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SUDC UK is a national charity dedicated to funding research, raising awareness and supporting families affected by Sudden Unexplained Death in Childhood (SUDC). Our team is passionate, warm, friendly and impact-driven.
SUDC is the sudden and unexpected death of a child aged 1-18 years where the cause of death remains unexplained despite a thorough investigation. 40 children are affected every year in the UK, more than young child deaths due to traffic accidents, fires or drowning and comparable to 1-2 seemingly healthy children dying every fortnight, often going to sleep and never waking up.
As a specialist charity, SUDC UK informs, empowers and advocates for families when their child dies suddenly and unexpectedly. We operate nationally and have expertise in SUDC, bereavement support, the child death process, genetic investigation, SUDC research and medical screening.Founded by three bereaved parents, we have deep understanding of the impact of SUDC and loved children, and their families, are at the heart of all we do.
The purpose of this role is to lead and deliver our income generation and marketing strategy, growing sustainable income streams while increasing our profile, reach and impact. This dynamic and rewarding role blends strategic leadership with hands-on delivery, including first-line management of a small team.
Registered Charity 
6 - 10
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Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
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About Metabolic Support
Metabolic Support is the UK umbrella patient organisation for people affected by Inherited Metabolic Disorders (IMDs) – rare, lifelong genetic conditions affecting around 40,000 people in the UK and over 1.4 million worldwide. Since 1981, we have been at the forefront of rare disease advocacy, research, newborn screening and community support, empowering people with IMDs to live well.
About the Role
This is a senior, strategic and hands-on role leading our fundraising and communications activity. You will drive sustainable income growth, raise our profile nationally and internationally, and tell our community’s stories with clarity, compassion and impact.
Working closely with the Chief Executive, you will shape and deliver an ambitious fundraising strategy, develop diverse income streams, and build strong relationships with trusts, foundations, corporates, major donors and supporters. You will also lead our communications and brand, ensuring consistent, high-quality messaging across all channels.
As part of a small, agile team, this role suits a confident self-starter with emotional intelligence, strong leadership skills and a passion for making a tangible difference in rare disease.
Key Responsibilities
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Lead and deliver an integrated fundraising and communications strategy
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Grow income across trusts & foundations, corporate partnerships, individual giving, major donors, community and events
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Act as an external ambassador for Metabolic Support
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Oversee communications, marketing, social media and brand development
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Manage donor relationships, stewardship and CRM (Nutshell)
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Provide fundraising forecasts, reports and budgets to the Board
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Ensure compliance with GDPR and fundraising regulations
About You
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Proven experience in fundraising, communications or income generation
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Strong track record in at least one key fundraising area (e.g. trusts, corporates, major donors)
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Excellent written and verbal communication skills
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Confident relationship-builder and storyteller
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Highly organised, proactive and comfortable working autonomously
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Strong alignment with Metabolic Support’s mission and values
Other Information
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UK-based with eligibility to work in the UK
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Willingness to travel and work occasional evenings/weekends
The client requests no contact from agencies or media sales.