National practice leads jobs in newton le willows, merseyside
Job title: Health and well-being specialist cancer nurse
Department: Support Services Team
Reports to: Support Service Lead
Location: Remote (UK travel required)
Mandatory staff meeting days in person: 2 days x 4 times a year.
Clearance required: DBS check
Essential: current NMC registration with no restrictions or caution order.
Part-time: 3 days (22.5 hours) per week
Salary: £36,750 full time equivalent (pro-rata £22,050 for 3 days per year)
About Neuroendocrine Cancer UK
Neuroendocrine Cancer UK is a small patient-centric organisation with a wide reach and clear mission: to support and inform patients and families from diagnosis, enabling access to the best care and treatment, whilst stimulating neuroendocrine cancer research, increasing national awareness, and influencing improvements in outcomes.
Our vision is for a world in which people know how to recognise, diagnose, treat, care for, and cure patients with neuroendocrine cancer.
We are a Charity driven by strong values of equity, excellence, collaboration, honesty, transparency and integrity.
Job Purpose:
To provide specialist support to individuals affected by neuroendocrine cancer—including patients, families, carers, and health and social care professionals—through expert nursing advice, psychosocial support, and the provision of dedicated advocacy and self-management services.
- To deliver accurate, evidence-based information and guidance on neuroendocrine cancer.
- To advise on self-care and promote physical and mental well-being, including appropriate escalation pathways (e.g., GP, CNS/CPN, clinical team, emergency services).
- To contribute to the delivery of direct care and support services, including the national helpline, support groups, and access to counselling and therapy.
This is a unique and rewarding opportunity to apply your clinical expertise in a broader context: you’ll play a central part in shaping the patient experience and in realising our shared vision in promoting equity and excellence across all aspects of care.
Key Responsibilities
- Assess and respond to information and support needs.
- Apply clinical expertise to deliver evidence-based nursing care for individuals affected by neuroendocrine cancer.
- Provide empathetic and informed telephone support.
- Advocate for patients and families, ensuring access to appropriate information and support services.
- Coordinate and facilitate patient support groups (online and in-person) and facilitator support.
- Deliver health promotion and harm reduction interventions that empower self-care and autonomy.
- Co-produce accessible, high-quality information resources.
- Maintain accurate and timely records in line with service protocols and NMC standards.
- Uphold the NMC Code of Conduct and stay informed on relevant policies and professional developments.
- Demonstrate professionalism and integrity in all aspects of work.
- Engage in ongoing professional development, including clinical supervision, appraisals, and training.
- Contribute to internal training and external consultancy teaching events.
- Foster effective communication across NCUK staff, clients, partners, and stakeholders.
- Collaborate effectively with NHS, social care, and charity partners to promote integrated, person-centred care and support joint working initiatives.
- Represent NCUK in internal and external working groups, contributing to plans and reports.
- Support engagement with national and local research projects, as appropriate.
- Adhere to internal policies and contribute to service reviews and improvement initiatives.
- Lead specific projects as assigned by the Service Lead or CEO.
- Provide data and insights for strategic planning, service evaluation, and framework development.
- Participate in and support clinical audits, implementing improvements where needed.
- Ensure service alignment with external policies, guidelines, and strategic targets.
- Comply with all relevant legislation, policies, and best practice guidelines.
- Embody and promote NCUK workplace values, serving as a positive ambassador for the organisation.
Other Duties
The post holder will operate within a dynamic and evolving environment and may be required to undertake additional responsibilities to support the effective functioning of Neuroendocrine Cancer UK.
Requirements
- Must have a current NMC registration with no restrictions on their practice or caution order attachment.
- Min 5-year post reg. experience, within a clinically relevant field: including caseload management
- Be able to provide at least two professional references from your last place of work as a nurse or midwife.
- Please note that a Disclosure and Barring Service (DBS) check will be required.
- Demonstrate a willingness to attend all mandatory training relevant to their role
- Must be flexible to work locally or remotely, and willing to travel to attend support groups, conferences, and events.
- Minimum 1 day/week helpline +/- cover as needed.
- Mandatory staff meeting days in the office (Leamington Spa) 4 times a year.
Administrative Skills
- Proficient in Microsoft 365 Office applications
- Proficient in accurately entering complex data into secure electronic systems.
- Be able to demonstrate full awareness and compliance with legal and professional requirements (e.g., GDPR, NMC), reporting appropriate concerns through line management to the Data Protection Officer.
Professional Experience & Knowledge
- Demonstrable knowledge and experience within relevant clinical speciality.
- Experience working with individuals affected by cancer, including neuroendocrine cancers and/or other life-limiting conditions
- Skilled in engaging with patients' families and support networks
- Proven ability to assess healthcare needs and implement best practices for physical and psychosocial well-being support via telephone or in-person.
- Experience of coordinating and managing patient care: including addressing safeguarding issues
- Demonstrate a collaborative approach across multidisciplinary teams and organisational boundaries
- Strong verbal and written communication skills
- Experienced in delivering training, teaching, and facilitating group work
- Demonstrate commitment to ongoing professional development
- Effective problem-solving and change management capabilities
- Understanding of resource management, health and safety, clinical risk and quality issues.
- Familiar with audit processes and principles
- Competent in prioritisation, delegation and workload management
- Awareness and management of stress in self and others
Why work with us?
- Be part of a small, passionate, and values-driven team making a tangible difference.
- Receive support for professional development, training, and personal growth.
- Enjoy a remote and flexible working environment.
- There is the potential, pending experience and performance, to progress to support service lead.
To support and inform patients and families from diagnosis, enabling access to the best care and treatment.
The client requests no contact from agencies or media sales.
Build something new. Shape the future. Make a real impact.
The Infection Prevention Society (IPS) is a leading professional charity for infection prevention and control in the UK and Ireland. With 2,100 members across health and care professions, we exist to advance education in infection prevention for the benefit of the community. And we're at a pivotal moment.
We've built the foundations – modern infrastructure, professional team working alongside our volunteer leadership, strong governance – and now we're ready to scale our impact. We need someone to help us unlock new opportunities and expand what we can offer our members and the communities they serve. That's where you come in.
As our first Commercial Director, you'll have the autonomy to establish commercial capability from the ground up. You'll build partnerships with health and care organisations, create revenue streams that strengthen our mission including leading the development of training courses that reach new audiences: supporting our members to prevent infections and save lives.
This is a unique opportunity to combine commercial expertise with charitable purpose. You'll have the freedom to develop innovative strategies, build partnerships that matter, and create revenue streams that strengthen our capacity to serve our members and prevent infections. The role offers flexibility (four days per week, home-based) and genuine autonomy to shape your approach.
What You'll Do
- Build corporate partnerships: Build relationships and partnerships with businesses that have an interest in infection prevention
- Enhance events revenue: Enhance and develop sponsorship opportunities across our annual conference, events, and webinar programmes
- Explore new opportunities: Identify emerging revenue streams from consultancy, publications, and membership growth into new professional sectors
- Shape training course development: Scope and develop infection prevention courses that generate income whilst advancing our educational mission
Who We're Looking For
You're an experienced commercial professional with a proven track record of generating revenue through partnerships, training programmes, or business development. You might come from membership organisations, professional bodies, charities, education or healthcare settings, or from B2B commercial roles with clear transferable skills.
You have the entrepreneurial confidence to build something new, the strategic thinking to identify opportunities, and the relationship skills to turn those opportunities into sustainable partnerships. You're equally comfortable developing pricing models and financial projections as you are crafting compelling partnership proposals.
Most importantly, you understand that commercial success and charitable purpose aren't opposing forces – they're complementary. You want your commercial expertise to strengthen a charity's capacity to serve its members and achieve its mission.
What We Offer
- Build something new: Establish new commercial capability in a respected healthcare organisation
- Autonomy and influence: Freedom to develop your own strategies with CEO mentorship and Board support
- Meaningful work: Direct contribution to preventing infections and protecting public health
- Senior leadership role: Strategic responsibility and genuine influence on organisational direction
- Flexibility: Four days per week (£42,400 per annum / £53,000 FTE), home-based with regular UK travel
- Growth potential: 12-month fixed-term contract with potential for extension or permanent conversion
Why Now?
As a charity, IPS exists to advance education in infection prevention for the benefit of the community. We're at an exciting stage of development, having evolved from a volunteer-led organisation to a professional operation with dedicated staff working alongside our expert volunteer leadership. We've modernised our infrastructure, enhanced our conference programme, and strengthened governance. The foundations are in place.
Now we need dedicated commercial expertise to unlock our full potential and accelerate our growth. This role will genuinely shape the future of the charity – the partnerships you build, the courses you develop, and the strategies you implement will determine our capacity to expand our reach and deepen our impact over the coming years.
Key Details
- Role: Commercial Director
- Contract: 12-month fixed-term (potential for extension/permanent conversion)
- Hours: Four days per week (0.8 FTE)
- Salary: £42,400 per annum (£53,000 FTE)
- Location: Home-based with regular UK travel
How to Apply
Download the full recruitment pack for detailed role responsibilities and person specification.
To apply, please submit your your CV (maximum 3 pages) and covering letter (maximum 2 pages). Applications close 10pm on Sunday 11th January 2026.
Your covering letter should address:
- Your relevant experience in commercial/business development
- Your track record of revenue generation with specific examples
- Why you're interested in this role and IPS
- How your skills match the person specification
To collaborate with, educate and bring together policy makers / health & care communities to influence and improve evidence-based IPC practice for all
The client requests no contact from agencies or media sales.
The postholders will work with the Area Engagement and Partnership Managers to identify, communicate and engage with the range of voluntary sector organisations working with individuals and their families within the CJS ensuring Clinks provides effective support to help voluntary organisations better meet their aims. To enable Clinks to share information about the sector with HMPPS and other stakeholders.
They will also work closely with the National Influencing and Networks Team.
It is essential for the postholder to be based within, and have strong knowledge of the geographical area they will be covering.
Please visit our websiter for more information about our area based work.
Please note: Clinks would welcome the opportunity to discuss potential secondments from locally or regionally based voluntary organisations.
About Clinks
Clinks supports, promotes and represents the voluntary sector working with people in the criminal justice system and their families.
Our vision is of a vibrant, independent and resilient voluntary sector that enables people to transform their lives.
Job purpose
To identify, communicate and engage with the range of voluntary sector organisations working with individuals and their families within the CJS across a geographical area ensuring Clinks provides effective support to help voluntary organisations better meet their aims. To enable Clinks to share information about the sector with HMPPS and other stakeholders
Job summary
These roles will increase awareness and understanding of the criminal justice voluntary sector operating within East of England and the South Central & South West. The post holder will undertake an initial analysis project to identify place-based voluntary sector organisations and the range of and types of services and support provided to people in contact with the criminal justice system and their families. They will identify place-based needs and lead on the collation and sharing of information across the Clinks team and with stakeholders, to highlight the challenges and opportunities. The post holder will need to build new, and nurture existing relationships, with key partners and a range of agencies across sectors.
The post will work within the Area Engagement & Partnerships Directorate and with other Clinks’ staff to identify new members and engagement opportunities, deliver events and training, and provide opportunities to support the capacity and capability needs of the voluntary sector, with a focus on place-based small and specialist organisations working in the CJS.
The post will deliver activity to meet funder requirements, aims and objectives.
Reports to: Area Engagement and Partnerships Manager
Responsible for: N/A
1. Duties and key responsibilities
Area Engagement and Impact
-
Identify and increase awareness of voluntary sector organisations based in the East of England and the South Central & South West, the range of and types of services and support provided to people in contact with the criminal justice system and their families, where they deliver and how they are funded.
-
Understand the work of local and regional voluntary sector infrastructure organisations in a the East of England or South Central /South West to strengthen the support offered by Clinks and increase partnership working and collaboration.
-
Work alongside the National Influencing & Networks team to use this intelligence to influence key decision making at a local and national level.
-
Gather intelligence from the sector to identify and understand the needs of place-based organisations and share feedback with HMPPS and other key stakeholders to develop operational processes and influence future commissioning opportunities.
-
Provide support to voluntary sector organisations, keeping the sector informed and up to date and capturing the support provided and its impact.
-
Respond to requests from voluntary sector organisations in need of support and signpost or consider what assistance Clinks (and others) can provide.
-
Work alongside the Area Insights and Impact Officer to capture the needs of the sector and influence and inform future activity.
-
Provide regular area specific communications to organisations utilising Clinks communication channels to share good practice, resources and publications.
-
Produce regular blogs, case studies and social media activity to showcase the work of place-based voluntary sector organisations.
-
Develop and build upon existing place-based networks to support collaboration and co-ordination between the voluntary, statutory, and private sectors in the criminal justice system.
-
Provide information to help statutory partners and key stakeholders to understand the voluntary sector, its structures and how to work with it.
External Relationships
-
Identify and explore opportunities to develop relationships with area-specific agencies working within criminal justice including Probation, Prisons and local statutory agencies to increase knowledge of locally based voluntary sector services and establish, and embed Clinks’ support
-
Provide representation at various meetings, both internally and externally with partners and stakeholders.
-
Work collaboratively to ensure effective information flow across directorates and to and from the sector and stakeholders
-
Develop relationships with regional and local infrastructure organisations to widen Clinks reach and identify joint working opportunities.
2. General responsibilities
-
Represent and be an ambassador for Clinks
-
Work to support the mission, ethos, and values of Clinks
-
Be flexible and carry out other associated duties as may arise, develop, or be assigned in line with the broad remit of the position
-
Support and promote diversity and equality of opportunity in the workplace
-
Work collaboratively with others in all aspects of our work
This job description does not form part of your contract of employment and can be amended from time to time as the needs of the organisation require.
Person specification
Experience, Skills and Abilities
-
Significant experience of working or volunteering in the voluntary sector in the East of England
-
Relationship building and management with a range of stakeholders and networks.
-
Good attention to detail and ability to maintain effective records, utilising a range of different methods.
-
Ability to think strategically about the voluntary criminal justice sector, and to analyse and respond to change.
-
Ability to prioritise, multi-task and work under pressure, juggling a busy and varied workload.
-
Excellent IT and digital skills, including use of Word, Excel, Outlook, SharePoint, Teams and Zoom.
-
Adaptability and flexibility in being able to deal with new situations quickly and efficiently.
-
Good interpersonal and communication skills, both written and spoken, and ability to communicate with a range of stakeholders, at all levels of seniority.
-
Convening meetings, arranging and chairing events both in-person and online.
-
Ability to support and coordinate a complex network of organisations including representing diverse views, and promoting their work and issues.
-
A collaborative approach to working with colleagues but also able to work alone.
-
Highly organised with good project and time management skills.
Knowledge
-
Role of the voluntary sector in addressing social exclusion.
-
The criminal justice context and related policy.
-
Understanding the role of national and local infrastructure organisations
-
An understanding of East of England geographical area
Personal attributes and other requirements
-
Able to travel extensively across the East of England with occasional travel across England and Wales.
-
Able to work evenings and weekends and stay away from home overnight where necessary.
-
Work well as part of a small team and independently, with a flexible approach to work.
-
Commitment to anti-discriminatory practice and equal opportunities. An ability to apply awareness of diversity issues to all areas of work.
-
Commitment to the values and ethos of supporting people in the criminal justice system.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
We are seeking a Community Development Officer to lead a major in-progress project improving recognition, support, and care for people with smell and taste disorders at a local level across England.
This three-year, volunteer-led programme, funded by The National Lottery Community Fund has achieved significant success in its first eighteen months. We are now recruiting a new postholder to take this strong foundation forward through the next phase of delivery.
Over the past eighteen months, we have recruited and established a thriving network of volunteers and local groups across England. This momentum is expected to continue. The Community Development Officer will work closely with existing volunteers and groups, primarily remotely, while also attending in-person events and meetings in different parts of England as needed.
The postholder will lead the ongoing recruitment, training, and support of volunteer groups, working with them to identify opportunities for local outreach and engagement. Together, you will ensure that more people affected by smell and taste disorders access the information, support, and recognition they need, while continuing to raise awareness of these often-unrecognised sensory impairments.
Our volunteer groups bring together people with lived experience alongside experts from the food, beverage and fragrance sectors, and other relevant fields.
We are looking for a motivated, forward-thinking individual with experience in leading and inspiring others. You will bring energy, creativity, and excellent communication skills to drive the project forward and help build an innovative, sustainable programme of volunteer-led activity, supporting our volunteers to influence change within their communities.
You will empower volunteers to play an active role in transforming public understanding of how essential smell and taste are to our lives, whether they are running peer support groups, organising local events, delivering talks in community settings, or representing the charity at information days.
You will join a small, friendly and ambitious team committed to your professional development as the charity continues to grow.
If you are passionate about making a difference, enjoy working with people, and want to contribute to a pioneering and collaborative organisation that values and empowers its community, we would love to hear from you. We are committed to equality, diversity and inclusion, and welcome applications from people of all backgrounds and experiences.
Please ensure that you read the job description and person specification fully. To access this, please sign into your CharityJob candidate account and click on apply.
SmellTaste is the charity for all those living with impaired smell and taste.
The client requests no contact from agencies or media sales.
Contract Type: Permanent
Salary: Circa £32,300
Hours: 37 per week
Department: People Culture & Leadership
Directorate: Continuous Improvement
Location: Working from home, with occasional UK travel
Reports to: Senior PCL Specialist
As part of the NFCC People Culture and Leadership (PCL) Hub this post plays a key role in supporting and enabling fire and rescue services (FRS) to drive organisational and culture change.
The postholder will use their subject matter knowledge, skills and experience alongside the principles of project management to support the design, development and implementation of a range of PCL products and services. Whilst the role supports all PCL activities, the role will have a focus on Equality Diversity and Inclusion (EDI)-related projects, therefore experience in this area is particularly desirable. Moreover we require someone with relevant knowledge and experience in one or more fields of the people/HR/OD/EDI profession.
Evaluating the effectiveness of the NFCC’s PCL products and their benefits to FRS’s will be a key aspect of the role and the postholder will undertake a range of evaluation activities to identify improvements and make recommendations for improvement. They will be responsible for implementing agreed changes and maintaining PCL products to ensure they remain fit-for-purpose.
Stakeholder engagement is a key element of the role by building effective relationships and establishing networks to improve the uptake/adoption of PCL products and drive culture change.
If this sounds like the kind of opportunity that you would be interested in; please have a look at the detailed Job description on the NFCC website and apply.
How to apply:
Please complete the application form linked from the ‘apply now’ button on the NFCC website. CV’s will NOT be accepted for this position.
Closing Date – 4 January 2026 with interviews being conducted on the 15 January 2026.
PLEASE NOTE - THIS VACANCY WILL CLOSE BEFORE THE CLOSING DATE IF WE RECEIVE A HIGH NUMBER OF APPLICATIONS.
NFCC is committed to safeguarding and promoting the welfare of children, young people and adults and will require a DBS check to be completed prior to commencing in post.
NFCC is committed to being an inclusive employer. We comply with the Equality Act 2010, and we believe that everyone deserves to work in safe environments that are free from bullying, harassment and discrimination, abuse, and harm, where they feel supported, welcome, and able to thrive.
NFCC acknowledges the duty of care to safeguard, protect and promote the welfare of children and vulnerable adults and is committed to ensuring safeguarding practice reflects statutory responsibilities, government guidance and complies with best practice, all staff are expected to share this commitment.
NFCC is an independent membership association and the professional voice of UK fire and rescue services.
The client requests no contact from agencies or media sales.
We’re looking for a creative and passionate person to lead on our policy and communications work for this maternity cover. This role offers a great opportunity to play a key role in improving impact across the charity and the lives of those affected
The Migraine Trust is the only UK migraine charity providing information and support, campaigning for awareness and change, and funding and promoting research.
One in seven people in the UK live with migraine, and this complex and debilitating neurological disorder significantly affects their lives. We have been leading and bringing the migraine community together to change this since 1965.
Every year we support millions of people through our website and support services on all aspects of migraine and for help in managing it at work, in education, and in accessing healthcare. We campaign for increased awareness and understanding of migraine, and national policy change to improve the lives of people who get it. We have funded over 140 medical research projects and hold an international symposium every two years to bring together the world’s leading experts on migraine.
The role
People living with migraine are at the heart of our organisation, while our research highlights the urgent need to reduce the inequity we see for those living with the condition. You will ensure their voices are heard by decision makers and the public and get closer to our vison of ‘a world where migraine doesn’t stop anyone from living the life they want’.
You should be able to deliver high-impact communication campaigns, and have a real interest in policy. A skilled communicator yourself, you will be able to manage a broad role with the ability to build and nurture relationships with a wide range of stakeholders. Overall, you’ll bring a desire to create positive change.
You’ll work closely with the CEO and be a key member of The Migraine Trust’s Senior Management team, leading our strategic direction on communications activity alongside targeted public and political campaigns.
Key responsibilities:
- Lead the delivery of the organisation’s 2026 policy and communications plans and coordinate the development of plans and budgets for 2027
- Oversee development and delivery of the charity’s policy and public affairs strategy, ensuring a strong evidence base and meaningful involvement of people living with migraine
- Manage work our public affairs agency to deliver targeted influencing projects to improve migraine care, workplace support, and parliamentary engagement
- Shape policy recommendations and develop strategies to engage key stakeholders including parliamentarians, policymakers, clinicians, employers and partner organisations
- Monitor the external policy environment identifying risks, opportunities and emerging issues relevant to migraine
- Work with the team to develop and execute creative and impactful communications campaigns to raise the profile of the charity and tackle misunderstanding around migraine
- Ensure content across all channels – including media, digital, social and publications - is on brand and reflects our values and core messaging
- Ensure our online presence meets the needs of our stakeholders, and is fit-for-purpose for current and future organisational needs
- Oversee production of relevant reports, marketing materials and key publications working with freelance agencies and designers as required
- Work closely with Fundraising colleagues to identify and develop opportunities that support organisational growth
- Ensure all those living with migraine and their voices are central to our policy, campaigning and communications work
- Act as a spokesperson when necessary, representing the charity externally
The above is provided for guidance and is not an exhaustive list of all accountabilities that the post holder may have over time.
Knowledge and Experience
Essential
- A creative and experienced communications leader
- Wide experience working in the field of communications (in house or agency) and able to demonstrate knowledge of a broad range of communications activities
- Demonstrable experience of developing media strategies and managing media relations to achieve results
- Ability to deliver policy and public affairs strategies that create change
- A strategic thinker able to develop new ideas and turn these into action
- A strong leader and manager
- Excellent written and spoken communication skills and the ability to communicate, engage and build relationships with a wide range of audiences across the organisation and externally
- Calm under pressure with sound judgment
- Confidence to represent The Migraine Trust externally including public speaking as necessary
- Ability to manage a diverse workload and work under pressure.
Desirable
- Experience working within a health, disability, or long-term conditions context
- Experience of the voluntary sector and/or lived experience engagement
- Knowledge of digital transformation or digital communications best practice
The Migraine Trust is an equal opportunities employer, and we welcome applications from all suitably experienced persons regardless of their race, socioeconomic backgrounds, gender, disability status, ethnicity, religion/faith, sexual orientation, or age.
How to apply
For the full role description, and to apply, please visit our website. Interviews will be week commencing 5th January. If you would like an informal discussion to find out more about the role before submitting an application, or have any other queries, we encourage you to get in touch.
The client requests no contact from agencies or media sales.
Applicants must be located within 2 hours travelling distance of Cambridge City.
The Charity and Our Vision.
For over 15 years, Scotty's Little Soldiers has been supporting children and young people who have been bereaved of a parent who served in the British Armed Forces. We are about to embark on an exciting journey which will see the charity evolve to support anyone affected by a military-connected bereavement and ultimately empower a community of more than 25,000 bereaved individuals and their families by 2035.
Founded in 2010 by Nikki Scott following the death of her husband, Corporal Lee Scott, the charity currently offers a unique blend of emotional, practical, and educational support to over 750 young people.
We are proud of our vibrant, non-traditional culture, which puts the needs of bereaved children and young people at the heart of everything we do. We embrace innovative approaches, are committed to creating smiles and believe in the power of community, resilience, and connection.
Role Mission.
To lead the creation and delivery of Scotty’s new navigating entitlements casework (START) Programme, a single point of contact service designed to support anyone affected by military-connected bereavement.
This is a hands-on, pioneering role. You’ll help shape the infrastructure, recruit and lead a small squad of caseworkers, and ensure that everyone in the bereaved military community receives compassionate, personalised, and well-coordinated support.
The key responsibilities of this role are:
Service Design & Delivery
- Working closely with the Head of Service, lead the operational planning and phased rollout of the START Programme
- Develop and refine service model, workflows, triage criteria, and beneficiary journeys
- Own the SPOC offer, ensuring clear onboarding, needs assessments, support plans, and follow-up
- Ensure the service is trauma-informed, inclusive, and responsive to beneficiary feedback
- Manage your own caseload alongside Programme Head responsibilities.
Team Leadership & Development
- Help recruit and then directly support 1 initial caseworker (with potential to grow team in 2027 depending on demand)
- Provide coaching, oversight, and reflective practice opportunities for squad members
- Create a strong squad culture that reflects The Scotty’s Way and encourages personal growth
- Lead START Programme Daily Huddles
Collaboration & Partnership
- Build strong referral pathways with external organisations (military & non-military charities, NHS, social care)
- Become the charity’s expert on navigating entitlements for the bereaved community.
- Work collaboratively with other Programme leads to ensure consistency, shared learning & efficient internal referrals
- Support the Head of Service in forming partnerships that enhance START’s offer
Monitoring & Evaluation
- Track and report on beneficiary engagement, support outcomes, and follow-up actions
- Use insights, working with the Head of Research & Impact, to adapt and improve the service over time
- Ensure CRM records are complete, accurate, and used to inform delivery decisions
Contribution to Charity-Wide Goals
- Feed into cross-functional projects including Outreach, Fundraising, and Strategy
- Act as a representative of Scotty’s at sector events or external meetings where appropriate
- Support content development by sharing anonymised stories, insights, and themes
The 30-day goals for this role are:
- Built a deep understanding of Scotty’s mission, our audience, the services we provide, and strategic direction.
- Worked closely with the Head of SUPPORT to understand the history of Scotty’s helping families navigate entitlements, including reviewing current and recent cases.
- Began to map the key stakeholders, partners and organisations (including statutory, charitable and others) for casework in the START Programme.
The 60-day goals for this role are:
- Scoped and met with key stakeholders.
- Worked with Head of Service to map the new casework (START) programme and beneficiary journeys.
- Worked with the Head of Service and the Head of Impact to ensure that processes are in place to monitor the outcomes and impact of the new START Programme.
- With the Head of Service, supported the design of a light CRM for initial use in START casework.
- Drafted all other necessary processes and procedures for casework including safeguarding, triage, wait time limits etc.
- Drafted a training plan for new START caseworkers.
The 90-day goals for this role are:
- Launched the new START Programme.
- Built strong partner networks for any needed referrals or information gathering to support casework.
- Created a road map of future Programme releases (e.g. new services within the programme, themes, cohort specific activities etc).
About You:
Must-Have
Experience in service delivery, casework, or personalised support services
Ability to lead a new programme from concept to delivery
Strong team leadership and relationship-building skills
Excellent organisational and communication skills
Nice-to-Have
Familiarity with military family life or bereavement support
Background in adult mental health, social care or wellbeing services
Experience in service co-design with users or lived experience groups
Safeguarding knowledge or training
Additional Information
· The role may require occasional evening or weekend work
· Enhanced DBS check required
· Travel will be required to events and team training days
The Scotty’s Way
At Scotty’s, our personal performance is only 50% of what success looks like. Our culture is equally important. When you join our team, you sign up to The Scotty’s Way, rooted in our four core values:
1. Families Come First
2. Everyone a Supporter, Every Supporter a VIP
3. Love What You Do
4. Remember, Every Day
Our values are further supported by our four non-negotiable behaviours of Show Respect, Speak Up, Take Ownership and Actively Collaborate. We are looking for an individual who embodies these values and behaviours.
When Applying:
Please submit your CV, along with a covering letter detailing your experience and what excites you about this role. Please ensure you clearly annotate which role you are applying for in the email title.
Closing date: Friday 16th January. Due to resource and time constraints, we are unfortunately unable to provide feedback for every application received and will only contact candidates shortlisted for interview.
Thank you for your interest in joining our team, we are an equal opportunities employer, we are committed to creating a diverse and inclusive workplace where all employees are treated with respect and given equal opportunities for employment and advancement.
We do not discriminate based on race, colour, religion, gender, sexual orientation, age, disability or any other protected characteristic.
We encourage all qualified individuals to apply for employment within our charity, and we provide a fair and inclusive recruitment process for all candidates.
The client requests no contact from agencies or media sales.
Senior External Affairs Adviser
Contract type: Fixed Term Contract (12 months)
Full time: 34.5 hours, we are open to a conversation about how you work these hours
Location: Home based
Salary range: £43,000 - £48,000
About us
At Macmillan you'll find talented people working together to do whatever it takes to support people living with cancer. We're going all out to find even better ways to help even more people who need our support. Our values are at the heart of who we are and everything we do, inspiring our thinking and guiding our actions.
Our new organisational strategy sets out how we’ll fight even harder to make every pound raised count for even more. With your help, we’ll transform cancer care for good.
About the role
Join Macmillan Cancer Support as a Senior External Affairs Adviser, where you will play a vital role in shaping and delivering impactful change propositions and external affairs strategies across the UK. Your work will focus on delivering at-scale change for people with cancer, particularly the most marginalised groups.
Key responsibilities:
- Provide senior-level advice to develop external affairs strategies aligned with Macmillan’s mission.
- Lead cross-functional external affairs projects that are evidence-based and impactful.
- Develop and manage relationships with political stakeholders, policymakers, civil servants and healthcare providers.
- Provide high-quality insight and briefings to senior colleagues on the political landscape, and what the external opportunities and risks are.
- Anticipate shifts within the external environment and adapt approaches to maintain our relevance and influence.
- Collaborate with teams to ensure policy positions are strategic and evidence-based.
- Represent Macmillan at external events, advocating for improvements in cancer care.
- Coordinate campaigns to influence public policy and funding decisions.
About you
The successful candidate will have...
- Proven ability to manage complex and sensitive external contexts, making sound judgements on tone and messaging.
- Strong understanding of operating within a four-nations context and engaging with diverse stakeholders, including senior politicians and civil servants.
- Expertise in analysing complex policy issues and developing impactful, evidence-based policy positions.
- Strong organisational skills and flexibility to adapt to changing circumstances and emerging issues.
- Excellent communication skills which are adaptable for external and internal audiences.
- Experience of working in multi-disciplinary teams or on multi-disciplinary projects.
Recruitment process
Application deadline: 23:59 on Tuesday 16th December 2025
Interview date: Virtual interviews will be held on 8th January 2026
To ensure fairness and consistency to select the best candidate for this role, all our applications are anonymised up until an interview has been confirmed.
So we can support you to be your best during the application or interview process, please contact Macmillan's TA Team for advice and reasonable adjustments.
We welcome applications from everyone who meet the criteria and strongly encourage individuals to apply who have a disability, impairment or health condition or individuals who identify as Black, Asian or from another minority ethnic background, as these groups are currently under-represented at Macmillan. Our Equity, Diversity and Inclusion Strategy along with our internal employee representation body, ‘Our Voice’ and 8 Employee Network groups help us promote fairness and belonging, becoming an engaged and inclusive organisation for all our people.
At Macmillan you'll find talented people working together to do whatever it takes to support people living with cancer.


The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Community Fundraiser - London
Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?
Brain Tumour Research is seeking an experienced and motivated fundraiser to join our team. As a key part of our fundraising efforts in our high-performing East region, you will have the opportunity to drive income generation through a variety of initiatives, including challenge events, fundraising groups, and corporate partnerships such as charity of the year. You will also be responsible for driving initiatives to increase our profile and supporter base within London.
Key Responsibilities:
- Generate income across a range of community fundraising initiatives and events, with the opportunity to lead on key projects
- Steward supporters to help drive the charity’s fundraising activities and growth
- Work with the fundraising team to develop and maintain strong relationships with fundraisers, donors, partners, and key stakeholders
- Contribute towards the growth and success of fundraising efforts, ensuring a sustainable income stream for the vital ongoing funding of brain tumour research
Requirements:
- At least one year of fundraising experience, with a proven track record in income generation
- Strong experience in supporter stewardship
- Excellent communication skills, with the ability to engage and inspire supporters and partners alike
- Passion for Brain Tumour Research and its mission to fund research and ultimately find a cure
If you are looking for a fulfilling and impactful role and have the level of experience and skill we are looking for, we welcome your application.
For this role, the successful candidate must live in the London area.
We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.
We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process. Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.
Closing Date: 04th January 2026
We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.
To find a cure for all types of brain tumours To increase the UK investment in brain tumour research
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Do you want to make a real difference using your finance and administrative skills in a global mission context?
OMF International (UK) is seeking a detail-focused Payroll Officer to play a vital role in processing payroll and pensions for our UK-based staff, members, and retirees. Your work will support the smooth running of financial processes that enable us to share the good news of Jesus Christ with East Asia’s peoples.
You will bring experience in payroll systems (preferably Sage), a high level of accuracy, and a heart for global mission. Working closely with the Finance team, this role includes processing donations, reconciling credit cards, and supporting our Creation Care reporting.
Occupational Requirement
This role is subject to an Occupational Requirement in accordance with Schedule 9 of the Equality Act 2010. The post holder must be a practising Christian, an active member of a local church, and be able to clearly demonstrate a personal commitment to OMF’s mission, values and ethos as outlined in our Ethos Statement.
We are looking for someone who:
- Has Sage or Xero similar payroll experience
- Has a keen eye for detail and excellent administrative skills
- Is confident using finance systems and Microsoft Office
- Enjoys working to high standards and can meet tight deadlines
- Is supportive of OMF’s mission to share Christ across cultures
- Can commute daily to the OMF National Office in Oxford Street, Manchester
Experience of working in a Christian or mission-based charity is desirable but not essential.
OMF International (UK) is a Christian mission agency passionate about seeing local communities of believers worshipping God and reaching out in mission across East Asia and the UK. Founded over 150 years ago, we now support over 2,000 workers from 40 nations, partnering with churches to share Jesus in culturally relevant ways.
The client requests no contact from agencies or media sales.
Exciting Opportunity
Fixed Term until the end of January 2027
Regional Manager, North East & Cumbria (0.8 FTE)
We are pleased to offer a fixed-term opportunity within the Lloyds Bank Foundation due to the current Regional Manager taking a secondment.
This is a part-time (4 days per week) position, working from home, with regular travel across North East & Cumbria and to London. The post holder must live in the North East or Cumbria.
About the Role
Are you passionate about supporting local charities and driving community-led change? The Lloyds Bank Foundation is seeking a Manager for the North East & Cumbria region to play a pivotal role in our evolving strategy.
As Manager for North East & Cumbria, you’ll:
- Build trusted relationships with local charities, helping them grow stronger and more resilient.
- Support organisations to identify and overcome challenges, connecting them with resources and opportunities.
- Champion community-led change and ensure our work is shaped by the communities we serve.
- Collaborate with partners, stakeholders, and colleagues to maximise the impact of our investments.
About you
You’ll have extensive knowledge of the voluntary sector, experience supporting local charities, and excellent relationship-building and organisational skills. You’ll be proactive, collaborative, and comfortable navigating change.
You’ll be responsible for managing a portfolio of relationships with charitable partners and collaborating with other charities.You will support our charity partners in becoming more resilient and stronger, enabling them to thrive beyond the duration of their relationship with us. You will do this by building trusted relationships with them, supporting them to identify their most pressing organisational challenges; and help them overcome the challenges by building the knowledge, skills and capabilities of staff and trustees. You will work with charities, CICs, and partnerships to identify the most appropriate form of support to respond to the identified priorities. Further information about LBFEW and our approach to supporting charity partners can be found on our website under the 'Development' section.
You’ll be the face of the Foundation in the area, able to build strong and trusting relationships and be an advocate for community organisations across the patch. You’ll have a good understanding of the operating environment in the North East & Cumbria with well-established networks across the patch. You will also play a pivotal role in sharing learning, intelligence and insights to ensure the Foundations’ strategy development, delivery and relationship with the Lloyds Banking Group considers regional needs and the operating context of our funded partners.
If you have experience working with or in the voluntary, community or social enterprise sector and are creative, adaptable, resilient, flexible in your approach, keen to learn and hungry for change, then this could be the role for you!
About the Foundation
We’re an independent charitable foundation funded by Lloyds Banking Group. We work in partnership with local charities and community-led organisations, connecting people, and providing money and resources so that communities can thrive.
This is an exciting time to join Lloyds Bank Foundation. We are coming to the end of our strategy period and, under the leadership of a new CEO, we are developing and rolling out our new strategy, brand and values. We believe this will enable us to turbocharge our work, allowing us to have an even bigger impact to create social change and cohesion and ensuring people in England and Wales are in a good place.
We encourage applications from all sections of our diverse community, irrespective of age, disability, sex, gender identity, pregnancy, maternity, race (which includes colour, nationality and ethnic or national origins), sexual orientation, religion or belief, or because someone is married or in a civil partnership. We want an inclusive organisation that reflects our community and where everyone feels empowered to bring their authentic selves to work. We believe our organisation will be a better, more creative and innovative place to work if we can harness the benefit of different perspectives.
The Foundation is committed to making our recruitment practices barrier-free and as inclusive as possible for everyone. This includes making adjustments or changes for people who have a disability or long-term health condition. If you need any adjustments such as our application form in an accessible format such as a Word document, or for any part of the recruitment process, please email us in confidence to discuss this.
How to Apply
· Closing date: 23:59 on 18 December 2025
· 1st Interview (Newcastle, venue to be confirmed) 13th January 2026
· 2nd Interview (online) 19th January 2026
We support small, local and specialist charities across England and Wales.


The client requests no contact from agencies or media sales.
The role
The Project Officer will be responsible for the day-to-day delivery of our Council funded Adult Bereavement Service in Cornwall and the Isles of Scilly. This service aims to provide accessible, accessible, empathetic and effective support for adults affected by bereavement, particularly sudden or drug/alcohol-related deaths. The Project Delivery Officer will work collaboratively as part of the local and regional volunteer and staff team. We welcome applications from candidates who wish to job-share the responsibilities of this role.
How to apply
Your application must consist of a CV and covering letter, which outlines your suitability for the role with reference to the Job Description and Person Specification and should be no longer than two pages.
The closing date for applications is the 17th of December 2025 with interviews taking place on W/C 12th January via zoom or Teams due to the festive break.
Please be advised that if you do not hear from us by Thursday 8th January unfortunately on this occasion you have not been shortlisted.
Cruse welcomes and encourages applications from all protected groups as defined by the Equality Act 2010. Appointment will be made on merit.
Criminal Record Checks
All staff are required to complete a Criminal Record check. Staff working directly with clients will be required to complete an enhanced check. We comply with the relevant codes of practice and they can be viewed online:
· Applicants in England and Wales: DBS Code of Practice
· Applicants in Northern Ireland: AccessNI Code of Practice
· Applicants in Scotland: Disclosure Scotland Code of Practice
Previous convictions will not prevent full consideration of your application to work with Cruse. Our Recruitment of Ex-offenders' Policy & Handling Criminal Record Check Data Policy are available on request by email.
We comply with all relevant data protection legislation and process your data fairly.
The client requests no contact from agencies or media sales.
Are you a talented People Business Partner looking for a new challenge working for a fantastic national charity?
I am excited to be partnering with the UK’s leading domestic abuse charity, to recruit an experienced and values driven People Business Partner. This is a fantastic opportunity to contribute to a mission led organisation and support the development of a high performing, inclusive workplace.
This position is mainly remote with very occasional attendance to their Head Office in central London. You will be part of a small but friendly and supportive HR team. This is an operational HR opportunity paying a salary of £40,080.The role will report into the Senior People Business Partner, who is fantastic at developing their direct reports and allowing them to grow in their role. The successful candidate will act as a trusted HR advisor to designated teams, supporting a wide range of employee relations issues, recruitment activity, organisational change, and policy development.
Some of the key responsibilities of this People Business Partner role include:
- Business partnering with key directorates, understanding their unique needs and delivering tailored people solutions
- Providing expert support across employee relations cases, including disciplinary, grievance, absence and performance
- Managing and supporting recruitment processes in line with safer recruitment practices
- Advising on and implementing organisational change processes, including TUPE transfers
- Coaching and supporting managers in day-to-day HR matters and long-term people development
- Supporting onboarding, induction and HR project delivery
- Contributing to policy reviews, system improvements, and reporting processes
- Championing the organisations values, including equity, diversity, and inclusion
The ideal candidate will be a proven HR generalist, ideally with experience from working in the charity sector, along with a strong understanding of UK employment law and HR best practice. You will have excellent interpersonal skills, a proactive, solutions-focused approach, and experience in managing or mentoring others. A values driven mindset and a strong commitment EDI is essential. It would be very advantageous for the People Business Partner tobe CIPD qualified (or have the equivalent experience).
This is a unique opportunity to work for a sector leading organisation with a powerful social mission. You’ll be part of a collaborative, forward thinking People & Culture team, where your work directly contributes to improving the lives of women and children experiencing domestic abuse.
The interview process will involve a two-stages, with both interviews being held over MS Teams.
If you’re an experienced HR professional looking to make a meaningful impact in the not-for-profit sector, please get in touch.
Cystic Fibrosis Trust is the only UK-wide charity dedicated to uniting for a life unlimited for everyone affected by cystic fibrosis (CF). We are working towards a brighter future for everyone with cystic fibrosis by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.
Our team of dedicated staff, volunteers, and Trustees work alongside people affected by cystic fibrosis to fund life-changing research, promote world-class clinical care, and provide information, advice and support and our work relies on the generous donations of our supporters.
About the role
As Director of Finance and Resources and with an oversight of a £15m budget, we are looking for a strong, corporate business leader operating at a senior level to help take Cystic Fibrosis Trust forward on our exciting journey towards a life unlimited by cystic fibrosis and optimising our finance and resources to deliver maximum impact for people with cystic fibrosis.
You will lead and develop a high performing multidisciplinary team of Heads including Finance, IT, Facilities, People and Organisation Development, Strategy and Business Intelligence, Company Secretariat functions as well as work closely with the Senior Leadership Team, Board of Trustees and other internal and external stakeholders. Please note this is a UK based role.
Your key responsibilities will include:
- Financial leadership of the Trust’s financial management strategy and statutory reporting and audit processes as well as reporting to our Boards and Committees.
- Digital and information systems: Lead IT and Digital development and implementation strategies, including delivery of the new CRM replacement going live in 2026 (MS Dynamics).
- People and Organisation Development: Lead best practice in our people management strategies, policies and practices as well as championing diversity and inclusion and staff learning and development.
- Business planning: Support organisational business planning and strategy development working closely with the CEO, Board of Trustees and our other internal and external stakeholders including people with cystic fibrosis.
- Facilities: Ensure our working environment and facilities support the delivery of our objectives in a cost effective and supportive way.
- Compliance and Governance: Be Company Secretary, ensuring appropriate governance systems and controls are in place and for reporting to relevant statutory bodies. Be responsible for our Data and ensuring compliance with GDPR, have oversight of Safeguarding and oversee complaints management and employment law compliance.
To be the right person for this role, the requirements you will need to meet include:
- To be a qualified accountant (CCAB recognised or equivalent) with minimum five years post‑qualification experience and ongoing CPD.
- Successful experience in a business leadership role to operate at a Director/Board level and as a senior leadership team member.
- Experience of developing effective short and long term business and financial strategies.
- Managing complex budgets, financial modelling and projections.
- Experience of directing, leading and developing multi-disciplinary teams.
- Experience of working successfully in a changing organisation where flexibility, agility and adaptability are essential.
- In-depth and up to date knowledge of best practice financial management and reporting under the Charity SORP and charity governance practices.
- In-depth and up to date knowledge of best practice HR/people management, knowledge of employment law and Data Protection regulations.
- Strong understanding of IT systems management and development and the ability to champion the use of digital solutions.
- Understanding and commitment to diversity and inclusion and our charitable cause, mission and values.
- Highly numerate with strong analytical and problem-solving skills.
- Ability to travel for work and/or work occasional unsocial hours if required.
Please note that this role will require a satisfactory DBS check before joining us and we will arrange the DBS check for the successful candidate.
You will also need to have the Right to Work in the UK before joining us and we will check this. We do not hold a Home Office Sponsorship Licence and therefore cannot offer visa sponsorship for any of our roles.
If this sounds like the right role for you and if you think you would fit well within a passionate, friendly and high-performing and highly supportive team, please get in touch!
Closing date and interview date
Closing date for completed applications is midnight Monday 12 January 2026.
Interviews expected Wednesday 21 and Thursday 22 January 2026.
Please note we reserve the right to bring forward or extend the closing date if necessary. Therefore, if you are interested in this role, please submit your application as early as possible.
No agencies please.
How to apply:
For more details about the job and requirements, please visit our website or use the application button provided.
Our commitment to an inclusive workplace
Cystic Fibrosis Trust aims to be an inclusive workplace where everyone belongs, can be themselves and achieve their full potential. We want to attract, develop, and retain staff with different backgrounds, experiences and perspectives; particularly people who have cystic fibrosis, people who identify as being from an ethnic minority group, as LGBTQ+ and people with disabilities.
It is our policy not to discriminate against any person because of their age, gender reassignment, being married or in a civil partnership, being pregnant or on maternity leave, disability (physical and mental), race including colour, nationality, ethnic or national origin, religion or belief (including lack of belief), sex, sexual orientation or union membership.
Benefits: Benefits include flexible working, 30 days annual leave plus recognised bank holidays (pro-rata if part time), contributory pension scheme, healthcare cash plan covering dental, optical, 24/7 GP service, and an employee assistance programme.
REF-225 504
Action Duchenne supports, empower and equip every Duchenne Muscular Dystrophy community in their journey from diagnosis and beyond.
Duchenne Muscular Dystrophy is a muscle wasting condition for which there is no cure, but we journey alongside communities to empower them and provide information for them to make informed decisions. Action Duchenne has a team of passionate, supportive staff who are keen to do more for families living with Duchenne and has several staff with direct lived experience.
At Action Duchenne, values are more than words—they shape how we work and interact every day. For this role, we are looking for a team member who can reflect our values:
-
Supportive – Actively assist colleagues and stakeholders, fostering a culture of collaboration and reliability.
-
Empathetic – Approach challenges with understanding, considering the impact on people internally and externally.
-
Respectful – Ensure all communications and decisions uphold dignity and fairness, especially when handling sensitive matters.
-
Community Focused – Make decisions that strengthen our community, ensuring all activity supports inclusive engagement and shared purpose.
-
Inclusive – Promote accessibility and equity, ensuring everyone feels valued and heard.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across England. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for our End of Life and Bereavement projects, working collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources.
Specific Tasks:
1. Proactive Family Support
-
Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)
-
Contact to be made to all registered Action Duchenne members, knows to us in the Regions you will be covering, to ensure the current support offer is clear
-
Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care
-
Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern
2. Advanced and End-of-Life Care Support
-
Provide compassionate, practical, and emotional support to children, young people, and adults living with Duchenne, and their families, as they navigate advanced stages of the condition and end-of-life care.
-
Work collaboratively with healthcare professionals, palliative care teams, and hospices to ensure families have access to appropriate services and resources.
-
Develop and share guidance, resources, and workshops to help families prepare for and manage advanced care planning, symptom management, and emotional wellbeing.
-
Support families in understanding available options for care settings (home, hospice, hospital) and facilitate informed decision-making.
-
Ensure continuity of care and communication between multidisciplinary teams, while respecting family preferences and cultural considerations.
-
Offer signposting to bereavement support and follow-up services for families after loss.
3. Wellbeing Tracking and Outcome Measurement
-
Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
-
Collaborate with families to co-create action plans and track progress
-
Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
-
Organise and deliver regional meetups (minimum one per quarter)
-
Facilitate support groups (virtual and in-person) for parents, young people, and extended family (minimum one per quarter)
-
Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
-
Actively participate in networking events to promote Action Duchenne within our communities, build relationships, and drive growth in membership by encouraging registration of families affected by Duchenne
5. Stakeholder Collaboration
-
Liaise and develop relationships with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
-
Represent Action Duchenne in across your regions and build relationships with local networks
6. Administration and Reporting
-
Maintain accurate records of all interactions and support provided
-
Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
-
Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
-
New contact acknowledgement email: within 3 working days
-
New contact follow-up call: within 7–10 working days
-
Families contacted per week: 12–15 hours of direct contact
-
Regional meetups: 1 per quarter
-
Support groups delivered: 9–12 per year
-
CRM data entry: within the same day of interaction
-
Family outcomes tracked: via wellbeing questionnaire and action plan
-
Number of families receiving end-of-life care guidance or resources per quarter.
-
Advance Care Planning: Percentage of families supported with advance care planning discussions within 4 weeks of request.
-
Palliative Care Signposting: Number of referrals/signposts made to palliative care or hospice services.
-
Resource Development: Number of end-of-life care resources (guides, workshops, webinars) created and shared annually.
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find the job specification, including required skills and qualifications below.
Application deadline: 22nd December at 9am GMT.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.


