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This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Application deadline: 24th November at 9am GMT.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Help support our members and their families who are diagnosed or going through diagnosis of a rare neurological condition.
Provide support to those affected by a life changing diagnosis at a very difficult time and make a difference that counts!
Myaware is a charity dedicated to ensuring that all people living with or alongside myasthenia can live well, now and in the future. Due to demands on the service we are looking to expand our crucial support team which has provided an exciting opportunity to join the team.
You will be working with our dedicated support team to advise and support our members, over the phone, via email, in online sessions and at conferences and support groups in the community. Providing a listening ear and advice on living with myasthenia is essential as they navigate their diagnosis journey and learn how to live well with the condition.
Delivering support and advice for our members also involves using our CRM database and proactively maintaining and increasing our membership. It requires ongoing essential awareness raising of our work through annual initiatives and campaigns and through growing relationships with Healthcare Professionals and other neurological organisations.
Who are we?
Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist welfare rights advisor.
Myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Discretionary £1,000 increase after successful completion of probationary period
Application Instructions
Candidates should submit their CV and tailored covering letter by 23:30 on Friday 8th May 2026
Initial screening chats will take place on Thursday 14th May 2026
Interviews will be week commencing 25th May 2026
Interviews will be held over Microsoft Teams
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
About the Nature Friendly Farming Network (NFFN)
The Nature Friendly Farming Network is a UK-wide, farmer-led organisation working to restore the balance between farming and nature.
We support farmers by sharing practical knowledge, resources and case studies that help boost food production, protect wildlife, and build climate resilience.
We influence policy to secure fair rewards for farmers who look after the environment, and we connect thousands of like-minded farmers across the UK through knowledge sharing, events and campaigns.
Membership is free and open to farmers, the public and organisations.
About the role
We are looking for a Parliamentary Engagement Officer to strengthen our engagement with policymakers across the UK.
This is an exciting opportunity to work at the intersection of farming, environment and policy. You will play a key role in ensuring that farmer experience and evidence are reflected in parliamentary discussions, helping to shape conversations that impact the future of farming.
Working directly with the Chief Executive and closely with the policy team, you will monitor parliamentary activity, identify opportunities for engagement, and support timely and well-informed interaction with MPs, peers and their teams. You will also work across the organisation, including with country teams and farmer steering groups, to ensure engagement reflects priorities across all UK nations.
This is a practical, fast-paced role suited to someone who is organised, politically aware, and able to respond quickly to emerging opportunities.
Key responsibilities
Monitor parliamentary activity across Westminster and the devolved parliaments, identifying relevant debates, questions, committees and opportunities for engagement
Maintain a forward view on key parliamentary activity and upcoming moments of influence
Produce and circulate clear, concise briefings on parliamentary activity and recommended areas for engagement
Draft and support the submission of parliamentary questions, briefings and lines for MPs, peers and their staff
Build and maintain relationships with MPs, peers, advisers and parliamentary staff across parties
Support coordinated engagement with political stakeholders, ensuring activity is timely and aligned with organisational priorities
Work with colleagues and partners to support effective and aligned parliamentary engagement
Support relationships between farmers and parliamentarians, including organising farm visits and meetings where appropriate
Translate farmer experience and insights into clear and practical input for parliamentary engagement
Support the planning and delivery of parliamentary events, meetings and roundtables
Organise meetings with MPs, peers and advisers, including preparing briefings and follow-up actions
Maintain accurate records of parliamentary contacts and engagement activity, and support internal reporting
Contribute to campaign activity and wider organisational work where required
What we are looking for
You will bring:
A working understanding of how the UK Parliament and devolved legislatures operate, and how to engage effectively with those processes
Experience engaging with political, policy or stakeholder environments
Strong writing skills, with the ability to produce clear and concise briefings and summaries
Excellent organisational skills and attention to detail
The ability to manage competing priorities and respond quickly to emerging opportunities
Strong communication and interpersonal skills, with the ability to build effective working relationships
The ability to translate complex or real-world information into clear, practical input
Confidence working independently in a remote team environment
An interest in farming, environmental issues or public policy
Additional information
The NFFN is a politically neutral organisation. This role requires the ability to engage constructively with stakeholders across all political parties and UK nations.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Job Title: Associate Careers Advisers (Schools Team)
Location: Kent and Medway
Salary: Day rate of £152 (inclusive of holiday pay)
Hours: Zero Hours
Contract: Zero Hours
Reports to: Senior Careers Adviser
About CXK
CXK empowers people to succeed in employment, education and training. The charity strives for a fairer society where everyone can grow and realise their potential. “The CXK Way” embodies the following core values:
Ethical – We work with professionalism, honesty and integrity
Passionate – We reach out enthusiastically to all who need out support
Innovative – We inspire, enhance and improve
Collaborative – We engage, support and share with others
Young Peoples’ Careers Service
CXK is the lead provider of Personal Careers Guidance to young people in schools and specialist centres across Kent & Medway, where we provide independent Personal Careers Guidance, via our CXK Young Peoples’ Careers Service.
We provide this through a variety of creative and innovative approaches
The Team
We are a diverse and welcoming team of advisers, who use a wide variety of creative methods to deliver personalised, client centred, personal careers guidance, ranging from one-to-one sessions through to group guidance, parents and options evenings, as well as focused talks and assemblies. We have minimal admin and keep our clients’ experience central to what we do, providing an inclusive service with individualised action plans, including the use of visual career maps, career cards and white boards, alongside more traditional approaches where appropriate.
We follow the CDI code of ethics and best practice for Action Planning (which names and recognises CXKs innovative work in this area):
The team is led by Chris Targett RCDP, who alongside his work at CXK, is the current Chair of the Careers Writers Association and co-author of the recently released Career Development and Inclusive Practice book, published by Trotman Publishing in partnership with the CDI.
The team is small but impactful. Feedback from our young people, that tell us about what our students valued regards our services:
The Role
The Careers Advisers will cover one or more of the following regions: Medway, West Kent and Mid Kent to a broad range of school and college settings, delivering creative and inclusive Personal Careers Guidance, as well as assemblies and drop-in sessions as required.
Each student and each learning environment will be unique, so the opportunity lends itself well to candidates who enjoy traveling and working in varied locations, meeting people from diverse backgrounds, and educating people of all abilities.
You will routinely liaise with Careers Leaders and senior school/ college staff to arrange and deliver activities for students during the school day. Whilst most delivery will take place between 8:30am and 4pm, travel before and after these times will be required and occasional attendance at parents’ and options evenings will also be required, but you will be given time off in lieu where this is applicable.
Skills and Knowledge
At CXK we are proud to be a disability confident and equal opportunities employer. We actively promote diversity within our workforce and welcome applications from all sections of the community.
Minimum Criteria
Core Competencies
Employee Experience
A career with CXK is rewarding work enabling you to fulfil your potential. This eclectic and exciting role within the CXK Young Peoples’ Careers team, provides the opportunity for you to travel from home to various education settings, networking with teachers and careers educators across the Kent and Medway area. You will hone specialised skills and knowledge relating to Post 16 and 18 career pathways, including 6th Forms, colleges, study programmes, gap-years, entrepreneurship, university and apprenticeship routes whilst being a positive influence on young people’s lives.
CXK employee benefits include:
Recruitment Timeline
Vacancy closing date: Ongoing
Application review date: Ongoing
Interviews dates: Ongoing
Useful Information
Should you wish to have an informal conversation before submitting your application, please contact recruitment @ cxk. org
Please note: Applicants will need to complete an enhanced DBS check and provide employment references before any offer of employment can be made.
All applications must be submitted online via our online portal.
The client requests no contact from agencies or media sales.
The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.
We are looking for three new team members to join our team of Specialist Huntington's Disease Advisers to support people affected by Huntington’s disease.
The roles available are:
• Bath, Somerset, Wiltshire, North & East Devon, Weston Supermare & Wiltshire Specialist Huntington’s Disease Adviser (part-time, 28 hours)
• East and South Yorkshire Specialist Huntington’s Disease Adviser (part-time, 21 hours)
• Surrey and South London Specialist Huntington’s Disease Adviser (part-time, 21 hours)
All roles available are home-based, but must be living in the area specified in the job title, as the job involves extensive travel within the region and occasional travel across England and Wales.
We are looking for an enthusiastic, self-motivated person who is dedicated and committed to the welfare of families affected by Huntington’s disease, developing and improving the quality of care that they receive. You will need to have skills gained within a Health and Social Care profession. Your main responsibilities will be to offer help, information, advice, support and education to everyone affected by Huntington’s disease and professionals involved in supporting them.
All three vacancies are on a part-time permanent contract. Due to team-wide commitments, you must be available to work on Tuesdays. All other working days (in line with contracted hours) may be flexible around your individual needs and the needs of the role. Regular working pattern will be agreed with your line manager upon successful appointment.
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.
Learn more about the role in the job pack included.
We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.
The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, you must upload both a CV and cover letter (make sure to press 'upload' for both documents before completing the application process!).
Your application must include which of the 3 vacancies you are applying for. You must be located within the areas the role covers. Your cover letter should also include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack.
Applications submitted without a CV and cover letter will not be considered.
Closing date for applications is Sunday 17 May, 5pm.
First round interviews will be held online Thursday 4 - Friday 5 June. Second round interviews will be held in-person in London Thursday 11 - Friday 12 June.
Benefits
* 25 days annual leave plus public holidays (pro rata for part-time staff)
* 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
* A pension scheme with 3% employer contribution
* Medicash scheme
* Travel-to-work scheme
* Flexible working approach
* Family forward policies
* Supportive and positive working environment
* Fantastic learning and development opportunities
We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.


