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Top job
Bardet-Biedl Syndrome UK (BBS UK), Multiple Locations (Hybrid)
£40,000 - £45,000 per year (Full-Time Equivalent)
Lead BBS UK’s integrated support service, helping individuals and families living with BBS access compassionate, person-centred support.
Posted 2 days ago
Top job
Back-Up, London (Hybrid)
£35,000 - £39,000 per year
Lead and shape an inclusive People & Culture strategy in a values-driven charity supporting people affected by spinal cord injury.
Posted 6 days ago Apply Now

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Closing in 5 days
Medical Aid for Palestinians, London (Hybrid)
£44,034 - £46,481 per year
As Senior Supporter Retention Officer (Appeals and Islamic Giving), you will lead the development of supporter-led, multi-channel
Posted 1 day ago
Berkshire and Hampshire Borders Methodist Circuit, Reading, Berkshire (On-site)
£45,000 - £55,000 per year
Posted 2 days ago
Church Army, Sheffield City Centre (On-site)
£37,924 per year
The postholder will take day-to-day ownership of the CRM, acting as the ‘go-to’ expert for users.
Posted 3 days ago
The Southmead Project, Southmead (Hybrid)
£29,796 p/a pro rata
The Active Recovery Project gives adult survivors of abuse the opportunity to take part in community-based activities. Come join the team!
Posted 2 days ago
Seed Studios, Multiple Locations (Hybrid)
£29,500 per year FTE (£23,600 pro rata)
Posted 2 days ago
Closing in 6 days
MS Society UK, N4, London (Hybrid)
Starting from £33,044 per annum plus excellent benefits
Posted 1 day ago
Church Army, Sheffield City Centre (Hybrid)
£26,582 per year
This role is an exciting opportunity for someone at the start of their career who wants to grow, learn, and make a meaningful impact.
Posted 1 week ago
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Birmingham, West Midlands (Hybrid)
London, Greater London
£40,000 - £45,000 per year (Full-Time Equivalent)
Part-time (30–35 hours per week, with flexibility depending on the successful candidate)
Permanent
Job description

We are looking for an experienced and compassionate Support Services Manager to lead BBS UK’s support services for children, adults and families living with Bardet-Biedl syndrome (BBS). 

BBS UK is a national charity supporting people affected by this rare genetic condition. We work closely with NHS specialist clinics and other services to help individuals and families access the support they need and navigate health, education, social care and welfare systems. 

This is an exciting opportunity to lead a small, dedicated team providing practical support, advocacy and guidance to people living with BBS and their families. 

The role includes team leadership, safeguarding responsibility and service development. You will help ensure people receive safe, responsive and person-centred support while continuing to improve and strengthen our services. 

About the Role 

As Support Services Manager, you will oversee BBS UK’s clinics support and advice services. Working closely with the CEO, NHS clinics and partner organisations, you will: 

  • Lead and support a small remote-working team

  • Provide supervision and safeguarding leadership to Patient Liaison Officers and Advice Workers

  • Act as Designated Safeguarding Lead (DSL) for the organisation

  • Oversee caseloads, service quality and risk management

  • Support staff wellbeing, learning and development

  • Build positive relationships with NHS and external partners

  • Help develop and improve BBS UK’s support services

This is a home-based role with travel to specialist clinics in London and Birmingham, plus occasional meetings and events. Travel expenses will be reimbursed in line with BBS UK policies. 

About You 

We are looking for someone who: 

  • Has experience managing a team within health, social care, welfare or voluntary sector services 

  • Has experience providing leadership, supervision or safeguarding oversight within a support service setting 

  • Has strong safeguarding knowledge and can make sound decisions in complex situations

  • Communicates well and builds positive working relationships

  • Can manage competing priorities and support a busy team

  • Is organised, practical and calm under pressure

  • Is reflective, approachable and supportive

  • Shares our commitment to inclusive, person-centred support

  • Wants to make a meaningful difference to people living with BBS

Why Join BBS UK? 

BBS UK is a small, supportive charity making a real difference to the lives of people affected by Bardet-Biedl Syndrome. By joining us, you will: 

  • Make a direct and meaningful difference to children, adults and families living with BBS

  • Be part of a supportive and values-driven team

  • Work flexibly from home while contributing to a nationally recognised rare disease support service

  • Receive ongoing training, supervision and professional development

  • Help shape the future of support services for people living with BBS 

Additional Information 

  • An enhanced DBS check is required for this role

  • Some evening or weekend work may occasionally be required, with time off in lieu provided

If you’re ready to use your skills and experience to make a meaningful impact, we’d love to hear from you. If you would like to discuss the role before applying, details can be found in the application pack. 

Application Deadline: Sunday 7th June 2026 (midnight) 

Interviews: Expected to take place in London on 16th and 18th June 2026 

Application resources
Organisation
Bardet-Biedl Syndrome UK (BBS UK) View profile Organisation type Registered Charity Company size 6 - 10

We support and empower our community, champion wellbeing, and raise awareness, ensuring understanding, support, and hope for all affected.

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Refreshed on: 18 May 2026
Closing date: 07 June 2026 at 00:00
Tags: Advice / Information, Training / Learning, Advocacy, Blind, Health / Medical, Risk Management, Safeguarding, Wellbeing, Social / Support Work

The client requests no contact from agencies or media sales.