Knowledge management officer jobs in mid sussex, west sussex

This is an exciting new position for a highly motivated, analytical and collaborative Financial professional with project and grant experience, with a commitment to improve systems and processes, develop a healthy compliance culture and to make a real difference in a growing organisation. The post-holder will provide project support and technical finance expertise to our Global Renewables Alliance (GRA) grant-funded projects and advice on donor-funded or other restricted projects, to ensure accuracy of all finance transactions related to the project and to manage all financial aspects of projects from budget preparation to project closure. 

Essentia Person Criteria:
• Right to work in UK- no Visa sponsorship
• Ability to regularly attend the GWEC office in Southwick (2 days per week)
• Fluency in written and spoken English
• 3 or more year’s post qualified work experience in project finance management and grant management
• Experience of financial management of grants from multiple different donors
• Experience of working on multiple projects without loss of effectiveness
• Commitment to the work and mission of GWEC and the clean energy transition • Proven ability to build good working relationships with non-finance staff0
• IT minded, you are comfortable with various international Accounting Systems and advanced Excel skills (e.g. use of VLOOKUP’s, Pivot tables etc)
• Strong analytic skills and problem-solving abilities.

Desirable Person Criteria:
• Experience within an international NGO environment
• Experience of developing project metrics and KPI
• Experience of grant funded project audits

Summary responsibilities:
1. Grant financial set up, compliance oversight and close out, including audit liaison
2. Complete & accurate transaction processing and quality assurance
3. Regular project financial reporting and analysis Job Description: Senior Grants Financial Officer 2
4. Project financial knowledge is disseminated, and good practice is shared within Finance, Grant and Project teams & GWEC 

We’re looking for a part-time Trusts Fundraising Officer to contribute their skills, experience, and personality to add value to our Trusts team within the Fundraising department at Blesma, The Limbless Veterans.

This home-based role is now available due to the current post holder moving on to new pastures. The Trust team has had incredible success in recent years, which we are eager to sustain and grow. The successful candidate will provide support to the Trusts Fundraising Manager and work alongside a fellow part-time Trusts Fundraising Officer within this ambitious team.

The role is a varied one, focusing on all aspects of the funding cycle – from identifying opportunities and building relationships, to writing compelling applications and providing high level stewardship. The team works collaboratively across the Association to ensure Blesma’s programmes and services can continue to help limbless veterans and their families.

Blesma is unique as a membership Association as well as a charity. Our Members are the heart of all our work – therefore, the impact of our fundraising is clearly visible in the experiences of our inspirational limbless veterans.

If you’re interested, please read the attached Job Description and apply with your C.V. and a Covering Letter detailing why you’d be an ideal candidate for the role and how your experience and skills match those detailed in the Person Specification.

If you are uncertain about your suitability, apply anyway and let us decide! 

Interview dates: 05 or 06 June 2025.

We may close the application down early if we receive a high volume of applications. 

Do you share our dream of a UK where poverty is a thing of the past? 

Founded in 2019, the Poverty Truth Network believes that this can only happen when those most impacted by poverty are at the heart of the movement to end it. Our specific contribution brings together people experiencing poverty with those with responsibilities for alleviating it. “Nothing About Us Without Us Is For Us.” 

Thanks to funding from the National Lottery Community Fund, the PTN is recruiting a Partnerships Manager who will provide management and oversight of key partnerships essential to the delivery of the Network’s Strategic Plan, with a specific focus on the development and delivery of Regional Hubs.

You will have experience of establishing and delivering partnerships; dedicated to social justice; a commitment to collaborative working; and proven management experience.

Key Tasks

• To form part of the Core Leadership Team, providing overall strategic leadership across the Network 
• To manage the Partnership team, setting clear goals and objectives linked to the Strategic Plan 
• To lead on the development and support of Regional Hubs, including support with grant funding and income generation
• To act as the primary point of contact with Regional Hubs, for initial enquiries and ongoing relationships, including with staff and trustees
• To provide oversight of the Network’s Parliamentary work in Westminster and across the devolved administrations
• To oversee the Network’s Learning & Evaluation framework, offering insight and advice as appropriate, ensuring that agreed activities are delivered on time and in budget 
• To be the primary point of contact for partners working alongside the Network to deliver change in line with its Strategic Plan
• To recruit external partners to participate in the Mutual Mentoring programme
• To liaise closely with members of the Amplify Team in the development of national partnerships
• To develop and support work with creative partners to highlight the resilience of those struggling to overcome poverty
• To deputise for the Director as and when required
• To undertake other activities as needed dependent on jobholder’s knowledge, skills and experience

This role involves working from home with some travel.

The For Baby’s Sake Trust is excited to announce that we're looking for a Digital Communications Officer (part-time) to join our team. This role is about helping us expand our digital reach, engage key audiences, and strengthen our online brand presence.

In this position, you'll have the opportunity to manage our social media content, oversee website administration, conduct email marketing, and execute paid and organic digital campaigns. You will also play a vital role in enhancing our digital content strategy, growing our audience, and ensuring brand consistency across all platforms.

If you share our passion for breaking cycles of domestic abuse and giving babies the best start in life, and you have at least 1+ years of experience coordinating social and digital channels for an organisation, this might just be the perfect fit for you. We seek someone who understands best practices and trends and enjoys finding creative solutions to support our growth and drive positive social change.

This position offers a wonderful chance to work with a friendly, dedicated team at an award-winning charity, making a significant, positive impact on families affected by domestic abuse. This is a part-time role (22.5 hours per week) reporting to the Communications Manager. It is a permanent position with a salary of £17,304 per annum (£28,800 per annum full-time equivalent plus 5% contributory pension). Plus, you'll enjoy the flexibility of working from home, with occasional travel.

To apply, please send your completed application form by 11.59 p.m. on Sunday 1st June. We're planning to hold interviews in a central location in London on Monday 16th June.

Once we receive your application, we'll provide you with the link to the equal opportunities monitoring form—this is confidential and voluntary and won't affect the selection process. If you have any questions about the role, feel free to email the recruitment team and a team member will get back to you as soon as possible.

For more information about The For Baby’s Sake Trust, please visit our website.

No agency contact please.

The For Baby’s Sake Trust is excited to announce that we are recruiting a Policy and Public Affairs Officer. This will be a crucial new role as we grow the Trust's reach and impact. You will be dedicated to developing our policy positions and driving external relationships with parliamentarians and change-makers to help break cycles of domestic abuse and give babies the best start in life.

If you share our passion for breaking cycles of domestic abuse and giving babies the best start in life, and you have at least 3+ years of working in policy and public affairs in a related field (ideally domestic abuse, children’s sector, or early years), this might be the perfect fit for you.

This position offers a wonderful chance to work with a friendly, dedicated team at an award-winning charity that significantly impacts families affected by domestic abuse. This is a part-time role (18 hours per week), reporting to the CEO, and comes with a permanent position and a salary of £17,304 per annum (£36,050 FTE). Plus, you'll enjoy the flexibility of working from home, with travel as required (usually to London).

To apply, please send your completed application form by 11.59 p.m. on Sunday 1st June. We're planning to hold interviews in a central location in London on Monday 16th June.

Once we receive your application, we'll provide you with the link to the equal opportunities monitoring form—this is confidential and voluntary and won't affect the selection process. If you have any questions about the role, feel free to email the recruitment team and a team member will get back to you as soon as possible.

For more information about The For Baby’s Sake Trust, please visit our website.

No agency contact please.

We are looking for a passionate, skilled individual to join our diverse and talented team as Policy and Communications Manager.

We are a unique organisation that supports and champions London’s charities and community groups to contribute to a united, thriving and resilient London.

London Plus is a trusted partner of organisations across all London’s 32 boroughs, as well as key London-level organisations including the Greater London Authority and London Councils. We are looking to the future and planning to grow our strategic impact and effectiveness on behalf of the sector.

We are now looking to fill this brand new role, which will build on the solid foundations in place within the organisation to help us tell the story of London’s charity sector, effect positive change and connect with stakeholders to build our influence.

Turning Tides is a charity that supports people experiencing homelessness in West Sussex. While our central office is in Worthing, our work spans the county – from East Grinstead to Littlehampton and across areas in between. With over 20 accommodation projects, community hubs and outreach teams, we offer local single adults tailored support to move towards a more stable future. We strongly believe in addressing the root causes for homelessness, so our specialist teams support in areas such as mental health, substance misuse, tenancy sustainment, IT skills, employment guidance and much more. 

The Fundraising team is small but mighty. We shape and support the raising of funds for Turning Tides, by inspiring compassion for people facing homelessness and aim to engage supporters through powerful storytelling. From supporting and creating fundraising events, engaging with community groups, corporate clients and providing 1:1 stewardship with donors we aim to spread the word of our mission to the wider community, inspiring people to take action in support of those who are impacted by homelessness. This is an exciting time in the Fundraising team as we embark on a review of how we make our supporters and journey one that they value and a part of the work we undertake.

About the role

The Fundraising Officer will work closely with the Fundraising Manager on a wide range of tasks, ensuring our messages reach the right people in the right way. This could include giving talks at local community groups such as schools and churches, delivering fundraising, stewardship of fundraisers and donors. This role will include weekend and evening work to support our fundraising events.

Job Title:  Head of Finance & Business Services

Reports to: Chief Executive

Direct Reports: Finance and Business Administrator

Location: Hybrid - mainly home based working with a requirement to regularly attend meetings and events (mainly in London but also other project areas elsewhere in the UK) and with occasional visits to the Charity's offices. 

Salary: £46,542 Pro Rata

Hours: 3 Days per week

 About Alexandra Rose Charity 

Founded by Queen Alexandra in 1912, Alexandra Rose Charity (ARC) has a long history of supporting people experiencing poverty in the UK. Our vision is for everyone to have access to healthy and affordable food, and our mission is to give families on low incomes access to fresh fruit and vegetables in their local communities whilst advocating for systemic change to address food insecurity and health inequalities.

Since 2014, ARC has pioneered the use of financial incentives to improve access to healthy food and combat food insecurity through our Rose Vouchers for Fruit & Veg projects. To date, we have supported over 11,000 families, including over 20,000 children, to access £3.5 million of fresh fruit and vegetables in their local communities.

To deliver this scale, we work with 73 children and family centres and community organisations, 69 market traders and independent retailers, two fruit and vegetable vans and one fruit and vegetable delivery box scheme. We estimate that our projects have generated a total economic value added of almost £9 million for the local economies of the eight locations where we work: five London Boroughs, Barnsley, Liverpool and Glasgow.

As part of our new five-year strategy, we want to grow our reach and impact as part of a national movement where Rose Vouchers for Fruit & Veg projects are embedded in local and national policies and seen as a key intervention for transforming the diets of communities across the UK.

About the role  

As we launch our new 5 year strategy we are looking for an experienced Head of Finance & Business Services to help deliver our mission and support the growth and consolidation of the charity. As a member of the Senior Management Team, you will play a key role in implementing our new strategy as well as managing risk.

You will take overall responsibility for the organisation’s financial management, working closely with the Chief Executive and the Treasurer.

You will provide effective finance business partner support to other functions within the charity to support its fundraising, operations and development.

You will also be responsible for the line management of the Finance & Business Administrator, working with the Chief Executive to both oversee and support the business services function of the charity.

We want our organisation to reflect the diversity of the communities we work in, and we welcome applications from people from all backgrounds.

The closing date is Friday, 30th May 2025, at 5:00 pm

Interview Process: The selection process may include two interviews:

First Interviews: will take place online from the 16th to 19th June

Second Interview  (if selected) TBC

Flexible home working, with requirement for travel to BDA Office Birmingham twice a month.

Salary £50,755 per annum - full time 36 hours per week (job share will be considered)

Benefits include: 30 days holiday, working flexibly policy, non-contributory healthcare benefits and a company pension scheme.

Deadline for applications:    Friday 23rd May 2025

Interview Date:  Thursday 5th June 2025

We are the British Dietetic Association (BDA). We are an award-winning not-for-profit organisation, based in Birmingham, employing dedicated, dynamic and professional staff who deliver services for our membership of more than 12,000 dietetic professionals.

We are the leading organisation of nutrition professionals in the UK; representing the entire nutrition and dietetic workforce across all sectors. Our vision is to improve the health of the UK population by protecting and improving health and care services, developing health and social care policy, improving the impact of dietetics and promoting positive discussion on food, nutrition, wellbeing and health.

Role details:

The BDA is seeking a new Research Manager to work as part of the Education and Professional Practice Team, leading on the research and impact activities of professional dietetic practice. The role will also provide line management within the team.

The role will support the BDA’s Strategic Plan 2024-34 and lead the growth and delivery of the annual Research Symposium. The role will suit a candidate with a sound understanding and experience of the breadth of dietetic practice and research, and the factors that influence it. Working innovatively the post holder will develop and progress research within dietetic practice, building confidence in the dietetic workforce to be research active.  

 Ideal candidate:

We are looking for somebody who is an expert in research methodologies, and appraisal and is comfortable setting and influencing research strategy.  Ideally we would like somebody who has or is studying for their doctorate in dietetics and experience working in a practice setting would be advantageous. This is a senior internal and external facing role working alongside the Director of Education Practice and Research, and the Education and Practice Managers. The candidate will enjoy supporting colleagues and members to engage and deliver research related projects, and demonstrate impact through evidence-based practice.

In return, we offer exciting opportunities to raise the profile of research, innovate, and build purposeful external stakeholder relationships. The BDA have a collection of small departments who all work closely together and have a ‘one team’ ethos. The role will require somebody who enjoys the challenges that come with delivering and reporting on strategic targets and measuring impact.

For full details of the role, please download and refer to the Job Description.

We would strongly encourage any dietitian interested in the role to contact the BDA for an informal, confidential discussion about this post and opportunities for flexible working. Please refer to our website for contact details.

The job advert is shown on the BDA website, and for discussion about the role, please telephone the Birmingham office number and ask for Najia.

Please note: Only applicants who submit a covering letter will be shortlisted for interview.

About Alexandra Rose Charity 

Founded by Queen Alexandra in 1912, Alexandra Rose Charity (ARC) has a long history of supporting people experiencing poverty in the UK. Our vision is for everyone to have access to healthy and affordable food, and our mission is to give families on low incomes access to fresh fruit and vegetables in their local communities whilst advocating for systemic change to address food insecurity and health inequalities.
Since 2014, ARC has pioneered the use of financial incentives to improve access to healthy food and combat food insecurity through our Rose Vouchers for Fruit & Veg projects. To date, we have supported over 11,000 families, including over 20,000 children, to access £3.5 million of fresh fruit and vegetables in their local communities.
To deliver this scale, we work with 73 children and family centres and community organisations, 69 market traders and independent retailers, two fruit and vegetable vans and one fruit and vegetable delivery box scheme. We estimate that our projects have generated a total economic value added of almost £9 million for the local economies of the eight locations where we work: five London Boroughs, Barnsley, Liverpool and Glasgow.   
As part of our new five-year strategy, we want to grow our reach and impact as part of a national movement where Rose Vouchers for Fruit & Veg projects are embedded in local and national policies and seen as a key intervention for transforming the diets of communities across the UK.

About the role
ARC has made significant progress in evaluating and demonstrating the impact of our Rose Vouchers for Fruit and Veg projects. We have developed evaluation tools and theories of change to measure how our work improves the diets, health, and well-being of children, adults and families. Additionally, we have commissioned economic impact assessments, offering valuable insights into the wider benefits of our approach.
As we launch our new five-year strategy, we are seeking a passionate Impact and Evaluation Manager to lead our research and evaluation initiatives. This role will play a key part in assessing and enhancing the effectiveness of our projects, strengthening our evaluations by exploring causal links to health outcomes and tracking long-term beneficiary impact beyond their time in the projects.
Working closely with the Head of Advocacy, Impact, and Communications, the Impact and Evaluation Manager will identify gaps in our evidence base, collect compelling data and stories, and help build a strong case for policy change. They will also develop academic partnerships, leveraging existing relationships to enable rigorous research that deepens our understanding of the impact of our work.
This role is pivotal in ensuring our strategies are data-driven, our outcomes are measurable, and our impact is effectively communicated to stakeholders, funders, and the communities we serve
We want our organisation to reflect the diversity of the communities we work in and we welcome applications from people from all backgrounds.

Salary: £28,000 plus London Weighting (£2,600) dependent on location

Location:Remote with frequent travel to projects in Hampshire, Berkshire and London. This includes projects in Aylesbury, High Wycombe, Havant, Portsmouth, Southampton, Slough and Reading. You can also work from FoodCycle’s office in Vauxhall, London

Hours: Full time, 37.5 hours per week

Contract: Permanent

If you love food and people, then this is the ideal job for you! We are FoodCycle, a multiple award-winning charity, with a vision to make food poverty, loneliness and food waste a thing of the past for every community.

In this role you will have the opportunity to manage and develop our community meals projects in your region. Our projects are spaces where volunteers are empowered to run their own community meals using surplus food. Our guests can look forward to a hearty weekly meal in their local community where they will make friends and feel well nourished.

You will manage recruit and train local volunteers to be empowered to run these projects. You will liaise with a network of charities, build local relationships and create the most incredible community meals in your area. You will also line manage a Project Support Officer working across London and the South East.

You will be an excellent communicator, with experience of recruiting and managing volunteers. Using strong organisation skills, you will ensure our volunteers are trained, supported and on-message with FoodCycle strategy, and are confident enough to self-organise and make a success of their projects.

You will live within Berkshire, Hampshire, Surrey, or London with easy access to these counties (South, West, or North West London). You will be willing and able to travel within the region, and to work some evenings and weekends.

Benefits: We offer 26.5 days holiday plus bank holidays, and additional holiday for length of service (pro-rata for part-time). Our healthcare package allows staff to claim money back on healthcare bills and includes access to telephone counselling and online GP appointments.

How to apply:  Please upload a CV of no more than two sides, and a covering note/letter of no more than two sides explaining why you are suitable for the role, via our vacancy website.

Deadline for your application:  11.59pm on Monday 26th May 2025.

Interview process: Shortlisted candidates will need to complete a 30 minute task prior to interview.

Inclusivity: FoodCycle is an equal opportunity employer and welcomes applications from individuals of all backgrounds. We are committed to creating an inclusive and diverse workplace where everyone feels valued and respected.

Safeguarding: Safeguarding is Everyone’s business – FoodCycle is committed to safeguarding and promoting the welfare / wellbeing of children, young people and adults at risk. This role will therefore require a satisfactory Enhanced DBS check.

Please note that you will need to have existing Right to Work in the UK to apply for this role. We are unable to provide visa sponsorship.

About Alexandra Rose Charity 

Founded by Queen Alexandra in 1912, Alexandra Rose Charity (ARC) has a long history of supporting people experiencing poverty in the UK. Our vision is for everyone to have access to healthy and affordable food, and our mission is to give families on low incomes access to fresh fruit and vegetables in their local communities whilst advocating for systemic change to address food insecurity and health inequalities.
Since 2014, ARC has pioneered the use of financial incentives to improve access to healthy food and combat food insecurity through our Rose Vouchers for Fruit & Veg projects. To date, we have supported over 11,000 families, including over 20,000 children, to access £3.5 million of fresh fruit and vegetables in their local communities.
To deliver this scale, we work with 73 children and family centres and community organisations, 69 market traders and independent retailers, two fruit and vegetable vans and one fruit and vegetable delivery box scheme. We estimate that our projects have generated a total economic value added of almost £9 million for the local economies of the eight locations where we work: five London Boroughs, Barnsley, Liverpool and Glasgow.   
As part of our new five-year strategy, we want to grow our reach and impact as part of a national movement where Rose Vouchers for Fruit & Veg projects are embedded in local and national policies and seen as a key intervention for transforming the diets of communities across the UK.

About the role
ARC is a data-rich organisation, having made significant progress in our data analytics activities in recent years. Using the CRM Socialsuite , we have developed sophisticated project performance dashboards, which are critical in supporting both our delivery and reporting efforts. Our servers are soon to be hosted in MS Azure, and we are planning to maximise the use of this platform in the coming years.  We have also made considerable progress in evaluating and demonstrating the impact of our Rose Vouchers for Fruit and Veg projects. We have developed evaluation tools and theories of change to measure how our work improves the diets, health, and well-being of children, adults and families. 
As we launch our new five-year strategy, we are looking for a passionate Data and Insights Officer who is committed to social change, health equity and inclusion, and can coordinate and develop our data analysis initiatives, as well as provide research and analytical support for our research and evaluation work.
Working closely with the Head of Operations and the Impact & Evaluation Manager, this role will play a key part in supporting the assessment and enhancement of the effectiveness of our projects as well as providing essential insights to support the strengthening of our fundraising and reporting efforts and project performance monitoring.
 
This role is pivotal in ensuring our strategies are data-driven, our outcomes are measurable, and our impact is effectively communicated to stakeholders, local authority funders, and the communities we serve. 

We want our organisation to reflect the diversity of the communities we work in and we welcome applications from people from all backgrounds.

Communications Officer – Scotland
Reference: APR20257121
Location: Flexible in Scotland
Salary: £27,123.00 - £28,956.00 Per Annum
Contract: Permanent
Hours: Full-Time, 37.5 hours per week
Benefits: Pension scheme (7%), Life Assurance scheme, 26 days' annual leave (plus bank holidays)

We are seeking a home-based Communications Officer to join RSPB Scotland's communications team.

You'll have an interest in or passion for nature and the outstanding communications skills, knowledge and the experience we need to tell inspiring stories of the conservation projects, our network of nature reserves and our colleagues that are striving to help protect and restore nature across Scotland.

What's the role about?

You'll be part of a dynamic team working across Scotland to unearth and tell great stories from colleagues that inspire key audiences about RSPB Scotland’s nature conservation work.

The role is diverse and busy, working on the roll out of RSPB-wide campaigns like Big Garden Birdwatch, managing and creating content for social media platforms, responding to press enquiries and building relationships with colleagues working in different areas of Scotland to bring their work to life in print, blogs, film and more.

The role will occasionally include opportunities to travel across Scotland, including overnight trips and out-of-hours work with Time Off in Lieu provided. Applicants need to be based in Scotland.

The role will demand:

• Building relationships with teams across Scotland, developing understanding of their work, stories and communications needs.
• Working with the wider communications and marketing team to support effective communications planning and delivery in line with country and organisational priorities.
• Day-to-day management of social media channels and communications enquiries with support from the wider team.
• Maintaining relationships with press and media to maximise coverage of communications priorities.
• Producing a monthly e-newsletter for supporters.
• Identifying reputational risks and working with the team to help minimise potential impacts.

Required skills, knowledge and experience:

• Evidence of a high level of literacy and of a good general education.
• An understanding of how to achieve objectives through communications campaigns and PR techniques.
• Ability to communicate in a clear manner at all levels (written and verbally) to develop shared understanding.
• Ability to summarise complex information and provide impactful copy - e.g. through press releases, social media posts, blogs etc.
• Being able to persuade others and negotiate to reach agreement.
• Demonstrable experience of identifying and developing stories and messages from briefings or background information on a wide variety of topics.
• Working in or with the media to sell and/or tell stories.
• Ability to write to tight deadlines and work in a fast paced, often changing environment.
• Multitasking.
• PR / marketing / journalism qualification (desirable).
• Experience working remotely across a widely distributed organisation (desirable).
• Knowledge of Scottish nature conservation/wildlife especially birds (desirable).
• Knowledge of key habitats and conservation issues in Scotland (desirable).
• Experience working for/with an environmental NGO or voluntary sector organisation (desirable).

Closing date: 23:59, Sunday 8th June 2025
We are looking to conduct interviews for this position on 25th/26th June 2025.

Interested?

If you would like to find out more, please click the apply button. You will be directed to our website to complete your application for this position.

We are committed to developing an inclusive and diverse RSPB, in which everyone feels supported, valued, and able to be their full selves. To achieve our vision of creating a world richer in nature, we need more people, and more diverse people, on nature’s side. People of colour and disabled people are currently underrepresented across the environment, climate, sustainability, and conservation sector. If you identify as a person of colour and/or disabled, we are particularly interested in receiving your application.

The RSPB is an equal opportunities employer. This role is covered by the Rehabilitation of Offenders Act 1974.

This role is not eligible for UK Visa Sponsorship - the successful applicant will need to have a pre-existing Right to Work in the UK in order to be offered an employment contract.

As part of this application process you will be asked to complete an application form including evidence on how you meet the skills, knowledge and experience listed above. Contact us to discuss any additional support you may need to complete your application.

No agencies please.

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

• Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

• Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

• Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

• Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

• Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

• Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

• Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

• Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

• Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

• Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

• Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

• Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

• Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

• Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

• Represent the charity at external events, meetings, and forums relevant to the rare disease space 

• Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

• Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
   

Person Specification 

Essential 

• Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

• Excellent written and verbal communication skills 

• Strong organisational skills and event planning experience 

• Empathetic and sensitive to the lived experiences of patients and carers 

• Ability to work independently, from home, and as part of a small, dynamic team 

• Confident, keen to travel and enjoys in-person events and networking  

Desirable 

• Personal or professional experience within the rare disease, health, or charity sectors 

• Experience managing partnerships or external relationships 

• Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

• A supportive and flexible working environment. 

• Opportunities for personal and professional growth. 

• The chance to make a tangible impact in the lives of people affected by rare diseases.