Patient Advocacy And Policy Officer Jobs in Lancaster, Lancashire
About you
Do you want to use your skills to make a real difference to the myeloma community?
We’re looking for a talented and enthusiastic Scientific Knowledge and Communications Officer who has a passion for delivering high quality scientific information to a range of different audiences. You’ll have excellent written and verbal communication skills with the ability to make complex information engaging and accessible. You’ll require strong organisational skills and the ability to prioritise and manage your workload to meet strict deadlines.
About the role
This is an exciting time to join Myeloma UK as we launch our new five year strategy.
The post holder will be responsible for developing evidence led scientific communications that help engage new audiences as we aim to reach new people as part of our strategic goals. You will use your science communication expertise to bring our research and scientific information to life for a variety of audiences from people affected by myeloma to health care professionals as well as scientists and researchers.
You will support other teams across Myeloma UK by helping to develop engaging evidence led impactful communications that can be used for appeals, case for support and other activities. You’ll also work with our research and health care professional community to engage and involve them in our communications activities.
About us
Myeloma UK is the only organisation in the UK dealing exclusively with the blood cancer myeloma and related conditions. We are committed to bringing together the best and brightest people to help us ensure that every patient has an empowered present and a hopeful future.
Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every patient live well with myeloma for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change in care.
Our culture
Wellbeing and staff engagement are at the heart of our culture.
We offer flexible working and flexitime to allow you to find the right working pattern for you. We have a Staff Engagement Group who work with us to ensure staff are happy and who help us review and update our benefits. We offer an employee assistance program and our Wellbeing Leads are there always here to support our staff.
How to apply
If you think you would be a great fit for this role, get in touch and tell us more about yourself by sending us the following :
1. A cover letter telling us more about you and what you think makes you a good fit for this role
2. A CV that sets out your career history, with key responsibilities and achievements
Applications close on 20 May 2024 and interviews will be held w/c 27 May 2024. You may be asked to do a task prior to your interview.
Myeloma UK is an equal opportunities employer and always welcomes applications from suitably qualified and eligible candidates regardless of:
· sex,
· race,
· disability,
· age,
· sexual orientation,
· gender reassignment,
· religion or belief, marital status, or pregnancy and maternity.
Please note, you will be asked to provide evidence of your eligibility to work in the UK prior to interview selection.
The client requests no contact from agencies or media sales.
About us:
Action for M.E. is the only charity in the UK providing direct support including healthcare to children and adults with M.E.. We provide vital support services, campaign for change and invest in ground-breaking research to help put an end to the ignorance, injustice and neglect experienced by people with M.E.
Opportunity:
Having been paused to new referrals, Action for M.E.’s free, independent, Adults Advocacy service will soon be re-opening. It’s one of our range of free Support Services that work with adults, young people, and/or families living with M.E. We support colleagues across the team to take part in and share reflective practice, self-care, peer-support and training.
Our Adults Advocacy service offers non-statutory, single-issue, instructed advocacy for adults with a confirmed diagnosis of M.E. We encourage self-advocacy where possible, though many of our clients are too severely affected by M.E. to be able to take undertake this.
As an Adults Advocate, you will manage a caseload of clients, as well as inputting and contributing to the triage process along with your Advocacy colleagues. You will meet with clients by phone, email, Zoom and/or SMS; we can also facilitate communication by post if this is required. We are not able to offer home visits or face to face meetings.
What we can offer you:
We offer fully remote and flexible working with generous annual leave (30 days plus bank holidays, pro rata). The wellbeing of our staff is important to us, we offer a range of benefits to employees including (but not limited to) access to free counselling and voluntary wellbeing weekday sessions, examples of recent sessions include guided group meditations and a book club.
To view the full job description, download the job pack, and apply for this role, please visit our Recruitee site (please note that we only accept applications via Recruitee; any application sent directly to an Action for M.E. mailbox will not be considered).
Should you have any questions about the role, or require any reasonable adjustments to the recruitment process, please don’t hesitate to contact our recruitment team, details of how to do this are contained in the application pack, "how to apply" section.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as the applications come in. Don’t miss your opportunity, apply now!
The 5Rights Foundation is looking for a Research Officer to join our small and high impact team in fighting for a digital world that supports children and young people to flourish.
At 5Rights, we work with governments, policy-makers, technologists, and NGOs all over the world to advocate for one simple principle: the enormous potential of digital technology will only be realised when it is designed with children and young people in mind.
If you’re passionate about exploring emerging tech; if you’re enthusiastic about contributing to one of the most lively policy debates of our time; and if you’re committed to working on behalf of the one billion children who are online, we’d love to hear from you.
We are looking for someone organised, meticulous, creative and critical-minded to conduct ongoing practical research into the tech children are using, ensure our policy team understand how it works and impacts children, and gather the evidence to drive change.
Experience of providing research support in a policy environment and knowledge of technology policy, privacy, children’s rights or a related field would be desirable. Additional language skills such as French or Spanish is an advantage. We are offering remote working (with part-time co-working space access in London or Brussels) with employee contracts in the UK or Belgium; salary ranges from £22,400 – 24,900 or EUR 31,600 – 35,100 (for Belgium) depending on experience.
About 5Rights
5Rights Foundation exists to ensure a digital world that will serve children and young people today and for future generations.
We are a small team of senior professionals and experts delivering change in how the digital world works. We have shifted the narrative and the agenda through provocative comms campaigns (e.g. Twisted Toys), pioneering research (e.g. Pathways) and award-winning tools (e.g. Child Online Safety Toolkit). We continue to drive real-life change thanks to an outstanding track-record of delivering legislation (e.g. Californian Age Appropriate Design Code), policy and regulatory frameworks (e.g. UNCRC General comment No. 25), and industry standards (e.g. IEEE 2089).
Key responsibilities
Reporting to the Head of Compliance, you will:
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Be the expert in the room! Make sure 5Rights knows what it needs to know, and be confident in holding us and those in our network to the evidence.
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Conduct thorough and organised research, including rapid evidence assessments, report summaries, and deep-dives into emerging technologies.
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Conduct consultation and exchange sessions with young people from around the world as part of our Youth Engagement Programme, learning about their experience and helping them understand how tech works.
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Liaise with technologists and experts around the world, exchanging knowledge and staying up to date on the latest developments, research and emerging issues.
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Gather evidence for and support compliance actions.
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Maintain tracking tools and a well-organised evidence repository.
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Help coordinate research projects and evidence-gathering programmes.
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Draft ad hoc briefings for senior staff on relevant developments, or ahead of meetings and conferences.
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Contribute to 5Rights reports, positions, communications and fundraising materials.
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Represent 5Rights as an expert at meetings and events.
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Provide support to the policy, tech accountability and innovation work of 5Rights more broadly as needed.
Person specification
You’ll be a confident and skilled researcher, a clear, fresh thinker, and an excellent writer. High attention to detail, an eye for nuance, and the ability to digest complex information quickly and communicate it coherently are all musts. A background in technology issues or children’s rights is preferable, but not essential. Most of all, we’re looking for someone who’s thorough, proactive, super smart, and committed to our mission.
ESSENTIAL skills and attributes:
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Thorough and thoughtful researcher
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Clear, concise, and engaging writing style in English
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Confident verbal communicator in English
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Inquisitive and keen to share the results of your research
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The ability to use your initiative, exercise good judgment and make nuanced recommendations
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A meticulous eye for detail and proven ability to design and deliver high-quality research products.
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Team player, but also able to work independently, setting goals and meeting them
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Able to make good decisions on the relative importance of competing tasks, and meet deadlines.
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Reliable, patient and with the relentless focus required to get complex deliverables over the line, managing processes from A-Z;
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A can-do, action and solution-oriented attitude;
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A commitment to the Foundation’s work and values
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Right to work in Belgium or the UK.
DESIRABLE skills and attributes:
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Knowledge of technology policy, privacy, children’s rights or a related field.
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Experience of providing research support in a policy environment.
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Experience working internationally and in culturally-diverse settings;
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Ability to work and research in other languages, such as French or Spanish.
Remuneration and details -
Location: Remote position with employee contract in UK or Belgium. Hybrid working in 5Rights’ London and Brussels co-working office spaces is available.
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Salary: £22,400 – 24,900 for UK-based candidate, with flexibility depending on experience; EUR 31,600 – 35,100 for a Belgium-based candidate.
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Working hours: Full time, with some accommodation necessary for work across time-zones and for out of office hours sessions with young people.
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Statutory pension contribution.
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25 days of annual leave.
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Work equipment including a laptop and mobile phone will be provided
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Starting data: asap.
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Reporting line: Head of Compliance.
5Rights values diversity and we strongly encourage people from under-represented groups to apply for this role. We aim for our recruitment to be inclusive and equitable, and we strive to constantly learn and improve in this regard.
Shortlisted candidates will be asked to complete a written task as part of our recruitment approach. The task will take 2 hours. First round interviews will be held over Zoom.
The client requests no contact from agencies or media sales.
Job description
The Cleft Lip and Palate Association (CLAPA) is the national charity for people affected by cleft lip and palate in the United Kingdom.
CLAPA supports people affected by cleft to take control of their journey, connect with others, and use their voices to impact the future of care. Our vision is that no one affected by cleft lip and palate in the United Kingdom will go through their journey alone.
We are seeking a Fundraising Coordinator (Individual Giving) to join our small but dynamic Fundraising team.
The role requires excellent donor care and stewardship skills. All forms of communication will be required including the proactive use of digital channels such as the website and social media platforms.
The Individual Giving Fundraiser will play a vital role in increasing income from our existing supporters. You will support donor acquisition as well as taking the lead on retention of our supporters across multiple channels including cash appeals, regular giving, lottery and in celebration giving. The role will also support the Head of Income in the delivery of a legacy and major donor program.
You will develop and deliver excellent stewardship programmes that drive retention by deepening audience understanding of the challenges that people affected by cleft face and the impact that their donations make. Using data and insight, you’ll deliver compelling campaigns, with people affected by cleft right at the centre. You’ll use creative tools and techniques to demonstrate impact and inspire future action.
The ideal candidate is a creative and confident communicator who shares our values and our staff team’s dedication to supporting the UK cleft community.
How to Apply
Please read the Recruitment Pack in full and then complete the online Application Form linked within. For safeguarding reasons, we are not able to accept CVs.
Applications close: Monday 13th May at 12.00 (noon)
Interviews: Thursday 23rd May (via Zoom)
Start date: ASAP
The client requests no contact from agencies or media sales.