Motor neurone disease association jobs
Ready to use your technical skills to help drive meaningful change?
We're looking for a skilled and motivated Senior Data Officer to support the delivery of high-quality data operations at the Motor Neurone Disease (MND) Association. You'll play a vital role in managing and enhancing our CRM systems, ensuring data integrity, streamlining processes, and enabling colleagues across the organisation to work more effectively. This is an exciting time to join, as we prepare to implement a new CRM system that will transform the way we work.
As a Senior Data Officer, you will be part of our Data & Insight team within the Finance. Working closely with colleagues in Digital, ICT and Fundraising, providing technical expertise while developing and improving data flows and reporting processes. This is a hands-on role for someone who enjoys working with data tools, scripting, and automation, and who can collaborate well across teams.
Key Responsibilities:
- Support the Data Operations & Standards Manager in maintaining data quality and system integrity across our databases.
- Deliver training and day-to-day support to users of our CRM systems, including making agreed system adjustments.
- Manage CRM user access, data cleansing, reporting and administration.
- Lead on technical development projects to improve automation and streamline processes using tools such as SQL, Power Automate or Python.
- Help design and maintain system integrations using APIs or middleware platforms.
- Reduce manual processes by developing efficient data flows across systems.
- Oversee imports and ensure accurate processing of new and updated data, including from external data agencies.
- Analyse and interpret data sets to support performance monitoring.
- Work with the Insight & Analytics Manager to support reporting processes and develop insights.
About You:
- Proven experience managing and improving database systems and processes.
- Strong SQL skills are essential.
- Confidence using automation tools like Power Query, Power Automate or similar.
- Familiarity with APIs or system integrations, and knowledge of ETL processes.
- Experience handling bulk data imports and reconciliation.
- A good understanding of GDPR and data management best practice.
- Excellent communication and interpersonal skills.
- The ability to manage competing priorities in a fast-moving environment.
- A strong analytical mindset with an eye for detail.
Experience with Dynamics 365, LogicApps, the Microsoft Power Platform or KingswaySoft would be an advantage - but training can be provided.
About Us:
Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.
Our Technology Teams:
We are ambitious and eager to drive delivery of our new strategy. We are transforming and redesigning our Digital, Data and IT services so that we are set up to work in close partnership with all our user communities to harness technology that drives our mission forward.
We are developing the skills and ways of working for our current teams and expanding the teams with new roles across all our services. We are looking for people who want to come together and use their skills to make a difference for people living with and affected by MND. We are embedding new product led ways of working and want to bring in more technical knowledge that will help us make the most of new CRM and Service tools.
What We Offer:
- 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
- Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
- 24/7 GP access via phone and video.
- Life assurance and confidential counselling helplines.
- Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
- Access to Benefit Hub for discounts on everyday shopping.
- Enhanced pension scheme.
- Opportunities for training and personal development.
- Hybrid working.
The full job description is available in the candidate pack.
We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.
As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.
Hybrid Working and Flexibility: This role offers hybrid working, with the expectation to attend the office a minimum of 1 day per week, with occasional travel to our London office.
We are open to part-time applications or job shares - please indicate your preferred working arrangement in your application.
How to apply:
Please submit a CV and supporting statement. Your supporting statement should be no longer than one side of A4 and demonstrate how you meet the following areas of the role.
- Management and enhancement of database systems and processes along with analysis, problem-solving and decision-making skills
- Strong ability to automate data processes using SQL, Power Query, Power Automate, or other tools and experience of working with APIs or system integrations.
- Knowledge of ETL processes and data flows with an appreciation for best practice.
Important Information:
- We may close applications early if we receive a high volume, so early submissions are encouraged.
- If you require sponsorship for this role, please clearly indicate this in your application.
- Depending on the role, a DBS check may be required.
- If you need reasonable adjustments during the application or interview process, please contact us for support.
- We are happy to consider alternative application formats for those who find the online form challenging.
This is a brilliant opportunity if you are looking to take the next step, grow technical capabilities, and play a part in shaping how data and technology drive progress at the MND Association.
The client requests no contact from agencies or media sales.
Are you experienced in trust fundraising and ready to help make a meaningful impact?
We're looking for a Trusts Fundraising Officer to join our Income Generation team at the Motor Neurone Disease (MND) Association. You'll help secure funding from charitable trusts and foundations, supporting our vital work and strategic goals. You'll manage a portfolio of funders, develop new opportunities, and create high-quality proposals that bring our work to life. You'll also build strong relationships across teams and ensure accurate and timely reporting.
This is a great opportunity for someone who enjoys writing strong, impactful proposals and is keen to be more involved in building relationships, both internally and externally. You'll be supported by a collaborative, friendly team and given a diverse portfolio with the chance to shape our future approach and influence how we work. We're looking for someone who brings a thoughtful, tailored approach to trust fundraising, and who is excited by the opportunity to help us grow.
Key Responsibilities:
- Manage a portfolio of charitable trusts and grant-making bodies to achieve income targets
- Research and identify new funding prospects
- Develop clear, well-structured proposals for low- and mid-value funders
- Build strong internal relationships to support collaborative working
- Deliver timely and accurate reports and updates to funders
- Provide excellent stewardship to funders to support long-term engagement
- Maintain accurate and consistent records of fundraising data
- Contribute to wider team targets as part of the High Value team
About You:
- Proven experience of trust fundraising, meeting income targets
- Strong writing skills, with the ability to tailor content for different funders
- Confident in identifying and researching suitable funding opportunities
- Able to build and maintain positive working relationships internally and externally
- Highly organised and able to prioritise a varied workload
- Strong attention to detail
- Comfortable working both independently and as part of a team
- Skilled in using Microsoft Office and CRM systems (Dynamics 365 experience is desirable)
About Us:
Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.
What We Offer:
- 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
- Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
- 24/7 GP access via phone and video.
- Life assurance and confidential counselling helplines.
- Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
- Access to Benefit Hub for discounts on everyday shopping.
- Enhanced pension scheme.
- Opportunities for training and personal development.
- Hybrid working.
The full job description is available in the candidate pack.
We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.
As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.
Hybrid Working and Flexibility: This role offers hybrid working, with the expectation to attend the office 1 day per week with the flexibility to attend more regularly in line with business needs. We are open to part-time applications or job shares - please indicate your preferred working arrangement in your application.
How to apply:
Please submit a CV and supporting statement. Your supporting statement should be no longer than one side of A4 and demonstrate how you meet the following areas of the role.
- Demonstrate your experience in trust fundraising, including examples of securing income against set targets and identifying new funding opportunities.
- Provide evidence of writing compelling, tailored trust proposals and working collaboratively with colleagues to develop strong cases for support.
- Highlight your ability to build and maintain effective relationships with funders and internal teams, and your skills in written communication and teamwork.
Important Information:
- We may close applications early if we receive a high volume, so early submissions are encouraged.
- If you require sponsorship for this role, please clearly indicate this in your application.
- Depending on the role, a DBS check may be required.
- If you need reasonable adjustments during the application or interview process, please contact us for support.
- We are happy to consider alternative application formats for those who find the online form challenging.
The client requests no contact from agencies or media sales.
Looking for a role where your planning and co-ordination skills help support learning and development?
We have an exciting opportunity for an Education Co-ordinator to join our Services and Partnerships Team at the Motor Neurone Disease (MND) Association. You will play a key role in delivering high quality, inclusive education activities. Working closely with the Education Lead to co-ordinate a varied programme of online and in-person events, ensuring they are delivered successfully.
This is a great opportunity for someone with strong communication and organisational skills, who is confident working independently, and comfortable with occasional travel and flexible hours.
You will be based from our office in Northampton with the requirement to travel regionally for face-to-face events. We currently host approximately 15 in-person events annually.
Key Responsibilities
- Support the planning and delivery of online, regional, and national education events
- Use event platforms to create, promote, and co-ordinate education sessions
- Manage the education digital survey account (SmartSurvey) to collect feedback and support ongoing improvement
- Identify and negotiate with accessible venues, including carrying out DEI audits
- Maintain accreditation standards with professional bodies such as the Royal College of Physicians
- Attend events and manage pre- and post-event tasks such as communications, attendance, and certificates
- Oversee the Education and Community of Practice inboxes, responding or escalating as needed
- Maintain accurate records in the CRM system to support event co-ordination
- Process the Continued Professional Development fund grant requests and keep related records up to date
- Work collaboratively with internal colleagues to meet project aims
About You:
- Excellent organisational and, both verbal and written, communication skills
- Strong interpersonal skills and the ability to build positive relationships
- Confident using platforms such as Zoom and EventsAir
- Planning and co-ordination skills
- Proactive and able to solve problems on the spot during live events
- Able to use a range of digital tools and adapt to new systems
- Customer-focused and committed to delivering a high standard of service
- Flexible approach, including willingness to travel and work occasional unsocial hours
About Us:
Our vision is a world free from MND. Our mission is to improve care and support for people with MND, their families and carers. We fund and promote research that leads to new understanding and treatments and brings us closer to a cure for MND. The Association also campaigns and raises awareness so the needs of people with MND, and everyone who cares for them, are recognised, and addressed by wider society.
What We Offer:
- 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays.
- Access to UK Healthcare, including dental, eyecare, health screenings, and therapies.
- 24/7 GP access via phone and video.
- Life assurance and confidential counselling helplines.
- Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave).
- Access to Benefit Hub for discounts on everyday shopping.
- Enhanced pension scheme.
- Opportunities for training and personal development.
- Hybrid working.
The full job description is available in the candidate pack.
We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.
As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.
Hybrid Working and Flexibility: This role offers hybrid working, with the expectation to attend the office a minimum of 1 day per month with flexibility to attend more in line with business requirements. This role also requires travel to in person events nationally and regionally. We are open to part-time applications or job shares - please indicate your preferred working arrangement in your application.
How to apply:
Please submit a CV and supporting statement. Your supporting statement should be no longer than one side of A4 and demonstrate how you meet the following areas of the role.
- Strong organisational, interpersonal, and communication skills, with the ability to build positive working relationships and communicate effectively in writing and in person
- Confident using digital tools and platforms, such as event software (e.g. EventsAir), Zoom, and other collaboration applications, with a willingness to learn new systems
- A professional and reliable approach, with a focus on delivering high quality service and supporting others effectively
Important Information:
- We may close applications early if we receive a high volume, so early submissions are encouraged.
- If you require sponsorship for this role, please clearly indicate this in your application.
- Depending on the role, a DBS check may be required.
- If you need reasonable adjustments during the application or interview process, please contact us for support.
- We are happy to consider alternative application formats for those who find the online form challenging.
The client requests no contact from agencies or media sales.