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Member engagement manager jobs in heckmondwike, west yorkshire

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Open Briefing Ltd, Remote
46,900
We’re growing our team at Open Briefing and looking for a philanthropy coordinator to help us build meaningful, long-term partnerships.
Posted 4 days ago
Closing in 4 days
eoa (Employee Ownership Association), Remote
£65,000 per year
Are you ready to lead the charge in amplifying our influence, driving our impact, and accelerating sector growth?
Posted 1 week ago Apply Now
Closing in 3 days
Black Unity Ride, Remote
£55,000 - £60,000 per year
We are seeking an experienced self starter to play a pivotal role in leading our operations and enhancing our efficiency and effectiveness.
Posted 1 week ago Apply Now
For Baby's Sake Trust, Remote
£17,304 per annum actual salary (£28,800 FTE)
This role is about helping us expand our digital reach, engage key audiences, and strengthen our online brand presence.
Posted 1 week ago
The Access Project, Remote
£35 per hour
Can you support under-resourced young people to reach their full academic potential? Join The Access Project as a Group Tutor
Posted 1 day ago
SHINE - Spina bifida • Hydrocephalus • Information • Networking • Equality, Remote
FTE £31,674
We are looking for an enthusiastic and experienced nurse to deliver services and create resources to improve the health of Shine’s members
Posted 1 week ago Apply Now
Understanding Recruitment Ltd, Remote
£37,000 - £40,000 per year
Posted 2 weeks ago Apply Now
Amala Education, Remote
£50,000 - £55,000 per year
Join Amala, an ambitious international non-profit, as our newly created Head of Fundraising, and play a pivotal role in tripling our impact.
Posted 6 days ago
Heart Research UK, Leeds City Centre (Hybrid)
£25,000 per year
Seeking a highly motivated and experienced PPI Community Outreach Coordinator who will grow the PPI activities of the charity.
Posted 1 week ago Apply Now
The School Library Association, Remote
£21,945.95 per annum (pro rata, based on a FTE salary of £29,000)
Posted 1 week ago Apply Now
Third Sector Leaders Kirklees, West Yorkshire (On-site)
£44,000 pro-rata
Posted 1 week ago
Closing in 2 days
Kinship, Remote
£45,000 - £55,000 per year (plus LW of £3,406 if applicable) (pro rata)
Kinship is looking for a senior HR leader to ensure effective and seamless delivery of our People function and embed our values
Posted 1 week ago Apply Now
Page 3 of 5
Remote
£26,000 - £28,000 per year
Full-time
Permanent

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Job description

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

  • Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

  • Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

  • Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

  • Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

  • Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

  • Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

  • Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

  • Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

  • Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

  • Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

  • Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

  • Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

  • Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

  • Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

  • Represent the charity at external events, meetings, and forums relevant to the rare disease space 

  • Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

  • Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
     

Person Specification 

Essential 

  • Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

  • Excellent written and verbal communication skills 

  • Strong organisational skills and event planning experience 

  • Empathetic and sensitive to the lived experiences of patients and carers 

  • Ability to work independently, from home, and as part of a small, dynamic team 

  • Confident, keen to travel and enjoys in-person events and networking  

Desirable 

  • Personal or professional experience within the rare disease, health, or charity sectors 

  • Experience managing partnerships or external relationships 

  • Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

  • A supportive and flexible working environment. 

  • Opportunities for personal and professional growth. 

  • The chance to make a tangible impact in the lives of people affected by rare diseases. 

Posted by
Metabolic Support UK View profile Organisation type Registered Charity Company size 6 - 10
Posted on: 12 May 2025
Closing date: 05 June 2025 at 15:29
Tags: Project Management, Advocacy, Customer Service, Social Media, Community Fundraising, Direct / Supporters