Policy and briefings officer jobs in Birmingham, west midlands

Position: Policy and Public Affairs Officer (Scotland)
Hours: Full-time, 35 hours a per-week
Contract: Permanent
Location: Home Based in Scotland
Salary: Starting from £26,384 per annum plus excellent benefits
Salary Band and Job Family: Band 1, Charity
You will start at our entry point salary of £26,384 per annum, increasing to £28,033 after 6 months service and satisfactory performance and to £29,682 after a further 6 months.

About us

We make sure people living with MS are at the centre of everything we do. And it’s this commitment that unites us across the UK.

Our strategy is based on what people affected by MS have told us is important to them. It gives us a clear and determined focus. 

Our work is based on the hopes and aspirations of our MS community. Together we campaign at all levels, fund ground-breaking research and provide award winning support and information. 

Our people are our greatest asset and the key to our success. We offer a vibrant, progressive working environment where you'll be able to make a difference.

About this job

We’re looking for an enthusiastic and talented policy and public affairs professional to join our team. You should have experience of working to develop policy and have the ability to communicate our position to a wide range of audiences across Scotland.

In this exciting role you will work with the MS community to influence change in public policy, continuing to make the case for improvements in the treatment, care and support of people affected by MS.

This is a fantastic opportunity for someone who understands the political and policy environment in Scotland, who has experience in external facing influencing roles, who is outcome-focused and delivers tangible results. The successful candidate will work closely with the MS community, the Scottish Policy and Communications team as well as key external partners such as MSPs and their teams.

Closing date for applications: 9:00 on Monday 1st of June

Interested?

PLEASE PRESS THE 'HOW TO APPLY' BUTTON FOR MORE INFORMATION.

Equal Opportunities 
We particularly welcome applications from people with disabilities and or from ethnic minority backgrounds.

We’d be grateful if you downloaded and completed the equality and diversity monitoring form and submit it with your application. 

Disability Confident Employer 
We’re a Disability Confident Employer and we’re committed to promoting equality and diversity.

You can ask for reasonable adjustments as part of both our recruitment and new starter on-boarding processes.

If you need any help or adjustments to apply for this role, please contact us. You can also ask for the application materials to be sent to you in a different format. Such as for them to be sent to you by email or in a larger word format.

More about our employee benefits:
We have a wide range of employee benefits including (but not limited to): 

Encouraging work life balance

• 38 days paid annual leave (including bank holidays), pro-rata for part-time
• More annual leave entitlement, based on length of employment
• Smart working options (with the opportunity to work remotely and find a smart working pattern that suits both you and us) 
• Flexible working options 

Caring for you and your family 

• Generous sick pay entitlement
• More sick pay entitlement, based on length of employment 
• Opportunity to buy and sell annual leave in each calendar year 
• Free access to a GP virtually 24 hours a day/7 days a week allowing you unlimited advice, reassurance and where appropriate diagnosis 
• Enhanced leave for new parents 
• Free access to a confidential 24 hours a day/7 days a week helpline service for both you and your family with a specialist range of support and information
• Special leave options (such as up to 5 days paid leave for domestic or personal emergencies a year)
• 10 days paid disability leave a year, pro-rata for part-time 
• 10 days paid carers’ leave a year, pro-rata for part-time 
• Cycle to work scheme 
• Death in service scheme
• New family-friendly benefits, including paid leave:
  • In the event of miscarriage or still birth 
  • To support fertility treatments
  • For antenatal appointments for both parents

Thinking about your finances 

• Enhanced salary sacrifice pension scheme
• Discounted season ticket loan and interest-free emergency loans
• Give as you earn to support other charities of your choice before tax
• New employee portal including lifestyle savings vouchers and personal wellbeing

Enriching your life at work

• Personalised development plans with a wide range of training courses and opportunities to source additional training options with your line manager
• Yearly internal apprenticeship opportunities
• New, modern offices that embrace working together both in-person and remotely 
• Various opportunities to influence how we internally operate (including surveys, and focus and committee groups) 
• Active and supportive internal employee networking groups for collaboration and peer support 
• 2 days paid leave a year for volunteering for MS Society activities during normal working hours (such as fundraising events, or campaigning in the local community) 
• 2 days paid leave a year for volunteering with other charities during normal

Safeguarding 
We’re committed to safeguarding and promoting the welfare of everyone who uses our services and we come into contact with.

This is regardless of Gender, Race, Disability, Sexual orientation, Religion or belief, Pregnancy, Gender reassignment.

We recognise our particular responsibility to make sure vulnerable adults and children are protected.

We have measures in place to protect everyone we come into contact with from abuse and maltreatment of all kinds.

Your right to work in the UK 
You must have the right to work in the UK to work in paid employment with us. You’ll need to share documents showing you’re eligible to work in the UK if we offer you employment.

You can find the UK visas and permits granting you the right to work in the UK on the UK Government website. We currently don’t have a Sponsor Licence agreement with the Home Office and aren’t able to support you with your visa applications.

No agencies please.

What does it take to lead the national voice for special schools at a time of real change?

Chief Executive Officer (CEO) – National Association of Special Schools (NASS)

National – home-based, with regular travel across England and Wales, particularly London

£90,000–£110,000 per annum

Full-time, permanent.

About NASS 

The National Association of Special Schools (NASS) is the membership association for special schools in England and Wales. We bring together independent special schools, non-maintained special schools, special academies, maintained special schools and multi-academy trusts with specialist provision.

We exist to inform, support and represent our members, helping specialist schools improve outcomes for children and young people with SEND and secure the place of specialist provision within the wider education system. NASS is known for being accessible, responsive and personal, combining national influence with practical support that members value as timely, human and trustworthy.

This is a pivotal moment for the organisation. In February this year, the Department for Education published a major white paper on SEND reform which will require NASS to both influence national policy on behalf of our members and children and young people, as well as support them to navigate the changes. Our new CEO will need to review our strategy while building on our strong platform and momentum to further deepen our influence and strengthen our internal capacity.

As our next Chief Executive, you will:

• Strategy & Impact: Lead NASS through a period of policy and structural change, ensuring the organisation remains clear on purpose, responsive to members and influential in the SEND landscape.
• Governance & Finance: Work closely with the Board of Trustees to provide strong governance, prudent financial stewardship, robust risk management and clear strategic oversight.
• Operational Leadership: Provide confident leadership to a small, remote team, strengthening collaboration, accountability, resilience and a positive, high-trust culture.
• Income Generation: Oversee budgeting, planning and reporting while developing thoughtful opportunities to diversify income through membership, partnerships, events and related activity.
• Community & Partnerships: Build and sustain trusted relationships with government, parliament, regulators, sector bodies and member schools, ensuring NASS remains relevant and well connected.
• Member Services: Protect and enhance the practical offer to members, from briefings and special interest groups to conferences, webinars, training and peer-to-peer learning.
• Brand & Profile: Act as a credible public ambassador for NASS, helping to modernise communications and broaden the organisation’s voice beyond a founder-shaped model.
• Future Growth: Shape a distributed leadership profile and support a more varied, accessible and engaging approach to membership, advocacy and communications.
• A seasoned senior leader with experience in a charity, membership body, education or public sector setting, and a clear track record of leading through change.
• A strong strategic thinker, able to absorb complex information quickly and translate it into clear, practical direction.
• A confident communicator with the gravitas to represent NASS with members, staff, trustees, MPs, peers, media and national partners.
• A politically astute relationship-builder, comfortable navigating a complex and fast-moving external environment.
• Experienced in governance, with a sound understanding of working with boards or trustees and supporting effective decision-making.
• Numerate and commercially minded, with experience of budgets, financial planning, income generation or partnership development.
• Credible, approachable and resilient, with the emotional intelligence to lead well in a high-profile, remote and sometimes uncertain context.
• Direct SEND experience would be a significant advantage, alongside understanding of specialist education or similarly complex stakeholder environments.

Why NASS?

• This is a chance to lead a respected, member-led organisation with a strong national reputation and a clear public purpose.
• You will help shape the future of specialist education at a time when SEND reform is high on the agenda.
• NASS has a loyal, experienced and collegiate remote staff team, supported by an active Board of Trustees.
• The organisation offers a genuinely influential platform, with strong connections across the sector and with government.

Application

For full details of the role including how to apply, please download the full appointment brief. For an informal and confidential conversation about this position, please contact Jenny Hills at Harris Hill via apply button with times to speak and (optional but appreciated) a CV or professional profile which will be treated with the strictest confidence.

Closing date for applications: 9am, Monday 8th June 2026

As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.

We’re looking for a creative and organised Design Officer to join our Marketing team on a FTC until August 2027. This is an opportunity to play a key role in helping people recognise The National Lottery Community Fund and understand the difference our funding makes to communities across the UK.

Working closely with the Brand Manager and colleagues across Communications and Engagement, you’ll help create clear, accessible and engaging design materials for a wide range of channels. From templates, presentations and reports to campaign assets, event materials and branded guidance, your work will help us tell our story consistently and creatively.

This role would suit someone who has a flare for design and enjoys balancing hands-on design delivery with brand stewardship, working with different teams, managing varied briefs and finding practical creative solutions in a busy organisation.

You might start the day reviewing new design requests from colleagues, then spend time creating branded assets for a campaign, presentation, report or event. Later, you may be advising a team on how to apply our visual identity, updating a template, or working with an external designer to make sure commissioned work is on brand, accessible and delivered on time.

You’ll be expected to balance hands-on design delivery with brand guidance, helping colleagues produce communications that are clear, consistent and engaging.

Key responsibilities may include:

• Create high-quality design materials for internal and external communications, across print and digital channels.
• Manage and prioritise design requests, agreeing realistic timelines with colleagues.
• Support the Brand Manager in maintaining the consistency and integrity of the Fund’s visual identity.
• Provide practical design advice to teams across the UK, balancing brand consistency with creative flexibility.
• Design quick-turnaround assets in-house, including presentations, social media graphics, reports, event materials and branded documents.
• Brief and work with external designers, freelancers or suppliers where additional support is needed.
• Ensure design work is accessible, inclusive and appropriate for the intended audience.
• Work closely with communications, content and country teams to support integrated campaigns and projects.

We’re looking for someone with strong practical experience in graphic design, ideally with at least five years’ experience in a design role or similar creative environment. You’ll be confident creating high-quality design work across a range of formats, including digital, print, presentations, reports, social media, campaign materials and event assets.

You’ll need a good understanding of brand identity and be able to apply guidelines consistently while still bringing creative thinking and flexibility to your work. You should be comfortable managing multiple briefs, prioritising your workload and working to deadlines in a busy organisation.

The ideal candidate will have:

• At least five years’ experience in a graphic design role or similar creative background.
• A strong, up-to-date portfolio of design work that you are able to talk through.
• Experience creating materials for both digital and print channels.
• Good knowledge of design software and tools, such as Adobe Creative Suite, Canva or similar.
• An understanding of accessibility and inclusive design principles.
• Strong attention to detail and the ability to produce clear, polished and accurate work.
• Experience working with brand guidelines and maintaining visual consistency.
• Good communication skills, with the confidence to advise colleagues and respond constructively to feedback.
• The ability to manage competing deadlines and work with colleagues across different teams.
• Experience briefing or working with external designers, freelancers or suppliers would be helpful.
• This role can be based anywhere in the UK. You will be expected to travel at least once a month for team meetings, and occasional additional travel may be required to support projects, events or collaboration with colleagues.
• A relevant design qualification, certification or equivalent professional experience would be welcome, but we are most interested in your practical experience, portfolio and ability to create accessible, effective and brand-aligned design work.

Interview details:

• Date: w/c 6th or 13th July
• Format: Online
• Location: We have a hybrid approach to working. Work pattern and location will be agreed with the successful candidate. The role can be based at any of our UK offices: Belfast, Birmingham, Cardiff, Exeter, Glasgow, Leeds, London, Manchester, Newcastle, and Newtown.

For an informal discussion about the role, please contact: Ibi Adekoya. For any questions about the recruitment process, please email us.

How to apply:

Upload your CV in word format and write a supporting statement (1000 words) with the following criteria, we will use this to score your application. If you are selected for interview we will request to view your portfolio before the interview date. 

Your supporting statement should explain how your skills and experience meet the essential criteria below. Your portfolio should include examples of recent design work that show your approach to brand, accessibility, layout, digital and/or print design. We will use your CV, supporting statement and portfolio to assess your application.

Essential Criteria:

• At least five years’ practical experience working in graphic design, brand design or a similar creative role.
• A strong and relevant portfolio demonstrating high-quality design across a range of formats, such as digital, print, reports, presentations, campaigns, social media or event materials.
• Experience applying brand guidelines consistently while using creative judgement to adapt designs for different audiences, channels and purposes.
• Strong working knowledge of design tools, particularly Adobe Creative Suite, with confidence using other tools such as Canva or Microsoft PowerPoint where appropriate.
• Good understanding of accessibility and inclusive design principles, with the ability to create clear, user-focused and accessible design work.
• Strong communication skills, with the confidence to advise colleagues on design choices and explain creative decisions clearly.
• Experience commissioning and briefing and working with external designers, freelancers or suppliers where additional support is needed

Desirable Criteria:

• Experience designing for a public sector, charity, non-profit or purpose-led organisation.

Equity, Diversity and Inclusion  

Communities in the UK come in all shapes and sizes. National Lottery funding is for everyone – therefore, we are committed to equity, diversity and inclusion and we work hard to ensure our funding reaches where it is needed.  

We also believe our people should represent the communities, organisations and individuals we work with. That’s why The National Lottery Community Fund is committed to being an inclusive employer and a great place to work. We recognise and celebrate the fact that our people come from diverse backgrounds. We positively welcome applications from people from ethnic minority backgrounds, people with disabilities or longstanding health conditions, people who are LGBTQ+, and people from different socio-economic and educational backgrounds, as well as people of all ages. 

As a Disability Confident Employer, we take a proactive approach in making reasonable adjustments, if needed, throughout the recruitment process and during employment. (This can be related to a physical and mental health condition.) 

About the Role

The Business Development Officer will play a dynamic and influential role within Sands’ Partnerships & Philanthropy team, helping to shape the charity’s growing presence across corporate, commercial, and digital landscapes. You’ll contribute directly to our income generating ambitions by uncovering new opportunities, building a healthy prospect pipeline, and supporting outreach that amplifies Sands’ profile across professional and online networks.

This role offers an exciting blend of creativity, insight gathering, and hands‑on development work. You’ll collaborate with colleagues across the organisation to elevate Sands’ visibility - including helping to craft engaging digital content, develop compelling partnership assets, and support targeted online marketing initiatives. With the space to work proactively and take ownership of your projects, you’ll play a meaningful part in strengthening our corporate partnerships and creating foundations for long‑term, high‑impact relationships.

Main Purpose of the Job

• To contribute to the growth of Sands’ commercial and strategic partnerships by generating high-quality research, intelligence, and insight to support prospect acquisition and cultivation.
• To develop and maintain a healthy, diverse pipeline of corporate, commercial, and strategic prospects through structured research, qualification, and profiling.
• To support outreach, digital engagement, and online marketing activity to increase awareness of Sands’ partnership opportunities and drive inbound interest.
• To provide essential administrative and operational support for database management, data compliance, and reporting.
• To support the development of compelling proposals, pitch materials, development assets and case studies that reflect the needs and priorities of Sands and resonate with potential partners.

Principal Tasks and Responsibilities

1. Prospect Research & Pipeline Development

• Conduct structured research to identify new prospective partners across multiple sectors, including retail, leisure, wellbeing, transport, and corporate services.
• Build detailed prospect profiles, including organisational background, alignment potential, decision-makers, and partnership opportunities.
• Maintain and update a robust cross industry prospect pipeline, ensuring all prospects are accurately categorised and tracked.
• Undertake competitor and sector analysis to identify emerging trends and opportunities, supporting Sands’ strategic positioning.
• Map networks and connections (internal and external) to support the expansion of Sands’ business development reach.

2. Outreach, Marketing & Engagement Support

• Support initial outreach to prospective partners, including email approaches, LinkedIn engagement, and follow-up communications.
• Support the planning and delivery of targeted online marketing activity to increase organisational visibility among corporate audiences.
• Develop engaging content for outreach - such as partner briefs, email templates, and introductory decks.
• Collaborate with the Engagement and Communications teams to ensure all external messaging reflects Sands’ brand and partnership priorities.

3. Database, Reporting & Administration

• Maintain accurate, GDPR compliant records on Sands’ CRM, ensuring all research, outreach and cultivation activity are fully logged and auditable.
• Produce regular reports and dashboards to support team activity planning and income forecasting.
• Track deadlines for proposals, reporting, stewardship requirements, and internal consultations.
• Support due diligence checks for all new prospects and record documentation in line with Sands’ ethical and data protection policies.

4. Partnership Materials, Proposals & Case Studies

• Support the creation of high-quality partnership assets, including pitch decks, proposals, stewardship packs, and impact summaries.
• Collate relevant organisational information and stories to support the development of compelling case studies.
• Work with internal colleagues to gather content on Sands’ programmes, events, research, and family stories to support tailored partnership pitches.
• Assist with developing template materials for more efficient proposal creation.
  
  

5. Internal Collaboration & Organisational Support

• Work closely with the Commercial Business Development Lead to coordinate new business activity and support cultivation of prospective corporate relationships.
• Collaborate with colleagues across Engagement, Communications, Events, Fundraising and Services to ensure partnership opportunities are strategically aligned.
• Support the planning and delivery of cultivation events, webinars, and online briefings for corporate audiences.

Job Title: Equipment Advice and Outreach Officer

Reports to: Chief Executive / Practice Lead

Contract: Fixed term, 18 months

Hours: Part-time, approximately 22.5 hours per week (0.6 FTE)

Location: Home-based in England, with regular travel across a large region and occasional overnight stays

Salary: £20,556 (Full-time equivalent salary (FTE): £34,259)

About Pathfinders Neuromuscular Alliance

Pathfinders Neuromuscular Alliance is a user-led charity run by and for people with muscle-weakening conditions. We provide advocacy, peer support, information, training and campaigning to help disabled people live with greater confidence, connection and control.

We are developing a new service model to help adults with neuromuscular conditions identify practical needs relating to equipment, adaptations and wider day-to-day transitions, and to connect them to people with relevant lived-experience expertise.

Purpose of the Role

The Outreach and Practitioner–Evaluator will help Pathfinders identify adults with neuromuscular conditions who may benefit from practical support around equipment, adaptations and wider day-to-day challenges.

The role is not primarily to provide complex specialist advice directly. Instead, the postholder will:

• build relationships with services and organisations to identify potential clients
• hold structured conversations to understand people’s needs
• offer initial information, practical resources and signposting
• connect people to Pathfinders’ lived-experience specialists where more specific insight is needed
• support the development of reusable lived-experience resources, including short videos, blogs and written guidance
• collect routine feedback and help document and evaluate the service

Pathfinders’ lived-experience specialists are people with direct personal experience of neuromuscular conditions and of specific issues, transitions or practical solutions. A key part of this role is helping people access that expertise.

The role is to help people make sense of what might help, what routes may be available, and who they may need to speak to next. It is not to guarantee that equipment will be obtained, but to improve people’s understanding, preparedness and access to relevant expertise and pathways.

Main Responsibilities

1. Outreach and relationship-building

• Build and maintain relationships with clinics, hospices, charities, networks and other relevant services.
• Travel regularly to external settings to identify potential clients and raise awareness of the service.
• Confidently approach professionals, families and individuals to explain the offer and encourage engagement.
• Help create practical referral and engagement routes into the service.
• Prioritise outreach activity in line with project aims and agreed target regions.

2. Needs identification and support coordination

• Hold 1-to-1 conversations with adults with neuromuscular conditions and, where appropriate, family members or supporters, to identify practical needs relating to equipment, adaptations and wider day-to-day challenges.
• Provide initial information, signposting and relevant resources within agreed boundaries.
• Recognise when an issue would benefit from connection to a Pathfinders lived-experience specialist and facilitate that connection.
• Recognise when an issue requires statutory or clinical input and support onward referral or escalation where appropriate.
• Work with Pathfinders staff to help ensure people are connected to the most appropriate source of practical or professional support.

3. Working with lived-experience specialists and resource development

• Work with freelance lived-experience specialists to identify practical solutions, insights and examples relevant to the issues raised by service users.
• Support and encourage lived-experience specialists to share their expertise in accessible ways.
• Help coordinate and develop practical resources based on lived-experience knowledge, including short videos, blogs and written guidance.
• Contribute to ensuring these resources are accessible, organised and responsive to recurring needs identified through the service.

4. Documentation and evaluation support

• Maintain accurate records of outreach activity, contacts, needs identified, resources shared, onward connections and follow-up.
• Support the collection of routine feedback, including post-support forms and short follow-up conversations.
• Use agreed templates and systems to document contacts clearly and consistently.
• Share reflections and emerging themes with the team to support ongoing learning, evaluation and service development.

5. Teamworking and service development

• Participate in regular supervision, planning and reflective review meetings.
• Work collaboratively with the Chief Executive, Advocacy Officer, freelance lived-experience specialists and external partners.
• Contribute to the refinement of service processes, boundaries and referral pathways.
• Support dissemination of learning through briefings, webinars or other outputs as required.

Additional Requirements

• Regular travel across England is required, typically around once per week, with priority given to areas closest to the postholder’s base in the first instance. 
• Some travel may involve overnight stays.
• The postholder must have access to and use of a car for work purposes, although train travel may be used for some visits.
• Travel expenses and mileage will be reimbursed in line with organisational policy.

Person Specification

Essential

• Confident, outgoing and comfortable starting conversations with new people in professional and community settings.
• Experience of outreach, community engagement, advice, advocacy, support work or case coordination.
• Strong organisational skills and confidence managing follow-up, coordination and documentation.
• Comfortable using forms, spreadsheets, databases or case-recording systems and completing paperwork accurately.
• Familiarity with equipment, adaptations or practical support issues affecting disabled people.
• Ability to identify needs and know when to seek support, connect someone to lived-experience expertise, or refer on.
• Strong communication skills and a sensitive, respectful approach with service users, families and professionals.
• Ability to work independently while remaining well connected to a small team.
• Able and willing to travel regularly across England, including occasional overnight stays.
• Access to and use of a car for work purposes.
• Commitment to inclusion, dignity and user-led practice.

Desirable

• Experience of working alongside people with lived experience to co-produce support or resources.
• Experience of gathering feedback or supporting service evaluation.
• Knowledge of health or social care systems.
• Personal or close lived experience of disability or long-term conditions.

We are aiming to recruit immediately for this role with the first round of interviews on 1st June, but will conduct further interviews if necessary until we identify a suitable candidate.

Role Purpose

Special events play a vital role in engaging our supporters, inspiring their support, and raising vital income for Child Bereavement UK.

The Special Events Manager is responsible for planning, coordinating, and executing high-quality Special Events. You will work with colleagues from across the charity to develop programmes that will engage our audiences and communicate the impact we deliver as a charity.

The role will work closely with the Philanthropy team delivering high profile events that engage an inspire high net worth individuals across the country.

Main Responsibilities

Leadership

• To lead and inspire the Special Events Team fostering a collaborative and high culture that delivers against income and objectives 
• Provide clear and supportive leadership that motivates staff to achieve, develop and grow in their roles 
• Undertake quarterly reviews for all direct reports 

Special Events

• Support the Head of Philanthropy and Special Events to deliver the Special Events strategy
• Plan and lead on all Special Events ensuing all return a good ROI
• Lead on relationships with external suppliers including venues, caterers, AV suppliers, photographers etc
• Work with the Head of Philanthropy & Special Events to manage relationships with senior volunteers and supporters
• Developing comprehensive proposals and plans for every event detailing objectives, formats, timelines, risks, marketing/communications plans and evaluation plans
• Working closely with the Philanthropy team to create and liaise with special event committees
• Ensure the smooth running of the events in line with health and safety guidelines
• Prepare detailed event briefings, and evaluate the success and impact of the events
• Manage and monitor expenditure for the events, as agreed with the Head of Philanthropy and Special Events ensuring value for money and adherence to budget
• Oversee recruitment and support for all Event committees
• Ensuring all associated activities are compliant with charity law, regulatory requirements and best practice, including the Data Protection Act and GDPR
• Work with Marketing to promote events across all channels

All Staff

• Contribute to the vision and mission of Child Bereavement UK; whilst embedding the values into your daily work activities.
• Promote equality of opportunity and diversity in accordance with Child Bereavement UK policy.
• Contribute to the overall success of the charity’s fundraising needs by providing case studies, attending events and adding value to the experience of our supporters as required.
• Contribute to the brand and reach of the charity by working alongside our Marketing & Communications Team when relevant press opportunities arise or when required for social media and online content (including the use of photography).
• Work to objectives, targets and work plans agreed with your line manager.
• Undertake specific projects and other ad hoc duties agreed with your line manager, fulfilling any deadlines, reviews and reporting procedures required.
• Take an active part in the Quarterly review process and participate in training agreed with your line manager.
• Recognise and champion the lived experience of children and young people with bereavement within your work.
• Ensure the health and safety of all colleagues, volunteers and visitors in accordance with Child Bereavement UK policy.

Person Specification

Essential

• Proven experience of running a wide range of high-quality events from conception to completion
• Leadership experience
• Strong event planning skills
• Demonstrable experience of delivering events within strict budgets and timescales
• Management of senior volunteers and stakeholders
• A thorough understanding of every stage of the events planning and delivery process
• Demonstrable problem solving ability and skills
• Budget management
• Able to work in fast-paced, deadline driven environment
• Ability to build constructive and collaborative relationships with all levels of internal and external stakeholders
• High level of interpersonal and communication skills
• Excellent attention to detail
• Knowledge of relevant charity law and codes of practice including data protection and GDPR

Desirable

• Experience in charity events
• Experience of using fundraising database(s), particularly Sales Force or another fundraising or CRM database

Recruitment Timetable

Application deadline: 2nd June 2026 at midnight

First Stage Screening Interviews

You may be asked to attend a 10-minute Screening Interview on MS Teams with the Hiring Managers for the vacancy, to assess your suitability for the role. During the interview, you will be asked two skills-based questions.

Second Stage Interviews

If you are progressed to a second stage interview, you will be invited to attend a 1-hour formal interview on MS Teams with the Hiring Managers for the role. It is our policy to share the role-specific interview questions with applicants ahead of the interview, to aid their preparation. You may also be asked to complete an interview task, which will also be shared with you in advance.

Help Change the Future of Polycystic Kidney Disease Research

Patient & Public Involvement and Engagement (PPIE) Manager

PKD Charity
Remote (UK-based) | Part-time (22.5 hours / 3 days per week)
Salary: £33,000–£35,000 FTE pro rata (£19,800–£21,000 actual)

The PKD Charity is looking for an exceptional communicator and relationship-builder to lead patient involvement in groundbreaking PKD research.

This is not a standard engagement role.

You will help ensure that the voices, experiences and priorities of people living with polycystic kidney disease directly influence research, clinical studies and future healthcare decisions across the UK.

PKD affects around 70,000 people in the UK. It causes kidney failure, lifelong health complications and reduced life expectancy. There is currently no cure.

We believe research is stronger when patients are genuinely heard — not consulted as an afterthought.

That’s where you come in.

The Opportunity

As our Patient & Public Involvement and Engagement (PPIE) Manager, you’ll lead and shape involvement activity through the PKD Research Hub, working alongside patients, researchers, clinicians and partners to make research more inclusive, meaningful and impactful.

You’ll:

• Lead and support our Patient Involvement Panel
• Facilitate high-quality patient engagement and focus groups
• Work directly with researchers and industry partners
• Champion authentic lived experience in research decision-making
• Support awareness of clinical studies and research opportunities
• Create compelling patient stories and engagement content
• Help influence the future direction of PKD research in the UK

We’re Looking For Someone Who:

• Understands the power of meaningful patient involvement
• Can confidently manage relationships with patients, researchers and stakeholders
• Has experience in PPIE, health research, healthcare or the charity sector
• Is an excellent facilitator and communicator
• Brings empathy, professionalism and initiative
• Wants to make a tangible difference every single day

Experience in rare disease, kidney health or long-term conditions is welcomed but not essential.

Why Join Us?

At the PKD Charity, you’ll join a passionate national charity working to improve lives through:

• Research
• Advocacy
• Support
• Education
• Patient voice

This is a rare opportunity to shape a growing area of work with real national impact — while working flexibly as part of a supportive, mission-driven team.

What We Offer

✔ Fully remote working
✔ Flexible part-time hours (3 days / 22.5 hrs)
✔ 25 days annual leave pro rata + bank holidays
✔ Pension scheme
✔ Meaningful, purpose-driven work
✔ Opportunity to influence national research activity

Apply Now

For details on how to apply, please see the application pack.

Deadline 9am Monday 1st June. Interviews will provisionally be held online on Wednesday 10th June. However we will monitor applications on a rolling basis and may approach for interview at an earlier date. If we find the right candidate we may close the recruitment campaign at an earlier time, so we encourage you to get your applications in at the earliest opportunity.