Managing advocate jobs in Birmingham

Digital Transformation Lead 

Reporting to: Chief Operating Officer 

Employment Status: Permanent, full-time/part-time (flexible) 

Location: Home-based 

Salary: £45k-£55k, plus excellent benefits 

Role purpose 

Adoption UK is undertaking a major digital transformation, initially focused on CRM and website development. We’re looking for a talented digital and data enthusiast to lead this transformation programme and subsequently oversee our ongoing digital development. This will be aligned to our strategy and preferred technology stack, and will include managing key relationships with our digital partners. 

You’ll refine and implement Adoption UK’s digital strategy, leading our digital transformation project to successful completion. You will work with internal and external stakeholders to ensure that the project’s vision and scope meet the business and operational needs of the charity. The role includes direct line management of a Digital Manager and matrix project management of existing roles in data management and website content management. An important part of your role will be proactively identifying opportunities to integrate digital approaches into all current and upcoming projects. 

Digital is key to Adoption UK’s future, and this is a high profile role within the organisation. We’re looking for someone with experience of delivering change, who is an excellent communicator and a passionate digital advocate profile role within the organisation. We’re looking for someone with experience of delivering change, who is an excellent communicator and a passionate digital advocate. 

Background – our digital transformation 

Like many charities, we’ve historically developed our digital framework and footprint organically, with insufficient web and CRM integration and functionality, duplication, and data silos. This has resulted in data management and website capabilities that don’t fully meet our users’ needs. We’re addressing this by: 

• Investing in our customer facing platforms and data management systems, connecting all our divisions and services, and delivering integrated systems that provide a positive customer and stakeholder journey.facing platforms and data management systems, connecting all our divisions and services, and delivering integrated systems that provide a positive customer and stakeholder journey. 
• Developing the next generation of digitally accessible services. 
• Extending our inhouse digital capability to support continuous delivery. 

Key accountabilities 

• Lead the refinement and implementation of the charity’s digital strategy. 
• Lead a project team to successfully deliver change in line with the agreed project timeline. 
• Manage the governance and assurance framework for delivering our website and CRM digital transformation programme. 
• Build and manage relationships with key stakeholders across the organisation and with current and future digital partners. Use these networks to: 

1. Promote digitalfirst principles and best practice, and raise awareness of our work. 
2. Increase internal stakeholders’ understanding of the benefits and opportunities that digital approaches bring. 
3. Proactively identify opportunities to increase our digital capability and integrate digital into current and upcoming work. 

• Revise and deploy a performance assessment framework to track individual digital projects and ensure services comply with digital and data bestpractice standards. 
• Assess and report on Adoption UK’s digital and data maturity, ensuring compliance with data security standards. 
• Manage our external digital and IT partners, including contracts and performance monitoring. 

Essential criteria 

• A strong understanding of digital and technology trends, with experience implementing a Microsoft based technology stack based technology stack. 
• Experience in successfully delivering digital change projects. 
• Excellent verbal and written communication skills, with the ability to convey complex or technical information clearly and simply. 
• Experience of building relationships with, engaging, and influencing internal and external stakeholders at all levels. Able to engage effectively with both technical and nontechnical audiences. 
• Experience working at a senior level to deliver change or implement strategy. 
• Ability to work under pressure and respond quickly to changing circumstances and tight timelines. 

Desirable criteria 

• Experience of working in an organisation that uses agile development methodologies. 
• A strong understanding of the National Cyber Security Centre (NCSC) principles and approach, and of General Data Protection Regulation (GDPR) principles, audit, and compliance. 

Axial spondyloarthritis (axSpA) is a painful, lifelong inflammatory condition affecting around 1 in  people. Despite this, awareness remains low and diagnosis is often delayed.

ASIF brings together 60 patient organisations across 48 countries to raise awareness, strengthen patient voices and improve understanding of axSpA globally. We are a small, fully remote team who care deeply about the work we do and about working supportively and collaboratively with one another.

We are now looking for an organised, proactive and thoughtful Project Co-ordinator/ Operations Assistant to help us deliver a major international online research study, while also supporting our wider activities.

This is an opportunity to be part of something meaningful - research that will help shape advocacy, awareness and understanding for people living with inflammatory arthritis around the world.

The Role

Your time will be split approximately:

• 70–80% supporting an ambitious international research project·
• 20–30% supporting ASIF’s wider operations

You will work closely with our Project Manager, international member organisations and scientific partners to support all stages of the study, from set-up and ethics submissions through to recruitment, reporting and sharing findings globally.

Alongside this, you’ll help with events, communications and general organisational support, because in a small team, we all contribute where needed.

About You

We’re looking for someone who:

• Has experience supporting research projects (ideally in healthcare or epidemiology)
• Is highly organised and comfortable managing detailed documentation
• Communicates clearly and confidently in English         
• Is proactive, reliable and solutions-focused
• Is comfortable working remotely and independently
• Enjoys collaborating with people from different countries and cultures
• Understands what it means to work in a small organisation; flexible, supportive and hands-on

Most importantly, you’ll be someone who takes pride in doing careful, thoughtful work that contributes to real-world impact.

Key Information
Location: Fully remote (preferably within 2 hours of GMT)
Salary: £35,000–£40,000 per annum
Hours: 37.5 per week (flexible working)
Contract: 18 months (extension subject to funding)
Closing date: 11 March 2026
Interviews: First interviews, 18/19 March (online)

Imagine working alongside young people who've challenged Meta's hate speech policies, won national awards, and brought a sofa on wheels to a protest. Coventry Youth Activists (CYA) is the UK's only youth-led campaign group run by and for disabled young people—70% of members have learning disabilities—and they need a Community Organiser to help them take on one of their biggest fights yet: defending SEND rights.

This isn't traditional charity work. CYA doesn't lobby for disabled young people—they campaign as them. From Mad Hatter's Tea Parties outside Facebook HQ to high-level negotiations with decision-makers, their approach is bold, creative, and effective. As one member puts it: "Leadership doesn't have to look a certain way... That's what we do at CYA."

What you'll be doing

You'll support CYA members to challenge urgent threats to their rights—particularly government reforms affecting SEND (Special Educational Need and Disability) rights. This means:

• Developing campaign strategies and power mapping decision-makers with young activists
• Facilitating actions, media engagement, and high-level negotiations
• Coaching young leaders and building their confidence to take the lead
• Creating alliances and expanding CYA's reach and influence
• Ensuring everything is accessible, inclusive, and driven by lived experience

You won't be doing this alone. You'll be part of Grapevine, an award-winning charity with years of community organising expertise, working within a supportive team that believes in joyful organising.

Who we're looking for

We want someone with proven campaigning experience and strong facilitation skills—but just as importantly, someone with creativity, a passion for justice, and the ability to work inclusively with young people with learning disabilities.

Essential skills and experience:

• At least one year's community organising or campaigning experience with clear evidence of wins
• Ability to work collaboratively and inclusively, especially with people who have learning disabilities
• Strong facilitation and communication skills
• Experience building alliances and developing others
• Creative problem-solving and a genuine passion for justice

Benefits include:

• Flexible working arrangements
• 25 days annual leave plus bank holidays (pro rata)
• 8% non-contributory pension (Grapevine pays the full amount)
• Employee Assistance Programme
• A culture of learning, reflection, and genuine support

Grapevine is a place where you'll have freedom with support, real opportunities to grow, and work that creates lasting impact. Our team describe it as a "powerhouse" that feels like a second home.

About Grapevine

We're an award-winning charity helping communities across Coventry and Warwickshire take collective action. We're nationally recognised for our community organising approach and we're accredited trainers for the National Community Organisers programme. We believe those who face challenges are best positioned to lead solutions—and we provide the support to make that happen.

"Grapevine is a fantastic organisation—bold, innovative and caring. It manages to balance positive outcomes for individuals and communities with system change—a very rare thing." — Tim, Community Leader

Equality and Inclusion

Fairness and inclusion are part of who we are—going back to our origins as a disability charity. We actively seek people from all backgrounds and AIM TO remove barriers to equal opportunity. We welcome applications from everyone.

Amos Trust is entering an exciting new phase, expanding our events and relaunching our Palestine travel. We are looking for a passionate Events Manager to join our team.

Amos Trust

Amos Trust is a creative human rights organisation that challenges injustice, builds hope, and supports inspiring local partner projects. We work across three areas: Justice for Palestinians, Gender Justice, and Climate Justice.

In all our work we seek to platform artists and activists with lived experience and to find creative ways to engage people.

This year marks our 40th anniversary—and we are entering an exciting new chapter. To expand our programme of events and relaunch our highly regarded Palestine travel programme, we are seeking an experienced and passionate Events Manager to join our small, dedicated team.

The Role

The person appointed will be responsible for:

• Delivering high-profile live events and tours

• Managing our international travel programme to Palestine

• Supporting further operational activities across the organisation

You will work closely with the Amos team and report to the Head of Finance and Operations.

Events

In recent years, Amos Trust has delivered an ambitious and growing programme, including:

• Sumud Concert at Union Chapel featuring Mogwai, Brian Eno, Adnan Joubran, Nadine Shah and others

• Beyond the Rubble national tour with young dancers from our partner  Alrowwad in Bethlehem

• Requiems at Methodist Central Hall and Greenbelt Festival to commemorate those killed in the Gaza Genocide

• Days Like These fundraising concert with Billy Bragg and friends

We are looking for someone who can build on this momentum and help us increase the number and range of events we run. 

Travel 

We are relaunching our Palestine Travel Programme after a three-year pause. We plan to be taking our first supporter groups to visit The West Bank in April 2026.  We will be taking the trip participants into a highly complex environment which requires exceptional planning and preparation to ensure the success of the trips and the safety of the participants.

You will also support our annual Roaclub cycling programme, visits to international partners and hosting international guests and partners in the UK

Operations

Alongside events and travel, you will manage a range of additional operational tasks. As a small organisation without a permanent office, these responsibilities will be manageable and shaped by your skills and experience.
 

Visit our website for a full employment pack

AAFDA was founded by Frank Mullane in memory of his sister Julia Pemberton and her son Will who were both killed by her ex-partner in 2003.

Each year, around 150 families lose a loved one to domestic homicide. The actual number of suicides as a result of domestic abuse remains unknown. Most of these families suffer significant problems including relationship breakdown, job difficulties/loss and mental and physical health issues. We help these families in many ways, our prime function being to provide families in England, Wales and Northern Ireland with specialist peer support and expert and specialist advocacy for the range of statutory reviews that will take place after domestic homicide.

AAFDA (Advocacy After Fatal Domestic Abuse) is a growing Charity and to meet the demands we are looking for a specialist Advocate for Scotland. Although home based, some travel will be required - frequency will be commensurate to the role. We welcome applications from candidates with experience of domestic abuse. We are also committed to diversity and strongly encourage applications from those with Black and/or Minoritised backgrounds.

Scotland is expected to introduce Domestic Homicide and Suicide Reviews commencing in April 2026. We are looking for a candidate with a good understanding of the Scottish legislative system and good understanding around domestic abuse to join our growing charity

Our Specialist Advocates support families impacted by fatal domestic abuse through provision of lay advocacy, for and on behalf of, families with a range of statutory service providers (e.g. those conducting reviews and inquiries, social services, police, housing) and work to build good relations between all parties. To ensure that families get the support they need, you will use AAFDA’s Home Office endorsed seven-step approach to working with individuals and families, to ensure that they receive the best possible support and advocacy to restore dignity and relief for families and to help them cope and recover. Through trauma-informed approaches, you will:

· Listen to families and advocate for them in a complex system that too often treats them as passive participants and overlooks the value of their insight.

· Provide information, support, guidance, advice and advocacy on Domestic Homicide & Suicide Reviews (DHSR’s) and other reviews where relevant and appropriate.

· Manage families’ expectations of the legal and procedural processes facing them by supporting families in meetings with agencies such as health, police and local authorities.

· Give families practical help on a wide range of issues - including help with letter writing or advocating with employers and local authorities on the families’ behalf.

· Support AAFDA in our bringing families together in AAFDA’s peer support events, such as the Hear Our Voice weekend and the on-line peer support Zoom sessions, where families can speak with others to share their experiences and stories. This will involve occasional evening work.

In return for joining us, we will offer you:

· 25 days annual leave per annum, plus bank holidays

· Excellent development and training opportunities

· Pension Scheme

· Healthcare Scheme

· Employee Assist Scheme

Application Instructions

To apply for this role, please submit a supporting statement along with your CV. Closing date:

Applicants will be shortlisted according to how well they meet the criteria in the person specification. Please highlight and explain how you meet these in your supporting statement. If you have been shortlisted for interview, you will be informed by email. Regrettably, we are normally unable to acknowledge unsuccessful applicants.

Please note that we will not progress applications where the supporting statement does not address the criteria for the role being applied for.

.You will be required to visit families and clients across Scotland. 

Job Title: Health Advocate Educator - Maternity Cover

Location: Warwickshire
Salary: £25,857.12 per annum
Contract type: Full Time, Fixed Term (Until 1 April 2027 - Maternity cover)

Hours: 37.5 hours per week

This is an opportunity to join Refuge as a Domestic Abuse Health Advocate Educator supporting women and children who are impacted by domestic violence. You will work closely with victims of domestic abuse from the point of crisis, to provide high quality independent advocacy and support to survivors of domestic abuse at the highest risk and their children.

The Health Advocate Educator will support healthcare teams to identify domestic abuse at an early stage and ensure appropriate responses and referral pathways are offered to female, male and non-binary survivors of domestic violence and abuse. In addition, the post holder will directly support survivors of domestic abuse and hold their own case load.

The post holder will collaborate with the local ICB and Service Manager to strengthen connections with healthcare teams and create effective partnerships that support survivors. 

This post is restricted to women due to the nature of the role. The Occupational Requirement under Schedule 9 (part 1) of the Equality Act 2010 applies.

Closing Date: 09:00am 9 March 2026

Interview Date: 16 March 2026

Cardiomyopathy UK is the only UK charity dedicated to supporting individuals and families affected by cardiomyopathy. We provide clinical information, emotional support, and work to influence policy and practice so that everyone affected by cardiomyopathy receives timely diagnosis, high-quality care, and support.

Our established Change Maker volunteer network brings together people with lived experience of cardiomyopathy who share their stories and the expertise it provides to advocate for meaningful policy and practice change. Change Makers contribute in a range of ways, from running awareness raising activities and supporting social media campaigns to engaging with MPs. Their work helps drive improvements in care pathways, raise public understanding of cardiomyopathy and provide valuable input into Cardiomyopathy UK’s policy development.

As the network enters its next phase, we are seeking a skilled and passionate Freelance Senior Advocacy Officer to help take it forward.

Role Purpose

The Freelance Senior Advocacy Officer will lead the growth and development of our Change Maker network, ensuring volunteers are supported, empowered, and equipped to influence change at local, regional, and national levels. In this role, you will work closely with the Policy Manager to design and implement a strategic plan for the network, and provide the training, tools and resources our volunteers need to advocate effectively. The ideal candidate will bring expertise in advocacy, campaigns or volunteer engagement, along with strong project management skills.

As a 0.4 FTE freelance role, responsibilities will be phased and prioritised over the course of the contract. 

Please see the job description and person specification for further details.

CLOSING DATE MONDAY 2ND MARCH 2026

Job Title: Children's Domestic Violence Advocate (CHIDVA)

Location: Warwickshire (North and Rugby). Travel required across Warwickshire, predominantly North Warwickshire and Rugby. Use of a car is essential to the role.
Salary: £25,857.12 per annum
Contract type: Fixed Term (Until September 2026), Full Time

Hours: 37.5 hours 

We are recruiting for two CHIDVA who will be working closely with children and their mothers who are living in our refuges escaping domestic violence and other forms of violence and abuse, to provide personal welfare support and ensure that our clients are provided with a safe, supportive, and welcoming environment.

The job involves providing support to children and young people who are living in Warwickshire and have witnessed/experienced domestic abuse. The post holder will support children and young people from the age of 4 – 17 years old who have been affected by domestic abuse, including teenage relationship abuse.  

The post holder will support children and young people from the point of crisis to ensure their short term and long-term safety; reduce risk; enable them to access community support services and achieve their goals. You will also be responsible for increasing the ability of partner agencies including schools to recognise and respond appropriately and safely to young people affected by domestic abuse. 

Please note that this post is restricted to women due to the nature of the role. The Occupational Requirement under Schedule 9 (part 1) of the Equality Act 2010 applies. 

A driving license and access to a car is essential to the role as travel is required across Warwickshire, predominantly North Warwickshire and Rugby. Use of a car is essential to the role. 

Closing Date: 09:00 am 10 March 2026

Interview date: 19 March 2026

This is a full-time Chief Exec role offering an exciting time to join an organisation making

a huge impact with minimal resources. As the Organisation enters its tenth year,

regrettably the need for this work has never been greater and in addition to enhancing

existing projects, we plan to grow our Dignity Centre locations as well as expand our

outreach and impact in the coming two to five years. As a small charity, the role is

incredibly varied as well as hands-on. While there is no physical back office, meaning

the role is mostly from home/remote, the CEO spends sustained periods of time in our

projects in Nicosia, Cyprus and Bournemouth, UK as well as any new or potential

project sites in the UK and abroad. A typical day could include troubleshooting and

managing maintenance problems at distance for our projects in Nicosia and

Bournemouth, preparing and delivering interviews and presentations to the media or for

donors, calling volunteers to prepare them for collaborating with us and collating

indicator data for impact reports.

Title: Healthcare Assistant

Reports to:  Patient Services Manager  

Based at: Remote Worker– however must be able to travel as and when required to meetings and/or events

Job Purpose: To provide direct support to patients and support to all areas of the Charity Group

Working Hours: Monday – Thursday 09:00 – 17.30, Friday 09.00 – 17.00

Key Responsibilities:

· Responding to enquiries via telephone, email, online forums or social media with empathy, a listening ear, informative and supportive manner, whilst demonstrating confidentiality and sensitivity. Stay fully informed on the conditions and treatments associated with all three charities, ensuring the ability to respond to related enquiries becomes second nature

· Co-ordinate and action messages in the Patient Services Mailbox and distribute messages accordingly to the wider team where needed

· Maintain Patient Services documentation and make sure details are updated with clear and concise information

· Identifying gaps in patient information and assist in developing and proofreading relevant medically approved resources to reflect current guidelines, treatments, services and advances

· Frequently reviewing and assisting with update of content on charity websites and social media channels current and relevant Forums

· Supporting the organisation, promotion and delivery of all charity events including Patients Day, World Heart Rhythm Week, Global AF Aware Week, Know Your Pulse & Support Groups, Coffee mornings, Living with ...Series etc

· Build a central database of case studies / patient stories whether written or recorded

· Contribute content for the monthly e news and regular newsletters including patient stories, FAQ’s and latest news and updates with resources to Patient Service Manager

· Propose titles and speakers for patient educational events and develop virtual educational videos

· Co-ordinate the day-to-day planning and organisation of the fundraising activities and responding to enquiries.

· Support Patient Services Manager with administrative tasks/requests

Person specification:

- Sufficient healthcare knowledge and empathy when managing enquires

- Excellent verbal and written communication skills

- Excellent attention to detail and accuracy

- Excellent knowledge in Microsoft Suite of tools including Word, Excel and PowerPoint

- Excellent organisational skills, with the ability to prioritise and manage own workload

- Can undertake a wide variety of tasks and multi-task with ease

- Professional, methodical and thorough approach to work with a friendly and polite manner

- Ability to work on own initiative as well as part of a team

- Full Driving Licence with access to a vehicle

- Educated to GCSE level minimum

As education quality assurance service officer, you will be responsible for the day-to-day administration, coordination, and continuous improvement of World Physiotherapy’s education quality assurance services, including programme accreditation and CPD recognition.

You will be one of the key points of contact for World Physiotherapy education quality assurance services including physiotherapist entry level programme accreditation and continuing professional development (CPD) recognition. The position is instrumental in assisting the smooth running of World Physiotherapy education quality assurance services and supporting the work of the Head of membership, education and development, and other staff working on the education portfolio.

You will use your experience, initiative, confidence, project and organisational skills to support effective implementation of the education quality assurance services. You will support and coordinate activities and administrative tasks for the full review cycle. These include managing inquiries, processing applications, distributing materials to reviewers, organising site visits, supporting the review and reporting process, preparing documentation for committee approval, and communication with applicants about the results of the review. This will require close liaison with staff, member organisations, reviewers, board/committee members, and external stakeholders.

You will enjoy working for a growing, values-driven organisation where you can use your skills to support both day‑to‑day operations and strategic projects working at all levels in the organisation and with key stakeholders.

You thrive in a dynamic, international team where you can implement systems and processes that support effective and efficient operations, and you are confident bringing forward ideas to strengthen the service. We undertake a range of educational and quality assurance activities, and we are looking for someone who is very familiar and confident with Microsoft 365, Salesforce, and Zoom meetings.

Duties and key responsibilities

Education quality assurance service administration

• Act as a primary point of contact for all inquiries related to education quality assurance services including physiotherapist entry level programme accreditation and CPD recognition services.
• Manage the full application process, including intake, tracking, communication with applicants, assigning reviewers, and ensuring all required documentation is complete.
• Manage the annual reporting process
• Coordinate the distribution of applications and supporting materials to reviewers, ensuring timelines and procedures are followed.
• Organise and support site visits, including scheduling, logistics, documentation, and communication with applicants and reviewers.
• Support reviewers throughout the evaluation process, including preparing materials, responding to questions, and ensuring adherence to governance requirements.
• Provide administrative support to reviewers in preparation of documentation for internal and committee consideration.
• Organise accreditation committee meetings.
• Prepare materials for committee approval and minutes of the committee meetings, ensuring accuracy, completeness, and adherence to organisational standards.
• Communicate to applicants the final outcome of the quality assurance process and issue certificates
• Maintain accurate records, files, and data related to all quality assurance activities.
• Work with Head of membership, education and development to carry out activity analysis and assess ways to improve and scale up quality assurance services.
• Contribute to continuous improvement of quality assurance processes, tools, and resources.
• Support recruitment and training of reviewers

Operational support

Manage the accreditation application and review process in the CRM (Salesforce) and CPD recognition in CEU Locker (platform currently used for the service).

Manage the data base of reviewers (eg declaration of interest, updated contact information).

Provide technical and logistical support across all education quality assurance operations for any physical or digital meetings.

Work with relevant staff to ensure that activities are set up on Teamwork® or other project management software and support their ongoing management.

Support communications activities:

• ensuring that lists of accredited programmes and approved CPD are up to date
• providing information to promote uptake of quality assurance services
• editing and formatting education quality assurance documents for house style

Liaise with different stakeholders including member organisations, regions, specialty groups and networks if necessary and as required by the Head of membership, education and development and other staff.

Maintain office systems and procedures, including data management and reporting.

Promote the image of World Physiotherapy in all activities and contribute to the overall development of the organisation undertaking any reasonable duties, as required and agreed, to support the work of World Physiotherapy.

Person specification

The education quality assurance service officer must have experience in supporting quality assurance management and administration. They must be highly organised, self-motivated and able to demonstrate initiative in managing complex and competing demands from different sources.

It is expected that the individual will have a relevant degree, or equivalent professional experience in quality assurance, education administration, project coordination, or related field. Experience of working with senior staff, academics and boards/committees is essential. Experience working with reviewers, review boards or academic/quality assurance processes is an asset.

The individual must have a legal right to work in the UK.

Attributes

The position requires:

• advanced computer literacy skills and competency with Salesforce, Word, Excel, Outlook PowerPoint, SharePoint, and Zoom
• strong communication skills in a cross-cultural/professional environment
• the ability to manage multiple tasks and deadlines with attention to detail
• the initiative to identify new ways in which the skills of the Education quality assurance officer can bring added value and efficiency to the organisation
• cultural awareness and sensitivity
• proficiency with digital workflow tools and document management systems
• tact and discretion for dealing with confidential information

It is expected that the person appointed will have:

• a minimum of 3 years in a relevant work environment
• demonstrable ability to organise and prioritise own workload effectively
• meeting and travel planning experience
• experience with Salesforce
• experience gained working remotely with small teams and individuals across time zones internationally

It is expected that the person appointed will be:

• personable and approachable
• efficient and well organised
• diplomatic
• collaborative and team orientated
• culturally aware and sensitive to diverse needs

It would be helpful if the person appointed had:

• understanding of the physiotherapy profession
• ability to speak French or Spanish or another language

Only candidates invited for interview will be contacted

Help shape a future where people with motor neurone disease (MND) receive joined-up, person-centred support. As a Programme Lead - Integrated Support, you will guide the development of a new integrated support model, coordinating activity across seven connected work-packages and ensuring progress that is timely, focused, and grounded in real need.

As the Programme Lead, you will work across teams to plan, align, and drive programme delivery. You will ensure each area of work is clearly structured, purposeful, and supported, while maintaining strong relationships across the Motor Neurone Disease Association.

Key Responsibilities

• Lead planning and delivery of projects within the Integrated Support Programme
• Maintain a clear programme framework that supports governance, prioritisation, rick-management and quality assurance
• Collaborate with senior leaders to inform strategic direction and future development
• Engage colleagues, volunteers, and community stakeholders to support innovation and inclusive co-production
• Track progress, evaluate effectiveness, and embed continuous improvement
• Oversee budgets, resources, timelines, and project standards
• Identify and manage risks and interdependencies
• Promote integrated, person-centred approaches rooted in lived experience and best practice

About You

• Experience leading complex project portfolios within service-focused settings
• Knowledge of service improvement and the ability to apply recognised Quality Improvement methods
• A formal project management qualification (e.g., PRINCE2, APM, Agile)
• Skilled in programme framework development, resource planning, and financial oversight
• Strong analytical skills and confidence using metrics to inform decisions
• Excellent stakeholder engagement skills and clear, inclusive communication
• Ability to lead collaboratively, supporting both staff and volunteers
• Strength in risk management and constructive problem-solving

Further information about MND Association and full job description is available in the attached Candidate Pack.

This is a home-based role with a requirement to travel to Northampton, London and regionally in-line with role and organisation requirements.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

What We Offer

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies
• 24/7 GP access via phone and video
• Life assurance and confidential counselling helplines
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave)
• Access to Benefit Hub for discounts on everyday shopping
• Enhanced pension scheme
• Opportunities for training and personal development
• Hybrid working

About Us

Motor Neurone Disease moves fast. It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We campaign for better care. We’re here for everyone who needs us. Because with MND, every day matters.

SUDC UK is a national charity dedicated to funding research, raising awareness and supporting families affected by Sudden Unexplained Death in Childhood (SUDC). Our team is passionate, warm, friendly and impact-driven.

SUDC is the sudden and unexpected death of a child aged 1-18 years where the cause of death remains unexplained despite a thorough investigation. 40 children are affected every year in the UK, more than young child deaths due to traffic accidents, fires or drowning and comparable to 1-2 seemingly healthy children dying every fortnight, often going to sleep and never waking up. 

As a specialist charity, SUDC UK informs, empowers and advocates for families when their child dies suddenly and unexpectedly. We operate nationally and have expertise in SUDC, bereavement support, the child death process, genetic investigation, SUDC research and medical screening.Founded by three bereaved parents, we have deep understanding of the impact of SUDC and loved children, and their families, are at the heart of all we do.

The purpose of this role is to lead and deliver our income generation and marketing strategy, growing sustainable income streams while increasing our profile, reach and impact. This dynamic and rewarding role blends strategic leadership with hands-on delivery, including first-line management of a small team.

About Metabolic Support 
Metabolic Support is the UK umbrella patient organisation for people affected by Inherited Metabolic Disorders (IMDs) – rare, lifelong genetic conditions affecting around 40,000 people in the UK and over 1.4 million worldwide. Since 1981, we have been at the forefront of rare disease advocacy, research, newborn screening and community support, empowering people with IMDs to live well. 

About the Role 
This is a senior, strategic and hands-on role leading our fundraising and communications activity. You will drive sustainable income growth, raise our profile nationally and internationally, and tell our community’s stories with clarity, compassion and impact. 

Working closely with the Chief Executive, you will shape and deliver an ambitious fundraising strategy, develop diverse income streams, and build strong relationships with trusts, foundations, corporates, major donors and supporters. You will also lead our communications and brand, ensuring consistent, high-quality messaging across all channels. 

As part of a small, agile team, this role suits a confident self-starter with emotional intelligence, strong leadership skills and a passion for making a tangible difference in rare disease. 

Key Responsibilities 

• Lead and deliver an integrated fundraising and communications strategy 

• Grow income across trusts & foundations, corporate partnerships, individual giving, major donors, community and events 

• Act as an external ambassador for Metabolic Support 

• Oversee communications, marketing, social media and brand development 

• Manage donor relationships, stewardship and CRM (Nutshell) 

• Provide fundraising forecasts, reports and budgets to the Board 

• Ensure compliance with GDPR and fundraising regulations 

About You 

• Proven experience in fundraising, communications or income generation 

• Strong track record in at least one key fundraising area (e.g. trusts, corporates, major donors) 

• Excellent written and verbal communication skills 

• Confident relationship-builder and storyteller 

• Highly organised, proactive and comfortable working autonomously 

• Strong alignment with Metabolic Support’s mission and values 

Other Information 

• UK-based with eligibility to work in the UK 

• Willingness to travel and work occasional evenings/weekends