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Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
We are entering a period of unprecedented opportunity. Advances in treatment, increasing recognition of the condition, and growing awareness of healthcare inequalities provide a unique chance to strengthen our impact and expand our reach across the UK. Our ambition is bold: to engage and support at least 50% of the UK myasthenia community as members within the next five years, creating a movement that is representative, influential and impossible to ignore.
The successful candidate will lead the development of a thriving national community of people affected by myasthenia, ensuring that individuals and families feel connected, represented and empowered. They will transform community insight into meaningful campaigns, influence policy and healthcare decision-making, and position myaware as the authoritative voice for everyone affected by the condition.
Success in this role will be measured not only by influence and campaigning outcomes, but by the growth, engagement and mobilisation of our community. The Director will play a central role in delivering our ambition to reach, engage and retain 50% of the UK's myasthenia population as members and active supporters within five years, creating a change-maker movement that is representative of our goals.
Key Responsibilities
Community Growth and Engagement
Campaigning, Policy and Influence
Organisational Leadership
Awareness and Public Engagement
What Success Looks Like
Within five years, the postholder will have:
Person Specification
Essential Experience
Essential Knowledge and Skills
Personal Attributes
We are looking for someone who is:
Why Join Us?
myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
This is a rare opportunity to build a community movement capable of transforming lives. You will lead the growth of a national membership community, shape policy and healthcare conversations, and help ensure that every person affected by myasthenia feels informed, supported, represented and connected.
Together, we aim to ensure that within five years, at least half of everyone living with myasthenia in the UK knows, trusts and actively engages with myaware as their community, their advocate and their voice.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor.
myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Application instructions
Candidates should submit their CV and tailored covering letter by: 11:30pm on Friday.4th September
Provisional interview dates will be week commencing: 28.9.26
Interviews will be held over Microsoft Teams.
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
The client requests no contact from agencies or media sales.
Job Purpose
Sequence ME & Long Covid is one of the most ambitious whole-genome sequencing studies ever undertaken into ME and Long Covid, co-led by Action for ME. Building on the success of DecodeME, this proposed £20 million study will use large-scale, long-read whole-genome sequencing to analyse the entire genetic code of 9,000 people with ME and 9,000 people with Long Covid - making it the world's largest 'long-read' whole-genome sequencing study of any disease.
Current funding supports project mobilisation, partnership development, and the development of the Long Covid arm of the study, including agreeing case definitions and gathering expressions of interest from people with Long Covid. Phase 2 has recently been confirmed, backed by £4.75m from the UK government and a further £174,414 from the WE&ME Foundation, and will focus on sequencing 6,000 ME/CFS samples previously collected through DecodeME using Oxford Nanopore's long-read sequencing technology, running alongside Phase 1.
You will play a pivotal role supporting the Sequence ME & Long Covid project in several different ways. Working closely with the project's management team and other team members, you will help ensure the smooth day-to-day running of this landmark study, providing administrative support to the various people and partners involved in delivering it.
As a self-starter, you will manage a range of tasks including meeting scheduling, taking meeting minutes, preparing governance documents, event administration, and broader project support - no two days will be the same.
You will need to maintain a high level of confidentiality at all times, particularly when supporting governance meetings and handling sensitive project documentation.
As a team player, you will provide comprehensive, confidential and organised administrative support, developing a deep understanding of the project and building strong, effective working relationships with colleagues, researchers and external partners.
Remote working at home can be challenging for some and works incredibly well for others. You will need to be able to work independently, use your own initiative, and remain proactive in maintaining good levels of communication with colleagues.
Key Duties
Person Specification
Essential skills and experience
Desirable skills and experience
Please note, the salary of £24,642.09 FTE per year pro rata is based on a 35-hour week.
Our mission is to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow.
The client requests no contact from agencies or media sales.
Lead change. Shape policy. Amplify the voices of bereaved families.
Child Bereavement UK is looking for an accomplished Head of Policy & Research to lead our evidence and policy agenda at a pivotal time for the charity.
You'll bring a strong track record of leading policy and research activity, developing influential partnerships, and translating evidence into meaningful change. With an established understanding of the policy landscape and the credibility to engage senior stakeholders across health, social care, government and the voluntary sector, you'll play a key role in shaping policy and practice for bereaved families across the UK.
You'll lead our research programme, develop evidence-based positions, build strategic partnerships, and ensure the experiences of bereaved children, young people and parents bereaved of a baby or child are reflected in policy and practice across the UK.
We're looking for someone who:
This is a rare opportunity to shape national conversations, influence decision-makers and ensure lived experience is at the heart of policy and practice.
Please note, the role will involve regular travel to London based conferences, events and network meetings as required, plus occasional travel to team meetings in Birmingham.
Join us and help create lasting change for bereaved families across the UK.
Context of role:
Key responsibilities:
Support Service:
1. Event Coordination and Delivery
1.1: Coordinate and deliver regular community engagement activities, including; coffee mornings and
support events.
1.2: Organise and facilitate regular wellbeing and social activities, such as; walks or group sessions.
1.3: Represent the organisation at regional events, including supporting fundraising and CYP teams
when required.
1.4: Co-lead on bookings and coordination of Ty Uchaf, our respite house.
2. Awareness, Training and Engagement
2.1: Lead on regional awareness training delivery for non-emergency services and community-based
organisations.
2.2: Deliver additional 2wish training programmes as required, including Children & Young People
(CYP) and Bereavement in workplace support training.
2.3: Lead awareness and advocacy activities with local ‘support champions’, including professionals
within non-emergency services.
3. Partnership and Network Development
3.1: Actively engage with local bereavement networks through attendance at meetings, hosting
information stands and building strong professional relationships across the region.
3.2: Develop and maintain effective links with community partners to expand reach and awareness of
services.
4. Volunteer Support
4.1: Act as a key local contact for volunteers.
4.2: Support the recruitment, training and retention of volunteers in collaboration with the wider
team.
5. Administration, Monitoring and Reporting
5.1: Maintain and take ownership of relevant systems and spreadsheets, including those used for:
52: Event planning and delivery
5.3: Marketing and communications
5.4: Contact and engagement tracking
5.5: Professional and family engagement records
5.6: Accurately record interactions with stakeholders, including; families, professionals, champions
and referral partners.
5.7: Monitor and manage posts/content on Facebook family accounts.
6. Quality Assurance and Improvement
6.1: Support quality audits and contribute to continuous improvement processes.
6.2: Collect and review feedback from events and training sessions to inform future development.
2.0 General:
1.1: To be responsible for organising own work agenda, time management and administration
1.2: To keep clear and up to date records on database of activities with families and any ensuing
action
1.3: To promote the on-going work and continued support that 2wish can offer
1.4: To work as part of a team providing support to suddenly bereaved families
1.5: To work alongside support team and maintain a seamless approach to service delivery
1.6: To maintain a high degree of confidentiality in accordance with the charity’s policies
1.7: To show respect and sensitivity for the cultural and religious beliefs of families
1.8: To undertake learning opportunities and seek them out for the team
1.9: To adhere to all company policies and procedures including Safeguarding, Confidentiality,
Health and Safety and Lone Working; and to be proactive in implementing new safe working
practices as appropriate
1.10: To attend weekend and evening community events in support of the charity as necessary
1.11: Participate as and when required in team meetings and one-to-one meetings, and
undertake, as appropriate, courses/training/other developmental activities, which is relevant to
the role
1.12: To contribute to the evaluation and monitoring processes to ensure effectiveness of
services and activities provided
1.13: Contribute on the social media platforms maintained by 2wish
It is the nature of the work that tasks and responsibilities are in many circumstances
unpredictable and varied. All employees are therefore expected to work in a flexible way and
tasks, which are not specifically covered in their job description may have to be undertaken.
This role is subject to a DBS check.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Would you like to make a lasting difference in the lives of children affected by domestic abuse? Join an award-winning trauma recovery service provider that is passionate about making a positive difference to the lives of children and families.
Bounce Back for Kids (BB4K) is a lifeline for children healing from the trauma of domestic abuse and we’ve expanded our service into Oxfordshire.
We are looking for a Service Lead and a Support Worker to join our team on a fixed term contract to help guide children and families on their healing journey.
Position: Bounce Back for Kids (BB4K) Service Lead
Fixed term full time – 37 hours per week, weekdays
Location: Oxford or Reading with frequent travel. Role covers casework activity across Oxfordshire.
Salary range: £35,502 to £43,389 per annum
Position: Bounce Back for Kids (BB4K) Support Worker
Fixed term part time – 18.5 hours per week, weekdays.
Location: Oxford with frequent travel. Role covers casework activity across Oxfordshire area including Cherwell, West Oxfordshire and the wider Oxfordshire area.
Salary range: £13,254 - £16,199 pro-rata per annum (full time equivalent range £26,508 to £32,397 per annum)
About the roles:
As a Service Lead you will play a significant role in supporting children and families affected by domestic abuse, some of your key responsibilities will be to:
· support our families through providing outreach support
· deliver group work for children and parents
· provide 1-2-1 sessions to children and families most in need
· lead a dedicated team of Support Workers
· ensure BB4K activities are planned, coordinated and deliver effectively and manage caseload across the team
As a Support Worker you will play a significant role in supporting children and families affected by domestic abuse, some of your key responsibilities will be to:
· complete assessments to understand the needs of families
· deliver group work for children and parents
· provide 1-2-1 sessions to children and families most in need
· support our families through providing outreach support
About you:
A successful Service Lead will have professional expertise in the field of domestic abuse and hold a qualification or professional experience in social care or childcare support work.
You’ll be experienced at managing a team with effective interpersonal skills to collaborate with a wide range of stakeholders and colleagues. You’ll also have experience of working with vulnerable parents and/or children in a range of community settings and adept at delivering groupwork programmes.
A successful Support Worker will need a good understanding of domestic abuse and the impact on children and families (or an interest in working in this field), with experience of delivering groupwork programmes for vulnerable parents and/or children.
If this sounds like you please visit our website and apply today to join a collaborative and dedicated team who are part of something truly meaningful. You will also find contact details for an informal chat about the role on our website.
We welcome applicants from diverse backgrounds, including those with personal lived experience of domestic abuse or from underrepresented communities, who meet the essential role requirements.
For more information about our BB4K service please visit the Bounce Back 4 Kids page on our website
Closing date: Midday on Thursday 27 August 2026
Early applications are encouraged as we may review and appoint on an earlier basis if a successful candidate is secured.
Other roles you may have experience of could include: Family Support Worker, Family Key Worker, Children’s Support Worker, Domestic Abuse Support Worker, Domestic Abuse Key Worker, Recovery Worker, Assistant Support Worker, IDVA Independent Domestic Violence Advocate, ISVA Independent Sexual Violence Advocate, Family Support Team Leader, Family Key Worker Team Leader, Family Support Manager, Children’s Support Team Leader, Children’s Support Manager, Domestic Abuse Support Team Leader, Domestic Abuse Support Manager etc.
Safeguarding is at the heart of everything we do at PACT. We have robust measures and best practices in place to safeguard and protect the welfare of children, young people and vulnerable adults and we take pride in maintaining outstanding safeguarding standards.
Anyone joining our team is subject to PACT’s safer recruitment pre-appointment enquiries, including a Disclosure Barring Service (DBS). The role description provides information on what our safer recruitment enquiries include and the level of DBS required to work in the role.
All opportunities with PACT are based in the UK.
an adoption charity and family support provider helping hundreds of families every year through outstanding adoption and adoption support services

The client requests no contact from agencies or media sales.
Context of role:
The Outreach Officer plays a key role in raising awareness of services, strengthening community
partnerships and supporting the delivery of high-quality bereavement support activities across the
region. The postholder will engage with local networks, coordinate events, and support volunteers
while ensuring effective monitoring, reporting and continuous improvement.
Key responsibilities:
Support Service:
1. Event Coordination and Delivery
1.1: Coordinate and deliver regular community engagement activities, including; coffee mornings and
support events.
1.2: Organise and facilitate regular wellbeing and social activities, such as; walks or group sessions.
1.3: Represent the organisation at regional events, including supporting fundraising and CYP teams
when required.
1.4: Co-lead on bookings and coordination of Ty Uchaf, our respite house.
2. Awareness, Training and Engagement
2.1: Lead on regional awareness training delivery for non-emergency services and community-based
organisations.
2.2: Deliver additional 2wish training programmes as required, including Children & Young People
(CYP) and Bereavement in workplace support training.
2.3: Lead awareness and advocacy activities with local ‘support champions’, including professionals
within non-emergency services.
3. Partnership and Network Development
3.1: Actively engage with local bereavement networks through attendance at meetings, hosting
information stands and building strong professional relationships across the region.
3.2: Develop and maintain effective links with community partners to expand reach and awareness of
services.
4. Volunteer Support
4.1: Act as a key local contact for volunteers.
4.2: Support the recruitment, training and retention of volunteers in collaboration with the wider
team.
5. Administration, Monitoring and Reporting
5.1: Maintain and take ownership of relevant systems and spreadsheets, including those used for:
52: Event planning and delivery
5.3: Marketing and communications
5.4: Contact and engagement tracking
5.5: Professional and family engagement records
5.6: Accurately record interactions with stakeholders, including; families, professionals, champions
and referral partners.
5.7: Monitor and manage posts/content on Facebook family accounts.
6. Quality Assurance and Improvement
6.1: Support quality audits and contribute to continuous improvement processes.
6.2: Collect and review feedback from events and training sessions to inform future development.
2.0 General:
1.1: To be responsible for organising own work agenda, time management and administration
1.2: To keep clear and up to date records on database of activities with families and any ensuing
action
1.3: To promote the on-going work and continued support that 2wish can offer
1.4: To work as part of a team providing support to suddenly bereaved families
1.5: To work alongside support team and maintain a seamless approach to service delivery
1.6: To maintain a high degree of confidentiality in accordance with the charity’s policies
1.7: To show respect and sensitivity for the cultural and religious beliefs of families
1.8: To undertake learning opportunities and seek them out for the team
1.9: To adhere to all company policies and procedures including Safeguarding, Confidentiality,
Health and Safety and Lone Working; and to be proactive in implementing new safe working
practices as appropriate
1.10: To attend weekend and evening community events in support of the charity as necessary
1.11: Participate as and when required in team meetings and one-to-one meetings, and
undertake, as appropriate, courses/training/other developmental activities, which is relevant to
the role
1.12: To contribute to the evaluation and monitoring processes to ensure effectiveness of
services and activities provided
1.13: Contribute on the social media platforms maintained by 2wish
It is the nature of the work that tasks and responsibilities are in many circumstances
unpredictable and varied. All employees are therefore expected to work in a flexible way and
tasks, which are not specifically covered in their job description may have to be undertaken.
This role is subject to a DBS check.
The client requests no contact from agencies or media sales.
Remote (Surrey and surrounding areas) | 18 – 24 hours
£27,500 pro rata | Flexible working | Real impact
Are you kind, caring and professional – the sort of person who listens deeply, holds space for others, and wants to make a real difference?
At Jigsaw South East, we support children and young people who are facing or coping with the death of a loved one. We’re looking for a compassionate and confident Grief Support Worker to join our small, dedicated team.
In this role, you’ll:
This isn’t just a job, it’s a chance to walk alongside people at one of the hardest points in their lives and offer light, steadiness and support.
We’re looking for someone who brings:
We offer:
If you believe in the power of kindness and want to help children feel seen, safe and supported, we’d love to hear from you.
View our recruitment pack for more information including a full job description and person specification:
The client requests no contact from agencies or media sales.