Outreach officer jobs in Sutton, greater london
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Job Title: Equipment Advice and Outreach Officer
Reports to: Chief Executive / Practice Lead
Contract: Fixed term, 18 months
Hours: Part-time, approximately 22.5 hours per week (0.6 FTE)
Location: Home-based in England, with regular travel across a large region and occasional overnight stays
Salary: £20,556 (Full-time equivalent salary (FTE): £34,259)
About Pathfinders Neuromuscular Alliance
Pathfinders Neuromuscular Alliance is a user-led charity run by and for people with muscle-weakening conditions. We provide advocacy, peer support, information, training and campaigning to help disabled people live with greater confidence, connection and control.
We are developing a new service model to help adults with neuromuscular conditions identify practical needs relating to equipment, adaptations and wider day-to-day transitions, and to connect them to people with relevant lived-experience expertise.
Purpose of the Role
The Outreach and Practitioner–Evaluator will help Pathfinders identify adults with neuromuscular conditions who may benefit from practical support around equipment, adaptations and wider day-to-day challenges.
The role is not primarily to provide complex specialist advice directly. Instead, the postholder will:
- build relationships with services and organisations to identify potential clients
- hold structured conversations to understand people’s needs
- offer initial information, practical resources and signposting
- connect people to Pathfinders’ lived-experience specialists where more specific insight is needed
- support the development of reusable lived-experience resources, including short videos, blogs and written guidance
- collect routine feedback and help document and evaluate the service
Pathfinders’ lived-experience specialists are people with direct personal experience of neuromuscular conditions and of specific issues, transitions or practical solutions. A key part of this role is helping people access that expertise.
The role is to help people make sense of what might help, what routes may be available, and who they may need to speak to next. It is not to guarantee that equipment will be obtained, but to improve people’s understanding, preparedness and access to relevant expertise and pathways.
Main Responsibilities
1. Outreach and relationship-building
- Build and maintain relationships with clinics, hospices, charities, networks and other relevant services.
- Travel regularly to external settings to identify potential clients and raise awareness of the service.
- Confidently approach professionals, families and individuals to explain the offer and encourage engagement.
- Help create practical referral and engagement routes into the service.
- Prioritise outreach activity in line with project aims and agreed target regions.
2. Needs identification and support coordination
- Hold 1-to-1 conversations with adults with neuromuscular conditions and, where appropriate, family members or supporters, to identify practical needs relating to equipment, adaptations and wider day-to-day challenges.
- Provide initial information, signposting and relevant resources within agreed boundaries.
- Recognise when an issue would benefit from connection to a Pathfinders lived-experience specialist and facilitate that connection.
- Recognise when an issue requires statutory or clinical input and support onward referral or escalation where appropriate.
- Work with Pathfinders staff to help ensure people are connected to the most appropriate source of practical or professional support.
3. Working with lived-experience specialists and resource development
- Work with freelance lived-experience specialists to identify practical solutions, insights and examples relevant to the issues raised by service users.
- Support and encourage lived-experience specialists to share their expertise in accessible ways.
- Help coordinate and develop practical resources based on lived-experience knowledge, including short videos, blogs and written guidance.
- Contribute to ensuring these resources are accessible, organised and responsive to recurring needs identified through the service.
4. Documentation and evaluation support
- Maintain accurate records of outreach activity, contacts, needs identified, resources shared, onward connections and follow-up.
- Support the collection of routine feedback, including post-support forms and short follow-up conversations.
- Use agreed templates and systems to document contacts clearly and consistently.
- Share reflections and emerging themes with the team to support ongoing learning, evaluation and service development.
5. Teamworking and service development
- Participate in regular supervision, planning and reflective review meetings.
- Work collaboratively with the Chief Executive, Advocacy Officer, freelance lived-experience specialists and external partners.
- Contribute to the refinement of service processes, boundaries and referral pathways.
- Support dissemination of learning through briefings, webinars or other outputs as required.
Additional Requirements
- Regular travel across England is required, typically around once per week, with priority given to areas closest to the postholder’s base in the first instance.
- Some travel may involve overnight stays.
- The postholder must have access to and use of a car for work purposes, although train travel may be used for some visits.
- Travel expenses and mileage will be reimbursed in line with organisational policy.
Person Specification
Essential
- Confident, outgoing and comfortable starting conversations with new people in professional and community settings.
- Experience of outreach, community engagement, advice, advocacy, support work or case coordination.
- Strong organisational skills and confidence managing follow-up, coordination and documentation.
- Comfortable using forms, spreadsheets, databases or case-recording systems and completing paperwork accurately.
- Familiarity with equipment, adaptations or practical support issues affecting disabled people.
- Ability to identify needs and know when to seek support, connect someone to lived-experience expertise, or refer on.
- Strong communication skills and a sensitive, respectful approach with service users, families and professionals.
- Ability to work independently while remaining well connected to a small team.
- Able and willing to travel regularly across England, including occasional overnight stays.
- Access to and use of a car for work purposes.
- Commitment to inclusion, dignity and user-led practice.
Desirable
- Experience of working alongside people with lived experience to co-produce support or resources.
- Experience of gathering feedback or supporting service evaluation.
- Knowledge of health or social care systems.
- Personal or close lived experience of disability or long-term conditions.
We are aiming to recruit immediately for this role with the first round of interviews on 1st June, but will conduct further interviews if necessary until we identify a suitable candidate.
Please identify how you meet the person specification in your cover letter
This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
- Initiate contact with newly registered families within agreed timeframes (email within 3 working days, call within 7–10 working days)
- Contact to be made to all registered Action Duchenne members, knows to us in Scotland, to ensure the current support offer is clear
- Provide ongoing support tailored to individual needs, including emotional wellbeing, physical health, housing, financial security, self-esteem and respect, decision-making, social engagement, quality of life, and access to care
- Use the Action Duchenne Assessment Form and Action Plan to identify and respond to areas of concern
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



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