Organiser Jobs in Bristol
We are seeking a passionate and committed Chief Executive Officer who will help us unite the global Prader-Willi syndrome (PWS) community to collectively find solutions to the challenges of the syndrome. Our vision is to create a world where people with PWS receive the services and supports they need to fulfil their potential and achieve their goals. PWS is a complex genetic disorder characterised by low muscle tone and failure to thrive at birth, and later evidence of short stature, intellectual disabilities, behavioural and psychiatric challenges and impaired satiety.
IPWSO is the international umbrella body for PWS associations around the world with 47 full paying country members and contacts in over 120 countries. We are committed to supporting people with PWS and their families whatever their needs and wherever they live.
What we do
We build communities between people with Prader-Willi syndrome, their families and the professionals who support them to share knowledge and expertise and improve outcomes for people with Prader-Willi syndrome and their families everywhere.
We want everyone with Prader-Willi syndrome to get equal access to diagnosis and treatment no matter where in the world they live. We want to ensure better, more consistent outcomes for people with the syndrome and their families.
We work to ensure research into the condition works for everyone and reflects the diverse experiences and environments of those living with the syndrome around the world today.
Main purpose and scope of role
Working closely with the President and the Board of Trustees, the CEO will provide strategic vision and leadership and will strive to ensure that IPWSO delivers its charitable purposes and remains successful and sustainable.
Duties and Responsibilities (to include but not limited to)
Leadership
· Strive to ensure that the charitable purposes of IPWSO are followed and that it delivers the public benefit set out in its governing document.
· Take overall responsibility for the management and administration of IPWSO.
· Provide support and information to the Board of Trustees to enable trustees to fulfil their roles and legal responsibilities.
· Pursue close cooperation with, and accountability to, IPWSO’s members.
· Act as an ambassador for IPWSO by representing IPWSO at events and networking to build new strategic relationships.
· Keep abreast of relevant new research, treatment recommendations and service developments for people with Prader-Willi syndrome.
Governance
· Strive to ensure that IPWSO has governance systems in place that enable it to consistently fulfil its legal, statutory and regulatory responsibilities.
· Maintain awareness of risks and changes in the external environment that could affect IPWSO and advise the Board of Trustees accordingly.
· Together with the President manage complaints (including from whistle-blowers) and recommend actions to the Board of Trustees
Finance and Fundraising
· Work with the Treasurer and the Finance Committee to ensure the overall financial health and sustainability of IPWSO.
· Work with the Treasurer and the Finance Committee to prepare budgets for review by the Board of Trustees and to enable IPWSO to operate within its financial means.
· Seek to ensure that appropriate financial reports are submitted to the Charity Commission and other entities as required.
· Support the work of the Fundraising Committee and strive to ensure a sustainable income from both IPWSO members and individual, corporate, philanthropic and government donors.
· Build relationships with potential donors and prepare funding proposals.
· Seek to provide high quality support to existing donors, by means including the preparation of regular reports and updates.
· Seek out and build new income streams.
Staff, Trustee and Volunteer and Committee Support
· Provide support to staff, trustees and volunteers to enable them to carry out their duties.
· Deputise for other staff members during periods of leave.
· Conduct annual reviews with staff.
· Participate in the recruitment of new staff as required.
· Provide support and advice to IPWSO committees and conference organisers.
Project Support
· Seek to ensure that all IPWSO projects are designed and implemented in accordance with IPWSO’s mission and objectives.
· Support IPWSO’s Project Managers and others who lead IPWSO projects and, if necessary, manage projects directly.
Person specification
Experience, Knowledge and Skills
Essential
Proficiency in English.
Experience of working in a leadership role in the charitable sector either as a CEO or as part of a wider Senior Management Team.
Ability to articulate a compelling vision to inspire others
Broad understanding of global development issues, geopolitical dynamics, and cultural nuances and able to take into account the diverse contexts in which IPWSO operates.
Strategic Thinking: experience of leading and or contributing towards strategic development as well as experience of organizational management and supporting change.
Collaborative approach: outstanding interpersonal and communication skills, with the ability to build and maintain positive relationships, based on mutual respect and shared goals.
Experience of managing budgets, financial planning, preparation of funding applications and report writing.
Experience of working with volunteers.
Desirable
Fluency in another language.
Experience of working in a leadership role in an international organisation within health or disability either as a CEO or as part of a wider Senior Management Team.
Knowledge / experience of PWS.
Willingness to travel internationally as needed to support IPWSO’s priorities.
An understanding of charity operations and governance structures in the UK.
Personal Attributes
Essential
Enthusiasm for IPWSO’s work and commitment to its vision, mission and values including dedication to equity, diversity, and inclusion.
Empathy for disadvantaged people.
Cultural sensitivity and respect. Confidence and ability to work well with people from different backgrounds from around the world.
Highly self-motivated and able to work on own initiative as well as part of a team.
Adaptability and flexibility. Able to navigate change and uncertainty. Able to accommodate international time zones as well as GMT for UK based staff. 20% of time may be outside of normal working hours.
Ethical leadership.
Resilience and determination.
Desirable
Desire to empower and mentor staff and foster a culture of learning, growth, and innovation.
Please submit your CV with a covering letter of no more than 2 A4 pages, describing how you meet the requirements of the role and the criteria outlined in the person specification. Include in your covering letter the names, positions, organisations, email and telephone contact of two referees, one of whom should be your current most recent employer. References will only be sought once your express permission has been granted. Please send to nmcnairney@ipwso. org. The closing date for applications is 9.00 am (UK time) on 25 October, 2024.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Ekō is seeking a Senior Finance Associate. Join us in this dynamic role where you'll take charge of managing invoices, overseeing financial processes, and guiding stakeholders through policies and systems. You’ll handle supplier invoices, reconcile statements, draft budgets, ensure regulatory compliance, and assist with multi-currency payments. Your expertise in financial analysis will be key, and you'll also have the opportunity to integrate anti-oppression and equity considerations into our accounting practices. Bring your finance experience and keen attention to detail to make an immediate impact and contribute to meaningful international projects. This full-time, fully remote position requires you to be based in and eligible to work in one of the following countries: Canada, France, Germany, Mexico, Netherlands, UK or USA.
A bit about us Ekō is a global movement of consumers, investors, and workers standing together to hold corporations accountable for their actions and forge a new and sustainable path for our global economy. We are a movement of more than 21 million people, brought together by a global team of 40+ campaigners, fundraisers, product and operations staff. Our purpose is to challenge corporate power everywhere. We hold the biggest corporations in the world (and their political allies) to account by mobilising millions of people to take collective action. We are aiming to fundamentally reshape the global economy to put people and planet over profit, but we know we can not do it alone. We build partnerships with on-the-ground activists and organisers, and we follow their lead. We innovate, experiment and embrace professional and organizational growth. We invest in people and we invest in how we work, because our vision calls on us to build the most effective, global, diverse, and talented team possible. We highly value a diverse team and an equitable work environment where every member of our team is set up to thrive. We have taken steps to nurture this environment including an Anti-Oppression Leadership Team that seeks to facilitate movement towards an organizational community and practice rooted in love and liberation. We expect all team members to take responsibility for co-creating an equitable work community where everyone is able to do impactful, world-changing work. We recruit and encourage people identifying with marginalized communities to apply. We offer benefits including additional sick days for parents and caregivers, flexible working hours, and professional development stipends. We review our policies and practices for equity frequently. We recruit and encourage people identifying with marginalized communities to apply.
What You’ll Do as Part of our Team:
- Manage and monitor incoming emails in the invoices mailbox
- Oversee financial processes, communicate outcomes to stakeholders, and guide others in navigating policies, resources, and systems
- Process supplier invoices, reconcile statements, and resolve queries promptly
- Potentially draft and prepare budgets
- Ensure compliance with regulatory requirements across all Ekō jurisdictions and stay updated on regulatory changes
- Communicate solutions to senior team members, and implement necessary decisions
- Assist in multi-currency payments
- Review employee reimbursement for accurate coding
- Support the audit process, including preparation, execution, and completion
- Analyze financial data and prepare reports to communicate insights clearly
- Integrate anti-oppression and equity considerations into accounting procedures, controls, systems, and compliance standards
- Participate in ad hoc projects as needed
The client requests no contact from agencies or media sales.
Are you looking for a rewarding home-based role within a supportive team, working for a small and friendly charity? If you’ve got at least two year’s administration experience and good office IT skills then we’d love to hear from you as we recruit for the following new roles:
- Member Support Assistant
- Events and Office Assistant
Both roles are:
- £11.89 per hour plus benefits
- 7 hours per week, worked over 2 days
- One of the days to be a Thursday (for overlap with other staff)
- Hours to be worked between 09:00 and 17:00
To apply you will need to complete our short application form (CVs will not be accepted) available through our website. The deadline for submitting your application is 9am on Monday the 14th of October 2024. Further information is available in the attachments to this advert and on our website under 'About Us' and then 'Our Team'. Successful candidates will be invited to take part in a written test w/c the 21st of October. Interviews will then take place w/c the 28th of October 2024. Please note we are looking for two separate people for these roles, You can apply for both roles but will be offered only one.
About the charity: Cavernomas look like raspberries and are found in the brain and spinal cord. They're formed of abnormal blood vessels with thin leaky walls, which can bleed at any age without warning. 1 in 625 people are thought to have a cavernoma, and whilst most people won't experience symptoms 1 in 2,700 do. Symptoms can include haemorrhages, seizures and other neurological problems. Treatment involves 'wait and see', neurosurgery or stereotactic radiosurgery; with no medications currently available.
Cavernoma Alliance UK (CAUK) is a member-led organisation, run by and for those impacted by cavernoma with more information available on our website. We work from a model of empowerment, recognising the value of our members’ lived experience to provide mutual support, improve standards of care and drive research into finding a cure.
Since the charity was founded in 2005 it has grown from a volunteer-led organisation based in Dorchester to a UK wide registered charity that now has 2 part-time permanent staff, looking to increase to 4 Part-time staff (all home-based), 50+ volunteers, and 4,000+ members. Our support services include a helpline, buddying, counselling, online support groups, meet-ups, webinars, lectures, newsletter, leaflets, website and social media.
About the roles: The Member Support Assistant is responsible for assisting our Volunteer Manager with administration relating to the support of the charity’s 4,000 members and volunteers. This includes offering a professional service to members of CAUK, typically via phone, email, online, chat, or on occasion in person. The role involves supporting the membership and volunteering processes, ensuring all admin is accurate and up to date. Over time the post-holder will be expected to build a good working knowledge of members and volunteers. They will also be expected to develop strong communication skills, including active listening, alongside the ability to multitask, manage time and prioritise.
The Events and Office Assistant is responsible for assisting the Charity Manager with the administration of events alongside some general office activities for the charity. This includes assisting with the organisation of the virtual Annual Conference, virtual Monthly Information Webinars, in-person Annual Snowdon Climb for Cavernoma, online Cavernoma Awareness Month activities, in-person Autumn Lecture, virtual Secret Santa, attendance by volunteers at external conferences, and any other events organised by CAUK. As and when time permits in between events the post-holder will also assist with some general office activities, including posting t-shirts/fundraising packs to fundraisers and arranging Zoom meetings.
The client requests no contact from agencies or media sales.