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Action Duchenne supports, empower and equip every Duchenne Muscular Dystrophy community in their journey from diagnosis and beyond.

Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has several staff with direct lived experience. 

At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values: 

• Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability. 

• Empathetic – Approach challenges with understanding, considering the impact on people internally and externally. 

• Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters. 

• Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose. 

• Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard. 

Main Purpose of the Role: 

To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across England. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.   
  
The successful candidate will also lead on support for our End of Life and Bereavement projects, working collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

  

Specific Tasks: 

1. Proactive Family Support  

• Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)  

• Contact to be made to all registered Action Duchenne members, knows to us in the Regions you will be covering, to ensure the current support offer is clear   

• Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care  

• Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern  

2. Advanced and End-of-Life Care Support 

• Provide compassionate, practical, and emotional support to children, young people, and adults living with Duchenne, and their families, as they navigate advanced stages of the condition and end-of-life care. 

• Work collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources. 

• Develop and share guidance, resources, and workshops to help families prepare for and manage advanced care planning, symptom management, and emotional wellbeing. 

• Support families in understanding available options for care settings (home, hospice, hospital) and facilitate informed decision-making. 

• Ensure continuity of care and communication between multidisciplinary teams, while respecting family preferences and cultural considerations. 

• Offer signposting to bereavement support and follow-up services for families after loss. 

3. Wellbeing Tracking and Outcome Measurement  

• Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)  

• Collaborate with families to co-create action plans and track progress  

• Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.  

4. Community Engagement and Event Delivery  

• Organise and deliver regional meetups (minimum one per quarter)  

• Facilitate support groups (virtual and in-person) for parents, young people, and extended family (minimum one per quarter)  

• Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)  

• Actively participate in networking events to promote Action Duchenne within our communities, build relationships, and drive growth in membership by encouraging registration of families affected by Duchenne 

5. Stakeholder Collaboration  

• Liaise and develop relationships with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities  

• Represent Action Duchenne in across your regions and build relationships with local networks  

6. Administration and Reporting  

• Maintain accurate records of all interactions and support provided  

• Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact  

• Support development of CRM processes and service delivery improvements  

7. Key Performance Indicators (KPIs):  

• New contact acknowledgement email: within 3 working days

• New contact follow-up call: within 7–10 working days 

• Families contacted per week: 12–15 hours of direct contact

• Regional meetups: 1 per quarter

• Support groups delivered: 9–12 per year

• CRM data entry: within the same day of interaction

• Family outcomes tracked: via wellbeing questionnaire and action plan 

• Number of families receiving end-of-life care guidance or resources per quarter. 

• Advance Care Planning: Percentage of families supported with advance care planning discussions within 4 weeks of request. 

• Palliative Care Signposting: Number of referrals/signposts made to palliative care or hospice services. 

• Resource Development: Number of end-of-life care resources (guides, workshops, webinars) created and shared annually. 

NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets. 

Please find the job specification, including required skills and qualifications below.

Application deadline: 22nd December at 9am GMT.

SCIE Vision

We are committed to building a society which enables people who draw on social care to live fulfilling lives.

At the SCIE, we are driven by our values:

· Progressive – always learning and developing.

· Inclusive – working together for equality, diversity, and fairness.

· Credible – evidence-based, robust, and reliable.

· Transparent – open and honest.

· Committed - focused on making a difference to people’s lives.

The role:

A great opportunity for you to join our small friendly team and make a real difference to people’s lives by:

· keeping our finances running smoothly

· supporting smarter decision-making

· help power the work that changes lives.

If you’re detail-driven, organised and ready to make your skills matter, we’d love to have you on our team.

What we are looking for:

· actively studying for your AAT or already qualified, with a solid grasp of financial processes and the confidence to work accurately at pace.

· previous experience of working within a Finance Team

· someone who loves getting the details right and takes pride in keeping finances running like clockwork

· strong numeracy, great organisational skills, and a proactive, can-do attitude

· a problem-solver who enjoys improving systems, collaborating with colleagues, and making a real impact through your work.

What we offer in return.

We offer excellent staff benefits including a competitive salary and homeworking allowance. We provide an employer pension contribution above the statutory minimum, an award-winning employee assistance programme, and an attractive holiday package which rises with length of service.

If you would like to access the application form in a different format or if would like any assistance that might help improve your experience while completing the application, please contact us.

We’re looking for a creative and passionate person to lead on our policy and communications work for this maternity cover. This role offers a great opportunity to play a key role in improving impact across the charity and the lives of those affected

The Migraine Trust is the only UK migraine charity providing information and support, campaigning for awareness and change, and funding and promoting research.

One in seven people in the UK live with migraine, and this complex and debilitating neurological disorder significantly affects their lives. We have been leading and bringing the migraine community together to change this since 1965.

Every year we support millions of people through our website and support services on all aspects of migraine and for help in managing it at work, in education, and in accessing healthcare. We campaign for increased awareness and understanding of migraine, and national policy change to improve the lives of people who get it. We have funded over 140 medical research projects and hold an international symposium every two years to bring together the world’s leading experts on migraine.

The role

People living with migraine are at the heart of our organisation, while our research highlights the urgent need to reduce the inequity we see for those living with the condition. You will ensure their voices are heard by decision makers and the public and get closer to our vison of ‘a world where migraine doesn’t stop anyone from living the life they want’.

You should be able to deliver high-impact communication campaigns, and have a real interest in policy. A skilled communicator yourself, you will be able to manage a broad role with the ability to build and nurture relationships with a wide range of stakeholders. Overall, you’ll bring a desire to create positive change.

You’ll work closely with the CEO and be a key member of The Migraine Trust’s Senior Management team, leading our strategic direction on communications activity alongside targeted public and political campaigns.

Key responsibilities:

• Lead the delivery of the organisation’s 2026 policy and communications plans and coordinate the development of plans and budgets for 2027
• Oversee development and delivery of the charity’s policy and public affairs strategy, ensuring a strong evidence base and meaningful involvement of people living with migraine
• Manage work our public affairs agency to deliver targeted influencing projects to improve migraine care, workplace support, and parliamentary engagement
• Shape policy recommendations and develop strategies to engage key stakeholders including parliamentarians, policymakers, clinicians, employers and partner organisations
• Monitor the external policy environment identifying risks, opportunities and emerging issues relevant to migraine
• Work with the team to develop and execute creative and impactful communications campaigns to raise the profile of the charity and tackle misunderstanding around migraine
• Ensure content across all channels – including media, digital, social and publications - is on brand and reflects our values and core messaging
• Ensure our online presence meets the needs of our stakeholders, and is fit-for-purpose for current and future organisational needs
• Oversee production of relevant reports, marketing materials and key publications working with freelance agencies and designers as required
• Work closely with Fundraising colleagues to identify and develop opportunities that support organisational growth
• Ensure all those living with migraine and their voices are central to our policy, campaigning and communications work
• Act as a spokesperson when necessary, representing the charity externally

The above is provided for guidance and is not an exhaustive list of all accountabilities that the post holder may have over time.

Knowledge and Experience

Essential

• A creative and experienced communications leader
• Wide experience working in the field of communications (in house or agency) and able to demonstrate knowledge of a broad range of communications activities
• Demonstrable experience of developing media strategies and managing media relations to achieve results
• Ability to deliver policy and public affairs strategies that create change
• A strategic thinker able to develop new ideas and turn these into action
• A strong leader and manager
• Excellent written and spoken communication skills and the ability to communicate, engage and build relationships with a wide range of audiences across the organisation and externally
• Calm under pressure with sound judgment
• Confidence to represent The Migraine Trust externally including public speaking as necessary
• Ability to manage a diverse workload and work under pressure.

Desirable

• Experience working within a health, disability, or long-term conditions context
• Experience of the voluntary sector and/or lived experience engagement
• Knowledge of digital transformation or digital communications best practice

The Migraine Trust is an equal opportunities employer, and we welcome applications from all suitably experienced persons regardless of their race, socioeconomic backgrounds, gender, disability status, ethnicity, religion/faith, sexual orientation, or age.

How to apply

For the full role description, and to apply, please visit our website. Interviews will be week commencing 5th January. If you would like an informal discussion to find out more about the role before submitting an application, or have any other queries, we encourage you to get in touch.

An exciting opportunity to join our Community Fundraising team. The Volunteer & Community Fundraising Assistant role is the first point of contact for supporter enquiries, provides administrative support across the team and supports Charity activity through our volunteer programme.

The Royal Marsden Cancer Charity raises money to save the lives of people with cancer, everywhere. We ensure our nurses, doctors and research teams can provide the very best care and develop life-saving treatments, which are used across the UK and around the world. 

From funding state-of-the-art equipment and ground-breaking research, to creating the very best patient environments, we will never stop looking for ways to improve the lives of people affected by cancer. 

We are a very ambitious organisation which has gone through transformational growth over the past five years. Alongside funding an existing programme of world-leading research, treatment and care, the Charity completed its largest capital appeal to date, successfully raising £70 million to build the Oak Cancer Centre at the hospital’s Sutton site, which opened in summer 2023. 

With one in two of us expected to develop some form of cancer, it is essential that we go even further in our fundraising efforts to support the essential work of The Royal Marsden. Therefore, we are delivering our most ambitious strategy yet, that will see us raising at least £215m over the 5-year period.

The Charity is committed its biggest fundraising appeal to date, for a new major development project in Chelsea. There is also an extensive portfolio of engaging projects outside of the capital appeals that help to support all aspects of the hospital’s work to improve the lives of cancer patients. 

This role is an integral part of the Community Fundraising team, providing support to people raising funds for The Royal Marsden Cancer Charity and being the first point of contact for enquiries. Dealing directly with supporters and volunteers, the role requires an effective communicator and proactive individual who is passionate about fundraising and volunteering.

Are you a good all-rounder in fundraising, including a background in Foundations and Trusts? Can you inspire and motivate donors and fundraisers?

If so, then join an ambitious organisation with a determination to transform the future for the 220,000 people in the UK living with axial spondyloarthritis.  

We are a small team, looking for a second Fundraising Officer to work alongside our existing Fundraising Officer to deliver activity across all our income streams, supported by a Fundraising Board. We’re aiming to grow income from individual giving, Trusts and Foundations, community and individual fundraising, trading and further build our community of legacy pledgers. 2026 is our 50th Anniversary, a wonderful opportunity to celebrate our achievements and grow our income.

Our dedicated team at NASS is passionate about transforming lives for people with axial SpA. We truly value our people, who do meaningful work that directly impacts the lives of people living with axial SpA. You'll be supported to succeed and genuinely appreciated for your contributions. We pride ourselves on our collegiate spirit and willingness to support each other in all aspects of our work.  We operate a hybrid model of working, with some staff working remotely for most of the time, so applicants need to be comfortable with working in this way.

The Benefits

· Salary up to £30,000 - £32,000 p.a.

· Employer pension contribution of 10%

· 25 days annual leave plus 3 days leave between Christmas and New Year, plus Bank Holidays

· Time off in Lieu scheme

· Death in Service benefit to loved ones

If this sounds like you, then please get in touch. We would love to hear from you.

To apply, please submit: 

• Your CV
• A two-page cover letter explaining your interest in the role – the letter must describe how your skills and experience meet the person specification.

Application Deadline: 10 am on 6th January 2026.

Interviews:  15th January at our office in Hammersmith.

For further information, and to submit your application, contact Dale Webb

Commitment to equality, diversity & inclusion: NASS is proud to welcome everyone. We aim for a truly inclusive culture with talented, diverse teams that represent a variety of backgrounds, perspectives, and skills. We celebrate difference and individuality and encourage everyone to join us and be their whole selves always. We particularly encourage applications from individuals with lived experience of axial SpA and from underrepresented groups in the charity sector.

Live Unlimited are passionate about empowering care-experienced children and care-leavers in Barnet and our opportunities really do make a difference; from helping care-experienced children and young people feel more confident and positive about themselves, supporting them into meaningful new jobs, developing new skills, reducing stress and anxiety and making their feel equal to their peers. 

We are seeking a highly organised and passionate Project Officer to help deliver and co-ordinate four of our key programmes: 

• Driving Ahead – supporting care-experienced young people to learn to drive
• Peer Lives – a new peer mentoring scheme co-designed with young people
• Friends of Live Unlimited – our supporter engagement and fundraising community
• Imagination Unlimited – providing care-experienced young people with items that spark creativity, joy, and personal growth

As our range of schemes evolve over time, the Project Officer will have an opportunity to work on new projects as they are developed.

Live Unlimited, a charity that supports children in care and care-leavers in Barnet, is seeking a freelance fundraiser to help grow and diversify income across several key fundraising pillars, with a particular focus on trusts and foundations. You’ll work closely with the Chief Executive and play a vital role in securing funding that enables the charity to reach more care-experienced young people.

A place to create moments that matter
 
Location: Woodston Walk, Nottingham with flexibility to cover other schemes as required. 100% onsite.
Salary: £29,580 per annum, pro rata
Permanent, part time, 16 hours per week, can be worked over 4 or 5 days between 9am to 5pm, Monday - Friday.
 
Thousands of families across the country rely on us for a safe, affordable home. And as the housing crisis deepens, the work we do has never been more important.
 
It’s this belief - that everyone deserves a place to call home - that drives everything we do. Together, we find new ways to understand and champion our customers, support them and drive positive change.
 
For a career that means more and makes a meaningful impact on society, this is the place to be.
 
The role
 
At a time when safe, affordable housing is more vital than ever, your work can truly change lives. Join a team that believes everyone deserves a place to call home - and is committed to making that a reality.
 
As a Specialist Housing Partner (Independent Living Housing Officer), you’ll be at the heart of our Independent Living schemes, helping residents maintain their independence and feel part of a thriving community. From welcoming new tenants and supporting them through life’s changes, to resolving challenges with empathy and professionalism, you’ll be a trusted presence and a force for good.
 
What You’ll Do:
 
• Be a visible, supportive presence in our schemes, building strong relationships with residents.
• Work closely with lettings teams to ensure smooth move-ins and positive first impressions.
• Encourage community engagement and help residents live independently for as long as possible.
• Tackle issues like rent arrears, anti-social behaviour, and tenancy management with confidence and care.
• Collaborate with internal teams and external partners to deliver joined-up support.
 
Why This Role Matters:
 
You won’t just be managing housing - you’ll be creating safe, supportive environments where people can thrive. Every day, you’ll make a meaningful impact in someone’s life.
 
About you
 
• Experience delivering housing management services within a specialist or generic housing context.
• CIH Level 3 Certificate in Housing or equivalent (or willingness to work towards) or qualified through experience
• Strong understanding of anti-social behaviour management and rental income collection processes.
• Proven ability to manage multiple tasks and meet performance targets independently and as part of a team.
• Excellent communication skills with the ability to engage effectively with customers, colleagues, and external stakeholders.
• Knowledge of safeguarding practices within a housing context.
• Regular business travel will be necessary to other Accent sites and off-site meetings as required
 
Successful candidates will under go a DBS check.
 
A place to build a future
 
We have big ambitions. That means we need people who are driven to succeed and eager to grow. Here, you’ll have the opportunity to learn new skills, thrive in our collaborative environment, and take your career in different directions. We also support your health and wellbeing with 28 days of holiday plus bank holidays (pro rata for part time) - an extra day’s leave to celebrate your birthday and the option to purchase more - a cash health plan, access to an online GP, gym discounts, and a dedicated day to volunteer for a cause that matters to you.
 
And because we believe in supporting you now and in the future, this is a place to plan for your future - with access to both Defined Contribution and Defined Benefit pension schemes through salary sacrifice, helping you save more efficiently. We also provide life assurance at three times your salary for all colleagues, giving you added peace of mind.
 
We’re committed to making our recruitment process accessible and inclusive. If you require reasonable adjustments to any part of our recruitment process, please let us know we will ensure requirements are met.
 
Please don’t delay in submitting your application. Where roles are urgent or we receive a high volume of applications, we may interview and conclude the process prior to any closing date indicated.
 
Please note candidates must have current eligibility to live and work in the UK, Accent do not currently hold a sponsorship license.
 
If you’re looking for a place you can make a positive difference to society, to our organisation and to your future, apply now.  
 
Recruitment Agencies: We work exclusively with partners on our preferred supplier list (PSL) and do not accept unsolicited CVs or speculative approaches from agencies for this role.
 
You may have experience of the following: Specialist Housing Partner, Independent Living Housing Officer, Housing Officer, Supported Housing Officer, Independent Living Coordinator, Scheme Manager, Housing Support Officer, Tenancy Support Officer, Tenancy Management Officer, Sheltered Housing Officer, etc.

REF-225 239

As Neighbourhood - Senior Organiser at Pembroke House you will be someone who is highly skilled and experienced at bringing together diverse groups of people to take collective action on local issues.

You’ll have the ability to blend organising and community-building strategies, knowing that we can’t build power without building community and that community is often built through a common cause.

You’ll be excited to bring your organising and facilitation skills to our existing community programmes, including the Walworth Living Room - a new ‘third space’ for the community, as well as playing a crucial role in developing new partnerships and future areas of our work. 

If this job is done well, residents will be growing their skills and capacity to collaborate, groups will be building momentum, and beginning to take action to effect change in the neighbourhood. Pembroke House’s role and approach to supporting neighbourhood change will be further clarified, codified and evidenced. 

Person Specification

You’ll be an energetic person who thrives on making new connections and can inspire others to take action. As an experienced facilitator you will be confident facilitating groups and at ease with designing and adapting formal and informal training sessions appropriate to the context.

Your experience MUST include facilitating groups who don’t already hold a common and agreed set of values. So while academic or activist settings may form a significant part of your experience, it is essential to have worked in a mixed community or neighbourhood setting, where you regularly encountered and brought together a range of contrasting viewpoints, which included views substantially different to your own.

A knowledge of community organising methodology (see for example Act Build Change or Citizen’s UK) is useful, but there may also be other approaches or experiences that you could draw on for this role. You will be curious and keen to learn about the history of community organising and community development at Pembroke House, and keen to build on and contribute to the development of that work. 

Pembroke House

Pembroke House is a centre for social action and residential community in Walworth, South-East London.

We were founded in 1885, by students from Pembroke College, Cambridge, as one of the first settlement houses. Concerned about growing poverty and inequality, the pioneers of the settlement movement sought a new approach: taking up residence to live, work and solve problems alongside local communities. 

For 140 years, we’ve been working to bridge traditional divides and unite people – whatever their background or walk of life – in building a better Walworth.

Responsible to: Director of Partnerships

Location: Pembroke House, 80 Tatum Street, SE171QR, the Walworth Living Room, All Saints Hall, Surrey Square, SE172JU, and surrounding areas in Walworth.

As we are a neighbourhood based organisation we believe it is essential to our work that staff are present in one of our sites in Walworth as much as possible. This role is in person and not suitable for remote or hybrid working.

Job Information Event -Friday 12th December 2025 11.00 - 12.00. Signup required (see website)

Application Deadline: 9am Monday 5th January 2026

Short interview calls: Week of 5th January 2026: A brief online call to clarify your relevant experience.

In person interview: Tuesday 13th/Wed 14th January 2026: Full interview with two members of our team

Final round: Trial session at Walworth Living Room, Friday 16th January 2026

Hours of Work: Full time 35 hrs per week, with some evening and weekends (taken off as TOIL). 

Salary: £38,353 - £40,381

Annual Holiday Leave: 28 days paid annual leave per annum (pro rata), plus the standard Bank and Public Holidays and three discretionary days between Christmas and New Year.

Young Lives vs Cancer is seeking tenders from experienced organisations to deliver housekeeping and cleaning support at Paul’s House, our Home from Home accommodation in central London. This service supports families of children and young people (aged 0–24) undergoing cancer treatment at nearby hospitals.

Contract Overview

Location: Paul’s House, 62, 64–66 Huntley Street, London, WC1E 6DD

Contract Term: 3-year term with potential extension to five years.

• Annual Value: Up to £80,000 including VAT
• Total Contract Value: Up to £240,000 including VAT
• Hours Required: 75 hours of housekeeping support per week, for 50 weeks per year.  Core hours Monday – Friday between 8am and 1pm

Scope of Services

The successful tenderer will:

• Deliver high-quality cleaning and housekeeping services in accordance with the supervision of the managers at the premises
• Work alongside our Accommodation Service staff
• Maintain a safe, welcoming, and caring environment for families
• Ensure compliance with health & safety and safeguarding procedures
• Provide staff who are respectful, sensitive, and supportive to families
• We take our safeguarding responsibilities seriously and have the same expectation of services we commission including safe recruitment practices. Providers will be required to have rigorous safe recruitment practices in place including that all staff have enhanced criminal record checks, complete and up to date references and comprehensive work history.

Key Dates

• Visits to Paul’s House: 9th and 10th of December 2025
• Deadline for clarification questions: 10th December 2025
• Tender deadline: 12th January 2026 (12 noon)
• Tender interview for shortlisted firms: 26th January 2026
• Inform applicants of outcome: 29th January 2026
• Target start date: 2nd March 2026

Please note that visiting Paul’s House on an agreed date is a requirement. 

Application Process

Full details can be found in the tender document and via the apply link.

• £30,419 (FTE), pro-rata for part time hours
• 28 hours a week
• Part time, up to 12 months fixed term Maternity Cover
• Homebased (with some travel required for in person events)
• Closing date: Sunday 21st December 2025
• Interview date: Thursday 8th January 2026 

Change lives in a life-changing career

When a child or young person is diagnosed with cancer, their whole world can feel like it’s falling apart. Independence is taken and confidence is stolen. Stability no longer exists. The future suddenly feels uncertain.

The impact of cancer on young lives is more than medical. And that impact can be felt by entire family. That’s why we exist. Our specialist social workers help children and young people with cancer and their families navigate the emotional and practical impact of cancer.

We remove barriers, solve problems and prioritise wellbeing. And we stop at nothing to make their voices heard and their unique needs understood, so they can get the right care and support at the right time

About the role

We’re looking for a Voice Officer with experience of working with children, young people and their families and amplifying their voices to help create positive change to join our Voice Team. 

The Voice Officer is a key member of the Voice Team, responsible for enabling Young Lives vs Cancer to shape the children and young people’s cancer system with and for young people with cancer and their families. You will enable young people affected by cancer and their families to have a stronger voice inside and outside the organisation - not just to contribute, but also to challenge, giving the power to them to amplify their voice and make positive change.

You will work with the Voice Manager and Head of Voice to deliver our Voice work to a high quality. Responsible for managing incoming enquiries and communications with our volunteer Voice Board Members, Voice Champions and Voice Hub network, working with the team to plan and run meetings and events both online and in person. With excellent organisational skills, you will help plan and coordinate our voice work, building strong working relationships with colleagues and our voice community with volunteer management responsibility for Voice Board Members and Voice Champions. 

This role is subject to a criminal record check. In the event of a successful application an Enhanced criminal record check will be completed.

What will I be doing?

No two days are the same at Young Lives vs Cancer. So, summarising your ‘day to day’ isn’t easy. Here are some of the main things you’ll be doing, but you’ll find more details in the job description.

Main responsibilities

Communication and Organisation

• Delivering effective internal communication regarding the Voice team and playing a pro-active and leading role in Voice team meetings
• Supporting with correspondence, record-keeping and tracking leading on communications with our voice volunteers and internal communications
• Effective project management of voice activity - for example, planning events, setting goals and impact measurements for the activity, managing risks and reporting on progress

Voice Activities

• Working with the Voice Manager and Head of Voice to deliver the organisation’s Voice approach, enabling children, young people and parents/carers to shape the organisation and the system it is situated within, maximising our Voice opportunities
• Delivery of the Voice Board so it is an effective model for the Board of Trustees to listen to and act upon the voices of young people with cancer, their parents/carers and siblings.
• Travel and occasional overnight stays to attend in person events with our voice volunteers.
• Developing and supporting the growth of our Voice Hub bringing voice opportunities to our wider community
• Act as the key contact and support for our Voice Champion Volunteers
• Working in partnership with the Voice Champions team on the development and dissemination of voice guidance and training for staff and volunteers across the organisation, designed to equip them so that they can confidently work alongside young cancer patients and their families
• Working with the Voice Manager and Head of Voice to ensure that we are able to amplify voices of all our beneficiaries across the whole of the UK, from the widest range of backgrounds and cultures

Working relationships and contacts

• Volunteer management of our Voice Board Members and Voice Champions Team.
• Building and maintaining relationships and influencing others. Both internally working with colleagues to equip them to work alongside young people and families and externally working with young people and families to understand their views and opinions, ensuring that they feel heard as well as building connections with partners across the sector.
• Develop and sustain sector relationships, staying up to date with external developments in voice and participation and identifying opportunities for innovation and partnership

Additional responsibilities

Alongside your specific job duties, every member of Team Young Lives needs to make sure they also: 

• Make safeguarding a priority 
• Take care of your own health and safety and that of others
• Actively challenge injustice and inequality and promote Young Lives vs Cancer’s Diversity, Equity, Inclusion and Belonging agenda to create a better, more diverse and inclusive organisation.
• Ensure that you treat information and data professionally, using it only for the purposes that Young Lives vs Cancer has said it would; respecting the confidentiality and privacy of its supporters, service users and staff.
• Accept that you are personally responsible and accountable for ensuring you understand and adhere to all Young Lives vs Cancer policies and procedures
• Be an active team member, regularly attending team meetings and contributing to shared learning and development
• Undertake any other reasonable duties as directed by or agreed with your line manager. 

What do I need? 

Diverse perspectives and unique skillsets are at the heart of Young Lives vs Cancer. If you're passionate about making a positive impact and eager to learn, we encourage you to apply, even if you don't meet the criteria and person specification fully. 

What will I gain?

 For people to reach their full potential, they need the right environment. As a member of Team Young Lives, you’ll be made to feel supported, valued and appreciated. Here’s how we do it:

• Flexible working: we’re open to working hours outside of 9 - 5 and we can talk through your flexibility requirements at interview stage
• Wellbeing, Thinking & Growth Days: four days a year to to step back from the day-to-day and focus on your own learning and development
• Generous annual leave allowance
• Great family/caring leave entitlements
• Enhanced pension
• Access to our employee savings scheme

To find out more about our benefits package, have a look on our website.

Our commitment to Diversity, Equity, Inclusion and Belonging

At Young Lives vs Cancer, we recognise that opportunities for too many people remain a condition of their sex, ethnicity, class, gender identity, disability, sexual orientation – or a combination. This has never been acceptable to us as an organisation. We don’t just accept difference, we value it, celebrate it, nurture it and we thrive because of it.

We’re on a journey to be reflective of the diverse children, young people and families we support. We know we aren’t there yet, and we’re passionately committed to taking actions and making changes to be a truly diverse, inclusive and equitable organisation. This includes taking anti-oppressive action and removing barriers in our recruitment practices. We particularly welcome applications from members of minoritised communities. Our Diversity, Inclusion, Equity and Belonging strategy will tell you more.

We operate an anonymised shortlisting process in our commitment to diversity, equity, inclusion and belonging. CVs can be uploaded, but we won't be able to view them until we invite you for an interview. Instead, we ask you to fully complete the work history sections of the online application form for us to be able to assess you quickly, fairly and objectively.

Accessibility

We’re committed to providing reasonable adjustments throughout our recruitment process and we’ll always aim to be as accommodating as possible.Please let us know in your application form of any adjustments or access requirements we could make to help you with the application process and interview.

Interviews will be taking place on Thursday 8th and Monday 12th January. They will include a brief presentation task and questions which we'll share ahead of the interview.

#ShowTheSalary #NonGraduatesWelcome

Are you passionate about inclusion and improving understanding of autism and learning disabilities?

We’re looking for a skilled and compassionate Facilitating Trainer to join our Lived Experience Training team, supporting autistic trainers and trainers with learning disabilities to co-deliver the Oliver McGowan Tier 1 Training.

This national programme helps professionals in health and social care gain a deeper understanding of autism and learning disabilities, leading to more inclusive and effective services. You’ll ensure that trainers with lived experience are supported, empowered, and equipped to deliver engaging and accessible online training sessions.

We actively welcome applications from people of all backgrounds and identities — particularly those with lived experience of autism, learning disability or neurodivergence — and from groups currently under-represented in our workforce.

You will:

• Facilitate Oliver McGowan Tier 1 training sessions online across the Sussex area
• Support co-trainers with lived experience to prepare for and deliver sessions
• Ensure accessibility needs are met, including support with travel, technology and materials
• Work with the wider Lived Experience Training team to manage registers, feedback and session administration
• Promote inclusion, respect and empowerment throughout all aspects of the training programme

We’re looking for someone who can demonstrate:

• Understanding of barriers faced by autistic people and people with learning disabilities, and a commitment to inclusion
• Experience delivering online training sessions, ideally in health, social care or education
• Excellent communication and interpersonal skills — especially in remote settings
• The ability to balance co-trainers’ support needs with those of learners
• Confidence managing multiple priorities and adapting to different environments

We’re a flexible, supportive employer. We’re happy to discuss any access needs, working-pattern requests or adjustments that would help you thrive in this role.

Why join us?

Impact Initiatives is a Brighton-based charity with a strong reputation for supporting people of all ages and abilities across Sussex. Our Lived Experience Training project empowers autistic trainers and trainers with learning disabilities to use their expertise to drive positive change in health and social care.

You’ll join a welcoming, values-led team that’s committed to inclusion, development and ensuring lived experience shapes the future of professional practice.

Questions about the role?
Please contact Impact Initiatives and ask for James Parmenter or mark your email for his attention.

Closing date: 9:00 am, Monday 8th December 2025
Interviews: Week beginning 15th December 2025

This post is exempt from the Rehabilitation of Offenders Act (1974) and the successful applicant may be subject to a DBS check.

We’re looking for an empathetic and skilled Facilitating Trainer to join our Lived Experience Training team, supporting autistic trainers and trainers with learning disabilities to co-deliver the Oliver McGowan Tier 2 Training.

This nationally recognised programme helps professionals in health and social care better understand and meet the needs of autistic people and people with learning disabilities. You’ll play a key role in ensuring that trainers with lived experience are supported, empowered, and able to deliver engaging, high-quality training sessions.

We actively welcome applicants from all backgrounds and identities, particularly those with lived experience of autism, learning disability, or neurodivergence, and from groups currently underrepresented in our workforce.

You will:

• Support co-trainers with lived experience to prepare for and deliver Oliver McGowan Tier 2 sessions
• Provide practical support around travel, accessibility and session preparation
• Ensure that training venues and materials are adjusted to meet trainers’ individual needs
• Work collaboratively with the wider Lived Experience Training team to manage session registers, feedback and administration
• Promote inclusion, respect and empowerment in every training interaction

We’re looking for someone who can demonstrate:

• Understanding of the barriers faced by autistic people and people with learning disabilities, and a commitment to inclusion
• Experience delivering face-to-face training, ideally in health, social care or education settings
• Strong communication and organisational skills, with a collaborative approach
• The ability to balance supporting co-trainers’ needs with those of learners
• Confidence managing practical arrangements and adapting to varied situations

We’re a flexible, supportive employer. We’re happy to discuss any access needs, working pattern requests or adjustments that would help you thrive in this role.

Why join us?

Impact Initiatives is a Brighton-based charity with a strong reputation for supporting people of all ages and abilities across Sussex. Our Lived Experience Training project empowers autistic trainers and trainers with learning disabilities to influence change and build professional confidence.

You’ll join a welcoming, values-led team dedicated to inclusion, development, and the power of lived experience to make a difference.

Closing date: 9:00am, Monday 8 December 2025
Interviews: Week beginning 15 December 2025

This post is exempt from the Rehabilitation of Offenders Act (1974) and the successful applicant may be subject to a DBS check.

Join an amazing charity that makes a difference for the 110,000 adults and children in the UK with a muscle-wasting condition. This is a role where you can really make a difference.

We are committed to building a diverse and inclusive organisation that reflects the communities we serve. We actively encourage applications from individuals of all backgrounds, particularly those from underrepresented groups including people from ethnic minority backgrounds, LGBTQ+ individuals, and those with lived experience of conditions we represent. We believe that diversity strengthens our work and helps us better support our beneficiaries.

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Main purpose of role

Main purpose of role The Helpline and Support Officer role sits within the Services and Support Directorate and provides tailored advice and practical support to individuals and families living with muscle wasting and weakening conditions from the point of diagnosis and beyond.

The Helpline and Support Officer will support people to navigate the UK’s Job description health, social care and welfare systems, enabling access to the services, benefits and equipment they are entitled to.

The role also involves informal advocacy, helping service users communicate their needs to overcome barriers; while ensuring they receive high-quality and ongoing support throughout their journey.

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About us:

Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to fight muscle-wasting conditions. We bring together more than 60 rare and very rare progressive muscle-weakening and wasting conditions, affecting around 110,000 children and adults in the UK.

We recently launched our new 10 year strategy to transform the lives of people living with muscle wasting conditions. Our vision is clear, a world without limits for people with muscle wasting conditions, and we won’t stop until we achieve it.

Benefits:

We appreciate the range of skills and experience our staff have to offer. In return for your enthusiasm and commitment we commit to actively developing and supporting you. We also offer a range of benefits including pension, life assurance, discount in high street shops and gym membership, cycle scheme, health cash plan, financial wellbeing and an employee assistance programme.

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Location: Head Office, London SE1 (at least one day a week in Head Office, with flexibility for hybrid and homeworking

Closing date: Tuesday 9th December

Interview dates: 16th and 17th of  December

Please download the job description to see full role responsibilities