Membership officer jobs in leeds, west yorkshire

The role

The children and young people’s bereavement programme in Wales is looking to increase and improve its current services. We are looking for people to take this team forward over the next few years. Working closely with the rest of the Wales team and line managed by the Head of Wales, this is an exciting opportunity for people with empathy, motivation and team working. Please note this role will require travel across North Wales.

How to apply

Your application must consist of a CV and covering letter, which outlines your suitability for the role with reference to the Job Description and Person Specification and should be no longer than two pages.

Closing date for applications is 9am on 30 September 2025. We reserve the right to close the advert early, as interviews will be held as suitable candidates apply.

Please be advised that we will only contact success applicants for interview. If you do not hear from us, unfortunately on this occasion you have not been shortlisted.

Cruse welcomes and encourages applications from all protected groups as defined by the Equality Act 2010. Appointment will be made on merit.

Criminal Record Checks

All staff are required to complete a Criminal Record check. Staff working directly with clients will be required to complete an enhanced check. We comply with the relevant codes of practice and they can be viewed online: 

· Applicants in England and Wales: DBS Code of Practice

· Applicants in Northern Ireland: AccessNI Code of Practice

Previous convictions will not prevent full consideration of your application to work with Cruse. Our Recruitment of Ex-offenders' Policy & Handling Criminal Record Check Data Policy are available on request by email.

We comply with all relevant data protection legislation and process your data fairly.

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Y rôl

Mae’r rhaglen brofedigaeth plant a phobl ifanc yng Nghymru eisiau cynyddu a gwella ei gwasanaethau presennol. Mae’n adeg gyffrous i newid a datblygu. Rydym yn chwilio am ddau unigolyn i ddatblygu’r tîm hwn yn ystod y blynyddoedd nesaf. Bydd yr unigolion hyn yn gweithio’n agos â gweddill y tîm yng Nghymru ac yn cael eu rheoli gan Bennaeth Cymru. Mae hwn yn gyfle cyffrous i bobl ag empathi a phenderfyniad sy’n mwynhau gweithio mewn tîm.

Sut i wneud cais

Mae rhaid i’ch cais gynnwys CV a llythyr eglurhaol yn amlinellu eich addasrwydd ar gyfer y swydd ac yn cyfeirio at y Swydd-ddisgrifiad a Manyleb y Person. Ni ddylai fod yn fwy na dwy dudalen o hyd. 

Y dyddiad cau ar gyfer ceisiadau yw 9am ar 30 Medi 2025. Rydym yn cadw’r hawl i gau’r hysbyseb yn fuan gan y byddwn yn cynnal cyfweliadau wrth i ymgeiswyr addas gyflwyno cais.

Noder: byddwn ond yn cysylltu ag ymgeiswyr llwyddiannus i drefnu cyfweliad. Os na fyddwch yn clywed gennym, yn anffodus nid ydych wedi cyrraedd y rhestr fer y tro hwn.

Mae Cruse yn croesawu ac yn annog ceisiadau gan bob grŵp gwarchodedig fel y diffinnir gan Ddeddf Cydraddoldeb 2010. Byddwn yn penodi ar sail teilyngdod.

Gwiriadau Cofnod Troseddol

Disgwylir i’r holl staff gwblhau gwiriad Cofnod Troseddol. Bydd angen i staff sy’n gweithio’n uniongyrchol â chleientiaid gwblhau gwiriad manylach. Rydym yn cydymffurfio â’r codau ymarfer perthnasol. Gellir eu gweld ar-lein: 

· Ymgeiswyr yng Nghymru a Lloegr: Cod Ymarfer DBS

· Ymgeiswyr yng Ngogledd Iwerddon: Cod Ymarfer AccessNI

Ni fydd euogfarnau blaenorol yn atal eich cais i weithio gyda Cruse rhag cael ei ystyried yn llawn. Mae ein Polisi Recriwtio Cyn-droseddwyr a’n Polisi Trin Data Gwirio Cofnodion Troseddol ar gael ar gais trwy e-bost.

Rydym yn cydymffurfio â’r holl ddeddfwriaeth diogelu data berthnasol ac yn prosesu eich data’n deg.

Position title: Health and Wellbeing Lead

Reports to: Head of Shed Development and Sustainability

Direct reports: None currently

Location: Remote (with regular travel)

Key stakeholders: UKMSA Volunteers, Sheds and Shedders, Head of Shed Development and Sustainability and team, Head of Volunteering

Salary: Level 3 – £30,000-£35,000

As Health and Wellbeing Lead, the purpose of your role will be to work with volunteers and colleagues to support Sheds and Shed Networks to improve men’s health and wellbeing across the UK. This work is within the context of informal, peer-led, self-determined spaces, where the emphasis is on activity not health prevention, which suits many men and works well for them.

This role involves engaging directly with Sheds and Shed Networks, supporting them to foster partnerships with local health and social care organisations, as well as supporting local health and social care organisations to understand and engage effectively with Men’s Sheds in their area.

You will work with volunteers, colleagues and external experts to gather and share accurate, accessible and relevant resources, information and case studies related to men’s health and wellbeing with Sheds and Shed Networks. This will include developing and engaging with digital health tools, information and training, as well as taking an empowering and capacity building ‘train the trainer’ approach to the design and delivery of all training and workshops related to men’s health and wellbeing.

You will work closely with the Head of Volunteering to support volunteers to promote the role of Men’s Sheds in preventative and community-based health locally and will work with colleagues to support volunteers to actively contribute to promoting the role of Men’s Sheds in preventative and community-based health at a national level. 

You’ll be the main contact for volunteers, Sheds and Shed Networks for all things related to Sheds and men’s health and wellbeing.

Key responsibilities:

1. Sheds and Shed Networks

· Be the main point of contact for all Sheds and Shed Networks for all things related to Sheds and men’s health and wellbeing – ensuring you are approachable, responsive and consistent.

· Empower volunteers and colleagues to support Sheds and Shed Networks to foster partnerships with local health and social care organisations.

· Empower volunteers, colleagues and the wider Shed community to support local health and social care organisations to understand and engage effectively with Men’s Sheds in their area.

2. Information and resources

· Work with volunteers, colleagues and external experts as part of the UKMSA Advisory and Guidance Group to continuously gather, develop and update relevant resources, information and case studies related to men’s health and wellbeing. Regularly share clear and accessible information and resources with Sheds and Shed Networks.

· Work with volunteers, colleagues and external experts as part of the UKMSA Advisory and Guidance Group to build knowledge and understanding of relevant organisations and services related to men’s health and wellbeing. Regularly share clear and accessible information about organisations and services with Sheds and Shed Networks.

· Work with Sheds and volunteers to gather case studies and develop resources highlighting Sheds that demonstrate innovation and best practice in the field of health and wellbeing.

3. Training and workshops

· Work with volunteers, colleagues and external partners to develop an empowering train the trainer model to enable Shed Leaders and Shedders to plan, deliver and evaluate training and workshops related to men’s health and wellbeing.

· Work with volunteers, colleagues and external partners to co-design and deliver training and workshops related to men’s health and wellbeing at UKMSA events.

· Support peer-to-peer learning amongst Sheds and Shed Networks through regional events, online forums, and learning networks.

4. Digital health and wellbeing

· Work with volunteers and colleagues to test and empower Sheds and Shed Networks to use digital platforms for hybrid training, remote participation, or digital inclusion efforts.

• Work with volunteers and colleagues to utilise and adapt data tools (e.g. CRM, health analytics and dashboards) for monitoring health and wellbeing related outcomes and for reporting impact.

5. Monitoring and Reporting

· Work with volunteers, Sheds and Shed Networks to collect and report data in relation to men’s health and wellbeing to demonstrate the role and impact of Men’s Sheds in preventative and community-based health.

· Work with volunteers, colleagues, Sheds and Shed Networks to contribute to relevant evaluation and research projects relating to Sheds and men’s health and wellbeing.

6. Stakeholder Engagement

• Work with volunteers to build relationships with local and regional health, community, and voluntary sector organisations.
• Represent UKMSA at relevant networks, events, and conferences.
• Contribute to the planning and delivery of the annual Shedfest and other key events, coordinating and supporting volunteer involvement in relation to men’s health and wellbeing.
• Work with colleagues, including the CEO, to build effective working partnerships across the UK men’s health sector  

Key expertise required:

• Knowledge, skills and experience in men’s health and wellbeing.
• Some knowledge of how to effectively improve men’s health and wellbeing in the Shedding context, and a willingness and interest in working with volunteers to develop and share expertise in this area.
• An understanding of the importance of taking an empowering train the trainer approach to planning, delivering and evaluating training and workshops related to men’s health and wellbeing.
• Ability to build relationships with local and regional health, community, and voluntary sector organisations, and to support others to do so.
• Skilled at actively collaborating with volunteers and subject matter experts.
• Confident communicator - able to build rapport, deliver training, and manage sensitive conversations.

· Strong relationship builder - able to connect with people, build trust and maintain long term engagement.

· Willing, able and confident to travel to meet volunteers and attend Shed events regularly.

· Confident working with data and systems - including CRM tools and digital tools.

· Proactive and creative - always looking for ways to improve how things are done.

· Self-motivated and able to manage your own workload without needing close supervision.

· An understanding of the nuances and limitations of how Sheds can support health and wellbeing

What success looks like:

• Strong, collaborative relationships established between Sheds, Shed Networks and local health and community partners.
• Demonstrable improvements in the health and wellbeing of Shedders through supported activities and case studies.
• Volunteers, Sheds and Shed Networks feel empowered and equipped to deliver activities that support mental and physical health.
• Health and care organisations view Men’s Sheds as trusted, valuable partners in preventative health and social prescribing pathways.
• Resources, training, and support materials are well-received, practical, and widely adopted in Sheds and across Shed Networks.
• Clear and impactful reporting informs and supports UKMSA’s work at a national level.

This job is not:

• An expert, clinical or therapeutic health role—you will not be expected to deliver personal care, therapy, or counselling.
• Solely office-based or desk-bound—this is a varied, outreach-focused role that involves relationship-building, travel, and hands-on support.
• Focused only on one region—this is a national role, requiring awareness of regional variations across the UK.
• A short-term fixer—you’ll be building capacity and confidence in communities for long-term sustainability, not quick fixes or prescriptive solutions.

This job description is intended to outline the general responsibilities and expectations of the role. It may be reviewed and updated as the organisation evolves, and from time to time you may be asked to take on other reasonable tasks that fall outside this scope - we’re a small team, and flexibility is part of how we work.

Closing date: 9th October 1200 hrs
Interview: 17th October

Shape the future of the voice of the rare condition community.

Genetic Alliance UK is looking for an exceptional Director of Engagement and Impact to transform how we connect with our 220+ member organisations, communicate our mission, and foster a thriving, supportive team culture.

If you’re a strategic leader with a gift for building relationships, crafting compelling messages, and creating positive change, this is your opportunity to make a lasting difference for the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. 

Director of Engagement and Impact
Salary: £55,167 – £63,654 (with new starters usually starting at the lower end of the range)
Location: Home-based, UK (occasional travel required)
Contract: Permanent, full-time (35 hours per week) with applications for up to 28 hours per week considered.
Closing date: 09:00 on Monday 22 Sept 2025 

About Genetic Alliance UK
Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, bringing together patient voices to campaign for timely diagnosis, better care, and improved access to treatments. We host Rare Disease UK and SWAN UK, and lead national activity for Rare Disease Day.

About the role
This is a new senior leadership position designed to strengthen our membership engagement, amplify our communications impact, and support a positive, collaborative working culture.

As part of our Senior Management Team, you will:

• Lead and develop our approach to engaging and supporting our diverse membership.

• Provide strategic oversight for all communications, ensuring our messages are clear, consistent and impactful across multiple audiences.

• Champion and embed systems for staff performance, development and wellbeing, ensuring our culture is inclusive, supportive, and sustainable.

You will oversee the Head of Membership and Communications, the Communications and Engagement Manager (SWAN UK), and two new posts (Communications Officer and Project Support Officer). You will also provide operational oversight of SWAN UK, and work closely with the Policy, Public Affairs and Research teams to maximise impact.

About you
We are looking for a strategic leader who combines a talent for building relationships with outstanding communication skills. You will bring experience of leading teams, delivering organisational change, and working effectively with diverse stakeholders. You will be comfortable navigating the needs of a membership organisation, and passionate about making a tangible difference for people living with rare conditions.

What we offer

• Generous pension (5% employer, 3% employee)

• 25 days annual leave plus bank holidays and full office closure over Christmas/New Year

• Flexible, home-based working with occasional UK travel. 

• The opportunity to lead work that has a direct and lasting impact for people affected by rare conditions

Prospectus is excited to be partnering with one of the oldest and largest intergovernmental organisations focused on Information and Communication Technologies to recruit for a Member Development Lead. This is a full time, remote role and can be based from any commonwealth country.

The Member Development Lead is responsible for developing the membership ICT capability based on an assessment of the critical needs of each member and the trending ICT Digital Development department. You will formulate and deliver human resource development programmes and activities that increase the ICT and digital transformation capabilities of their membership. Ultimately, your mission is to make sure that members have the skills, knowledge, and confidence to fulfil their ICT-related mandates.

The successful candidate will have significant experience in a similar capacity relating to Training and Development, ICT, Human Resource Development or a related field. You will bring knowledge of remote/online training methodologies, ICT or digitalisation and experience of adult learning methodologies would also be useful. You will have strong oral and written communication skills and be adept on engaging with internal and external stakeholders.

To apply please submit your CV and a supporting statement via the ‘Apply Now’ button on the Prospectus website, preferably in Microsoft Word/PDF format. The statement should outline your motivation for joining the organisation and why you feel you would be a good fit for this role. You should also demonstrate your experience and skillset with examples relating to the Appointment Brief.

As a specialist Recruitment Practice Prospectus are committed to building inclusive and diverse organisations, and welcome applications from all sections of the community. Prospectus invest in your journey as a candidate and are committed to supporting you in your application.

Are you an experienced L&D professional seeking a new opportunity? Would you like to manage the delivery of the L&D programme for Membership within a leading UK Charity? We would like to hear from you!

We have the opportunity for a Learning and Development Manager to join our People and Organisational Development team to manage, design and deliver the Membership Learning and Development programme at RBL.

Come and be part of the leading Armed Forces charity, making a difference to the lives of those who have served to keep us safe and protect our way of life.

This exciting role will see you managing a small team and working collaboratively to provide quality assurance to all learning material and learning events for our Membership programme.

You will be working directly with our member volunteers across RBL, providing an outstanding level of customer service, whilst collaborating on the development activities to support the wider strategic and operational needs of the Membership Branch and County Network. In addition, you will be supporting and guiding the Country Training Officers on the development of their learning material and learning events.

Reporting to the Head of Learning and Development, key responsibilities will include:

- Lead, design, develop and deliver the Membership L&D Program, offering virtual, in-person, and blended learning interventions
- Establish a structured learning, coaching, and mentoring program to support County Training Officers (CTOs)
- Develop and manage a quality framework to collect relevant quantitative and qualitative management data to assess impact, identify areas for improvement, and capture lessons learned, supporting informed decision-making and continuous learning
- Manage and lead a team of L&D Specialists and an L&D Coordinator
- Collaborate with Membership Services and stakeholders to identify County and Branch development needs, recommending targeted solutions and interventions
- Lead the delivery of exceptional customer service to members by actively listening to their needs and ensuring enquiries are handled promptly and efficiently

This role requires regular travel, weekend and evening work, and overnight stays across the UK (England, Scotland, Wales and Northern Ireland) to deliver learning interventions to meet the needs of colleagues. The expectation is two to three times a month on average and there is also a requirement to attend our London, Haig House office regularly for team meetings and to build relationships with colleagues outside of delivering training.

You will be contracted to your home address, where you will be expected to work when not travelling or at our London office.

Employee benefits include –

- 28 day’s paid holiday (plus bank holidays) increasing with service, with optional annual leave purchase scheme of up to 5 working days
- Generous pension contributions, with Employer contributions ranging from 6% to 14%
- Range of flexible working options may be available, depending on your role
- Employee Assistance Programme providing confidential counselling, financial and legal advice
- Range of courses delivered by learning specialists to support your development goals and objectives
- Opportunities to volunteer
- Travel loans, Cycle to Work, and more!

For more detailed information about the role, please see our Vacancy Information Pack attached to our direct advert.

RBL is committed to creating a diverse and inclusive organisation, reflecting the diversity of the armed forces community and of wider society. We welcome applications from people of all backgrounds and personal characteristics.

Interview Dates: Thee stage interview process, with first stage virtual (Teams) interviews 13th and 14th October 2025

We may close this vacancy early if we believe we have enough strong applications to be able to successfully fill the role. Interested candidates are encouraged to apply as soon as possible.

We are seeking a dynamic Director of Professional Activities to lead Education and Conferences & Events portfolios – the organisation’s primary revenue streams and most visible platforms for impact.

Remote | Full-time | Global impact

Salary: £58,000

In this newly created senior leadership position, you will reshape the education department, develop innovative learning products, and oversee the delivery of large-scale international conferences (4,000+ delegates). As a key member of the Senior Leadership Team, you will ensure programmes are strategically aligned, financially sustainable, and operationally excellent.

Key Responsibilities

• Lead education and event strategy, innovation, and delivery
• Develop new professional learning offerings (e.g. micro-credentials, global training)
• Oversee major conferences, hybrid/virtual events, and delegate engagement
• Manage budgets, drive revenue growth, and mitigate risk
• Mentor and develop senior staff, building a high-performing team
• Represent the organization internationally and build strategic partnerships

About You

• Senior leadership experience in education, events, or membership organizations
• Proven ability to deliver large-scale programmes and conferences
• Strong commercial and financial management skills
• Innovative, strategic thinker with excellent communication skills
• Global mindset and willingness to travel

This is a rare opportunity to make a tangible impact on a global stage, shaping education and events that influence thousands of professionals worldwide. You will join a mission-driven organisation committed to advancing knowledge, building capacity, and supporting professional development across borders.

A global outlook and willingness to travel internationally (as required) are essential.

For more information, please submit your CV to .

 Please note, CVs are being reviewed on a rolling basis, and only successful applicants will be contacted with more information.

 As leading charity recruitment specialists and a certified B Corp™, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.

Early Years Advisor

We are looking for Early Years Advisors to join the team supporting the contract delivery of our Maths Champions programmes.

Maths Champions is an online professional development programme, enabling early years settings to access CPD from their setting without the need to release staff to attend external training. The programme provides a range of evidence based training, reflective tools, resources and support from an Early Years Advisor.

This role offers remote working and there are 8 positions available.

Position: Early Years Advisor (Champions Programme) x8 posts

Location: Homebased

Hours: 37 hours per week

Salary: 30k increasing to £32k following probation

Contract: Fixed term contract until 31st July 2027 

Benefits: Include 26 days’ holiday, rising to 30 after service increments plus 8 bank holiday, Personal Pension Scheme, Healthcare Cash Plan, Employee Assistance Programme, Staff Awards Scheme, Company Sick Pay Scheme, flexible working patterns

Closing Date: 3rd October 2025. Interviews will be taking place on a rolling basis commencing from 15th September and if suitable candidates are found the role may close earlier than advertised.

The Role

You will support the contract delivery of the Maths Champions programmes, ensuring contract milestones are met. The Champions programmes are online professional development programmes designed to support early years settings to drive continuous improvement and increase high standards in early education for children from birth to five years, in line with the Organisation’s mission to promote quality in early years for UK and international customers.

Working closely with other early years advisors, delivery partners, managers and cross teams, you will be responsible for the delivery of Champions programmes.

You will work with the private, voluntary, maintained and independent sectors, and school provision providing advice and support relating to Champions programmes that enable practitioners within nursery settings with practice improvement resulting in better outcomes for children.

About You

You will have experience of working in early years, leading practice specifically in maths language, literacy and communication as an early years professional or an early years teacher

Successful candidates will have experience of:

• Coaching and mentoring early years practitioners to support practice improvement
• Customer service or related experience
• Multi-agency partnership working
• Developing and securing strong partnerships
• Involvement with early year’s networks or groups
• Product development and review

To apply please submit your CV along with a covering letter detailing how your skills, knowledge and experience meet the requirements of the role.

About the Organisation

The organisation is a national charity and membership association specifically for nurseries. They work in partnership with nurseries, local authorities, national government and a range of partners to develop an environment in which early learning and care can flourish.

The organisation is committed to a policy of equal opportunities and is actively opposed to discrimination in society.

You may also have experience in areas such as Early Years, Early Years Advisor, Early Years  Practitioner, Early Years  Teacher, Programmes, Programme Officer, Maths, Teacher, Teaching, Coaching, Customer Service, Education, Schools.  #INDNFP

PLEASE NOTE: This role is being advertised by NFP People on behalf of the organisation.

You will be joining us at a time that holds the greatest potential for fundraising in our history, following the launch of the UK Government’s Delivery Plan for ME and initial findings of the DecodeME genetics study (co-led by Action for ME) in Summer 2025. 

Building on our charity’s already established level of support from major donors, you will provide exceptional relationship management to existing donors alongside growing our network of high value supporters.

Working closely with the CEO, alongside managing a portfolio of donors and prospects ensuring excellent stewardship, you will support our Breakthrough-ME Group (a group of high net worth and highly networked individuals). There is an established level of support from major donors at Action for ME so this is a role that will require exceptional relationship management to retain our current valued supporters while growing this crucial area of fundraising. 

This would be an ideal role for an experienced philanthropy professional seeking to work for a small but ambitious charity, helping us to achieve our mission to improve the lives of all people affected by ME – better meeting their needs today while taking action to secure change for tomorrow.

Key duties

Major Donor Fundraising

• Successfully develop and implement the philanthropy strategy to secure and maximise funds from high value individuals for Action for ME achieving annual income of £250k+

• Set plans and budgets which will deliver income through major gift fundraising and philanthropic giving through family trusts and foundations, including quarterly forecasting.

• Manage a portfolio of prospects and donors at the £5k to £100k level, to develop and maintain strong and long-standing partnerships

• Work closely with the Director of Fundraising and Development and other colleagues to ensure that plans and activities for fundraising from high value individuals are integrated into the overall fundraising strategy and plan for significant growth.

• Be responsible for our Breakthrough-ME Group with high quality proposition development.  Contribution to Group fundraising activities with a specific focus on ensuring their networks support pipeline growth for future fundraising.

• Lead the delivery of our biennial fundraising gala dinner, maximising income and new opportunities from attendees.

• Develop engaging and inspiring opportunities to steward and cultivate support creating a calendar of activities including events, presentations, approaches, networking and meetings.

• Utilise the CRM database (Raisers Edge) to provide the data required to strategise your approach to philanthropy, monitor progress and provide a high-quality donor experience.

• Ensure utilisation of insight & data, producing management information data to inform planning and strategy development.

• With the Director of Fundraising & Development, create inspiring cases for support and resulting propositions with clear budgets and outcomes.

• Create adequate systems and processes to support the major donor programme.

• Undertake and manage research into prospects and major donors, preparing for approaches and presentations and briefing senior leadership and trustees for donor meetings and events.

• Develop and maintain relationships with donors, a wide range of staff and volunteers from trustee level down.

• Provide regular feedback and internal reporting to line management.

• Work with other fundraisers to ensure that all fundraising opportunities and leads are followed up – particularly in corporate, community and trust fundraising.

• Work with Trustees, the Chief Executive and members of the Leadership Team to develop relationships with major donors.

• Self-administrate including managing your own diary and meetings, keeping accurate and up to date records of activity

• Occasional travel to London, Bristol & events

Other duties

• To positively promote the work and activities of Action for M.E. at all times.

• To contribute to the team’s overall, ongoing and annual planning and budgeting.

• To undertake any other reasonable activity in line with the responsibilities of the post as requested by the Director of Fundraising and Development, Chief Executive or any other senior Action for ME management.

• Act as an advocate for the Charity and its work.

• To work in accordance with Action for ME’s values of collaboration, equity and empathy.

Are you a social media whizz with a passion for telling powerful stories? Keen to progress in your career in public relations and digital communications while making a real impact in the charity sector? Join Dravet Syndrome UK as a Marketing and Communications Manager (home based,16 hours/week) and bring your creativity and energy to a role where you’ll help shape our online presence, generate meaningful media coverage, and connect communities through engaging content.

Reporting to the Head of Marketing and Communications and working with the Marketing, Communications and Fundraising Manager in this varied position, you’ll drive DSUK’s social media activity, creating and scheduling posts across our social media channels. Alongside engaging online audiences, you’ll be instrumental in our proactive PR work—writing press releases, pitching stories to key media, responding to journalist enquiries, and helping develop compelling family case studies for campaigns. As part of a passionate and supportive team, you’ll collaborate to measure the impact of our communications and marketing work.

If you’re ready to grow your career in communications and want to make a difference for families affected by Dravet syndrome, we want to hear from you.

As part of DSUK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.

About Dravet Syndrome UK

Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as ‘comorbidities’), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.

The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping over 550 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.

What you will bring

Essential

· Demonstrable experience in planning and delivering engaging and targeted social media content to build community, raise awareness and drive engagement.

· Hands-on experience managing websites (using WordPress), delivering e-marketing campaigns (e.g. Mailchimp or similar), and applying SEO principles and other techniques to optimise digital communications and online visibility.

· Demonstrable experience in media relations, including writing press releases, working with case studies and successfully pitching and responding to a range of media (online, press, radio, broadcast)

· Demonstrable experience of working in charity, patient advocacy or healthcare sectors

· Ability to deal with people at all levels with empathy, tact and credibility

· Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences

· Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media and our website

· Act as a brand guardian, ensuring external designers and agencies understand and apply our brand, visual identity, and corporate communications guidelines effectively

· Strong organisational and project management skills, with the ability to prioritise

· Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)

Desirable

· Membership of a professional body such as Chartered Institute of Public Relations and/or a commitment to continuous professional development

 Why join Dravet Syndrome UK?

Join our dynamic and growing charity, where you'll thrive in an exciting and engaging environment. We are proud to be a family-oriented charity experiencing growth and fuelled by an ambitious plan for expansion. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our impact on people's lives. Join us today and contribute to making a lasting difference in the lives of those we support.

The closing date for applications is Wednesday, 24 September 2025, with shortlisting interviews taking place in early October with job to commence November 2025.

Our commitment to diversity

As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, sex, religion or belief, sexual orientation, gender reassignment, marriage & civil partnership, and pregnancy and maternity.

We are looking for an autonomous, inspiring, confident and organised leader. A transformer, capable of leading change and of developing services systematically and robustly. Someone who is inspired by the work we are doing now, and the opportunity to continue to lead growth and development. 

Joining at an exciting time as we prepare a three-year strategy, you will have experience of charity sector, be able to evidence service leadership, change management, service design / transformation. You will have a strong understanding of governance, quality and safety in service design, as well as lived experience impact.

You will have had experience of working in or alongside the NHS. You will be an empowering leader, supportive and coaching in style, bringing people with you through development and change work.

You will be collaborative in your approach and credible in your leadership. You will have worked with other senior leaders and be comfortable presenting to boards and to a wide range of internal and external stakeholders. 

Please refer to the attached recruitment pack for the full Job Specification.

Please upload your CV and supporting cover letter, outlining why you’re interested in the role. Please take your time to explain how your experience is relevant to this post and how you meet the criteria.

Closing date: Midnight Sunday 21st September 2025 

First stage virtual interviews: Monday 29th September 2025 

Second stage in-person interviews: Wednesday 15th October 2025 

We’re an award-winning charity that runs local learning centres in the heart of communities where the young people we support live. Our centres provide an innovative education programme which includes practical learning support and motivational and confidence-building activities for children and young people aged 7-18. Our aim is to inspire students from the least advantaged neighbourhoods to broaden their horizons and achieve their full potential.

As the UK’s leading university access organisation, our staff team is helping thousands of young people each year. We have forty-five centres and extension projects across England and Scotland, with ambitious plans to scale-up our provision further over the coming years.

IntoUniversity and the Royal National Children's SpringBoard Foundation are working in partnership to offer further life-transforming opportunities for IntoUniversity students to attend independent and state boarding schools on fully-funded bursaries.

We are looking for a Boarding Schools Bursary Manager to join our team. The postholder will have responsibility for leading and developing the Boarding Schools Bursary programme in partnership with Royal SpringBoard and will be the principal point of contact for IntoUniversity centres, the bursary students and their families, the boarding schools and Royal SpringBoard.

The successful candidate will quickly gain an understanding and knowledge of the IntoUniversity students recommended for bursary places and will develop relationships of trust with their families to ensure a smooth transition and integration into boarding school. 

The role at a glance

Contract: Full-time, permanent
Start date: As soon as possible to be agreed directly with the successful candidate
Location: Frequent travel around the UK is required for this role. Could be based in one of the following IntoUniversity  centres: Birmingham, Bradford, Coventry, Leeds, Leicester, London, Manchester, Nottingham
Salary: 
£40,800 per annum (including London contribution) for candidates based in London
£38,100 per annum for candidates based outside of London

What will my main duties be?

Programme Management

• To oversee the IntoUniversity Boarding School Bursary Programme including recruitment of potential students and ongoing support of current boarders.
• To prepare the students and their families for Royal SpringBoard and school assessments as well as reparing for boarding school life. 
• To plan and/or attend boarding school taster and pastoral visits across the UK. 
• To create a calendar of out-of-boarding events and support for students and families to connect to their local centre, including centre visits and community hubs. 
• Work with the Safeguarding Team to promote the wellbeing of students and respond to safeguarding concerns (additional training will be provided for this aspect of the role). 
• Encourage post-18 alumni to engage with the Royal SpringBoard alumni programmes and the IntoUniversity Student Associate Network
• Ensure Salesforce database records and monitoring requirements are kept up to date. 

Stakeholder Management

• Manage the relationship with Royal Springboard, including reporting on KPIs and maintaining communication.
• To build strong relationships and liaise with the host boarding schools and the key staff members such as Houseparents.
• To provide support to parents/carers as needed and manage any issues that may arise sensitively, mediating between the boarding schools, parents/carers and students as necessary.

Other duties

• To ensure that the ethos, values and culture of the charity are maintained.
• To champion diversity and inclusion in your role at all times, referring to the Diversity and Inclusion Staff Responsibilities Guide and fully supporting with the implementation of the charity’s Diversity and Inclusion Strategy.
• To ensure compliance with all necessary regulations and legal requirements, including the Children’s Act, Equal Opportunities, Data Protection, Health & Safety and Working with Vulnerable Groups.
• To undertake any task that may be requested from time to time that may be consistent with the nature and scope of this post. 
• To have full regard for IntoUniversity and Royal SpringBoard’s policies and procedures and to uphold IntoUniversity and Royal SpringBoard’s reputation, aims and values

Together, the charities Sands and Tommy’s have formed a Joint Policy Unit (JPU) focussed on achieving policy change that will save more babies’ lives during pregnancy and the neonatal period and on tackling inequalities in loss, so that everyone can benefit from the best possible outcomes.

The JPU’s mission is to secure policy change that will reduce rates of miscarriage, stillbirth, pre-term birth and neonatal death, and to work to eliminate inequalities in these outcomes.

While there is widespread agreement on the need for change to improve the safety of maternity and neonatal services, what that change looks like is not clear.  To save more babies’ lives we believe that a continued focus is required, and that governments should set new commitments to reduce perinatal mortality and preterm births, focused on matching the best-performing countries in Europe.

This role will be crucial to the continued success of the JPU unit; leading, shaping and coordinating all the unit’s work. 

We are looking for an independent and assertive problem-solver, a policy expert who can manage multiple priorities, take the initiative, lead the national conversation and is as excited as we are about taking the helm of this venture for both of our organisations.

The successful candidate will need to have a substantial track record of effectively leading and implementing national policy and influencing programmes, driving change and achieving the desired impact.

You will have considerable experience across research, data analysis, policy development, public affairs and communications.  Additionally, you will be well-versed in research and data management, including analysing complex data and evaluating policy developments.

Experience of being a member of a senior management team with successful, significant and relevant management and leadership experience is also essential.