidence department was established in 2020 to generate evidence to better understand and articulate patients’ perspectives, influence decision-makers and use evidence as a driving force for progress across our strategic goals. The team is led by Dr Eilidh Duncan and our goal is to lead the development of robust patient evidence to improve experiences, outcomes and access for myeloma patients and their families. We achieve this by spearheading novel patient research initiatives that address gaps in the evidence and ensure the meaningful inclusion of patient perspectives in research design, conduct and interpretation. We use the evidence we generate internally to fuel progress across all MPE programmes and activities and externally by decision-makers including those in clinical, regulatory, industry, academic and policy settings.
The deadline for applications is 1 May 2026 and all applications will be reviewed immediately afterwards. Our hiring team will schedule interviews with successful candidates to take place in the following weeks. We will be in touch following the review period regarding next steps.
If you have any questions in the meantime, please reach out to us at our recruitment email address.