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About the role

We’re looking for a driven and relationship-focused Philanthropy Manager to join our Philanthropy and Partnerships team at an exciting moment of growth.

You’ll manage a portfolio of major donors while proactively building new relationships to secure five- and six-figure gifts. Working closely with senior colleagues and leadership, you’ll help unlock new networks and opportunities, playing a key role in delivering our fundraising ambitions.

About us

The Royal Marsden Cancer Charity exists to transform the lives of people affected by cancer. We fund world-leading research, state-of-the-art equipment and exceptional patient environments, ensuring The Royal Marsden can continue to deliver outstanding care and develop pioneering treatments used across the UK and beyond.

Following significant growth and the successful £70m Oak Cancer Centre appeal, we are now delivering our most ambitious strategy yet - raising at least £215m over five years, including a major new development in Chelsea.

About you

You’ll be a proactive and confident relationship manager with a passion for securing major gifts and delivering a donor-centric approach. You’ll be motivated by impact and excited to work with inspiring supporters and complex, high-value opportunities.

Why join us

This is a rare opportunity to join at a pivotal moment and play a central role in securing transformational gifts that advance cancer research and patient care. You’ll work with senior stakeholders and influential supporters, gaining exposure to high-value fundraising and strategic projects that will accelerate your development within an ambitious organisation.

Independent Age is the national charity focused on improving the lives of people facing financial hardship in later life. We believe no one should face financial hardship in later life. 

The Senior Media and PR Officer will undertake communication projects to support all areas of the charity to raise awareness and understanding of Independent Age, to secure policy change to tackle poverty in later life, and to drive potential supporters to our activities. 

Our Helpline and expert advisers offer free, practical support to older people without enough money to live on. Through our grants programme, we support hundreds of local organisations working with older people across the UK.

We use the knowledge and insight gained from our support services and partnerships to highlight the issues experienced by older people in poverty and campaign for change. 

We would love to find individuals from all walks of life and diverse backgrounds to join us on this journey.

Responsibilities and Person Specification: 

This role supports the charity’s media and PR programme, helping to secure positive coverage and strengthen its reputation through proactive and reactive communications. It will contribute to the organisation’s ambition by increasing awareness, influence, and engagement with key audiences across traditional and digital media channels. 

Working within the media communications team, the post-holder will lead on media planning and PR projects, identifying opportunities for both short-term campaigns (such as report launches) and longer-term storytelling by spotting future hooks and moments to promote key messages and calls to action. The role will also support wider team strategy development and contribute to a busy and responsive press office. 

You should have experience in media relations and press office activity, including drafting high-quality media materials such as press releases, statements, op-eds and thought leadership content. You will also need strong judgement to respond to enquiries, manage reputational issues in real time, build relationships with journalists and outlets across the UK nations, and monitor, evaluate and report on media coverage. 

For full details on the role and requirements, please review the job description and person specification.  If your experience doesn’t align perfectly with all of the criteria in the person specification but you do meet most of them and are excited about the role, we encourage you to apply anyway.

This is a full-time role, 35 hours per week, which you can choose to work over five days or a 9 day fortnight.

What it’s like to work at Independent Age: 

We celebrate diversity at Independent Age and champion the differences that make each of us unique. We actively support and encourage people from a variety of backgrounds, experiences and skill sets to join us and help shape what we do. We aim to attract and retain a wide range of talent and create an environment where everyone can feel safe, protected, welcome and included. 

We offer great benefits including 28 days annual leave plus public holidays, a generous pension scheme with life assurance, and fantastic learning and development opportunities. We also offer a number of enhanced leave provisions and benefits. 

We know that a good work life balance helps us perform at our best and supports wellbeing. Flexible working hours and hybrid working is standard for all (those contracted to work in the office usually attend 1 day per week). But if you need a different form of flexibility, we are always happy to talk flexible working.

You can find out more about what it’s like to work at Independent Age on the careers page of our website. 

Application Process: 

To apply, please submit a CV and a Supporting Statement, detailing how your skills and experience meet the criteria within the Job Description and Person Specification, by visiting our jobs website (please do not hesitate to contact us if you have specific requirements and need support to apply in an alternative format). 

To support our commitment to equity, diversity and inclusion our hiring managers use anonymous shortlisting. Therefore, please do not include your name, photo, or information to indicate your gender or age in your CV and supporting statement. Please do not omit dates of employment. Please ensure the title of any uploads does not contain your name.

Independent Age is committed to safeguarding and follows Safer Recruitment practices to ensure we are safeguarding those we work with. We therefore ask that you supply your full work history with explanations for any gaps in the application documents you submit and, if offered the post, we will require two employment references including your current or most recent employer. A Basic DBS Certificate will be required for this role. 

Closing Date: Monday 11 May 2026, 11:59pm 

Interview Dates: Tuesday 19th and Wednesday 20th May via Microsoft Teams

Parkinson’s UK works with health and social care professionals to transform Parkinson’s services across the UK. 

We do this through the Parkinson’s UK Excellence Network (PEN), a network of over 7,000 health and care professionals with a shared vision: to build an expert Parkinson’s workforce and improve health and care services for people with Parkinson’s.

We bring together and support health and care professionals to share best practice, network and collaborate, share resources and education, and drive improvements to services for people with Parkinson’s and their loved ones.

To help us deliver our strategic aims, we are looking for a person with lived experience of Parkinson’s  to take on the role of Lived Experience Lead on a consultancy basis. 

About the role 

In this role, you’ll:

• Provide strategic guidance to the Parkinson’s UK team through the monthly Parkinson’s Excellence Network Steering Group.

• Bring expertise as a person with lived experience of Parkinson’s for Parkinson’s UK teams.

• Drive engagement and participation with the Excellence Network. 

• Inspire, challenge and collaborate with the health and social care professional community to drive significant improvements to Parkinson’s services.

• Act as an ambassador for the Excellence Network. 

• Attend the annual in-person PEN National and Regional Clinical Leads meeting.

• Support the PEN national calendar of events through attendance or promotion. This includes Excellence Hub meetings and other activities centred around our national priorities.

• Join relevant governance groups, including the UK Parkinson’s Audit Governance Board. 

What expertise you’ll bring:

• Have lived experience of Parkinson’s and awareness of how the condition presents itself for other people with Parkinson’s. 

• Be skilled in sharing insight and lived experience with a range of stakeholders to help inform decision making.

• Have an understanding of health and social care support to people with Parkinson’s  to support the strategic aims and objectives of Parkinson’s UK.

• This role does not require NHS Professional/Clinical experience, and we encourage applicants without a healthcare background to apply

This is an exciting time for Parkinson’s UK and we would love you to join us!

Please apply by sending us your CV, together with a detailed supporting statement which will fully demonstrate how you meet all the criteria of the role, as stated in the "What expertise you'll bring" section of the job description.

Interviews for this role will be held online via google meet from 17 June 2026.

Anyone can get Parkinson’s. It’s vital that the people who work for Parkinson’s UK are representative of our diverse community. We actively encourage people from all sections of the community to apply, regardless of race, ethnicity, gender identity, age, disability, sexual orientation, or religion.

These roles are central to ensuring that the voices of people in the justice system shape the services that affect them. You’ll work directly across our Prison Councils in HMP Altcourse and HMP Forest Bank, as well as a range of community‑based projects regionally, and occasionally national. Some projects will require significant travel, so flexibility is essential.

• Full-time and Part-time position available
• Permanent 
• £25k- £30k depending on experience (pro-rata for part time)
• Bank holidays plus 25 days holiday (pro-rata for part-time)
• You must be off community order / prison license
• Probationary period: Six months

We are looking for a highly motivated and organised individual with the ability to manage teams, build strategic relationships with employers to grow the Living Wage network, and develop projects that will grow our accreditations schemes and proactively influence change across a broad range of stakeholders in public life.

• Develop and deliver strategies, working collaboratively across the organisation.

• Direct a team and line manage multiple staff and freelancers, supporting them to deliver projects and contribute to the LWF business plan.

• Monitor and evaluate the impact of our work to refine our strategy, deliver projects effectively and demonstrate the value of the real Living Wage.

• Clearly communicate the evidence for positive change to grow the Living Wage movement. Encourage employers and key stakeholders to become champions of the Living Wage movement.

• Oversee accreditation processes, identify and implement improvements to make our work more efficient.

• Build and manage relationships with key stakeholders, policy makers and employers to support them to pay the real Living Wage and seek accreditation.

• Create, develop and employ the tools and knowledge available to inform and advise employers on implementing the Living Wage throughout their organisation.

We are looking for a highly motivated and organised individual to maintain, develop and continuously improve our systems. The role will be an integral part of the Living Wage Operations Team, providing strategic technical support and ensure the integrity of our systems, often overseeing development projects with external partners.

The Operations and Data Manager will need to be highly numerate and have great analytical skills to support our monitoring and evaluation functions, working with the Head of Operations and Insight on financial and budgeting management, reconciliation and forecasting for the Living Wage Foundation. The suitable candidate will be detail-oriented, be able to demonstrate their ability to seek out improvements and problem solve creatively and have experience working with Salesforce or equivalent CRM systems.

This is a fantastic opportunity for a Trusts Executive to help us achieve our vision by supporting the growth of our fundraising income through brilliant cultivation and stewardship of charitable trusts and foundations that align with our cause. With support from the Philanthropy and Trusts manager, this role will focus on researching and preparing applications to new and existing trust funders, as well as providing creative reports that demonstrate the impact of their funding.

Together for Short Lives is the leading UK-wide charity for children living with serious illness, their families and the services that provide them with palliative care.

Every child deserves many moments of happiness together with their loved ones. But it's hard for them to thrive when services don't fully meet their needs, leaving parents and siblings feeling isolated and alone.

That’s why we’re here. To make sure that every family can thrive as they navigate their child's life, death, bereavement and beyond.

Together we support families to live their lives, through the ups and downs, offering practical, emotional and financial help.

Together we unite our sector by prioritising and sharing crucial research, leading guidance and standards, connecting professionals and raising vital funds for children’s hospice and palliative care services.

Together we campaign to make sure that children with serious illness and their families get the care and support they need, when and where they need it.

Supporting, uniting, campaigning, together.
We are Together for Short Lives.

This is an opportunity to

• Work with the Philanthropy and Trusts Manager to develop applications to prospective funders and work to agreed targets to achieve income growth.
• Maintain a pipeline of trusts and foundations and provide excellent stewardship and reporting, as appropriate.
• Through strategic research, identify and prioritise potential trust funders for Together for Short Lives.
• Responsibility for reporting impact to funders and ensuring funders receive meaningful updates on outcomes.

You will have

• Excellent written skills with the ability to explain, promote and present Together for Short Lives’ activities in clear, succinct and persuasive language
• Ability to design and write engaging and creative proposals.
• Excellent verbal communication skills with the ability to talk confidently to funders over the phone.

About Coram
Coram is committed to improving the lives of the UK’s most vulnerable children and young people.

We support children and young people from birth to independence, creating a change that lasts a lifetime.

Coram is the UK’s oldest children’s charity founded by Thomas Coram in London helping vulnerable children and young people since 1739. Today, the Coram group helps more than one million children, young people, families and professionals every year by providing access to the skills and opportunities they need to thrive.

Coram Family Lives is part of the Coram group.

About the role

This is a highly rewarding role for an Early Years Home Visitor to work with the ParentChild + Coordinator and to deliver ParentChild+ across Westminster, Kensington and Chelsea areas to deliver the home learning service to families to improve educational outcomes for the children and to improve their parenting skills. The postholder will work closely with Early Years Practitioners in the local authority.

Coram Family Lives is the only organisation licensed to deliver the ParentChild+ in England and has done so since 2017. The programme delivers a model based on a combination of weekly home visits and small group sessions.  Each family receives free toys, books and small group sessions over a period 37 weeks. The ParentChild+ team will deliver the home learning service to 200 children over a 4 year period. The programme also addresses a range of outcomes for parents whose children are at risk of starting school below the expected level, by modelling to parents how to create a rich home learning environment.

The successful candidate must have experience of working with pre-school children and supporting their parents. You should be able to build good relationships, have excellent organisational skills, be proficient in keeping records and entering data and have good written and verbal communication. Commitment to equality of opportunity is essential. Level 3 or equivalent qualification in childcare is desirable.

You will work flexibly and must be willing and able to easily travel around area of work with occasional travel to other areas in London.

To apply for this role, please click on the apply now  to complete the application.

Closing date: Sunday 24th May 2026. Interview date: week commencing the of 8th June 2026.

Coram is an equal opportunities employer and we believe a diverse workforce enables us to improve the services to the children and families we help. We are genuinely committed to encouraging candidates from all sections of the community we seek to support. This includes those from global majority ethnic backgrounds, those that identify as LGBQT+, those with disabilities, those with lived experience of care, those with neuro-diversity, and those from other groups who are underrepresented at Coram.

If applicants feel comfortable, we would encourage them to draw on lived experience as well as professional experience in their personal statement as part of their application.

We are committed to the safeguarding of children and where appropriate will require the successful applicant to undertake a check from the Disclosure and Barring Service.

Registered Charity No. 312278.

Together for Short Lives is looking for a driven and creative Business Development Manager to develop and secure high‑value corporate partnerships that will help transform the lives of children living with serious illness and their families. You’ll lead our business development strategy, build a strong pipeline of opportunities, and develop lasting relationships with prospective and existing supporters.

If you’re collaborative, tenacious and passionate about making a real impact in children’s palliative care, we’d love to hear from you.

Together for Short Lives is the leading UK-wide charity for children living with serious illness, their families and the services that provide them with palliative care.

Every child deserves many moments of happiness together with their loved ones. But it's hard for them to thrive when services don't fully meet their needs, leaving parents and siblings feeling isolated and alone.

That’s why we’re here. To make sure that every family can thrive as they navigate their child's life, death, bereavement and beyond.

Together we support families to live their lives, through the ups and downs, offering practical, emotional and financial help.

Together we unite our sector by prioritising and sharing crucial research, leading guidance and standards, connecting professionals and raising vital funds for children’s hospice and palliative care services.

Together we campaign to make sure that children with serious illness and their families get the care and support they need, when and where they need it.

Supporting, uniting, campaigning, together.
We are Together for Short Lives.

Purpose of role

The Business Development Manager will lead our efforts to secure high-profile, high-value partnerships with corporate organisations  that will generate vital income for children's palliative care. Securing new partnerships and growing our income requires exceptional collaboration skills; a driven, tenacious and resourceful nature; innovation and creativity; and a passionate determination to make a difference to the lives of children and families across the UK.

The main objectives are as follows:

1. Secure new corporate partnerships raising funds to support Together for Short Lives’ direct work, and our National Fundraising Scheme (raising funds on behalf of the UK’s children’s hospices).
2. Develop and deliver a business development strategy, including  prospect research, managing  a robust pipeline of opportunities, and developing a diverse range of business development products. 
3. Manage and develop relationships with a portfolio of individual contacts and organisations, including prospective and existing supporters.

Follow the link to our website to apply and find out more about the role. 

Are you committed to helping end homelessness and ensuring people with mental health conditions live life to the full? If you are creative, willing to be hands on and enjoy working with a wide range of tasks we want to hear from you.

Barons Court Project is seeking a Project Worker to join our friendly team at our Day Centre in Hammersmith and Fulham. This role is hands on but gives great variety. We split our work into three areas, Body, Mind and Spirit. Body - The practical services including showers, laundry, meals, clothing and more ensure we care for our guest's physical being. Mind - our one to one work including assisting guests with benefits forms, housing applications, CV Writing etc. Spirit - Activities around well-being including art, women's group, sports and physical activity, trips out and more. 

You will work with a team of staff and volunteers to deliver these services which are designed to ensure we care for the whole person. 

If you want to make a difference then this is the role for you, we want to hear from you.  

** To read the full job description and submit your application form, please visit the Vacancies page on the Libraries Unlimited website **

Senior Fundraising Officer – (Job ref: SFO001)

Salary: £28,800 (£36,000 FTE)
Hours: 29.6 hours over 4 days (working pattern to be discussed with successful candidate)
Location: Exeter Library & Home (Hybrid)
Closing date: 9am, Monday 18th May 2026
Interview date: Wednesday 27th May 2026 at Cullompton Library

We’re one of Devon’s biggest charities, with a passion for enriching the lives of local people and communities through the power of reading. We’re looking to continue our success of generating income to support our charitable activities, and so if you also have a record of success, and a passion for what we do, then we’d love to hear from you.

In return we can offer:

· 24 days holiday per year, plus Bank Holidays, rising to 26 days after 5 years’ continuous service

· Pension – defined contribution pension scheme with matched employer contributions of up to 6%

· Enhanced maternity and shared parental pay / Enhanced paternity pay

· Free, confidential Employee Assistance Programme offering practical and emotional support by phone and online

· Access to free and discounted tickets to live music, comedy, theatre and sports events in the UK via Tickets for Good

· Cycle to Work Scheme/ Employee Benefits Scheme with Extras Discounts

** To read the full job description and submit your application form, please visit the Vacancies page on the Libraries Unlimited website **

This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.

Main Purpose of the Role:

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.  
 
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK. 

Specific Tasks:

1. Proactive Family Support 

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days) 

• Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear  

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care 

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern 

2. Transitions Support 

· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including: 

· Moving between educational settings such as primary to secondary 

· Transitioning from paediatric to adult health services 

· Changes in mobility and independence (e.g. transitioning to using powerchairs)

· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK 

· Develop resources, guidance, and workshops to support families through transitions 

3. Wellbeing Tracking and Outcome Measurement 

· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security) 

· Collaborate with families to co-create action plans and track progress 

· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call. 

4. Community Engagement and Event Delivery 

· Organise and deliver regional meetups (minimum one per quarter) 

· Facilitate support groups (virtual and in-person) for parents, young people, and extended family 

· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability) 

5. Stakeholder Collaboration 

· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities 

· Represent Action Duchenne in Scotland and build relationships with local networks 

6. Administration and Reporting 

· Maintain accurate records of all interactions and support provided 

· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact 

· Support development of CRM processes and service delivery improvements 

7. Key Performance Indicators (KPIs): 

· New contact acknowledgement email: within 3 working days 

· New contact follow-up call: within 7–10 working days 

· Families contacted per week: 12–15 hours of direct contact 

· Regional meetups: 1 per quarter 

· Support groups delivered: 9–12 per year 

· CRM data entry: within 24 hours of interaction 

· Family outcomes tracked: via wellbeing questionnaire and action plan 

· Transition support delivered: tracked through engagement, resources, and feedback 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.

Please find below the job specification, including required skills and qualifications.

Location: Royal Victoria Infirmary/Freeman Hospital Newcastle 
Closing date: 24th May 2026, 11:59 PM
Interview date: 10th June 2026

Change lives in a life-changing career

When a child or young person is diagnosed with cancer, their whole world can feel like it’s falling apart. Independence is taken and confidence is stolen. Stability no longer exists. The future suddenly feels uncertain.

The impact of cancer on young lives is more than medical. And that impact can be felt by entire family. That’s why we exist. Our specialist social workers help children and young people with cancer and their families navigate the emotional and practical impact of cancer.

We remove barriers, solve problems and prioritise wellbeing. And we stop at nothing to make their voices heard and their unique needs understood, so they can get the right care and support at the right time

About the role

We are looking for an experienced Social Worker to join our Newcastle Team supporting children and young people diagnosed with cancer.

We pride ourselves on delivering the highest quality support tailored to the needs of the children and young people and their families. The work we do is rewarding but also complex and demanding. You will be part of a close-knit Young Lives vs Cancer social work team, working with an established NHS multi-disciplinary team and services in the community.

This role is predominantly site-based with an element of occasional working from home as agreed with the line manager. Your contractual base will be both Home and Hospital.

This post is subject to an Enhanced Disclosure and Barring Service check. A previous conviction is not necessarily a barrier to employment. We encourage qualified applicants to apply, and we will consider each case individually.

About you

You will be committed to delivering high quality social work support to promote the best outcomes for the children, young people and families we work with. You will need to be resourceful and resilient. You will have a positive attitude and be willing to embrace difference. As part of the wider Young Lives vs Cancer team you will actively engage with the work of the charity and welcome opportunities to get involved.

You will have:

• A recognised Social Worker qualification and current registration with Social Work England/ Scottish Social Services Council/Social Care Wales/Northern Ireland Social Care Council
• Experience working with children, young people and their families/carers in a social care setting.
• Experience of working in a multi-disciplinary environment, ideally in an NHS setting.
• Sound knowledge of child and young people development.
• An understanding of the impact of serious illness for children, young people and their families.
• Excellent interpersonal skills.

What will I gain?

For people to reach their full potential, they need the right environment. As a member of Team Young Lives, you’ll be made to feel supported, valued and appreciated. Here’s how we do it:

• Flexible working: we’re open to working hours outside of 9 - 5 and we can talk through your flexibility requirements at interview stage
• Wellbeing, Thinking & Growth Days: four days a year to step back from the day-to-day and focus on your own learning and development
• Generous annual leave allowance
• Great family/caring leave entitlements
• Enhanced pension
• Access to our employee savings scheme

To find out more about our benefits package, have a look on our website.

Our commitment to Diversity, Equity, Inclusion and Belonging

At Young Lives vs Cancer, we recognise that opportunities for too many people remain a condition of their sex, ethnicity, class, gender identity, disability, sexual orientation – or a combination. This has never been acceptable to us as an organisation. We don’t just accept difference, we value it, celebrate it, nurture it and we thrive because of it.

We’re on a journey to be reflective of the diverse children, young people and families we support. We know we aren’t there yet, and we’re passionately committed to taking actions and making changes to be a truly diverse, inclusive and equitable organisation. This includes taking anti-oppressive action and removing barriers in our recruitment practices. We particularly welcome applications from members of minoritised communities. Our Diversity, Inclusion, Equity and Belonging strategy will tell you more.

To ensure fairness and consistency to select the best candidate for this role, all our applications are anonymised up until an interview has been confirmed. We recognise the benefits of AI, but if you're considering using it to submit your application, we encourage you to reflect on the value AI adds. AI tools often lack the personal touch and authenticity that set candidates apart. We want to hear your unique perspective, experiences, and skills, so we encourage you to tell us about your skills and experiences in your own voice.

Accessibility

We’re committed to providing reasonable adjustments throughout our recruitment process and we’ll always aim to be as accommodating as possible.Please let us know in your application form of any adjustments or access requirements we could make to help you with the application process and interview.

To arrange an informal chat, please contact Chris Hodge.

#ShowTheSalary

About Action Duchenne 
Action Duchenne supports, empowers and equips every DMD community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy (DMD) is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has a number of staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

The Events Officer will embody these values in every aspect of planning, delivering and evaluating events. 

What we offer: 

• 24-hour confidential Employee Assistance helpline 

• Private health insurance 

• Flexible hours 

• 5% employer pension contribution 

Main Purpose of the Role 
This new role aims to support the design, coordination and delivery of Action Duchenne’s events portfolio, including the Annual Community Summit, regional meetups, workshops, and online events. The role will ensure smooth operational delivery, high‑ quality participant experiences, accessible information, and effective logistics‑ and supplier coordination. 

This role contributes directly to our organisational impact by ensuring families, young people, professionals and partners have access to engaging, supportive and well managed events. This is a brilliant opportunity for someone who enjoys a challenge, is incredibly organised with excellent project management skills, close attention to detail, creativity and a passion for supporting every DMD community. 

 Specific Tasks 

1. Event Coordination and Logistics 

• Support the planning and delivery of the Annual Community Summit, working closely with the Chief Scientific Officer, Director of Fundraising and Communications, and wider team. 

• Coordinate logistics for in‑person and online events, including venue liaison, catering, accessibility arrangements, equipment, travel, accommodation and schedules. 

• Ensure event details are accurately published and updated across relevant platforms (website, CRM, communications channels). 

• Manage registration processes for all events and ensure attendees receive timely, accurate joining information. 

• Support the organisation of regional meet‑ups and workshops, ensuring venues, facilitators and resources are in place. 

2. Administration and Operational Delivery 

• Maintain clear and accurate administrative systems, including event checklists, timelines, risk assessments and evaluation forms. 

• Track planned expenditure and ensure costs align with budgets, escalating issues where necessary. 

• Prepare and maintain event collateral (slides, handouts, resources, signage), ensuring accessibility and brand consistency. 

• Provide administrative and practical support during events (both online and in person), including setting up webinar sessions and coordinating pre and post event meetings internally. 

3. Stakeholder and Supplier Management 

• Liaise with venues, suppliers, speakers, exhibitors and partners to ensure high quality event delivery. 

• Develop positive working relationships with internal colleagues to ensure a joined-up programme across support, communications and scientific teams. 

• Provide excellent customer service to participants, responding promptly and sensitively to enquiries, access requirements and logistical questions. 

4. Community and Engagement Support 

• Collaborate with Support Team colleagues to ensure events reflect community needs and priorities. 

• Support the promotion of events through the Communications Officer, ensuring timely provision of copy, event information and updates. 

• Encourage and support attendance from families, young people, professionals and community partners. 

5. Data Management, Monitoring and Evaluation 

• Ensure accurate data entry in CRM systems (eTapestry or similar) for attendee lists, engagement tracking and follow up actions. 

• Collect and analyse feedback, producing short evaluation summaries to inform future planning. 

• Track attendance, trends and logistical improvements, contributing to quarterly reporting. 

6. Risk, Compliance and Quality Assurance 

• Support event risk assessments and ensure compliance with safeguarding, accessibility and GDPR guidance. 

• Ensure that content and delivery meet Action Duchenne’s quality standards and reflect the needs of families affected by Duchenne. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Key Performance Indicators (KPIs) 

• Event logistics prepared within agreed timelines 

• Accurate event information published and updated within required timeframes 

• Participant satisfaction and engagement measured through surveys 

• Conference and event attendance targets met 

• CRM data entry completed within 2 working days of events 

• Budget expenditure tracked monthly with minimal variance 

• Effective delivery of regional and online events aligned with pre-agreed schedule 

Person Specification 

Knowledge & Experience 

Essential

• Experience organising in person events from start to finish for over 300 attendees. 

• Experience liaising with suppliers, venues and speakers. 

• Experience with CRM/data entry, with close attention to detail. 

• Experience organising and hosting remote events. 

• Understanding of hybrid events. 

Desirable

• Experience in the charity sector. 

• Knowledge of Duchenne or similar life-limiting conditions. 

Skills & Abilities 

Essential

• Strong interpersonal skills, with the ability to build trust, motivate teams and develop positive relationships with beneficiaries, staff, volunteers and external partners. 

• Understanding of the importance of safeguarding around events. 

• Exceptional communication skills. 

• Excellent organisational and time management skills, with the ability to manage competing priorities and meet deadlines. 

• Analytical and data literate, able to interpret performance data, identify trends, and use insight to drive improvement. 

• Skilled in problem solving, with a proactive, solutions focused approach. 

• Ability to be assertive while maintaining empathy, particularly when supporting teams dealing with emotionally complex situations. 

• Digital proficiency including Microsoft Office, CRM systems and digital communication tools. 

Attributes 

Essential

• Emotionally intelligent, reflective and able to manage sensitive issues with empathy and professionalism. 

• Values driven, compassionate and committed to improving the lives of individuals and families affected by long term or life-limiting conditions. 

• Resilient and adaptable, able to navigate complexity. 

• Creative, dynamic and innovative, with the ability to take ideas from concept to delivery. 

• Demonstrable commitment to equity, diversity and inclusion. 

• Personally, and professionally, responsible with high standards of integrity and accountability. 

• A sense of humour and the ability to bring warmth and humanity to the role. 

Closing date: 25 May 2026 at 9am, with first round, online interviews aiming to take place in week commencing 8th June.