Lead youth engagement worker jobs in edinburgh
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 
Specific Tasks:
1. Proactive Family Support
- Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)
 
- Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear
 
- Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care
 
- Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern
 
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Application deadline: 24th November at 9am GMT.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.
The client requests no contact from agencies or media sales.
Prospectus are excited to be working with our client to help them recruit for a part-time Digital Fundraising Manager to join their team.  Over the past 47 years, the organisation has grown into a national charity with a powerful vision shared by dedicated volunteers, fundraisers, members, donors, healthcare professionals, partners, staff and bereaved parents and families. The organisation exists to reduce the number of babies dying and to ensure that anyone affected by the death of a baby receives the best possible care and support for as long as they need it.
This role is offered on a part-time 13-month maternity cover contract (24.5hrs/week) paying a salary of £47,107 pro rata plus £218 Home Worker Allowance per annum with flexible remote working arrangements and occasional travel.
Sitting in the Community and Events Team, the Digital Events Team is responsible for securing an annual income of £2.1 million from online fundraising activities. This role is key within the team and leads on the development and longer-term growth of the organisation's digital fundraising activities so to increase funds, engagement, and awareness. The post holder will be responsible for a team of 3 and have strategic oversight of the busy calendar of events that they manage. They will manage the organisation’s digital fundraising activities, explore and test new products and channels as they emerge, deliver exceptional behavioural supporter journeys, ensure income targets are achieved and make certain that the organisation continues to reach and retain new supporters.
They are looking for someone with a demonstrable track record of planning and managing digital fundraising activities, and demonstrate innovation and ambition in a challenging, competitive and fast-paced environment. They are looking for a candidate with demonstrable digital and social media skills with experience of producing and delivering advertising campaigns using a range of social media platforms, as well as experience of delivering world-class stewardship programmes for events. The ideal candidate will have empathy with the organisation’s aims and be comfortable working within a bereavement environment and talking to bereaved people.
At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process, then please contact Firas El Dib at Prospectus.
If you feel you meet some of the criteria but not all, we really hope you'll enquire and learn more. Prospectus can advise and support on each part of the role and hopefully your application, so we look forward to hearing from you. 
In order to apply please submit your CV in the first instance. Should your experience be suitable, we will arrange for a meeting to brief you on the role. You'll then have all the information you need to formally apply. We are looking forward to connecting with you soon.