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Who we are
IPSEA (Independent Provider of Special Education Advice) is a national charity working to ensure that children and young people with special educational needs and disabilities (SEND) receive the educational support they are legally entitled to. Since we were formed in 1983, we have helped to improve the education experience of thousands of children and young people across England. We do this by providing free and independent legal advice and casework support for families, undertaking policy work and delivering training on the SEND legal framework.
What you’ll do
Reports to: Chief Executive
Location: Home-based or Hybrid (with frequent travel for events and meeting with parliamentarians and other stakeholders)
We are seeking a Policy Manager to lead IPSEA's policy and influencing work to achieve positive change for children and young people with special educational needs and disabilities (SEND) and their families. Working closely with the Chief Executive, Head of Legal and Training, trustees and colleagues across the organisation, you will set strategic policy priorities and develop evidence-based influencing plans that support IPSEA's mission and long-term objectives.
Drawing on insights from our advice and tribunal services, legal expertise and the experiences of families, you will identify systemic issues within the SEND system and develop policy solutions that improve children and young people's access to the support and education to which they are entitled. You will ensure that IPSEA's policy positions are credible, legally robust and informed by the lived experiences of those we support.
You will lead IPSEA's engagement with government, Parliament and other key decision-makers, identifying opportunities to influence legislation, policy and practice at both national and local level. This includes overseeing responses to consultations, parliamentary inquiries and calls for evidence, as well as preparing briefings and strategic advice to support senior-level engagement and advocacy.
Working collaboratively with colleagues across legal, communications, fundraising and training teams, you will ensure IPSEA's policy, campaigning and public affairs activities are aligned and maximise the organisation's impact. You will also monitor developments across the political, legal and policy landscape, helping IPSEA respond proactively to emerging opportunities and challenges affecting the rights of children and young people with SEND.
This role offers the opportunity to make a real difference as part of a small, friendly, and dedicated team. If you are passionate about helping children and young people with SEND and have the skills and experience needed, we would love to hear from you.
Who are we looking for?
You will have significant experience in a senior policy and campaigning/public affairs role and have good knowledge of local and national government structure including the legislative process.
You the ability to build and maintain relationships with a range of stakeholders including MPs, civil servants, campaigners and parents. You exhibit tact and diplomacy and can be impactful with people of varying levels and experience.
Your research and critical thinking skills enable you to analyse policy and data to produce relevant reports and position papers. You have experience of drafting organisation responses to government consultations and parliamentary calls for evidence.
IPSEA should also reflect the communities we support. We would particularly like to hear from candidates from ethnic minority backgrounds, LGBTQIA+ people, under-served communities and disabled people, as well as those with lived experience of the SEND system, either as a child or as a parent/carer.
What we can offer you
- 5% employer pension contributions
- Healthcare cash plan
- Flexible working arrangements
- 25 days annual leave plus bank holidays plus an additional day off for your birthday (pro-rata if part-time).
To apply
Visit our website to download a recruitment pack and application form.
Deadline for applications: 9am on 7 September 2026.
First-round interviews: on 15 September 2026 in our offices in Takeley, Essex, with second-round interviews (online) on 18 September 2026.
NO AGENCIES PLEASE.
We help children and young people with special educational needs and disabilities (SEND) get the education they are entitled to by law


The client requests no contact from agencies or media sales.
Citizens UK
Citizens UK is the UK’s biggest, most diverse and most effective people-powered alliance. We bring communities and local organisations together to work on issues that matter; from campaigning for zebra crossings on dangerous roads, to reforming the immigration system, to the Living Wage campaign. We have a track record of winning change through hundreds of local and national campaigns. We know everyday people have the ability to shape the world around them. We believe that through developing local leaders, we can drive nationwide change and create community-led solutions to big and small problems.
Living Wage Foundation
The Living Wage movement began in 2001, after Citizens UK brought together communities in East London to discuss poverty and low pay. The campaign grew in momentum and soon required a mechanism to recognise employers who wanted to join the movement, which saw the establishment of the Living Wage Foundation in 2011.
Still part of Citizens UK today, the Living Wage Foundation continues to work with community organisations to make sure the voices of both workers and businesses are part of the Living Wage movement. We now work with over 16,000 employers, benefitting over 475,000 people and winning over £3bn of better wages for people who need it most.
Citizens UK works with a broad base of institutions across the political spectrum. At the Living Wage Foundation, we take the same deliberately broad-based approach and accredit all organisations who pay the real Living Wage to their directly and indirectly employed staff and are committed to tackling in work poverty. As a team we work across a range of industries and sectors to achieve this mission. We seek pragmatic coalitions in order to progress specific campaigns, and partnership around a particular issue such as Living Wage, does not imply an endorsement of broader purpose and policies.
Purpose
At Citizens UK, our organisers and project staff work within communities to develop leaders, strengthen organisations, campaign for change and organise across difference. There are various project roles and operational, communication, finance and HR roles that support the organisation and project staff and organisers to deliver on this mission and work. This work is rewarding and can be challenging; it requires a personal commitment to inclusion, a willingness to listen and disagree respectfully, and an interest in working in an organisation where our staff, member institutions and leaders will come from a diversity of backgrounds and often hold views that may be very different from our own. More information about how we operate within this context and build trusted relationships across difference can be found on our website and is covered in induction. Onboarding and navigating this relational culture, and type of work, is supported by line managers and further training.
Main Responsibilities
We are looking for highly motivated and organised individual to coordinate our accreditation scheme. The role will work with our network of employers, and support new organisations through the accreditation process.
The Programme Officer will lead our work across the South West and support our managers to grow and deepen engagement with Living Wage Employers through our associated schemes. You will help to ensure our resources and publicity materials are well written and up-to-date, and to coordinate events to grow our employer network.
Working as the Programme Officer for Citizens UK, reporting to a Programme Manager, your main responsibilities will include:
Contribute towards the achievement of CUK and LWF’s strategic objectives
Understand how the role contributes to LWF’s purpose and the core mission of CUK
Reliably implement CUK’s and LWF’s policies, procedures, and values in own work
Work with CUK community organisers and leaders to promote civic engagement with and ownership of the Living Wage campaign
Feed into the LWF strategy and objectives development
Living Wage Accreditation
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Support key contacts at potential LW Employers through the accreditation process, from dealing with initial enquiries to guiding them through the employer journey, to checking and processing their accreditation
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Develop rewarding relationships with key employers, industry, and campaign partners within our networks to build interest in the Living Wage and deliver a high-quality experience to our accredited employers
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With support from the wider team, develop plans and strategies to grow the number of accreditations in specific regions or industries
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Collate and disseminate Living Wage criteria and policy issues through both internal and external facing guidance, whilst reviewing and monitoring its suitability
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Support the development and implementation of projects to promote and grow Living Wage accreditations and develop the quality of service offered
Build and manage projects and achieve work targets effectively
Successfully progress projects and tasks incl. tracking performance and expenditure
Deliver agreed areas of the LWF’s work plan and leading on agenda items to report into team meetings.
Support the growth and development of new and existing Living Wage schemes incl. Recognised Service Providers, LW Funders, LW Places, Living Hours, Global Living Wage and Living Work Consultancy
Deliver personal work targets on time and to standard:
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Respond to telephone and web-based enquiries by providing advice and support to employers and supporters
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Provide administrative support for all aspects of the accreditation journey, incl. processing accreditations, recognitions, and renewals
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Maintain LWF data on systems, incl. Salesforce employer database
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Support the maintenance of our systems to ensure efficient processes and develop reporting mechanisms for effective monitoring and evaluation of our impact and progress against plans
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Coordinate and administrate Steering, Advisory or Leadership Groups as required, incl. coordinating agendas, sending out timely papers, taking minutes and following up on actions
Learning & expertise
Keep abreast of new developments in the accreditation space
Apply new learning to work and respond effectively to feedback
Work collaboratively with the LWF and franchise teams to share learnings and experience and ensure that we are meeting the expectations of our network and stakeholders
Develop and manage external relationships
Effectively develop and support a range of external relationships
Respond effectively to queries or requests from stakeholders
Engage with a diverse range of external stakeholders to support and develop projects as required
Communications
Communicate effectively within the LWF; ensuring that messages are reliably passed to those who need to know
Represent the LWF coherently in writing and verbally
Events and Communications
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Plan and organise events to celebrate and grow our network of LW Employers, incl. playing an active role in the delivery of LW Week and assisting colleagues with event logistics
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Represent and speak on behalf of the LWF at internal and external meetings and events
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Develop or feed into employer resources incl. marketing materials, blogs, reports, templates, and guides
Develop and manage internal relationships
Work effectively with colleagues across Citizens UK
Work collaboratively within the LWF team and actively participate in the team to ensure we meet the expectations of our network and stakeholders
Generate income and resources
Contribute to plans and proposals to grow sources of income/resource.
Take personal responsibility for the careful stewardship of LWF’s resources
Personal Specification
(D) Desirable, (E) Essential
Qualifications
Bachelor’s degree in any subject (D)
Subject of relevance to community work or community organising (D)
Experience
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Comprehensive experience in an administrative role (E)
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Experience of building positive relationships (E)
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Experience of managing and updating Salesforce or similar databases (D)
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Experience of delivering a range of high quality communications materials, including websites, reports, newsletters (D)
Key skills and knowledge
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Excellent time management skills with the ability to juggle a wide range of competing demands (E)
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Understanding of database and systems management (E)
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Ability to take in and interpret information and present in a succinct manner(E)
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Excellent communication skills, both verbally and written, combined with the ability to liaise with senior stakeholders, both online and in-person (E)
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Ability to act on own initiative to introduce and develop new systems as appropriate (E)
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Strong attention to detail (E)
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Strong IT skills to include MS Office and database software (E)
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Understanding of the policy and campaign landscape in the UK (D)
Personal qualities & values
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A proactive approach to all areas of work with a ‘can do’ attitude and a flexible approach to work demands (E)
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A strong commitment to the Living Wage campaign and principles of Citizens UK (E)
About the application process
We work within diverse communities bringing people together. In line with our Inclusion value, we would love to see applications from LGBTQIA+ people, people from racialised communities, people living with disabilities and people of faith, all to better represent the communities we work in. We want our employees to have the working conditions that allows them to fully participate, be able to be their best authentic selves and thrive doing so, and we have employee networks to support staff. Even if you don’t quite meet all the required criteria still consider applying, as we invest in our employees and support them to develop the skills and knowledge required to deliver their role.
For questions and reasonable adjustments regarding your application including information in a different format, or our recruitment process, please email us.
Interviews will be in person in the South West region, week commencing 28th September 2026.
We’re the movement at the heart of fairer, better work. Fair pay, secure hours & enough to live on in retirement.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
We are entering a period of unprecedented opportunity. Advances in treatment, increasing recognition of the condition, and growing awareness of healthcare inequalities provide a unique chance to strengthen our impact and expand our reach across the UK. Our ambition is bold: to engage and support at least 50% of the UK myasthenia community as members within the next five years, creating a movement that is representative, influential and impossible to ignore.
The successful candidate will lead the development of a thriving national community of people affected by myasthenia, ensuring that individuals and families feel connected, represented and empowered. They will transform community insight into meaningful campaigns, influence policy and healthcare decision-making, and position myaware as the authoritative voice for everyone affected by the condition.
Success in this role will be measured not only by influence and campaigning outcomes, but by the growth, engagement and mobilisation of our community. The Director will play a central role in delivering our ambition to reach, engage and retain 50% of the UK's myasthenia population as members and active supporters within five years, creating a change-maker movement that is representative of our goals.
Key Responsibilities
Community Growth and Engagement
- Contribute towards the development and delivery of a comprehensive membership growth strategy aimed at engaging at least 50% of the UK myasthenia community within five years.
- Build a deep understanding of the patient journey and identify opportunities to connect with people from diagnosis onwards.
- Lead the development of services, programmes and engagement approaches that increase membership recruitment, retention and participation.
- Ensure that people affected by myasthenia are at the heart of all organisational decisions, campaigns and strategic priorities.
- Create pathways for members, volunteers, supporters and ambassadors to actively contribute to myaware's work.
- Use data, insight and market intelligence to measure community reach, identify underserved groups and drive continuous improvement.
Campaigning, Policy and Influence
- Develop and implement a national campaigning and influencing strategy focused on awareness, equity of care, access to treatment and service improvement.
- Position myaware as a leading voice within healthcare, policy and rare disease discussions across the UK.
- Build strategic relationships with parliamentarians, government departments, NHS organisations, Integrated Care Boards, NICE, clinicians, researchers, industry partners and allied charities.
- Lead public affairs activity, including consultation responses, parliamentary engagement, policy briefings and stakeholder events.
- Ensure lived experience evidence informs policy development, healthcare decision-making and treatment access discussions.
Organisational Leadership
- Serve as a member of the Senior Leadership Team and contribute to organisational strategy and performance.
- Foster a culture of innovation, inclusion, collaboration and measurable impact.
- Work closely with fundraising, communications, partnerships, and service delivery colleagues to maximise organisational reach and effectiveness.
Awareness and Public Engagement
- Increase awareness and understanding of myasthenia among healthcare professionals, policymakers, media and the public.
- Lead initiatives that strengthen myaware's visibility, reputation and influence.
- Support the development of compelling campaigns, media activity and storytelling that inspire engagement and drive action.
- To be the spokesperson for myaware.
What Success Looks Like
Within five years, the postholder will have:
- Led significant growth in membership, progressing towards engaging at least 50% of the UK's myasthenia community.
- Increased participation in surveys, campaigns, events, volunteering and lived-experience activities.
- Established myaware as the recognised national voice for people affected by myasthenia.
- Secured meaningful influence in policy, healthcare and treatment access discussions.
- Generated evidence of improvements in awareness, service delivery, treatment access and patient representation.
- Built a highly engaged and empowered community capable of driving change at local, national and system levels.
Person Specification
Essential Experience
- Significant senior leadership experience within the charity, healthcare, membership, public affairs or advocacy sectors.
- Proven success in growing and engaging communities, memberships, movements or supporter bases at scale.
- Experience developing and delivering campaigning, influencing or public affairs strategies that have achieved measurable outcomes.
- Strong track record of building relationships with senior external stakeholders and decision-makers.
- Experience using data, insight and lived experience to shape organisational priorities and influence strategy.
- Experience leading, motivating and developing high-performing teams.
Essential Knowledge and Skills
- Outstanding strategic thinking and leadership abilities.
- Exceptional communication, influencing and relationship-building skills.
- Strong understanding of community mobilisation, supporter engagement and membership growth.
- Ability to translate complex healthcare and policy issues into compelling public narratives and calls to action.
- Strong analytical and performance management skills.
- Commitment to inclusion, co-production and patient-centred approaches.
Personal Attributes
We are looking for someone who is:
- Ambitious about building one of the UK's most engaged rare disease communities.
- Passionate about amplifying the voices of people with lived experience.
- Collaborative and inspiring.
- Politically astute and credible with senior stakeholders.
- Resilient, innovative and outcomes focused.
- Motivated by creating lasting change for people living with long-term health conditions.
Why Join Us?
myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
This is a rare opportunity to build a community movement capable of transforming lives. You will lead the growth of a national membership community, shape policy and healthcare conversations, and help ensure that every person affected by myasthenia feels informed, supported, represented and connected.
Together, we aim to ensure that within five years, at least half of everyone living with myasthenia in the UK knows, trusts and actively engages with myaware as their community, their advocate and their voice.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist benefits and welfare advisor.
myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
- Generous holiday allowance
- Perkbox account (global benefits and rewards platform)
- Group Life Assurance after 6 months of service
- NEST workplace pension scheme
- Free inhouse staff benefits and welfare advice
- Investment in your personal and professional development
- Annual salary review
Application instructions
Candidates should submit their CV and tailored covering letter by: 11:30pm on Friday.4th September
Provisional interview dates will be week commencing: 28.9.26
Interviews will be held over Microsoft Teams.
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
The client requests no contact from agencies or media sales.