Mnd association jobs

Are you experienced in UK policy and ready to lead on complex issues? Are you ready to use your policy expertise to drive meaningful change?

The MND Association is looking for a Policy Manager to shape and lead our policy influencing activities across England, Wales and Northern Ireland. In this key role, you will develop and promote policy positions that ensure our voice is heard in public debates and among decision-makers. You'll work with a wide range of stakeholders to influence change and improve support for people living with and affected by motor neurone disease. We're looking for a Policy Manager with strong analytical skills, political insight and clear communication abilities, who can work confidently both independently and as part of a collaborative team.

Key Responsibilities:

• Manage and develop policy, research and analysis work to position the MND Association in key debates
• Monitor and analyse public policy to identify barriers and propose evidence-based solutions to support campaigns, briefings and submission
• Communicate the MND Association's position through high-quality briefings, reports, submissions and speeches
• Develop and maintain relationships with policymakers, government officials, and key sector organisations
• Represent the Association in external policy and consultation forums
• Support the implementation and evaluation of the Association's Public Affairs and Campaigns strategy
• Keep internal colleagues informed of relevant policy developments
• Circulate policy positions to varied audiences in accessible formats
• Lead and support policy-related meetings, seminars and consultations
• Line-manage Policy Advisers and oversee commissioned projects where required

About You:

• In-depth knowledge of health and/or social policy in the UK
• Strong understanding of UK political systems, including Westminster and the devolved nations
• Proven experience in delivering impactful research and policy analysis
• A successful track record of policy development and influencing change
• Ability to interpret and comment on complex issues clearly and effectively
• Experience of managing staff and external consultants
• Strong planning and organisational skills with the ability to meet deadlines
• Willingness to travel across the UK and attend occasional evening or weekend events

About Us:

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

What We Offer:

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
• 24/7 GP access via phone and video.
• Life assurance and confidential counselling helplines.
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
• Access to Benefit Hub for discounts on everyday shopping.
• Enhanced pension scheme.
• Opportunities for training and personal development.
• Hybrid working.

The full job description is available in the candidate pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

Hybrid Working and Flexibility: This role offers hybrid working, with the expectation to attend the office at least 1 day per week. We are open to part-time applications or job shares - please indicate your preferred working arrangement in your application.

How to apply:

Please submit a CV and supporting statement. Your supporting statement should be no longer than one side of A4 and demonstrate how you meet the following areas

• Familiarity with UK political systems, including Government departments, Westminster and the devolved nations.
• Excellent communication, negotiating, reporting influencing and negotiating skills
• Excellent planning and management skills.

Important Information:

• We may close applications early if we receive a high volume, so early submissions are encouraged.
• If you require sponsorship for this role, please clearly indicate this in your application.
• Depending on the role, a DBS check may be required.
• If you need reasonable adjustments during the application or interview process, please contact us for support.
• We are happy to consider alternative application formats for those who find the online form challenging.

The Policy Manager role offers a chance to make a real difference while working in a supportive and flexible environment. If you have the skills, experience and commitment to drive positive policy change, we would be delighted to hear from you.

Join us as a Policy Manager and help shape a better future for people living with and affected by MND.

Are you confident working with senior leaders and navigating complex relationships? Do you have the diplomacy and judgement to support strong governance in a fast-paced environment?

We're looking for a Head of Governance and Compliance to work closely with our CEO, Executive Leadership Team and Board of Trustees. This is a vital role at the centre of the organisation, supporting a wide range of influential individuals. The Head of Governance and Compliance will need to adapt to varied working styles and expectations, with the ability to approach all relationships with professionalism, clarity and care.

As Head of Governance and Compliance, you will lead our governance function, ensuring legal and regulatory compliance while enabling effective decision-making. With strong governance experience, sound judgement and the ability to build trust at all levels, you will support effective leadership and accountability across the MND Association.

Key Responsibilities:

• Lead and continuously develop the governance function, embedding best practices aligned with our strategy and values.
• Act as the primary trusted advisor on governance, risk and regulatory matters to the Chair, Board, CEO and Executive Leadership Team.
• Lead and develop governance frameworks, policies and structures that reflect best practice.
• Oversee planning and delivery of all governance activities, including Board meetings, Committee meetings, and the AGM.
• Provide clear structured agendas, timely papers and accurate minutes to support effective governance meetings.
• Maintain governance records and ensure regulatory compliance with Companies House and the Charity Commission.
• Monitor and report on governance performance, risks and improvement areas.
• Take a leading role in managing and enabling constructive and challenging relationships between the Board, Chair, and ELT.
• Manage trustee recruitment, induction, training and succession planning.
• Oversee the organisation's policy framework and serious complaints process, ensuring appropriate enquiry and learning.
• Lead the development and implementation of the risk management framework in line with Board expectations.
• Stay informed on legal, regulatory and sector developments and advise the organisation on implications.

About You:

• Strong knowledge of UK charity and company law.
• Proven experience working with Boards and senior leaders in a governance role.
• Skilled in developing governance policies, frameworks and risk management processes.
• Excellent written and verbal communication skills, with strong attention to detail.
• Good level of financial acumen within a governance role.
• High levels of discretion, judgement and political awareness.
• Able to work independently, make sound decisions and prioritise effectively.
• Collaborative approach with the ability to build strong relationships and influence sensitively.
• Committed to inclusion, ethical practice and continuous learning.
• CGI qualified or working towards qualification (desirable).

About Us:

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

What We Offer:

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
• 24/7 GP access via phone and video.
• Life assurance and confidential counselling helplines.
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
• Access to Benefit Hub for discounts on everyday shopping.
• Enhanced pension scheme.
• Opportunities for training and personal development.
• Hybrid working.

The full job description is available in the candidate pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

Hybrid Working and Flexibility: This role offers hybrid working, with the expectation to attend the office 2 days per week.

This role can be based from Northampton or London.

Interview Dates:

First stage interview: Thursday 17^th July, in-person at our Northampton office

Second stage interview: Thursday 24^th July, in-person at our London office.

How to apply:

Please submit a CV and supporting statement. Your supporting statement should be no longer than one side of A4 and demonstrate how you meet the following areas of the role.

• Substantial experience in governance, preferably in a charity or membership organisation.
• Proven ability to work with Boards and senior leadership.
• Experience developing governance frameworks and policies.

Important Information:

• We may close applications early if we receive a high volume, so early submissions are encouraged.
• If you require sponsorship for this role, please clearly indicate this in your application.
• Depending on the role, a DBS check may be required.
• If you need reasonable adjustments during the application or interview process, please contact us for support.

If you have the expertise and approach to support the work of our Board and senior team, we would love to hear from you!

Are you passionate about making a difference in local communities? Are you committed to working with volunteers and offering compassionate support to people living with or affected by Motor Neurone Disease (MND)?

As a Community Support Coordinator, you will play a key role in delivering and integrating our Community Support Volunteer service. You'll work closely with volunteers, health and social care professionals, and local partners to ensure people living with and affected by MND receive high-quality, accessible, and inclusive support.

Key Responsibilities:

As a Community Support Co-ordinator, you will:

• Lead a team of Community Support Volunteers, recruiting, supporting, and developing them to provide a high-quality service.
• Ensure that support is needs-led, inclusive, and enables personal choice and control.
• Offer guidance to volunteers handling complex care and support issues.
• Respond to enquiries and referrals, providing relevant information and signposting to appropriate services.
• Build strong relationships with care centres, networks, and local partners to integrate community support effectively.
• Support and develop volunteer branches and groups, ensuring they meet local needs and follow organisational policies.
• Identify gaps in care and support services and contribute to plans for improvement.
• Promote collaboration between volunteers, professionals, and people affected by MND to enhance service delivery.
• Facilitate learning and networking opportunities for volunteers.
• Support fundraising and awareness activities alongside colleagues.
• Maintain accurate records and contribute to service development.

About You:

In this role as a Community Support Co-ordinator, you will need experience in managing and supporting volunteers and an understanding of care and support services. You will be committed to delivering inclusive and person-centred support.

We're looking for someone with:

• Experience leading, managing, or coordinating volunteers, ideally in a not-for-profit setting.
• Strong communication, interpersonal, and presentation skills.
• The ability to assess and respond to support needs in a person-centred way.
• Knowledge of care and support services across different sectors.
• Experience working with individuals at risk of harm and their families.
• An understanding of safeguarding and risk management.
• The ability to build and maintain relationships with individuals and partner organisations.
• A commitment to equality, diversity, and inclusive practices.
• The ability to prioritise tasks, plan effectively, and make autonomous decisions.
• Proficiency in using IT systems and applications.
• Flexibility to work outside standard hours when required.
• A full driving licence.

About Us:

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

What We Offer:

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
• 24/7 GP access via phone and video.
• Life assurance and confidential counselling helplines.
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
• Access to Benefit Hub for discounts on everyday shopping.
• Enhanced pension scheme.
• Opportunities for training and personal development.

The full job description is available in the candidate pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

How to apply:

Please submit a CV and supporting statement. Your supporting statement should be no longer than one side of A4 and demonstrate how you meet the following areas of the role.

• Experience of leading, managing and/or coordinating self-managed groups of volunteers, ideally in a not-for-profit setting.
• Skills to identify, assess, and respond to support needs through a person-centred approach.
• Demonstrable understanding and delivery of care and support services in the statutory, private and/or voluntary sectors including value and challenges of volunteering.

Important Information:

• We may close applications early if we receive a high volume, so early submissions are encouraged.
• If you require sponsorship for this role, please clearly indicate this in your application.
• Depending on the role, a DBS check may be required.
• If you need reasonable adjustments during the application or interview process, please contact us for support.
• We are happy to consider alternative application formats for those who find the online form challenging.

This is a home-based role covering the Thames Valley region. If you're ready to make a meaningful impact as a Community Support Coordinator and work with a supportive team, we'd love to hear from you!

Are you experienced in delivering projects that improve services and support? Would you enjoy working in a collaborative and forward-thinking team?

We're looking for a Project Manager to lead and deliver a range of projects that improve services and ways of working across our Services & Partnerships directorate. From initial planning through to completion, you'll work closely with colleagues, stakeholders, and where appropriate, volunteers and people living with and affected by Motor Neurone Disease (MND). This Project Manager role is ideal for someone who enjoys working across teams, managing complexity, and delivering structured, inclusive and effective change.

Key Responsibilities:

• Deliver assigned projects on time and within budget
• Define project scope, objectives, required resources, and success measures
• Introduce and manage ideas for improvement, using proven methods and techniques
• Act as the main point of contact for stakeholders, leading communication and engagement activities and plans
• Work in partnership with staff, volunteers, and people living with and affected by MND to co-produce solutions and ensure engagement and understanding of the project.
• Oversee project progress, risks, and issues, escalating where needed
• Manage project budgets and monitor spending against agreed plans
• Manage contracts with third parties and suppliers including any tender processes

About You:

• Project management experience, including seeing projects through the full life cycle
• Experience in the delivery or transformation of services and support in health or third sector organisations.
• Experience of Quality Improvement methodology
• Excellent organisational, interpersonal, and analytical skills.
• Ability to understand and manage complex issues, and manage changing priorities and draw insight from varied sources
• Experience using data and analysis to support decisions and track progress and improve performance
• Skilled communicator with the ability to engage a range of audiences
• Competent in project management software and tools
• Able to present complex ideas in accessible and engaging ways
• Experience tracking performance indicators and reporting clearly

About Us:

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

What We Offer:

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
• 24/7 GP access via phone and video.
• Life assurance and confidential counselling helplines.
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
• Access to Benefit Hub for discounts on everyday shopping.
• Enhanced pension scheme.
• Opportunities for training and personal development.

The full job description is available in the candidate pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

Hybrid Working and Flexibility: This is a home-based role with travel requirements to our office in Northampton in-line with business needs. We are open to part-time applications or job shares - please indicate your preferred working arrangement in your application.

How to apply:

Please submit a CV and supporting statement. Your supporting statement should be no longer than one side of A4 and demonstrate how you meet the following areas of the role.

• Project management experience, including seeing projects through the full life cycle.
• Operational or project experience in the delivery or transformation of services and support in health or third sector organisations.
• Experience of Quality Improvement methodology.

Important Information:

• We may close applications early if we receive a high volume, so early submissions are encouraged.
• If you require sponsorship for this role, please clearly indicate this in your application.
• Depending on the role, a DBS check may be required.
• If you need reasonable adjustments during the application or interview process, please contact us for support.
• We are happy to consider alternative application formats for those who find the online form challenging.

If this Project Manager opportunity sounds right for you, we look forward to hearing from you.

Are you passionate about making a difference and engaging with supporters?

We are looking for a Fundraising Support Assistant (Supporter Stewardship Assistant) to join our Income Generation team in Northampton. In this role, you will provide administrative support to ensure an excellent experience for all our supporters, members, and donors.

Key Responsibilities:

As a Supporter Stewardship Assistant, you will:

• Advise and guide new and existing supporters to maximise their fundraising potential.
• Collaborate with Supporter Stewardship Officers to complete all aspects of the workload.
• Establish rapport and understand supporters' needs.
• Accurately record supporter information on the Raisers Edge database.
• Order fundraising materials and packs for the team.
• Adhere to Data Protection Act, HMRC, Audit regulations, and internal compliance procedures.
• Play an active role in cross-team working and participate in working groups.
• Work towards business and personal development objectives.
• Undertake tasks relevant to the job purpose, reflecting the Association's mission and core values.

About You:

You will bring:

• Excellent interpersonal and communication skills.
• Ability to prioritise your workload effectively.
• Teamwork and collaboration skills.
• Proficiency in Microsoft Office (Word, Excel, Outlook).
• Attention to detail and accuracy.

About Us:

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

What We Offer:

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
• 24/7 GP access via phone and video.
• Life assurance and confidential counselling helplines.
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
• Access to Benefit Hub for discounts on everyday shopping.
• Enhanced pension scheme.
• Opportunities for training and personal development.
• Hybrid working.

The full job description is available in the candidate pack.

Salary: £25,420 per annum

Hours: 37 per week

Location: Northampton office

Contract: Permanent

Hybrid Working and Flexibility: This role offers hybrid working, with the expectation to attend the office 2 days per week (during the initial training period, increased office attendance will be necessary). We are open to part-time applications or job shares - please indicate your preferred working arrangement in your application.

How to apply:

Please submit a CV and supporting statement. Your supporting statement should be no longer than one side of A4 and demonstrate how you meet the following areas of the role.

• Good working knowledge of Microsoft Office (in particular Word, Excel and Outlook.
• Ability to work in part of a team and collaborate with others.
• Keen eye for accuracy and attention to detail.

Important Information:

• We may close applications early if we receive a high volume, so early submissions are encouraged.
• If you require sponsorship for this role, please clearly indicate this in your application.
• Depending on the role, a DBS check may be required.
• If you need reasonable adjustments during the application or interview process, please contact us for support.
• We are happy to consider alternative application formats for those who find the online form challenging.

Do you have a keen eye for detail and enjoy providing thoughtful support through meaningful communication?

We're looking for a Legacy Marketing Assistant to join our Legacy team. This varied role offers the chance to build a career in legacy or in-memory fundraising, supporter care, or administration.

As Legacy Marketing Assistant, you'll support multi-channel campaigns and events, while providing thoughtful and timely stewardship to some of our committed supporters. To thrive in this role, you'll be organised, empathetic, and confident working with sensitive information and correspondence.

Key Responsibilities:

• Deliver excellent supporter care by monitoring inboxes and responding to enquiries promptly and sensitively
• Accurately set up new records and log all inbound and outbound correspondence
• Prepare and send welcome packs to Tribute Fund supporters, respecting communication preferences
• Write and send personalised thank you letters to supporters, solicitors and executors to acknowledge donations received from a range of sources including legacies and in-memory donations
• Provide tailored stewardship through sympathy cards, special acknowledgements, and monthly e-newsletters
• Support the team with the planning and delivery of legacy events, including managing responses and on-the-day coordination
• Help manage replies to legacy marketing activity such as Free Wills services and direct marketing campaigns
• Build effective working relationships with internal colleagues and external partners

About You:

• Excellent attention to detail with experience in accurate data capture
• Experience using databases, Microsoft Word, Excel, and Outlook
• Clear and sensitive communicator, both in writing and in person
• Skilled and confident at handling high volumes of personalised correspondence
• Strong relationship-building skills across internal teams and external contacts
• Able to manage a varied workload and prioritise effectively to support others

About Us:

Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.

What We Offer:

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
• 24/7 GP access via phone and video.
• Life assurance and confidential counselling helplines.
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
• Access to Benefit Hub for discounts on everyday shopping.
• Enhanced pension scheme.
• Opportunities for training and personal development.
• Hybrid working.

The full job description is available in the candidate pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

Hybrid Working and Flexibility: This role offers hybrid working, with the expectation to attend the office 1 day per week. We are open to part-time applications or job shares - please indicate your preferred working arrangement in your application.

How to apply:

Please submit a CV and supporting statement. Your supporting statement should be no longer than one side of A4 and demonstrate how you meet the following areas of the role.

• Excellent attention to detail and experience of data capture with high levels of accuracy
• Experience of database management and use of Word, Excel and Outlook
• Excellent written and oral communications skills; great listening skills and ability to handle sensitive conversations

Important Information:

• We may close applications early if we receive a high volume, so early submissions are encouraged.
• If you require sponsorship for this role, please clearly indicate this in your application.
• Depending on the role, a DBS check may be required.
• If you need reasonable adjustments during the application or interview process, please contact us for support.
• We are happy to consider alternative application formats for those who find the online form challenging.

If you're looking for an opportunity to grow your career as a Legacy Marketing Assistant, we'd love to hear from you.