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Pathfinders Neuromuscular Alliance is seeking a strategic and creative Communications, Engagement and Policy Manager to lead our outreach, advocacy, and communications efforts. This part-time leadership role is ideal for someone passionate about empowering disabled communities, building influence, and shaping impactful campaigns in a flexible, supportive work environment.
 

Job Title: Communications, Engagement and Policy Manager

Location: Flexible (with occasional travel required)

Reports to: CEO

Salary: £17,280-18,720 gross per annum (£36,000-£39,000 FTE)

Hours: Part-time, 18 hours per week 

About Pathfinders Neuromuscular Alliance

Pathfinders Neuromuscular Alliance is a charity dedicated to empowering, supporting, and advocating for individuals living with neuromuscular conditions. Our mission is to ensure that those affected by these conditions have access to the resources, representation, and information they need to live fulfilling and independent lives. 

Job Summary

We are looking for a creative, driven, and collaborative Communications, Engagement and Policy Manager to lead on internal and external communications and to deepen engagement with our members, stakeholders, and the wider community. This is a key role in growing our influence, raising awareness of our work, and supporting our mission to empower people with neuromuscular conditions. Your work will ensure that our user base remains actively engaged, well-informed, and central to our projects and campaign planning. You will oversee an Engagement Officer, Social Media Officer, and Campaigns and Advocacy Officer, working collaboratively to amplify our impact, strengthen user connections, and further our mission.

Key Responsibilities

1. User Engagement and Relationship Management

• Develop and implement strategies to enhance engagement with our users across projects, events, and online platforms, ensuring their voices are integral to our work.

• Work with the Engagement Officer to design and coordinate events, workshops, and other engagement activities, both in-person and online, that support community connection and provide valuable resources to users.

• Gather and analyse feedback from users to ensure our services, content, and campaigns remain relevant and responsive to their needs.

• Manage the CRM and membership of the charity in line with the membership policy.

 2. Content Creation and Communications

• Develop and implement a communication strategy for the organisation to set our key messages, approach and KPIs for engaging with individual, community and professional audiences as well as for internal communications.

• Support the Social Media Officer in developing and implementing a communications plan in particular focused on our social media based activities and content creation.

• Oversee and produce high-quality content for digital platforms, newsletters, reports, and publications that engage and inform our audience.

• Lead on creating and placing feature articles, policy briefings and press releases, and serve as the main media contact to ensure consistent, clear messaging. 

3. Policy, Campaigning, and Advocacy

• Work with the CEO to develop and implement, through the Policy and Campaigns Team, a campaigns strategy that responds to the needs of the neuromuscular community and creates positive, meaningful change for our community.

• Collaborate with the Campaigns and Advocacy Officer to formulate and promote evidence-based policy positions, engaging key stakeholders in government, healthcare, and related sectors.

• Support the Campaigns and Advocacy Officer to expand the Pathfinders advocacy service and drive referrals to the service.

• Represent the organisation at events, sector meetings, and forums to build our profile and increase our influence on policy issues relevant to our community.

 4. Team Leadership and Development

• Manage, support, and foster the professional growth of the Engagement Officer, Social Media Officer, and Campaigns and Advocacy Officer, building a collaborative and empowered team.

• Set team objectives and KPIs, monitor progress, and provide regular feedback to ensure alignment with organisational goals and impact.

5. Stakeholder Engagement and Partnership Development

• Cultivate relationships with relevant stakeholders, including influencers, partner organisations, funders, policymakers, and the neuromuscular community.

• Work closely with the CEO to manage community partnerships, ensuring alignment with organisational goals and expanding opportunities for user engagement.

  6. Organisational management

• Support the CEO with the overall running of the organisation by attending meetings of the management committee as a member of the Senior Leadership Team, taking on additional tasks as agreed.

• Provide contingency support to the  Senior Leadership Team to cover essential tasks such as reporting hours to our payroll team in the event of staff absence.

• Maintain an overview of projects and teams across the organisation to provide short-term management and HR support in the event of staff shortages or incapacity.

• Review, approve and document payments in the charity using our software and finance process.

• Support the development of funding bids and project plans for introducing new projects.

• Represent the Senior Leadership Team at external events and in meetings with Trustees and Members.

Qualifications and Experience

• Bachelor’s degree in communications, public policy, engagement, or a related field (or equivalent experience).

• 3-years experience in a communications, policy, or engagement role, ideally within a charity or non-profit setting.

• Experience engaging directly with user communities and developing outreach initiatives.

• Strong writing and editing skills with experience producing content for a variety of platforms including Youtube.

• Experience managing a small team to achieve strategic objectives.

• Knowledge of or strong interest in the healthcare, disability, or neuromuscular sector is desirable.

• Lived experience of a neuromuscular condition is desirable but not essential.

Skills and Attributes

• Strategic thinker with the ability to balance advocacy, engagement, and communication initiatives effectively.

• Strong interpersonal and communication skills, with a demonstrated ability to build relationships across diverse audiences.

• Ability to manage multiple projects, prioritise, and maintain high standards under tight timelines.

• Proficient in social media management, content creation, and analytics.

• A commitment to advocating for and advancing the rights of individuals with neuromuscular conditions.

What We Offer

• The opportunity to make a meaningful impact within a purpose-driven, supportive organisation.

• Flexible working arrangements to promote work-life balance.

• Ongoing professional development opportunities and the chance to lead impactful campaigns and user engagement efforts.

Are you a budding graphic designer looking to get some hands-on industry experience? The Students' Union is currently recruiting for a student Graphic Design Intern to join our marketing team!

This role will be working on expanding our digital presence, creating content in line with our brand guidelines, and ultimately showcasing the scope of what the Students' Union offers for students.

Whether you study marketing or have a keen interest in the world of marketing this could be the role for you!

Principal Duties and Responsibilities:

1. Produce graphics for our website, email comms, screens and social media channels.
2. Support delivery of agreed annual communications plans, as well as supporting the development of in-year comms with the internal staff team when required, ensuring content is in line with the SU brand and strategy.
3. Working with the Senior Brand and Communications Coordinator to ensure our communications campaigns are strong and collaborative.
4. Support development of UNSU’s brand and presence across all of our physical sites, and our physical and digital assets, ensuring our brand becomes a trusted and valued partner to our members and the University.
5. Work with the Students’ Union Staff to develop our member's understanding of the Union, its elected officers and how our democratic functions work. 
6. Develop a strong relationship within the Students’ Union with staff, officers and volunteers.

Marie Curie is the UK's leading end-of-life charity. We are the largest non-NHS provider of end-of-life care in the UK, the only provider across all 4 nations, delivering community nursing and hospice care across the country, while providing information and support on all aspects of dying, death, and bereavement. Our leading research pushes the boundaries of what we know about good end-of-life, and our campaigns fight for a world where everyone gets to have the best possible quality of life while living with an illness, they're likely to die from.

You'll be joining a passionate and collaborative Estates & Facilities team at Marie Curie, working closely with colleagues across health, retail, fundraising, and central operations. Our team is committed to sustainability, safety, and compliance, ensuring our environments reflect our mission of compassionate care.

As the Estates Compliance & Sustainability Lead, you'll be the driving force behind our sustainability strategy and compliance performance across the estate. Your work will support vital environmental goals - like energy efficiency, carbon reduction, and sustainable practices - while ensuring we meet statutory and internal compliance standards. This is a high-impact role, perfect for someone ready to influence culture, champion innovation, and embed sustainability into everything we do.

Main responsibilities:
- Lead and deliver Marie Curie's Sustainability and Energy Strategy.
- Oversee and enhance environmental compliance (SECR, ESOS, EPC, etc.).
- Monitor and manage energy performance, providing reporting and analysis.
- Maintain and improve waste management and carbon management policies.
- Chair the sustainability working group, promoting cross-team engagement.
- Support delivery of cleaning efficacy audits and business continuity planning.
- Support Hospice teams with audits, ensuring actions are remedied and closed in a timely manner.
- Keep compliance systems (e.g., Info Exchange) and dashboards up to date.

Key Criteria:
- Solid knowledge of environmental legislation and sustainability frameworks.
- Proven experience in facilities management and environmental compliance.
- Strong analytical skills with a data-driven approach to solution design.
- Strong communication and stakeholder engagement skills. Ability to present new ideas and influence cultural change.
- Demonstrates a sense of ownership and confidence when working independently, while also effectively collaborating as part of a team.
- Possession of IEMA membership or a relevant qualification in environmental or facility management disciplines will be an asset.

Please see the full job description .

Application & Interview Process
- As part of your online application, you will be asked for a CV and Cover Letter. Please review both the advert and job description and outline your most relevant skills, experience and knowledge for the role.
- Close date for applications: 8 June 2025. We encourage early applications as we may close the application process once we have received a sufficient number of qualified candidates.

Salary: £35,530 - 39,474 per annum, depending on experience
Contract: Permanent, full-time (35 hours per week)
Based: Home-based with occasional travel across the UK.

Benefits you'll LOVE:
- Flexible working. We're happy to discuss flexible working at the interview stage.
- 25 days annual leave (exclusive of Bank Holidays)
- Marie Curie Group Personal Pension Scheme (we will match your contribution up to 7.5%)
- Loan schemes for bikes; computers and season tickets
- Continuous professional development opportunities.
- Industry-leading training programmes
- Wellbeing and Employee Assistance Programmes
- Enhanced bereavement, family friendly and sickness benefits
- Access to Blue Light Card membership
- Subsidised Eye Care

Marie Curie is committed to its values, which underpin our work. We take stringent steps to ensure that the people who join our organisation through employment or volunteering, are suitable for their roles and are committed to safeguarding all our people from harm. This includes our staff, volunteers and all those who use or come into contact with our services. We are dedicated to creating not just a safe place to work but also a supportive and rewarding one.

We are committed to a world where everyone can thrive and fulfil their potential. We are devoted to the social justice imperatives and organisational benefits of full diversity, inclusion and equity in the workplace, and are a Stonewall champion. We actively encourage and welcome applications from candidates of diverse cultures, perspectives and lived experiences.

This is a varied role and the successful applicant will drive our community and events fundraising. You will organise the Tour de Vale Bike Ride plus other fundraising events at Stoke Mandeville Stadium, source runners for a range of third-party events including the Great North Run and help them reach their fundraising targets, identify and develop opportunities for community groups and local companies to support the charity and lead and manage our schools fundraising programme.

Reporting to the Head of Fundraising, you’ll be an integral member of our staff team who are committed to providing an excellent supporter and donor experience.

About you

We are looking for a friendly and organised individual with a proven track record of meeting or exceeding targets from sponsorship-based events or community fundraising along with experience of preparing activities to recruit, engage, inspire and retain supporters.

You’ll be confident at building relationships with volunteers and supporters with a keen interest in supporter care. You’ll be an engaging communicator, have excellent multi-tasking skills and attention to detail, be happy working within a team as well as on your own and have a flexible and collaborative approach to your work.

About us

We’re WheelPower, the national charity for wheelchair sport and we are passionate about helping disabled people lead active lives.  We do this by organising sports sessions and providing advice to recently paralysed hospital patients, organising a variety of events and programmes at Stoke Mandeville Stadium and throughout the country, organising online fitness classes and producing resources which enable disabled people to stay active in their homes and working with partners to improve their delivery models.

Although the role is based at Stoke Mandeville Stadium, we are following a blended approach between office and home working with full time staff currently working two days per week in the office.

WheelPower is an inclusive employer committed to developing a diverse workforce.

Benefits

This is your opportunity to make an impact in an organisation where your voice will be heard and your hard work noticed.

As well as a salary of £30,000 a year, enrolment in our Stakeholder pension scheme and a flexible, family-friendly environment, you can look forward to free access to the fitness facilities at Stoke Mandeville Stadium and discounted accommodation in our onsite hotel.

We offer 25 days leave plus bank holidays and operate a time off in lieu system for any time you work outside of your normal hours.

Flexibility

We welcome applications from all sectors of the community and are open to applications from people looking for part time work.

Salary: £30,000
Benefits: Flexible working. free gym membership, swimming and fitness classes
Contract: Fixed Term 14 months (Maternity Cover)
Hours: 37.5 hours a week including occasional weekend and evening work (part time considered)
Location: Hybrid / office location is at Stoke Mandeville Stadium, Aylesbury
Reporting to: Head of Fundraising, Data & Communications
Working closely with: Fundraising & Marketing Team, Volunteers

Main purpose

To lead WheelPower’s community and events fundraising programme.

At Northampton Students’ Union, we’re building a more connected, inclusive student experience — and we need a creative, energetic organiser to help make it happen.

As our Events & Community Coordinator, you’ll design and deliver a packed schedule of daytime events that help students build friendships, feel at home on campus, and make the most of their university life. From social sports and quiz afternoons to crafts and board games, you’ll be at the heart of what makes Northampton fun.

You’ll also be in charge of bringing life to the Engine Shed, our on-campus café/bar, turning it into a social hub where students come to relax, recharge, and belong.

But this role goes beyond the campus gates. You’ll work closely with local businesses and community groups to bring exciting new opportunities and partnerships to our students — creating events and activities that connect them to the wider town, and foster a real sense of place in Northampton.

If you’ve got a talent for events, a passion for student life, and the confidence to build relationships that make a difference — this is your chance to shape something special.

Principal Duties and Responsibilities:

1. Develop and deliver a rolling programme of inclusive daytime events, including casual sports, entertainment, craft/hobby sessions, and intramural activities with student clubs.
2. Plan and run engaging events in the Engine Shed café/bar to increase footfall and create a social campus environment.
3. Build partnerships with local businesses and community groups to increase student engagement with the wider town and develop town-centre activations.
4. Coach and Support our Elected Officers with their independent campaign and event work, ensuring synergy between one’s own work, and that of the elected team.
5. Promote all events through digital channels and on-campus marketing.
6. Complete thorough risk assessments for all events, ensuring health, safety, and accessibility are prioritised.
7. Maintain accurate records of activities, feedback, and attendance to evaluate and improve impact.
8. Support wider Students’ Union events and cross-team campaigns as needed.
9. Support the Marketing Manager with the delivery of Open Day events and activities.

Marketing & Communications Manager

May 2025

1 Job Details:

Reports to: Director of Finance & Operations

Hours: 28 - 35 hours per week (negotiable)

Location: Home based (with occasional travel)

Salary: c £37,000 (with an excellent benefits package including life insurance and private healthcare)

Start Date Immediate

2. About us:

The UK Cyber Security Council works to bring together stakeholders to build and drive engagement in the cyber security profession, through developing standards and ethical practice, demystifying career routes into the profession and promoting the profession.

In collaboration with multiple UK Government departments and the National Cyber Security Centre (NCSC), our approach is to co-ordinate existing programmes and shape new initiatives, in support of the ambition to make the UK the safest place to live and work online.

We are also a membership organisation, with corporate members, who share our interest in promoting, supporting and developing the cyber security profession.

3. The role:

If you’re successful, you will have a unique opportunity to join a growing organisation at an important phase of its development. This exciting strategic and operational role will enable you to lead on the dynamic marketing and communication approach of an organisation with a very important mission which engages with a myriad of important stakeholders  

4. Main Duties and Responsibilities 

· To lead the delivery of the organisations marketing and communications (marcomms) strategy plan.

· To lead the development of strategic marketing and communication plans across all programmes, products and services.

· To ensure that marketing and communications across the organisation reflect and align with the UK Cyber Security Councils brand, vision, mission and values.

· To oversee and deal with brand governance issues and to drive, manage and implement marketing solutions and promotions that support agreed brand awareness targets.

· To manage our digital and social media channels and to ensure that all programmes and services are promoted effectively through these channels.

· To write high quality content, briefs, press releases and social media posts as part of our marcomms requirements.

· Working with the leadership team to develop a plan and process for internal communications across the Council.

· To lead on collaboration with licenced bodies and partners on joint marcomms and promotions

· To maintain an awareness of the Council’s strategy and wider cyber security landscape and propose content that will speak to key audiences.

· To update the website content on a regular basis as the window to the organisation.

· To work with internal and external colleagues to agree marketing and communications strategies for each programme and support the delivery of e-marketing and social media campaigns.

· To lead on the delivery of consistent, branded marketing collateral – print and digital in support of identified brand awareness targets.

· To lead on promoting our events management activities working closely with internal and external colleagues.

· To develop and evaluate customer research, market conditions and competitor data to ensure that annual marcomms plans remain refreshed and up to date.

· To work with senior managers to develop annual engagement targets based on

increased engagement and influence.

· To measure and report performance of all marketing activity, assessing against

targets, together with other relevant metrics and analytics.

· To prepare progress reports as required for the Chief Executive and/or Board of Trustees.

· To ensure effective data management concerning members and supporters to ensure that GDPR compliance is maintained at all times.

· To represent the Council in a professional manner and to act at all times in a manner which will not damage its reputation.

· To undertake other tasks from time to time as required by the Leadership Team.

This job description is intended as a general guide to the scope of the post and may change in line with the needs of the service or at the request of the line manager.

5. Person Specification:

5.1 Essential Criteria:

· Experience and willingness to be hands on in content development and production including graphic design of marketing collateral

· Experienced in copy writing, proof reading and editing content

· Experience of content management systems (CMS) 

· Experience of working with creative agencies and PR companies

· Excellent written and verbal communication skills

· Experience of using customer relationship management systems (CRM)  

· Excellent project management skills

· Attention to detail and driven by high quality outputs

· Ability to work autonomously, work under spikes of pressure and meet deadlines

· Ability to think outside the box, dynamic and innovative

· Experience of managing the social media area including content and campaigns

· A track record of successful programme and organisational marketing

5.2 Desirable:

· A degree in marketing or communications or equivalent

· An understanding of the Cyber Security Profession

· Experience of managing staff, volunteers or interns

·  Experience of creating high impact comms design  

· Experience of commissioning content from external authors 

· Experience working in a professional body context, and/or with committees and volunteers

6. Diversity

We actively encourage applications from a wide range of people from diverse backgrounds to apply for our positions as we are committed to having a team that is made up of diverse skills, experiences and abilities people.

We actively support diversity and inclusion and ensure that all our employees are valued and treated with dignity and respect as we want to encourage everyone in our business to reach their potential.

Job purpose

The Clinical Lead will play a pivotal role in leading and developing Action for ME’s Healthcare Services with the Operations Director, ensuring the highest standards of clinical care for individuals affected by Myalgic Encephalomyelitis (ME). The postholder will be responsible for clinical oversight, service development, and leadership, working collaboratively with multidisciplinary teams to enhance outcomes for children and adults with ME and will be the CQC Registered Manager for the service.

At present, the Healthcare Services is a small team with two doctors (GPs) and two physios. Our counsellors are overseen by a Counselling Lead Supervisor and our multi-faith Chaplains are supported by our Lead Chaplain.

We are keen to develop and expand our services, building on the small amount of spot purchasing from local commissioning boards and exploring a diagnosing and prescribing offer. We are also keen to explore the potential of increasing the range of disciplines offered within the team. You will play a key role in driving the strategy for our Healthcare Services with the Director of Operations.

Key responsibilities

• Provide clinical support and expertise to Action for ME's Healthcare Services, ensuring evidence-based, person-centred care.

• Act as Registered Manager for CQC (Care Quality Commission) purposes and ensure that the service meets all required standards.

• Lead the development and implementation of clinical policies, protocols, and best practices in line with national guidelines and regulatory requirements.

• Supervise and support healthcare professionals within the service, offering guidance, mentorship, and training.

• Designated safeguarding officer for Healthcare Services.

• Collaborate with external stakeholders, including NHS services, researchers, and others, to enhance healthcare provision for people with ME.

• Ensure the service complies with regulatory and safeguarding standards, including CQC requirements where applicable.

• Monitor and evaluate service delivery, using data-driven insights to improve clinical outcomes and patient experience.

• Provide expert advice on complex cases, supporting staff with clinical decision-making.

• Represent Action for M.E. at external forums, conferences, and policy discussions.

Person specification

• A registered healthcare professional (e.g., doctor, nurse, physiotherapist, or occupational therapist) with active professional registration (GMC, NMC, HCPC or equivalent) OR an experienced commissioner of healthcare services with experience of quality assurance, safeguarding and compliance.

• Extensive clinical experience in chronic illness management OR sound understanding of clinical practice, ideally with expertise in ME or related conditions and a clear understanding of the challenges faced by people with ME.

• An understanding of Care Quality Commission regulatory requirements.

• Proven leadership experience in a healthcare setting, including team management and service development.

• Strong understanding of evidence-based practice and clinical governance.

• A sound understanding and experience of safeguarding children/young people and vulnerable adults.

• Excellent communication and interpersonal skills, with the ability to engage effectively with patients, carers, and healthcare professionals.

• Experience in training and mentoring healthcare professionals.

• Ability to work independently and collaboratively within a multidisciplinary environment.

• Commitment to patient-centred care and advocacy for people with ME.

• Knowledge of NHS structures and commissioning processes.

• An understanding of working within the third sector or charitable organisations.

We are looking to recruit a motivated and talented individual with strong project management skills to lead the delivery of the training function within the BSI. Reporting directly to the Director of Events and Training, and in collaboration with the wider BSI team, the Training Manager will be responsible for the delivery of existing training programmes and for devising, setting up and rolling out new training courses by working with BSI members to develop content and curricula, utilising different platforms from face-to-face to remote learning and supporting marketing of the courses to relevant sectors.

This role is responsible for engaging with a wide range of stakeholders to help identify training needs and opportunities that the BSI can meet. This will include opportunities in several sectors including clinical, scientific and public/patient focused. Using strong commercial acumen, the Training Manager will be critical in the continued development and growth of the training function to generate significant new income for the BSI.

We are recruiting a Digital Fundraising Assistant to assist in the delivery of our growing virtual events programme. 

This is an exciting new role which involves supporting delivery of a wide range of virtual events at Sands, in order to grow our fundraising income.  The role includes increasing Sands’ online presence across a range of channels through excellent stewardship of large audiences who are both warm and new supporters. 

You will ensure delivery of a world class supporter experience using an omnichannel approach, helping our supporters reach and exceed their fundraising targets.

Working with the Digital Fundraising Manager, you will monitor the everchanging virtual challenge environment and consider how best to adapt our activities in order to achieve financial targets and remain innovative and a leader within the sector.

You will have strong communication skills and enjoy building relationships, especially within online communities. Additionally, you will have an understanding of a wide range of social media channels and an interest in creating refreshing, inspiring content.

A highly organised and efficient approach is essential in order to respond to large quantities of enquiries across multiple channels. Excellent written communication skills are therefore essential.

Relevant experience in creating engaging video, image and written content for different social channels is also an essential requirement.

This post is home-based. There may be the need to support Sands events at weekends and/or evenings and working hours can be adjusted accordingly.