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Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
We are entering a period of unprecedented opportunity. Advances in treatment, increasing recognition of the condition, and growing awareness of healthcare inequalities provide a unique chance to strengthen our impact and expand our reach across the UK. Our ambition is bold: to engage and support at least 50% of the UK myasthenia community as members within the next five years, creating a movement that is representative, influential and impossible to ignore.
The successful candidate will lead the development of a thriving national community of people affected by myasthenia, ensuring that individuals and families feel connected, represented and empowered. They will transform community insight into meaningful campaigns, influence policy and healthcare decision-making, and position myaware as the authoritative voice for everyone affected by the condition.
Success in this role will be measured not only by influence and campaigning outcomes, but by the growth, engagement and mobilisation of our community. The Director will play a central role in delivering our ambition to reach, engage and retain 50% of the UK's myasthenia population as members and active supporters within five years, creating a change-maker movement that is representative of our goals.
Key Responsibilities
Community Growth and Engagement
Campaigning, Policy and Influence
Organisational Leadership
Awareness and Public Engagement
What Success Looks Like
Within five years, the postholder will have:
Person Specification
Essential Experience
Essential Knowledge and Skills
Personal Attributes
We are looking for someone who is:
Why Join Us?
myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
This is a rare opportunity to build a community movement capable of transforming lives. You will lead the growth of a national membership community, shape policy and healthcare conversations, and help ensure that every person affected by myasthenia feels informed, supported, represented and connected.
Together, we aim to ensure that within five years, at least half of everyone living with myasthenia in the UK knows, trusts and actively engages with myaware as their community, their advocate and their voice.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor.
myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Application instructions
Candidates should submit their CV and tailored covering letter by: 11:30pm on Friday.4th September
Provisional interview dates will be week commencing: 28.9.26
Interviews will be held over Microsoft Teams.
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
About Thrombosis UK
Thrombosis UK is the UK’s leading thrombosis charity, working to improve awareness, prevention and support for people affected by blood clots.
As part of our new organisational strategy, we are launching a major programme focused on raising awareness of blood clot (VTE) risk during pregnancy and the postpartum period. This programme will combine public awareness, healthcare professional engagement, patient advocacy and policy influence to improve understanding, encourage earlier action and contribute to longer-term system change.
We are seeking an experienced freelance communications professional to work alongside our team to help shape and deliver this programme.
The opportunity
This is not a traditional PR brief. We are looking for someone who can think strategically while also delivering practical communications activity across multiple channels.
The consultant will work alongside Thrombosis UK staff who already deliver digital communications, social media, volunteer engagement and patient support. The role is to provide strategic communications expertise, lead specialist campaign activity and build the team's capacity, rather than replace existing internal functions.
The successful consultant will help us develop and implement an integrated campaign that includes:
· Public awareness campaigns
· Media relations and press activity
· Digital communications and content planning
· Website content and user journeys
· Stakeholder communications
· Support for public affairs and parliamentary engagement
· Campaign evaluation and learning
The consultant will work closely with our Chief Executive and wider team, bringing specialist campaign expertise that complements our existing clinical knowledge and patient support work.
Please send:
• A short statement outlining your relevant experience
• Proposal that outlines how you would approach the work including budget plans
• Examples of similar campaigns or projects
• Your availability (we are keen to start and will be reviewing applications on a rolling basis)
• Evidence of liability insurance and any professional association memberships
Who we are
IPSEA (Independent Provider of Special Education Advice) is a national charity working to ensure that children and young people with special educational needs and disabilities (SEND) receive the educational support they are legally entitled to. Since we were formed in 1983, we have helped to improve the education experience of thousands of children and young people across England. We do this by providing free and independent legal advice and casework support for families, undertaking policy work and delivering training on the SEND legal framework.
What you’ll do
Reports to: Chief Executive
Location: Home-based or Hybrid (with frequent travel for events and meeting with parliamentarians and other stakeholders)
We are seeking a Policy Manager to lead IPSEA's policy and influencing work to achieve positive change for children and young people with special educational needs and disabilities (SEND) and their families. Working closely with the Chief Executive, Head of Legal and Training, trustees and colleagues across the organisation, you will set strategic policy priorities and develop evidence-based influencing plans that support IPSEA's mission and long-term objectives.
Drawing on insights from our advice and tribunal services, legal expertise and the experiences of families, you will identify systemic issues within the SEND system and develop policy solutions that improve children and young people's access to the support and education to which they are entitled. You will ensure that IPSEA's policy positions are credible, legally robust and informed by the lived experiences of those we support.
You will lead IPSEA's engagement with government, Parliament and other key decision-makers, identifying opportunities to influence legislation, policy and practice at both national and local level. This includes overseeing responses to consultations, parliamentary inquiries and calls for evidence, as well as preparing briefings and strategic advice to support senior-level engagement and advocacy.
Working collaboratively with colleagues across legal, communications, fundraising and training teams, you will ensure IPSEA's policy, campaigning and public affairs activities are aligned and maximise the organisation's impact. You will also monitor developments across the political, legal and policy landscape, helping IPSEA respond proactively to emerging opportunities and challenges affecting the rights of children and young people with SEND.
This role offers the opportunity to make a real difference as part of a small, friendly, and dedicated team. If you are passionate about helping children and young people with SEND and have the skills and experience needed, we would love to hear from you.
Who are we looking for?
You will have significant experience in a senior policy and campaigning/public affairs role and have good knowledge of local and national government structure including the legislative process.
You the ability to build and maintain relationships with a range of stakeholders including MPs, civil servants, campaigners and parents. You exhibit tact and diplomacy and can be impactful with people of varying levels and experience.
Your research and critical thinking skills enable you to analyse policy and data to produce relevant reports and position papers. You have experience of drafting organisation responses to government consultations and parliamentary calls for evidence.
IPSEA should also reflect the communities we support. We would particularly like to hear from candidates from ethnic minority backgrounds, LGBTQIA+ people, under-served communities and disabled people, as well as those with lived experience of the SEND system, either as a child or as a parent/carer.
What we can offer you
To apply
Visit our website to download a recruitment pack and application form.
Deadline for applications: 9am on 7 September 2026.
First-round interviews: on 15 September 2026 in our offices in Takeley, Essex, with second-round interviews (online) on 18 September 2026.
NO AGENCIES PLEASE.
We help children and young people with special educational needs and disabilities (SEND) get the education they are entitled to by law


The client requests no contact from agencies or media sales.
Are you interested in improving the lives of people with a learning disability? Can you turn complex ideas into evidence-based policy? Are you a skilled communicator able to influence decision-makers? If so, we would love to hear from you!
We are currently looking for a Policy Specialist to join Mencap. This position sits within the Policy and Public Affairs teams of Mencap’s Campaigns, Advocacy and Activism Directorate (CAA). You will work closely with our influencing, information and advice, campaigning, and research work, as well as sector partners.
This is an exciting new role to deliver policy change and enhance the rights of people with a learning disability. At a key time to influence health reform, we are seeking a policy specialist to shape policy work that reflects the needs and experiences of people with a learning disability and their families. Working within the policy team, you will be responsible for developing evidence-based policy work and influencing decision-makers.
This is a 4-day a week position (30 hours per week). We are flexible with your work location, but there may be some occasional travel needed to our London office or Westminster.
You will:
You will bring to this role:
If you're passionate about driving meaningful change for people with a learning disability and you're ready to use your policy expertise to make a real impact, please apply now with an up-to-date CV. Applications close on Tuesday 1st September, 2026. Interviews are scheduled to take place via Microsoft Teams during the week commencing 7th September 2026.
Benefits
Here at Mencap, we offer an impressive range of benefits designed to support and reward our employees to ensure that our teams feel valued and appreciated.
Our benefits package offers 32 days of paid holiday (including bank holidays, pro rata), along with a range of perks such as discounts at leading high-street retailers, access to health cash plans, interest-free loans, and many more exciting offerings.
For more details on what we have to offer, please see the attached document outlining all the fantastic benefits available to you as a member of our team!
About Mencap
Our vision is for the UK to be the best place in the world for people with a learning disability to live happy and healthy lives.
We're here to support people with a learning disability, their families and their carers. We fight for a kinder, fairer and more inclusive society for people with a learning disability to live in.
At Mencap, everyone works with people with a learning disability either providing support or advice, or alongside one another as colleagues.
Belonging at Mencap is for everyone, every day, everywhere.
· Everyone is expected to treat people well and make Mencap an inclusive organisation.
· Every day we grow and learn. It’s okay to make mistakes but we learn from them and make changes
· Everywhere people will feel respected, valued, and safe to be themselves.
We have Belonging network groups that meet online and are open to all colleagues. The groups include people who identify as Black and Asian, LGBTQIA+, disabled or with a long- term health condition, women, parents and carers, and their allies.
We want to encourage everyone to apply to work at Mencap and we offer a variety of different contract types and working patterns. We’re not looking for specific experience. It is your personality and values that will make you a great colleague. We will train and develop you to succeed in the role you’re applying for.
Empower individuals with learning disabilities and autism to reach their full potential and lead the lives they choose.