Parkinsons Uk Jobs in Aylesbury, Buckinghamshire

About the role 

You'll lead and coordinate our local campaigning work across the North East of England. Your work will help the charity improve the lives of people with Parkinson’s and those who care for them. 

You'll listen to the needs of our local communities to inform your campaign work, and empower them to make change where they live. You’ll work with colleagues across Parkinson’s UK to deliver political campaigns and meaningful advocacy for our community.  Through your campaigns you will ensure that the voices of people with Parkinson’s, their families and carers are heard.

What you'll do 

• Recruit and manage a sustainable network of local campaign volunteers.

• Be a first point of contact for supporters and campaign volunteers who want to improve services in their local communities.

• Provide expert advice and support to colleagues and campaign volunteers on how best to challenge and influence decision makers.

• Build close working relationships with our field staff and our local networks. 

• Use our national campaign priorities to deliver related local campaign activity.

What you'll bring 

• Experience of campaigning and an understanding of the basic tools and techniques used in campaigning.

• Experience of working with volunteers and people with lived experience of a cause including how best to support them to achieve their campaigning goals.

• Experience in organising events.

• Ability to network and build supportive relationships with volunteers, MPs and health bodies.

• Experience of delivering training to volunteers and staff.

• Ability to work flexibly, sometimes evenings or weekends.

• Ability to manage and prioritise a diverse portfolio of work.

This is an exciting time for Parkinson’s UK and we would love you to join us!

Please note: supporting statements must fully demonstrate how you meet all the essential criteria of the role ("What you'll bring").

The successful candidate will also be required to provide their own broadband service with a minimum download speed of 2Mb. 

Anyone can get Parkinson’s. It’s vital that the people who work for Parkinson’s UK are representative of our diverse community. We actively encourage people from all sections of the community to apply, regardless of race, ethnicity, gender identity, age, disability, sexual orientation, or religion.

Job specification
Post title: European Outreach and Engagement Manager
Location: Remote working (but note that occasional travel – to attend team meetings in the UK and other ad hoc meetings/conferences – is required)
Salary: £33,000 to £37,000 FTE, depending on experience (£20,000 to £22,500 for 3 days)
Part time: 3 days a week (24 hours per week)
Contract: This is a permanent role
Responsible to: Strategy Director
Deadline for applications: Friday 11 October 2024

Job description
Main purpose of role
We are looking for a professional with at least 5 years’ experience in membership management, stakeholder engagement and events to lead our outreach and engagement activities for the Parkinson’s community across Europe.

Key tasks

• Strategic membership activities including:
  • Management of the Parkinson’s Europe Membership Steering Group
  • Leading Parkinson’s Europe membership recruitment and diversification
  • Reviewing and expanding Parkinson’s Europe membership benefits
  • Leading the development, delivery and analysis of the biannual Parkinson’s Europe members survey
  • Supporting the Parkinson’s Europe Member Liaison Lead with membership communications
• Outreach and engagement activities including:
  • Partnership support activities with relevant NGOs and institutions – for example, European Federation of Neurological Associations (EFNA), The European Patients’ Academy on Therapeutic Innovation (EUPATI), and the European Patients’ Forum (EPF)
  • Engagement with other associations related to Parkinson’s that do not currently fit in our formal membership
  • Supporting the second phase development of Parkinson’s Europe’s newly launched Engagement Network
• Development of a new knowledge building programme for Parkinson’s Europe Member Organisations (which is a key feature of our new strategy for 2025 and beyond). This will involve:
  • Identification of members’ needs and priorities
  • Planning and delivering a structured programme of webinars, workshops and resources to support the identified needs and priorities. This will include:
    • Identifying and building relationships with speakers and facilitators with the help of the Parkinson’s Europe team
    • Identifying existing resources to help deliver the programme
    • Leading the development of new resources and tools for members
• Event management
  • Lead the development and delivery of a biannual Parkinson’s European Forum
  • Plan and lead the twice-yearly members meeting
  • Support the Director General and Board Secretary at the AGM as required
• Supervision of the Member Liaison Lead

Person specification

• Interest in the issues that impact people affected by Parkinson’s
• Membership management experience
• Project management experience as well as line management experience
• Experience of organising and running events
• An excellent communicator, and able to build and maintain effective relationships with a wide range of stakeholders from different countries including patient groups, patients, health professionals, caregivers and volunteers
• Team player and self motivated, and able to work autonomously with minimal supervision
• Excellent communications and IT skills with strong attention to detail
• Excellent command of the English language and ideally an additional European language

At Parkinson’s Europe, we strongly believe in – and take seriously – our responsibility to nurture and support as inclusive and diverse environment for our team as possible in order to empower everyone working with us to grow, develop and thrive both personally and professionally. 

Parkinson’s Europe is an equal opportunities employer, and we respect and honour all of our team’s unique characteristics. We also welcome applications from those who are returning from career breaks, maternity leave and/or caring responsibilities. And we are always open to hearing feedback from our team and others about how we can be the most supportive and inclusive employers possible.