Play volunteer volunteer roles in ashtead, surrey

PNH Support is celebrating its 10 year anniversary this year! Much has changed for patients living with the ultra-rare blood condition paroxysmal nocturnal haemoglobinuria (PNH) during this time including the development of a number of new treatments which have transformed many lives. Despite this, patients still face other continuing challenges, for example, dealing with fatigue and the psychological impact of living with a chronic disease. Importantly, patients also need their voices to be represented independent of healthcare professionals. As PNH Support can only continue to support the PNH community with the help of Trustees and volunteers, we are seeking new Trustees to become actively involved in our management and governance including the implementation of our recently developed 5 year strategy. Whether you are an experienced Trustee, or are considering your first appointment, wewould love to hear from you!

Our vision is “No PNH patient in England, Wales and Northern Ireland is alone. All are represented and enabled to live to their full potential with PNH.”

Our mission is to provide support through peer-to-peer contact, educational resources and advocacy.

The Board has recently undertaken a stakeholder engagement exercise to develop our new 5 year strategy to 2030 and new Trustees joining our Board will assist with executing and implementing this plan. Our Board will play a vital role in shaping the future of PNH Support, guiding our strategic direction, setting the budget, and making key decisions on significant initiatives. This is an exciting time to be joining PNH Support as our Board is expanding to drive the new 5 year strategic vision forward!

Becoming a Trustee at PNH Support is both a privilege and a responsibility. This role provides a unique opportunity to make a meaningful impact to the lives of people affected by PNH as well as for their families. As a Trustee, you will help guide the charity, ensuring we stay true to our mission and achieve significant results. Your leadership and insights will be vital to the charity’s success.

The Trustee Board is a diverse and committed team that provides governance and oversight. They ensure that the charity operates ethically, efficiently, and in line with its strategy.

This is an exciting time to be joining PNH Support as our Board is expanding to drive the new 5 year strategic vision forward! Becoming a Trustee at PNH Support is both a privilege and a responsibility. This role provides a unique opportunity to make a meaningful impact to the lives of people affected by PNH as well as for their families. As a Trustee, you will help guide the charity, ensuring we stay true to our mission and achieve significant results. Your leadership and insights will be vital to the charity’s success.

The Trustee Board is a diverse and committed team that provides governance and oversight. They ensure that the charity operates ethically, efficiently, and in line with its strategy. You are not expected to have in-depth knowledge of the legislation governing our work, as we will provide the necessary support and training as required. However, it’s important to be aware
that such legislation exists, and to ensure that PNH Support has the appropriate policies, procedures, and reporting mechanisms in place to maintain compliance where required.

Key responsibilities include:

• Strategic Leadership: Shaping and guiding PNH Support’s vision and future direction in line with the new 5 year strategy.
• Legal and Regulatory Compliance: Ensuring adherence to UK charity laws and fulfilling all reporting obligations.
• Financial Oversight: Monitoring the charity’s finances, safeguarding its assets, and managing risks effectively.
• Governance and Accountability: Promoting transparency, participating in decisionmaking, and overseeing management practices.
• Advocacy and Representation: Acting as an ambassador for the charity, promotingits mission and values to the wider community.

Purpose of the Role

 To bring senior-level fundraising expertise to the Board of Trustees, advising and supporting Momentum’s income generation strategies and providing constructive challenge and oversight of the charity’s fundraising activities.

 Key Responsibilities

 §  Provide expert advice, guidance and strategic input to the Board and senior leadership on all aspects of fundraising.

§  Support the ongoing development of Momentum’s multi-stream fundraising strategy (including major donors, corporate partnerships, trusts & foundations, events, community fundraising, legacies, and digital fundraising).

§  Monitor fundraising performance against targets and ensure fundraising activities remain compliant with relevant regulations (Fundraising Regulator, Charity Commission, GDPR, etc).

§  Act as a mentor and sounding board to the Director of Fundraising & Engagement and CEO.

§  Contribute ideas and insights to help the charity identify new opportunities for sustainable income growth.

§  Where appropriate, assist with the stewardship of key supporters or donors.

§  Fulfil all general trustee duties, including attending Board meetings, contributing to governance and strategic decision-making, and upholding the charity’s values and safeguarding responsibilities.

The Trans Learning Partnership (TLP) is in the process of evolving into a new, independent charity: the Trans Research Partnership (TRP). This transition will be completed by the end of 2025. As part of this transition, we’re recruiting up to five founding trustees to help shape the future of TRP.

TRP will be a trans-led research charity that centres trans voices and produces rigorous, community-led research to inform policy, practice, and public understanding. Our values include trans leadership, intersectional justice, ethical rigour, collaboration, safety, autonomy, imagination, and hope.

We’re looking for people who:

• Are committed to trans liberation and TRP’s mission
• Can contribute time and skills to setting up a new charity
• Bring experience in governance, research, fundraising, equity, or community organising

We especially welcome applications from the global majority, those with working-class backgrounds, and others underrepresented in charity leadership.

Time commitment: ~1–2 days/month. Meetings are remote-first. Expenses reimbursed. Training and mentorship provided.

Deadline: Wednesday 13th August 2025 at 23:59

Interviews: 26 or 28 August (online)

Join us and help lead change for anyone affected by ME.

Can you help us deliver our mission to improve the lives of all people affected by ME by becoming a new Trustee on our Board?

With the recent launch of the UK Government Delivery Plan for ME/CFS, and some critical research partnerships on the horizon, now is an exciting time to join us and play a pivotal role in our work to secure a better future for people with ME.

As a Trustee, you will have a vital role within Action for ME, establishing a clear and shared vision, setting policies and acting in the best interests of Action for ME and people with ME. We are particularly looking for people who bring: Scientific and/or research expertise; healthcare and/or information, support and advocacy experience; Policy experience at local or national level; Communications and/or marketing expertise.

If you have experience in any of these areas and share our ambition for a better future for people with ME, we want to hear from you.

Trustee - Role Description

Duties of a Trustee are as follows:

• To ensure that Action for ME complies with its Memorandum and Articles of Association,charity law, company law and any other relevant legislation or regulations
• To ensure that Action for ME pursues its charitable objects as defined in its Memorandum of Association
• To ensure Action for ME applies its resources exclusively in pursuance of its objectives
• To contribute actively to the Board of Trustees role in establishing a clear and sharedvision for Action for ME, giving firm strategic direction, setting overall policy, defining goals, setting targets and evaluating performance against the agreed targets
• To act in the interests of Action for ME and for people with ME in general
• To safeguard the good name and values of Action for METo ensure the effective and efficient administration of Action for ME
• To ensure the financial stability of Action for ME
• To protect and manage the property of Action for ME and to ensure the proper investment of charity funds
• To appoint the Chief Executive and to monitor his or her performance and determine his or her remuneration.
• In addition to the above statutory duties of all Trustees, each Trustee should use any specific knowledge or experience they have to help the Board of Trustees reach sound decisions
• To represent Action for ME as appropriate.

Time Commitment:
The time commitment expected of a Trustee is approximately six days per annum, including an AGM, preparing for and attending Board meetings, and involvement in at least one of the sub-committees: Audit, Finance & Fundraising; Public Affairs & Communications; Research; Healthcare Services; or Remunerations & Nominations.

We hold an away day once every two years. Additional time may be required dependent on circumstances/needs. You will receive a full induction and support upon appointment.

We do ask that Trustees make a commitment to at least one, three-year term of office.

Trustee - Person Specification

All Trustees must demonstrate:

• A commitment to the organisation, its cause and demonstrate an understanding of MEand its impact
• A willingness to devote the necessary time and effort Strategic vision Good, independent judgment
• An ability to think creatively
• A willingness to speak their mind
• An understanding and acceptance of the legal duties, responsibilities and liabilities of Trusteeship
• An ability to work effectively as a member of a team
• A willingness to participate in at least one sub-committee, as appropriate
• A commitment to working within Action for ME’s values and principles of working,including Nolan’s ‘Seven Principles of Public Life’:

             a. Selflessness
             b. Integrity
             c. Objectivity
             d. Accountability
             e. Openness
             f. Honesty
             g. Leadership.

• Be willing to sign relevant statutory and other forms (eg for opening bank accounts).

Specific requirements:

While we are open to applications from people who meet the person specification, we regularly review the skills and backgrounds of our Board members and are specifically looking for people who bring:

• Scientific and/or research expertise
• Policy experience at local or national level
• Communications and/or marketing expertise.

How to Apply

If you are interested in becoming a Trustee, please submit:

• Your CV, including all employment/voluntary roles since you left full-time education ensuring any gaps or time out is accounted for and
• A completed ‘Equal opportunities monitoring and information form’ (provided separately)
• A covering letter outlining why you would like to become a Trustee and how you meet the person specification outlined above, including how you meet the specific requirements we are currently looking for.

Please also indicate any reasonable adjustments that you may require to enableus to provide a good recruitment process with you.

You will be informed of the outcome of your application and any potential interviewdates with the Chair, the Chief Executive and another Trustee. We will be invitingpeople for interviews as applications come in and will close recruitment when we fillthe current vacancies.

Equity of access

We strive to ensure equity which includes being as accessible as possible to attract Board members with a diverse range of experience and insight. If you don’t meet the person specification fully, please do consider contacting us for a discussion as youmay be our ideal candidate!

We will consider all requests for reasonable adjustments within the parameters ofensuring Trustees are able to enact their legal responsibilities and accountabilities.

We believe this is an exciting opportunity for individuals with a strongly held belief in the benefits that empowering leadership skills can have in shaping the future of the next generation. 

We are looking for individuals that can promote our cause and are willing to share their personal and professional experience and insights as part of the collaborative decision-making of our Board of Trustees.

We are committed to diversity in the workplace through a workforce that reflects the population and communities we work with across the UK.

Our board of Trustees is currently under-represented by individuals with black, asian, and ethnically diverse heritage in addition to people aged under 30 years of age.

As such, we would welcome applicants with these backgrounds to support our aim of a nationally representative organisation workforce.

Knowledge, skills and experience

While we are interested in the person, we are looking for individuals with specific skills and experience in one, some, or all of the following areas:

o Working with primary and/or secondary schools, colleges, and/or youth-development organisations.

o Working in or with Awarding Organisations.

An understanding or experience of financial oversight is considered desirable but not essential.

Trustee commitment and responsibilities

All Trustee positions are voluntary with reasonable expenses remunerated.

To be an effective Trustee, you will need to commit approximately 1-2 days per quarter to attend and prepare for board meetings which are generally held virtually.

Members of our Audit, Risk and Compliance committee additionally meet two weeks before each board meeting for finance and regulation focused discussions with the Executive team.

Effective Trustees support our work by:

· Ensuring we are working towards our vision, mission and values in everything we do.

· Supporting strategic decision-making by actively contributing advice, guidance, and opinion in the pursuit of the organisation’s objectives.

· Constructively guide the Executive in the delivery of the organisation’s strategy.

· Actively represent and champion the work of the Leadership Skills Foundation.

· Maintaining proper financial and regulatory oversight promoting best practice as a Charity to ensure our sustainability and longevity.

Our values

Created in collaboration with the Leadership Skills Foundation team, our cultural values are our ways of working that we expect in all aspects of our interaction with each other and with our delivery centres, tutors, partners, and learners.

• We are better together

Together, we do great things. Collaboration, belonging and individuality aren’t just buzzwords to us; they’re deeply held commitments in the way we work. As we solve problems together, we make sure everyone feels listened to and valued.

• We are guided by goals

Every initiative we developed is guided by clear aims. From giving young people the confidence to achieve, to bringing major change to communities, all our goals are significant and focused on improvement.

• We evolve and innovate

As the world changes, so do the opportunities and challenges of the people we support. As different times call for different skills, we are brave enough to be different and to innovate to be fit for the future. 

• We have pride in our programmes

We never forget how valuable everyone’s future is. That’s why we go above and beyond to deliver high-quality trustworthy and regulated programmes.

Know someone great for this?

At the Community Hospice we believe in making every moment count. We’re here to support people to live as well as they can, for as long as they can. Each year, we care for around 3,000 people with terminal illness, as well as their families. Our care isn't restricted to one place - we care for patients wherever they call home or wherever best suits their needs.

We are now looking for new trustees to help guide and grow the work we do across Greenwich and Bexley.

We’re looking for people who share our values and bring experience in the legal, estates/facilities, retail or commercial sectors or General Practice. Local knowledge is a bonus, but not essential.

Our trustees come from all walks of life, and we welcome interest from people of all ages and backgrounds. Whether you're an experienced trustee or looking to take your first step at Board level, we'd love to hear from you. To help broaden the diversity of our Board, we particularly encourage applications from people from marginalised communities—including those from Black African and other ethnically minoritised backgrounds, people from the LGBTQ+ community, people with neurodiverse and/or physical disabilities, and those with lived experience of hospice or palliative care services.

This is a real opportunity to make a difference in your community, apply your expertise and be part of a supportive, compassionate organisation.

Find out more about the role and how to apply by clicking on the link below to our application pack.

Applications close: 18 August