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We are working in partnership with Dravet Syndrome UK (DSUK) a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. The charity was founded in October 2008 by a small group of 30 families. Today, DSUK is a registered charity helping nearly 600 families with support, education, and research services, underpinned by a world-class Medical Advisory Board.
They are now seeking a Head of Family Services, a newly created senior role to enable DSUK to drive forward with the implementation of their five-year strategic plan, including supporting and empowering families to access the support to which they are entitled in living with a complex and life limiting condition.
This is an exciting opportunity to join a growing organisation and help guide the next stage of their development, enabling them to make a positive difference in the lives of more people affected by Dravet Syndrome in the UK.
The successful candidate will demonstrate the following essential criteria:
- Demonstrable ability to interpret and use current legislation and guidance to protect and/or advance people's rights and entitlements
- Exceptional interpersonal and relationship-building skills, with the confidence and ability to engage effectively with families, healthcare professionals, social workers and other stakeholders
- Excellent communication skills, including the ability to articulate complex issues clearly and persuasively in written and verbal formats.
- Proven ability to provide high quality professional supervision (reflective practice) to qualified and unqualified staff, in order to maximise personal effectiveness and professional development
- Excellent organisational and teamworking skills to be able work remotely, manage and prioritise a varied caseload and delegate effectively
The successful candidate will be compassionate, skilled, hands-on and collaborative with significant experience of a working environment involving families with disability and/or complex needs (e.g. social care, health care, special needs education, disability law and/or family support in a similar organisation). You will have good working knowledge of disability law and other relevant statutory and regulatory frameworks, relevant organisations and agencies involved, and experience of an appropriate range of professional interventions. You will have demonstrable expertise and advanced training all aspects of safeguarding for children and vulnerable adults. You have proven leadership skills with the ability to motivate and support colleagues towards achieving shared goals.
Please note: As part of DS UK’s commitment to safeguarding, the postholder is expected to undertake an enhanced DBS check.
For more information, please contact Sandra Smith, Charisma Charity Recruitment. Applications should be submitted through the Charisma website and include your CV and supporting statement.
We welcome and encourage applications from people of all backgrounds. We do not discriminate on the basis of disability, race, colour, ethnicity, gender, religion, sexual orientation, age, veteran status or other category protected by law.
Location: Fully Remote, with monthly travel across the UK
Closing date: 9 November 2025
Charisma vetting interviews to be completed by 12 November 2025
Thank you!
About the opportunity
As Head of Impact & Quality, you’ll lead the department that covers impact measurement, evaluation of our programmes, data management, curriculum development, training and quality of tutors and other initiatives that drive the evidence-based culture of Action Tutoring. With a strong understanding of the charity's theory of change, you’ll strengthen existing impact and quality processes and make strategic recommendations that develop these further. You’ll play a vital role in helping the Senior Management Team balance quality and quantity with sustainable business decisions. As well as leading the department, you’ll build external networks and represent the charity externally at relevant events, in person and online. As Action Tutoring begins planning for a new strategic cycle, you’ll design, evaluate and advise on the scale up of pilots in new ways of achieving our mission.
Closing date: Monday, 27th October 2025 at 9am
Interviews:Monday, 3 and Tuesday, 4 November 2025. There may be a second round of interviews.
Start date: Ideally Monday, 1st December 2025
Contract and hours: Permanent. Full time. We offer flexible hours with 9.30-4 as core hours. A full working week is 37.5 hours. We are open to 0.8 or 0.9 FTE for the right candidate.
Place of work:This role can be remote, with occasional travel required. Our London office address is: 8-10, Fivefields, Grosvenor Gardens, London SW1W 0DH
Duties and responsibilities
People and Cultural Leadership
- You’ll manage the workload distribution across the Impact & Quality department functions and teams, ensuring that projects are delivered according to strategic priorities.
- You’ll line-manage a small team of managers who have responsibilities for curriculum, training, quality, insights and data management activities across the department.
Strategic and Senior Management
- You’ll contribute to Senior Management Team discussions and decisions, representing the impact and quality functions, ensuring all decisions consider the implications on our evidence base, protecting the drivers of impact and maintaining our reputation as a sector-leading impact organisation.
Impact and quality oversight
- Leadership and oversight to ensure continued smooth implementation of a Randomised Control Trial lasting the first 6-9 months of this role.
- You’ll be accountable for the development and implementation of the Impact Strategy of the organisation.
A full list of duties and responsibilities can be found in the job description attached to the BreatheHR advert.
Person specification
Qualifications criteria:
- The right to work in the UK.
- University degree or equivalent experience in a relevant field of quantitative or social research.
We are looking for some of the following attributes, though you might be more experienced in some areas than others:
- Excellent project management and project sponsor skills and experience, able to juggle multiple complex projects that are cross-organisational and manage external stakeholders.
- Able to manage other experts and get the best from them drawing from an interdisciplinary approach to your work.
- Enjoys leading a team, supporting development of manager skills and capabilities.
- Understands how a theory of change drives the development of delivery and is able to apply this to new modes of operations.
- Strong logical reasoning, able to break processes into logical steps and understands how to maintain excellent data management practices.
- A confident user of databases able to utilise the data it holds to generate insights for the SMT. Champion good data governance in collaboration with the Data Manager.
- Experience of Salesforce CRM would be desirable but not essential.
- Very familiar with the principles of evaluation and how to design evaluations to produce meaningful and reliable insights. This includes qualitative and quantitative activities.
- Experience of working with external partners to evaluate work. Experience of developing pilots or start-up scale organisations would be desirable but is not essential.
- Strong numerical skills, able to conduct diagnostic and predictive analysis of quantitative data sets.
- Strong written communication and research skills, able to produce clear and jargon-free reports and summaries that synthesise qualitative trends.
- Strong change management skills and experience, ensuring innovations are launched and embedded successfully.
- Able to plan at a strategic level, factoring in external environment trends, financial limitations and scalable solutions.
- In addition, the job holder is expected to substantially demonstrate the four competencies in our competencies framework at the ‘Head of ‘Level.
You will be likely be more successful in this role if you have:
- Experience working in the charity sector.
Registered Charity
51 - 100
Award-winning national education charity working towards a world in which no child’s life chances are limited by their socio-economic background.
