Patient advocacy and policy officer jobs
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This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
About Ataxia UK
Ataxia is the umbrella term for a group of neurological conditions and Ataxia UK is the UK’s leading ataxia support and research charity. Ataxia UK collaborates with the global ataxia community through our Research team, and we are on the board of the international non-profit association, Euro-ataxia. Our Services team focuses on helping everyone affected by ataxia in the UK to live their best life. We have a Helpline and Advocacy service providing information, advice, and 1-2-1 support to help people access their rights; whilst the InControl Community Engagement service provides activities, engagement and volunteering opportunities to bring the ataxia community together and reduce feelings of isolation.
About the Role
You will be joining at an exciting time for Ataxia UK as we celebrate our 60th anniversary year.
This brand-new role is an important part of our new strategy to sustainably grow our unrestricted income. Working closely with the Director of Fundraising & Communications and the wider team, the Senior Philanthropy Manager will lead the work to build a pipeline of major donors and family trusts and foundations.
You will be responsible for developing an excellent stewardship programme which nurtures income-generating relationships with Ataxia UK’s major donors. You will initially work with a fixed-term Philanthropy Consultant to lead the development of a researched and actionable pipeline of prospective new donors, and you will then work to successfully engage this pipeline. This is a fantastic opportunity to lead a brand-new function as a senior member of an experienced team of fundraisers.
Ataxia UK operates a hybrid- working policy, with part time staff working 3 or 4 days a week expected to work from our offices in Highgate a minimum of 1 day a week. The role will require some occasional travel within the UK and, more rarely, internationally.
About you
The right candidate will be a natural relationship builder with a proven track record of securing high value, long term partnerships with major donors; personally securing 5 and 6-figure gifts.
You will use excellent communication skills to write compelling and tailored cases for support. As a key member of the Fundraising & Communications department, you will bring creativity, insight and experience to the team, and you will be a confident ambassador and representative internally and externally.
As an experienced major donor fundraiser, you will be comfortable and confident engaging with High-Net-Worth Individuals and their offices, celebrities, politicians and c-suite professionals. You will have the flexibility to join events and or meet donors and prospective donors at locations around the UK. As an ambassador of our brand, you will have the skills and experience to ensure you positively represent the interests of the ataxia community, and you will be someone who shares our commitment to supporting those affected by ataxia.
Benefits of working for us.
- 25 days annual leave pro rata (rising to 30 with a length of service)
- Access to a free Employee Assistance Programme & Employee Hotline
- Flexible hybrid working
- Pension scheme
- Enhanced maternity and co-parental leave
- Cycle to work scheme
- Training and development opportunities
- Accredited Living Wage Employer
Please see full Job Description for further details including Person Specifications
The client requests no contact from agencies or media sales.
HIV Peer Support Worker
About Trade
Trade Sexual Health (Trade for short) is a small health and wellbeing charity based in Leicester. We currently have seven staff and more than 40 volunteers.
Trade began as a grassroots gay community response to HIV in Leicester in the late 1980s. Throughout the 1990s, Trade worked in creative ways to spread information about sexual health and HIV prevention to gay, bisexual and other men who have sex with men in the city (GBMSM).
Trade has been a registered charity since 2000. Over the last 25 years, the core of our work has been focused on improving the sexual health of gay and bisexual men across Leicester, Leicestershire, and Rutland. We have always taken a holistic approach to understanding and addressing the range of issues that might impact on gay and bisexual men’s capacity to look after their sexual health. As a result, we started a counselling service – Approach Counselling – to support community members to improve their mental wellbeing. We now draw on this experience to tackle wider health inequalities in relation to sexual health and HIV, and to provide peer support for anyone living with HIV in the areas where we work. For a small charity, Trade has always ‘punched above its weight’ and we have a national profile for the innovative sexual health work we do.
We currently hold contracts to deliver sexual health promotion and HIV prevention outreach in the City of Leicester, Leicestershire and Rutland to LGBTQ+ people, asylum-seekers, and a range of racialised communities that experience significant inequalities in relation to their sexual health.
We have a history of providing peer support to people living with HIV and this is now becoming a growing strand of our work. In addition to the HIV Peer Support contract in Northamptonshire (which this post relates to), we expect to be delivering enhanced HIV peer support across Leicester, Leicestershire and Rutland.
The primary purpose of this role is to deliver first line peer support to people living with HIV, of all genders and backgrounds, in Northamptonshire. The postholder will spend most of their working week embedded within the HIV clinics in Northampton and Kettering. They will ensure that people who have been recently diagnosed, or are struggling with their diagnosis, and those re-engaging with their HIV care feel supported and have the information they need to live well and thrive with HIV.
The postholder will be responsible for:
· Working as part of a multi-disciplinary team (MDT), bringing their own knowledge and experience to that work.
· Work with a small group of volunteer peer mentors from the clinics to support people living with HIV
· Help recruit new volunteers and ensure that patients needing ongoing peer mentoring are matched to the most suitable volunteer.
· Help people living with HIV to develop self-management strategies, deal with stigma, reduce social isolation and improve their wellbeing.
· Develop a catalogue of services, groups and support in the area where people can be signposted to for further wellbeing support either in addition to or instead of peer mentoring.
· Help people to stay engaged with their HIV treatment and care, improving antiretroviral therapy (ART) adherence, and consequently ensuring ongoing viral suppression.
Job Activities
The post-holder will:
· Normally spend at least one day a week in the HIV clinic at Kettering General Hospital and one day at Northampton General Hospital. Some travel to other sites may be required.
· Work as part of a multi-disciplinary team (MDT) including nursing staff, doctors, clinical psychologists, and pharmacists within the HIV clinics, bringing their own knowledge and experience to that work.
· Triage new patients requiring peer support to understand what specific issues they are facing and the support they need.
· Work with a small group of volunteer peer mentors from the clinics to support people living with HIV. The volunteer peer mentors will be trained and managed by our partner organisation, Northamptonshire Carers, but the postholder will help recruit new volunteers in clinic, ensure that patients needing ongoing peer mentoring are matched to the most suitable volunteer, and help manage booking appointments between mentors and mentees.
· Help people living with HIV to develop self-management strategies, deal with stigma, reduce social isolation and improve their wellbeing.
· Help people to stay engaged with their HIV treatment and care, improving antiretroviral therapy (ART) adherence, and consequently ensuring ongoing viral suppression.
· Refer/signpost people into specialist services such as mental health services, drug and alcohol services, and services offering advice on housing, benefits and immigration issues.
· Support the eight standards listed in the British HIV Association Standards of Care for people living with HIV.
· Follow the National Standards in HIV Peer Support guidance and its four standards.
· Contribute to the development of innovative ways of delivering HIV peer support appropriate to the local context.
· Keep accurate, confidential and secure records of all peer support referrals and interactions.
· Contribute to the compilation of quarterly monitoring reports about our performance for the Integrated Care Board commissioning team for Northamptonshire.
· Develop and maintain professional working relationships with partners
· Represent Trade in a professional manner at relevant forums and meetings
Accountability / Reports:
The post-holder will report to the Chief Executive Officer
Peer staff supervision for project specific needs.
All positions are monitored by the Trade Board of Trustees and will be responsible to this Committee.
Duties and responsibilities must always be undertaken with due regard to the values and service principles of the organisation and in accordance with Trade Policies and Procedures, as well as all other policies and procedures by which Trade is contractually bound.
General Working Skills, Competencies and Conditions. What follows in this section will be applicable to all staff as per the requirements of specific roles.
Competencies and Skills
· competent in using computer-based software for word processing, data management (e.g. Excel) and social media literacy
· ability to work in a variety of venues throughout Northamptonshire in line with service requirements
· hold a full driving license (preferred, but not necessary)
· effective, independent decision making is necessary to signpost clients to other services if query is outside the remit of the post or the services which Trade provides
· ensure professional boundaries are always maintained
· dealing with clients’ fears and distresses
Working Conditions
· work will take place within a hospital or clinic setting at an integrated HIV and sexual health clinic
The post-holder will:
· attend team meetings and staff training days
· attend key events (as part of working hours) during the year including: World AIDS Day, and National HIV testing week
· contribute to professional working relationships and engage effectively with other partners to promote Trade services
· ensure that all premises are safe and secure for staff, volunteers, and service users
· share in domestic tasks with other staff members and volunteers
· undertake any other duties which may be reasonably required by the Trade Board of Trustees
Disclosure and Barring Service (DBS) : Enhanced DBS disclosures will be requested on appointment.
Person Specification
This person specification serves as the selection criteria for the post. The more of the criteria that you demonstrate you can meet in your application, the greater the likelihood of you being invited to interview. In answering the questions on the application form, explain how you meet these criteria.
Experience:
Lived experience of HIV and an understanding of the impact of receiving a new diagnosis Essential: will be assessed through application form and or Interview
Experience of supporting people in vulnerable circumstances, or from marginalised communities, particularly people living with HIV or other long-term health conditions Desirable: will be assessed through application form and or Interview
Experience of working collaboratively with multiple teams or organisations (including NHS services, charities and other support organisations) Essential: will be assessed through application form and or Interview
Skills:
Ability to communicate effectively and appropriately with a wide range of people and organisations Essential: will be assessed through application form and or Interview
Ability to work independently, using your own initiative Essential: will be assessed through Interview
Strong mentorship skills to support and motivate individuals Desirable: will be assessed through application form and or Interview
Excellent organisational and time management skills to manage multiple priorities, including appointments, supporting people access the service, and reporting Essential: will be assessed through application form and or Interview
Ability to deliver and develop a comprehensive peer mentoring scheme, understanding the importance of person-centred care and support Essential: will be assessed through application form and or Interview
Knowledge and understanding:
Knowledge of HIV, its impact on individuals, and the specific support needs of people living with HIV Essential: will be assessed through application form and or Interview
Knowledge of the benefits of providing peer support to and with people with long-term health conditions Essential: will be assessed through application form and or Interview
Familiarity with safeguarding policies and practices, particularly in health and support services Desirable: will be assessed through application form
Understanding of the benefits and challenges of volunteering (as a peer mentor) Essential: will be assessed through application form and or Interview
Personal attributes and approach:
A commitment to improving your own knowledge and skills Essential: will be assessed through application form and or Interview
A commitment to Trade’s mission, vision, and values Essential: will be assessed through application form and or Interview
A commitment to equality, diversity and inclusion when working with patients, volunteers, and the wider organisational/project team Essential: will be assessed through application form and or Interview
A commitment to providing development support to team members (including volunteers) and to ensuring that colleagues understand your priorities and work streams Essential: will be assessed through application form and or Interview
We plan to hold interviews on 13/14th May 2025
Trade provides high quality, health and wellbeing services to the LGBTQ+ community and people living with HIV (PLHIV)


The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The 5Rights Foundation is looking for a Research Officer to join our small and high impact team in fighting for a digital world that supports children and young people, in all their diversity, to flourish.
At 5Rights, we work with governments, policy-makers, technologists, and NGOs all over the world to advocate for one simple principle: the enormous potential of digital technology will only be realised when it is designed with children and young people in mind.
If you’re passionate about exploring emerging tech; if you’re enthusiastic about contributing to one of the most lively policy debates of our time; and if you’re committed to working on behalf of the one billion children who are online, we’d love to hear from you.
We are looking for someone organised, meticulous, creative and critical-minded to conduct ongoing practical research into the tech children are using, ensure our policy team understand how it works and impacts children, and gather the evidence to drive change.
Experience of providing research support in a policy environment and knowledge of technology policy, privacy, children’s rights or a related field would be desirable.
Additional language skills such as French or Spanish is an advantage. We are offering remote working (with part-time co-working space access in London or Brussels) with employee contracts in the UK or Belgium; salary is £26,000 gross per annum (UK) or EUR 34,232 (Belgium) gross per annum including all benefits, which is 2,394 (gross) per month before benefits.
About 5Rights
5Rights Foundation exists to ensure a digital world that will serve children and young people, in all their diversity, today and for future generations.
We are a small team of senior professionals and experts delivering change in how the digital world works. We have shifted the narrative and the agenda through provocative comms campaigns (e.g. Twisted Toys), pioneering research (e.g. Pathways) and award-winning tools (e.g. Child Online Safety Toolkit). We continue to drive real-life change thanks to an outstanding track-record of delivering legislation (e.g. Californian Age Appropriate Design Code), policy and regulatory frameworks (e.g. UNCRC General comment No. 25), and industry standards (e.g. IEEE 2089).
Key responsibilities
Reporting to the Head of Compliance, you will:
- Be the expert in the room! Make sure 5Rights knows what it needs to know, and be confident in holding us and those in our network to the evidence.
- Conduct thorough and organised research, including rapid evidence assessments, report summaries, and deep-dives into emerging technologies.
- Conduct consultation and exchange sessions with young people from around the world as part of our Youth Engagement Programme, learning about their experience and helping them understand how tech works.
- Liaise with technologists and experts around the world, exchanging knowledge and staying up to date on the latest developments, research and emerging issues.
- Gather evidence for and support compliance actions.
- Maintain tracking tools and a well-organised evidence repository.
- Help coordinate research projects and evidence-gathering programmes.
- Draft ad hoc briefings for senior staff on relevant developments, or ahead of meetings and conferences.
- Contribute to 5Rights reports, positions, communications and fundraising materials.
- Represent 5Rights as an expert at meetings and events.
- Provide support to the policy, tech accountability and innovation work of 5Rights more broadly as needed.
Person specification
You’ll be a confident and skilled researcher, a clear, fresh thinker, and an excellent writer. High attention to detail, an eye for nuance, and the ability to digest complex information quickly and communicate it coherently are all musts. A background in technology issues or children’s rights is preferable, but not essential. Most of all, we’re looking for someone who’s thorough, proactive, super smart, and committed to our mission.
ESSENTIAL skills and attributes:
- Thorough and thoughtful researcher
- Clear, concise, and engaging writing style in English
- Confident verbal communicator in English
- Inquisitive and keen to share the results of your research
- The ability to use your initiative, exercise good judgment and make nuanced recommendations
- A meticulous eye for detail and proven ability to design and deliver high-quality research products.
- Team player, but also able to work independently, setting goals and meeting them
- Able to make good decisions on the relative importance of competing tasks, and meet deadlines.
- Reliable, patient and with the relentless focus required to get complex deliverables over the line, managing processes from A-Z;
- A can-do, action and solution-oriented attitude;
- A commitment to the Foundation’s work and values
- Right to work in Belgium or the UK.
- A commitment to the role for a minimum of two years, contributing to a growing and ambitious team.
DESIRABLE skills and attributes:
- Knowledge of technology policy, privacy, children’s rights or a related field.
- Experience of providing research support in a policy environment.
- Experience working internationally and in cultrally-diverse settings;
- Ability to work and research in other languages, such as French or Spanish.
Remuneration and details
- Location: Remote position with employees based in UK and Belgium. Co-working office spaces are available up to twice a week.
- Salary: a gross salary of £26,000 per annum for UK-based candidate, with flexibility depending on experience; EUR 34,232 (Belgium) gross per annum including all benefits, which is 2,394 per month (gross) before benefits
- Working hours: Full time, with some accommodation necessary for work across time-zones and for out of office hours sessions with young people.
- Statutory pension contribution.
- 25 days of annual leave.
- Work equipment including a laptop and mobile phone will be provided
- Starting data: asap.
- Reporting line: Head of Compliance.
5Rights values diversity and we strongly encourage people from under-represented groups to apply for this role. We aim for our recruitment to be inclusive and equitable, and we strive to constantly learn and improve in this regard.
The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Corporate Partnerships and Philanthropy Lead
Do you want to be part of a passionate team and help support a lifesaving cause? If so then read on for more details as to how you can work for our Charity!
The Corporate Partnerships and Philanthropy Lead is responsible for overseeing income generation from corporate partners and growing high-value support from major donors to fund the vital work of Midlands Air Ambulance Charity.
This newly created role will develop and implement strategies and plans across two areas:
- Oversee a team focused on building and maintaining corporate partnerships with businesses across our six-county operating region, covering Gloucestershire, Herefordshire, Shropshire, Staffordshire, West Midlands, and Worcestershire.
- Engage major donors and secure transformative gifts both on an individual basis as well as part of a bespoke programme.
The Corporate Partnerships and Philanthropy Lead will be responsible for ensuring effective prospecting and exceptional supporter stewardship, maximising income generation in the short, medium and long term.
The role presents an exciting opportunity for an experienced high-value fundraiser to work in close collaboration with our CEO and senior leadership team, and Chair and wider board of Trustees, to develop these two key income streams.
The post holder will be creative, an outstanding communicator, and a natural networker, skilled in unlocking new opportunities and securing transformational five and six-figure gifts.
#CorporatePartnerships #Fundraising #MajorDonor #Fundraising_Strategy #Philanthropy #Corporate_Partnerships_Lead
We are committed to safeguarding and promoting the welfare and safety of all our stakeholders and expect all our staff to share this commitment. Post holders will be subject to a satisfactory Disclosure and Barring Service check (DBS).
To provide patients with outstanding pre-hospital care and lifesaving intervention through the operation of helicopter-led emergency medical services.




The client requests no contact from agencies or media sales.