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Using Anonymous Recruitment
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We are entering a period of unprecedented opportunity. Advances in treatment, increasing recognition of the condition, and growing awareness of healthcare inequalities provide a unique chance to strengthen our impact and expand our reach across the UK. Our ambition is bold: to engage and support at least 50% of the UK myasthenia community as members within the next five years, creating a movement that is representative, influential and impossible to ignore.
The successful candidate will lead the development of a thriving national community of people affected by myasthenia, ensuring that individuals and families feel connected, represented and empowered. They will transform community insight into meaningful campaigns, influence policy and healthcare decision-making, and position myaware as the authoritative voice for everyone affected by the condition.
Success in this role will be measured not only by influence and campaigning outcomes, but by the growth, engagement and mobilisation of our community. The Director will play a central role in delivering our ambition to reach, engage and retain 50% of the UK's myasthenia population as members and active supporters within five years, creating a change-maker movement that is representative of our goals.
Key Responsibilities
Community Growth and Engagement
Campaigning, Policy and Influence
Organisational Leadership
Awareness and Public Engagement
What Success Looks Like
Within five years, the postholder will have:
Person Specification
Essential Experience
Essential Knowledge and Skills
Personal Attributes
We are looking for someone who is:
Why Join Us?
myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
This is a rare opportunity to build a community movement capable of transforming lives. You will lead the growth of a national membership community, shape policy and healthcare conversations, and help ensure that every person affected by myasthenia feels informed, supported, represented and connected.
Together, we aim to ensure that within five years, at least half of everyone living with myasthenia in the UK knows, trusts and actively engages with myaware as their community, their advocate and their voice.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor.
myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Application instructions
Candidates should submit their CV and tailored covering letter by: 11:30pm on Friday.4th September
Provisional interview dates will be week commencing: 28.9.26
Interviews will be held over Microsoft Teams.
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
The client requests no contact from agencies or media sales.
RESPONSIBILITIES:
Outreach, Wheelchair Skills and Wider Engagement
· Engage the widest possible range of people with spinal cord injury to sign up for further contact with Back Up, through organising and/or delivering wheelchair skills training sessions and talks for patients and families at the spinal cord injury centre in the region, general hospitals and with other key partners or locations as identified.
· Coordinate, support and manage volunteer trainers who are helping to deliver sessions and talking to patients and families.
· Lead, sustain and develop strong and effective working relationships with a wide range of health professionals and other charity representatives e.g. through presentations, calls and meetings, to ensure that people access seamless support.
Proactive Contact with People Affected by Spinal Cord Injury
· Maintain and support relationships with a large number of people affected by SCI (adults, children and young people and their parents) through regular proactive contact. This could be in person in the spinal cord injury centre, other settings or through events, telephone contact or other interactions.
· Explore their feelings, wishes and needs and provide tailored peer support to help them feel supported, access relevant services from Back Up and elsewhere through proactive referrals, and become more aware of the possibilities of life after SCI.
Networking, Partnerships and Sustainability
· Develop and maintain a map of touchpoints in the region, where people with an SCI will come into contact.
· Develop partnerships, referral routes and signposting processes to develop reach beyond the spinal cord injury centre.
· Develop and manage a network of community ambassador volunteers to support the wider work and sustainability of Back Up through fundraising and other related activities.
· Take a lead on encouraging localised fundraising activity; working towards wider income targets that support ongoing sustainability.
Other Duties and Responsibilities
· Maintaining accurate records on the database.
· Work as a team, consulting with others to ensure you give and receive high quality support.
· Keep Back Up informed of the issues affecting the people you are supporting and of developments at the spinal cord injury centre, general hospitals and other settings.
· Input into team planning and activities.
· Manage the budget relating to activities in your region.
· Help recruit new volunteers as needed to ensure a diverse team representing Back Up.
· Other duties as required by the Regional Outreach & Engagement Team Leader.
The above list is not exclusive or exhaustive, and the post holder will be required to undertake such duties as may reasonably be expected within the scope of this role.
PERSON SPECIFICATION:
Essential:
Desirable:
• Please Note: We currently review application only through Charity Jobs ATS. Please apply through Charity jobs as we will not be accepting offline applications.
• Charity Jobs will ask you for a CV & Cover Letter (saying why you want the job and explaining how you meet the criteria in the job description. This statement is crucial; CVs alone will not be accepted).
• Please complete equal opportunities form on charity Jobs. This form will be kept separate from your application and not viewed by the recruiting manager. It is used to help us assess the diversity of our applicants to ensure our processes are fair to all. It is optional to fill in, but it will help us improve and maintain high standards.
We will acknowledge receipt of your ap
At Back Up, our vision is a world where everyone affected by spinal cord injury can reach their full potential.

The client requests no contact from agencies or media sales.
This role can be worked either as a remote homebased role, or as a hybrid role based in our London office, with London-based colleagues attending the office a minimum of four days per month.
Independent Age is the national charity focused on ending financial hardship in later life. We want every older person to be able to afford to live well.
We stand with older people in financial hardship, offering urgent help today and shaping a fairer, more secure tomorrow. Our Helpline and expert advisers offer free, practical support to older people without enough money to live on. Through our grants programme, we support hundreds of local organisations working with older people across the UK. And we use the knowledge and insight gained from our services and partnerships to highlight the issues experienced by older people in poverty and campaign for change.
We would love to find individuals from all walks of life and diverse backgrounds to join us on this journey.
Responsibilities and Person Specification:
The Stories and Participation Officer is a fundamental cross-organisational role. Working directly with older people in financial hardship, the role will source, capture and collaborate to share stories, advice and insights from older people, whilst maintaining the highest level of stewardship and safeguarding for this group and supporting organisation wide participation activity.
Reporting into the Participation Manager, you will work champion and deliver meaningful involvement and authentic storytelling to ensure that the experiences of older people are at the centre of Independent Age’s work. You will ensure that participation processes maintain and develop our storytelling expertise and follow good-practice in the sector. The role will recruit and induct older people on a low income to our Lived Experience Network, alert them to opportunities to get involved in shaping and informing Independent Age’s work, facilitate two-way engagement, and work with willing members of the network to share their lived experience and insights, including sharing their story on public and private platforms.
You will need exceptional organisational skills and the ability to proactively drive lived experience work and effective storytelling. Strong verbal and interpersonal skills are essential, along with knowledge of best practice in supporting and co-ordinating lived experience participation including online and offline events, groups and meetings to create listening spaces.
For full details on the role and requirements, please review the job description and person specification. If your experience doesn’t align perfectly with all of the criteria in the person specification but you do meet most of them and are excited about the role, we encourage you to apply anyway.
What it’s like to work at Independent Age:
We celebrate diversity at Independent Age and champion the differences that make each of us unique. We actively support and encourage people from a variety of backgrounds, experiences and skill sets to join us and help shape what we do. We aim to attract and retain a wide range of talent and create an environment where everyone can feel safe, protected, welcome and included.
We offer great benefits including 28 days annual leave plus public holidays, a generous pension scheme with life assurance, and fantastic learning and development opportunities. We also offer a number of enhanced leave provisions and benefits.
We know that a good work life balance helps us perform at our best and supports wellbeing. Flexible working hours and hybrid working is standard for all (those contracted to work in the office are required to attend the office a minimum of 4 days per month). But if you need a different form of flexibility, we are always happy to talk flexible working.
With an employee engagement score of 98%, colleagues say Independent Age is a great place to work. You can find out more about what it’s like to work for us on the careers page of our website.
Application Process:
To apply, please submit a CV and a Supporting Statement, detailing how your skills and experience meet the criteria within the Job Description and Person Specification, by visiting our jobs website,
We are committed to ensuring our recruitment process is inclusive and accessible to all. If you require any specific arrangements or adjustments to enable you to fully participate in the recruitment process, such as having the job description in a larger text format or to apply in an alternative format, please get in touch with us via the email address on the ‘Contact Us’ page on our jobs site.
To support our commitment to equity, diversity and inclusion our hiring managers use anonymous shortlisting. Please don’t include your name, photo, or any information that could indicate your gender or age in your CV and supporting statement, and don’t include your name in the title of any documents that you upload. However, please do include all dates of employment.
Independent Age is committed to safeguarding and follows Safer Recruitment practices to ensure we are safeguarding those we work with. We therefore ask that you supply your full work history with explanations for any gaps in the application documents you submit and, if offered the post, we will require two employment references including your current or most recent employer. A Basic Level DBS check will be carried out for the successful candidate.
Closing Date: Sunday 23rd August, 11:59pm
Independent Age is the national charity focused on improving the lives of people facing financial hardship in later life.


The client requests no contact from agencies or media sales.
We are looking for a Community Support Coordinator, who will lead and develop a team of Volunteers, helping to deliver safe, inclusive and person-centred support.
You will work closely with health and social care professionals, MDT’s, local partners and volunteers to connect people affected by MND with the information, services and support they need.
At the Motor Neurone Disease Association, we work to improve care, support and quality of life for people affected by MND. As a Community Support Coordinator, you will play a key role in ensuring our support reaches people when they need it most.
Key Responsibilities
About You
This is a home-based role with frequent travel across Northern Ireland
Further information about MND Association and full job description is available in the attached Candidate Pack.
We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.
As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.
What We Offer
About Us
MotorNeuroneDisease moves fast. It takes away time, it takes awayindependenceand it has no cure. Every day we support people affected by MND.Wefundground-breaking research. We campaign for better care.We’rehere for everyone who needs us. Because with MND,every daymatters.
We support people affected by Motor Neurone Disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.
The client requests no contact from agencies or media sales.