The CMV Connect Project Coordinator role is designed to enhance the charity's outreach and support initiatives, focusing on building and maintaining relationships with healthcare professionals, families, and the broader community. This position involves coordinating projects that aim to increase awareness, provide resources, and support families affected by cCMV. This role is a part time role funded by National Lottery Community Fund. It is a freelance contractor role, as it is a contract for services.
CMV Action is a UK-based charity dedicated to supporting families affected by congenital cytomegalovirus (cCMV), a leading cause of childhood disabilities such as deafness, developmental delays, and vision impairment. The charity provides information, advocacy, and support to raise awareness and improve outcomes for those impacted by cCMV, both during pregnancy and in babies and children.
Key Responsibilities
- Project Coordination: Oversee the planning, implementation, and evaluation of CMV Connect initiatives, ensuring they align with the charity's objectives. Work with other Operation Team members and report to the Board fortnightly.
- Supporting families: Work with the trustees to follow up on those we support and identify how we can support them in the future. Work with volunteers to organise in-person and online opportunities for families to meet up.
- Volunteer Coordination: Recruit, train, and support volunteers involved in CMV Connect project.
- Event Management: Organise and support events and campaigns aimed at raising awareness and funds for CMV Action.
- Stakeholder Engagement: Develop and maintain relationships with healthcare professionals, community groups, and other families to promote awareness and support for cCMV. Provide social media content to the Fundraising Officer when each milestone is reached.
- Resource Development: Assist in creating and distributing educational materials and resources for families and healthcare providers.
- Data Management: Collect and analyse data to assess the impact of initiatives and inform future strategies. Financial data collection for the final evaluation report.
Person Specification
Essential
- Education: Degree level qualification or equivalent experience in a relevant field.
- Experience: Proven experience in project coordination, stakeholder engagement, and working within a charitable or healthcare setting. Previous working experience with volunteers within a project would be ideal.
- Skills: Strong organisational, communication, and interpersonal skills; proficiency in Microsoft Office, including proficiency in Excel.
- Attributes: Ability to work independently and as part of a team, manage multiple tasks, and maintain confidentiality.
Desirable
- Qualifications: Project management or volunteer management qualification.
- Experience: Experience in fundraising, event management, and using CRM systems, experience managing a similar project or offering support to families.
- Knowledge: Understanding of public health issues, particularly related to congenital infections and how to work in the charity sector.
Working Conditions
- Location: The role is home-based with occasional travel required for meetings and events.
- Hours: Part-time position, with flexibility to accommodate the needs of the projects. Approximately 16 hours per week, equivalent to 2 days per week.
- Salary: £150 per day, 8 hours a day, approx. 2 days a week, approx. 40 weeks till early June 2026.
This role offers an opportunity to make a significant impact on the lives of families affected by cCMV, contributing to the charity's mission to raise awareness and provide support.
This role has been funded thanks to The National Lottery Community Fund!
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
About the Role
As Director of Devolved Nations, you will:
- Lead Carers UK’s work in Scotland, Wales, and Northern Ireland, driving strategic impact and ensuring alignment with the UK-wide mission.
- Shape and deliver national strategies that bring about real improvements in carers’ lives.
- Collaborate with government, public bodies, the voluntary sector, and other stakeholders to influence policy and secure statutory funding.
- Provide inspirational leadership to the Carers Scotland, Carers Wales, and Carers NI teams.
- Contribute to UK-wide senior leadership and organisational development.
You’ll need to be flexible, with travel across the UK, including overnight stays and occasional weekend work.
About You
We’re looking for someone who brings:
- Significant senior leadership experience in policy, public affairs, or charity leadership.
- A deep understanding of the political and policy landscapes in Scotland, Wales, and Northern Ireland.
- Strong governance knowledge and experience working with Boards or Committees.
- A track record of building influential relationships across sectors, including with senior government officials and funders.
- Excellent people management skills and the ability to lead dispersed teams.
- Commitment to Carers UK’s values of being Attentive, Ambitious, and Achievers.
- Experience working with or understanding the needs of unpaid carers is highly desirable.
And who:
- Is passionate about caring and can inspire their teams to deliver new and innovative ways to campaign for and support carers as we close our 60th anniversary in 2025 and move towards our strategic review in 2026.
- Will be an active member of the Senior Management team working collaboratively across the organisation, ensuring consistent messaging and support across all four nations.
- Who is able to proactively represent the charity, engaging a wide range of stakeholders.
For more information please download the full job description
What We Offer
- 25 days annual leave (rising to 28 days with long service) + bank holidays
- An additional 3 paid days leave over Christmas and New Year
- Up to 10 days paid care leave
- 6% employer pension contribution
- Life assurance cover (2x salary)
- Flexible and hybrid working
- Free Health Cash Plan with a free, unlimited and confidential 24 hour advice, support and information line; free, unlimited and confidential GP line access; a wellbeing portal and app plus cash back to set limits for dental, optical and therapy treatments, plus kids cover and retail and restaurant discounts
- Paid Special Leave
- Organisational sick pay scheme
- Paid volunteer leave
- Equality, Diversity and Inclusion staff network groups
- A recognition scheme including a values winner of the month
- Season ticket, cycle, and technology loans
- A learning and development culture with access to a Learning Management System
We are proud to be a Living Wage Employer, a Carer Confident Employer, a Carer Positive employer, and part of the Happy to Talk Flexible Working scheme. We have signed the Menopause Workplace Pledge and have achieved the Disability Confident Employer (level 2).
Diversity and Inclusion
Carers UK is committed to building a diverse and inclusive workplace that reflects our community. We welcome applications from all backgrounds and particularly from those with lived experience of caring. We are happy to make reasonable adjustments throughout the recruitment process.
The client requests no contact from agencies or media sales.