Policy communications manager jobs in dewsbury, west yorkshire

About Alzheimer's Society - who are we and what’s our mission? 
Dementia is the UK’s biggest killer. One in three people born in the UK today will develop dementia in their lifetime. 
At Alzheimer’s Society, we’re the UK’s leading dementia charity and the only one to tackle all aspects of dementia by giving help and hope to people living with dementia today and in the future. We give vital support to people facing the most frightening times of their lives, while also funding groundbreaking research and campaigning to make dementia the priority it should be. 
Together with our supporters, we’re working towards a world where dementia no longer devastates lives.
Our values make sure that our focus is clear for the challenges and opportunities ahead and remind us of what we all stand for. 

About the Opportunity
We are looking for an inspiring and strategic leader to join our People Directorate Leadership team as the Head of Involvement at Alzheimer’s Society. This pivotal role will focus on deepening our understanding of the lived experiences of those affected by dementia and driving the development and delivery of our Involvement Strategic Plan. You will empower people affected by dementia, co-producing initiatives, and sharing their invaluable experiences, ensuring inclusion and equity in all aspects of our work. 
 
As Head of Involvement, you’ll lead a dynamic team, collaborating across the organisation and with external partners to influence the wider dementia sector. This is a unique opportunity to make a tangible impact, shaping policies and practices that directly affect the lives of people living with dementia and their carers. You will have the chance to be a thought leader, promoting and raising the profile of involvement activities that truly make a difference.

What You’ll Focus On

- Leadership, Culture Transformation & Strategy: Lead the development and execution of Alzheimer’s Society’s Involvement Strategic Plan, ensuring meaningful, impactful, and inclusive involvement of people affected by dementia.
- Inclusion & Diversity: Champion equity, diversity, and inclusion, creating opportunities to amplify the voices of underrepresented communities and people affected by Dementia.
- Team Leadership: Provide day-to-day leadership to the Involvement team, building a high-performing culture prioritising wellbeing, learning, and accountability.
- Stakeholder Engagement: Foster and maintain trusted, high-impact relationships with stakeholders across health, social care, and the third sector.
- Collaboration & Influence: Collaborate across directorates and with external partners, ensuring that involvement is embedded in all organisational and strategic initiatives.
- Impact Measurement: Use data and insights to clearly articulate the impact of involvement on operations, strategic direction, and culture change.

About You
We’re looking for a dynamic individual who brings a wealth of experience in involvement work, with a proven track record of embedding inclusive practices and developing sustainable initiatives. You’ll be an excellent communicator, capable of building strong relationships and influencing stakeholders at all levels. You will also possess the ability to inspire and lead a team, fostering a culture of innovation and continuous learning.
You should be a trusted expert who demonstrates compassion, determination, and a commitment to making a meaningful difference. The ideal candidate will also have:

- Significant experience in developing involvement models across sectors and organisations.
- Exceptional leadership and team management skills, with the ability to motivate and guide teams towards shared goals.
- Strong communication skills, both internally and externally, with the ability to act as an ambassador for the Society’s involvement work.
- A passion for inclusion, with a deep understanding of the challenges faced by people with dementia and their families.

About Alzheimer's Society

Our commitment to Equity, Diversity, Inclusion & Belonging 
We need to ensure the voices around our table better reflect and understand the communities we exist to serve. We strongly encourage individuals to apply who have a disability, impairment or health condition or individuals who identify as Black, Asian or from another minority ethnic background, as these groups are currently under-represented at Alzheimer's Society.  
 
We want everyone we work with, as a colleague, volunteer, supporter, or someone we support, to feel included and that they belong at Alzheimer's Society. 
Our Equity, Diversity and Inclusion Strategy here along with our internal employee forum and Employee Lived Experience network groups help us promote inclusion and belonging, becoming an engaged and inclusive organisation for all our people. 
 
Our hiring process
During your recruitment process we want to make sure that you bring your whole self and can be at your best. We are working hard to ensure our recruitment process is as inclusive as possible, so please do inform us of your experience and anything you think we could do better by completing our candidate survey when you apply.  Please also contact Alzheimer’s Society Talent Acquisition Team careers at alzhemers . org . uk for application support or any adjustments you might need.
  
To ensure fairness and consistency to select the best candidate for this role, all our applications are anonymised up until an interview has been confirmed. We recognise the benefits of AI, but if you're considering using it to submit your application, we encourage you to reflect on the value it truly adds. AI tools often lack the personal touch and authenticity that set candidates apart. We want to hear your unique perspective, experiences, and skills, so we encourage you to showcase them in your own voice.

We are looking for a driven and ambitious fundraiser to join our small but mighty fundraising team at a crucial period for the organisation as we find ourselves in the midpoint of our strategy period.

Since 2020 we have grown our income by 35%, refined our theory of change, invested in our digital and evaluation capabilities, secured multi-year funding and support from a series of well-respected funders and partners. This has laid solid foundations for future growth as we seek to revise our programmes, reaching the most vulnerable young people across London and Greater Manchester.  

Khulisa’s work continues to be known for putting well-being at the heart of positive change, transforming the lives of some of the UK's most vulnerable young people and supporting them to increase their wellbeing, self-esteem, enable educational inclusion. The highlights of the last year, include: 

• Supporting over 480 young people and adults 

• Surpassing £1.2 million in income 

• Significant improvements in Wellbeing being reported by 61% of our young people 

• 91% of our young people reporting feeling safe and not judged during our programmes 

We very much look forward to hearing from you and good luck! 

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Key Responsibilities 

• Trust Fundraising
• Prospecting – researching new trust and foundation opportunities
• Writing five-figure applications
• Managing a portfolio of 25-30 Trusts and Foundations
• Thanking – writing thank you letters, notes and confirmation receipts
• Banking – liaising with our colleagues in finance and supporters, to support receipt of funding
• Supporting the design of new thanking materials and a schedule of keeping supporters updated - thank you cards, seasonal messaging, reporting templates 
• Reporting – annually to donors, managing reporting schedule with Senior Fundraising Manager and colleagues in finance.
• Small trusts outreach and mailings.
• CRM: Updating our database on a weekly basis, data entry, updating current funders, payment schedules, agreements, building dashboards
• Monthly review of fundraising pipelines and opportunities, supporting the team with forecasting and their own pipeline management 
• Participating in cross team meetings with fundraising agenda’s - bid kick off meetings,  delivery/funders meetings, E&I, programmes.
• Finance – monthly reconciliation meeting.
• Logistics support for donor engagement days/meetings
• Managing case study bank and securing new case studies from the Programmes Team. 
• Team work and Administration
• Cross-team working – connecting with the programmes team on a regular basis
• Responding to all cross-organisational needs, including wellbeing surveys, attending team meetings and collaboration sessions
• Minute taking on a rolling basis across the team
• Preparing external meeting briefs
• Representing the organisation externally – conferences, networking etc.
• Contributing into fundraising reporting to Khulisa’s Board of Trustees 

Skills  

• Experience of writing clearly to communicate complex issues in a compelling manner 

• Strong ability to summarise text and key points, tailored to different audiences. 

• Strong written and verbal communication skills  

• Excellent eye for detail, strong systems and processes management skills 

• Ability to write reports in a concise, engaging and accessible manner 

• Strong people skills and willingness to work as part of a wider team 

• Ability to work independently using own initiative 

• Strong levels of comfort with using new, complex technology 

Diversity, Equity and Inclusion We are actively looking to recruit a diversity of talent. We embrace, respect and value the difference in our employees and believe that we and our work is better for it. We are committed to creating and maintaining an inclusive environment that consists of fairness, dignity, and caring for everyone, and one that enables every employee to flourish and realise their potential

Leeds Citizens Advice & Law Centre has been providing free and independent advice for more than 80 years, offering access to justice for people experiencing disadvantage or discrimination. In November 2024, we joined the Law Centres Network and have secured funding to expand our legal advice service.

We’re looking for a Solicitor or CILEx to supervise our housing advice team and legal aid contract. The team offers complex casework and representation to clients facing possession, eviction, serious disrepair and housing issues related to DAV and to anti-social behaviour. You will have 3 years’ PQE in housing law and be able to manage a wide range of cases, as well as experience of working under a legal aid contract, supervising caseworkers, and meeting targets.

Leeds Citizens Advice & Law Centre offers family friendly employment policies, 6.5% pension contribution and an Employee Assistance Programme. Hybrid working is available but this role will require at least 3 days per week in the office. Our modern offices are located in the city centre close to the combined courts and with excellent transport links.

If you’d like to join our friendly team working in an organisation that’s committed to social justice, you can find more information and application details on our website via the apply button.

Closing date for applications: 6 June 2025

Interviews: Applications will be reviewed as they arrive, and interviews may be conducted before the closing date. Therefore, early applications are strongly encouraged.

Location: Homebased

Contract: Full time, fixed term 1 year contract.

Salary: Salary £34,000 per annum

Closing Date: 26 June 2025

If you have the creativity and skills to develop engaging and accessible elearning content that supports youth development, then joining Sea Cadets as a Senior Virtual Learning Officer could be a good move for you!

The Marine Society & Sea Cadets (MSSC) is a vibrant and growing charity delivering life changing nautical adventure for young people through the Sea Cadets to give them the best possible head start in life. We also provide personal and professional development opportunities for seafarers with the Marine Society. Working with our staff, cadets, and volunteers, we have built a vision and five-year strategy to take us forward and further improve the astounding contribution already made through our work to the lives of thousands of young people and seafarers, while fully supporting our volunteers who are vital to our success.

We are currently looking for a Senior Virtual Learning Officer to join our learning development team.

This role will be involved in the development of training covering subjects such as:

• Safeguarding
• EDI topics such as Autism and Gender Diversity
• Health and Safety
• Onboarding new adult volunteers to Sea Cadets

If you enjoy eLearning development this could be the role for you.

Responsibilities

• Work with course designers to develop new, and maintain existing, elearning and media content.
• Translate storyboards into interactive learning content, creating activities, graphics, animations, audio and videos, using tools such as Articulate (Storyline and Rise), Canva, H5P, Murf and Adobe.
• Ensure learning meets development guidelines, and is accessible, functional and engaging.
• Integrate learning content to create courses on our learning management system (Moodle).
• Test learning content, including using screen readers and other accessibility software.
• Help to maintain the guidelines for course development.
• Support the day-to-day administration of the Sea Cadets learning management environment
• Cultivate strong working relationships across multiple teams (internal and external)
• Stay up to date with latest system upgrades and advise on their potential impact on existing or new courses

Requirements

• eLearning development experience ( e.g. tools such as Articulate Storyline and Rise, or similar)
• Experience in media creation for graphics, sound and video editing.
• Good MS Office skills

Desirable

• Experience using Teams and SharePoint
• Knowledge of Web Content Accessibility Guidelines (WCAG)
• LMS Administration experience (our platform is based on Moodle, Mahara and Alfresco but other LMS skills will be transferable)
• Subject matter knowledge in one of the following areas:
  • Supporting Autistic young people
  • Specialised educational needs
  • Other Equity, Diversity and Inclusion subjects
  • Safeguarding
  • Onboarding new people

For further information, please download the Recruitment Pack.

Benefits

• Some hybrid working opportunities
• Cycle to work scheme and Season Ticket Loan
• 25 days annual leave plus bank holidays
• Life assurance (4x salary) for those that join the pension
• Private medical insurance
• Pension (employer contribution up to 10%)
• Wellbeing portal and EAP with 121 counselling
• Employee development: We are investing in our employees' development and have an annual calendar of learning and development opportunities, designed to support employees to develop into their roles and stretch them to achieve their full potential.
• National staff conference: All employees come together once a year to reflect on the past year and celebrate success at our staff conference. This is a great opportunity to listen to employees' views, and for employees to network, share information and socialise.

Additional Information

MSSC positively encourages applications from suitably qualified and eligible candidates from all backgrounds. Equity, diversity, and inclusion really matters to us, so we can best serve our beneficiaries from every community. We work to ensure a fair and consistent recruitment process and aim to be a charity where diversity of experience, identity and skills are valued and welcomed. MSSC is an equal opportunities employer.

We recognise our responsibilities to safeguard and protect the young people and vulnerable adults with whom we work. We do all we can to promote their health, safety and wellbeing, and we expect our staff to share this commitment and work in line with safeguarding policy, the MSSC’s values and ethos of inclusivity. We adhere to safer recruitment practices and therefore employment is subject to detailed pre-employment checks for successful candidates, including references and criminal disclosure checks and the completion of a disclosure questionnaire.

All successful applicants are required to attend safeguarding training and undergo a criminal record check, and successfully acquire MoD security clearance.

Salary: £31,133.37 (plus £5023.71 of London weighting if applicable)

Location: Flexible with home working option, regular travel to London is also required 

Contract: Permanent

Hours: Full time 37.5 hours

Closing date: 27th May 2025 at 11:30pm

Are you passionate about engaging supporters, being audience-led, and building outstanding supporter journeys, with a proven track record of working on projects and campaigns to engage, retain and develop supporters or customers across a range of direct marketing channels? Then join Shelter as Direct Marketing Executive – Supporter Retention and you could soon be putting your skills and experience to excellent use at the heart of our Individual Giving team.

About the role  

This pivotal role will see you help deliver the Individual Giving (IG) and Retention strategies, working collaboratively with colleagues across teams in IG to increase lifetime value of cash, regular giving and lottery supporters.

You’ll work with the Senior Direct Marketing Manager to lead on the delivery and development of direct marketing campaigns to engage a range of supporters, from those who have just started giving, to others who have a lifelong relationship with Shelter and the cause, stewarding them across their supporter journey with Shelter. 

You’ll have the opportunity to work in a matrix way, across multiple products, and on projects that push forward not only the team strategy, but the organisation’s strategy. 

You will give supporters control of how they give, when we contact them and the content that will mean most to them. Helping build multi-channel, integrated and inspiring campaigns which build strong supporter relationships and long-term loyalty to Shelter. And, along the way, you’ll get to work with new products and propositions to retain supporters in innovative ways and build strong relationships with colleagues, agencies and suppliers alike.

 About you

Passionate about outstanding supporter experiences and maximising income opportunities, you have a good understanding of direct marketing and digital channels such as direct mail, SMS, telemarketing and email. You’re also used to optimising and reviewing campaigns and aren’t afraid to share both failures and successes. Managing and influencing stakeholders to deliver results comes naturally to you too. What’s more, you excel in analysis and intelligent use of data, are great at utilising insight, including the motivations, interests and behaviours of supporters to guide decisions. You’ll have a keen interest in, or willingness to learn about, product management and development. 

You’re happy to challenge the status quo and introduce new ideas, methods and processes too, like to horizon scan and keep ahead of emerging trends and are comfortable working in matrix teams.

Apply to be part of our team and be the change you want to see in society.

Benefits 

We offer a wide range of benefits, including 30 days of annual leave, enhanced family friendly policies, pension and interest free travel loans. Our employees also have access to a tenancy deposit loan, payroll giving, cycle to work scheme and an employee assistance programme.

Shelter helps millions of people every year struggling with bad housing or homelessness through our advice, support and legal services. And we campaign to make sure that, one day, no one will have to turn to us for help. We’re here so no one has to fight bad housing or homelessness on their own.

We are happy to talk about flexible working, personal growth, and to promote a workplace where you can be yourself and achieve success based only on your merit.

About the team 

Our Individual Giving team sits within our successful, growing Income Generation directorate and consists of three programmes - Supporter Acquisition, Direct Dialogue and Supporter Retention and Development. Together, we deliver a diverse programme of work with ambitious income targets that support our organisational strategy, across cash, regular giving and lottery products. We’ve grown quite a bit over the past few years and benefitted from both investment and opportunity for innovation. 

That’s resulted in us generating over £20m of unrestricted income every year. We’re also welcoming and supportive, firmly believe in developing our people and can offer you every opportunity to progress. 

How to apply

Please click ‘Apply for Job’ below. You are required to submit a CV and a supporting statement. Please provide specific examples of how you meet the criteria in the 'About you' section of this advert approximately 1 page in length, following the STAR format, and ensure you demonstrate how you address the following behaviours listed below throughout your responses:

• We learn from our experiences and are open to risk
• We create change and align behind our strategy

Any applications submitted without a supporting statement will not be considered. 

About Shelter

Home is a human right. It’s our foundation and where we thrive. Yet everyday millions of people are being devastated by the housing emergency. 

We exist to defend the right to a safe home. Because home is everything.

We need ambitious, passionate people to join us. This is your chance to play a part in the fundamental change we are striving to achieve.

Our enemy is the social injustice at the core of the escalating housing emergency. To win this fight, we must be representative of the people we are here to help and those who support our movement. In all our people decisions, we take pride in being inclusive, equitable and transparent. We are committed to combating racism both within and outside Shelter. We welcome you on our journey to becoming truly anti-racist.

Safeguarding statement

Safeguarding is everyone's business. Shelter is committed to protecting the health, wellbeing and human rights of those we support, and enabling them to live free from harm, abuse and neglect. All our staff will be expected to observe professional standards of behaviour and conduct their work in line with our Safeguarding Policies.

Shelter does not accept unsolicited CVs from external recruitment agencies nor accept the fees associated with them. 

Us

Population Matters is an environmental and human rights charity, working to ensure that our population can co-exist in harmony with nature and prosper on a healthy planet.

Our vision is of a world in which our human population lives fairly and sustainably with nature and each other.

Our mission is to address the negative consequences of ever more people using ever more of the planet’s resources and to inspire and engage with others to find, share and promote ways to make our vision a reality as quickly as possible.

You

Have you recently completed a Masters with a substantial research component? Do you have experience originating, facilitating and conducting original research? Do you have a good understanding of statistical methods and want to help put your skills to use to help address some of humanity’s biggest challenges?

We have just entered a new five-year strategy period and are looking for someone to join our expanding Research Team, which both commissions and conducts research. We are a growing organisation and will be further expanding internationally over the strategy period.

If your application is successful, you will join a unique, research focused and data driven organisation.  

How we’ll do things

Population Matters is an inclusive and diversity-friendly employer. We value difference, promote equality and challenge discrimination, enhancing our organisational capability. We welcome and encourage applications from people of all backgrounds and do not discriminate on the basis of disability, race, colour, ethnicity, gender, religion, sexual orientation, age and all other categories protected by law.

If you require any adjustments to make the process more accessible, or to arrange an informal conversation about the role, please email the recruiting manager, Joshua Hill, via our switchboard.

Please apply by sending a CV (no more than two A4 pages) and covering letter (no more than two A4 pages), addressing the Job Description and, in particular, the Person Specification.

We will use blind recruitment practices to minimise unconscious bias.

The deadline for applications is midday on 31st May. We will hold first interviews on the 4th May, remotely, with Joshua Hill, Chief Research & Operations Officer, and David Samways, Editor of the Journal of Population and Sustainability. We will hold second interviews on the morning of the 5th June, remotely, with Josh Hill and Jameen Kaur, Director of Influence and Advocacy.

Thank you for your interest in Population Matters.

RISE is a collaborative effort with the goal of delivering a unified approach to women’s empowerment in global supply chains. Bringing together the world’s four largest women’s empowerment programs in the global supply chains - BSR’s HERproject, CARE International, Gap Inc.’s P.A.C.E. Program and ILO-IFC Better Work, RISE will leverage the combined experience in over 21 countries to achieve transformative change for the millions of women who work within supply chains globally. 

RISE will focus on three interrelated pillars of action to tackle both immediate barriers and medium/long term structural improvements for women workers. These include increased agency, confidence, and communication, increased access to and control over financial products, services and resources, enhancement of the capabilities of unions and industry organizations, and implementation of policies at the workplace level, but also regional and national levels that promote gender equality.

Pillar 1: Capacity Strengthening: Working in factories in key countries, RISE will achieve impact with a network of local civil society partners and organizations working on gender equality to deliver worker capacity building programs.  There are four options available (i) Foundation – a 13 month needs based worker training program (ii) Digital – an 8-month tablet-based learning on health, financial literacy and stress management, (iii) Respect - one year program on gender-based Violence prevention and remediation and (iv) Financial Health – a one-year program on financial capability, resilience and inclusion​.

Pillar 2: Market Transformation: RISE will work with and encourage leadership from industry actors (brands, buyers, suppliers, and worker representatives) to improve operating practices at all levels in global value chains to support greater gender equality outcomes. 

Pillar 3: Influencing: RISE will leverage the founding partners’ existing relationships and identify opportunities to work in partnership to influence employer/company/factory policies, programs, and budgets, as well as government policies that impact workers, in particular women workers.

PURPOSE OF THE CONTRACT

 

The consultant will lead the implementation of RISE’s MEL framework to ensure that data and insights inform the organization’s work and effectively demonstrate our impact.

The consultant will embed MEL systems across the organization, provide technical support and guide the teams. In addition, the consultant will lead on evaluation, develop data collection tools, analyze data and share reports and learning to improve program effectiveness.

The consultant will also demonstrate RISE’s impact to internal and external stakeholders.

Scope of Work

MEL Management and Implementation

• Implement MEL frameworks, including Theories of Change, Logical Frameworks, KPIs, and outcome indicators, ensuring they remain up-to-date and aligned with RISE values.
• Systematically integrate MEL across all programs and organizational processes to drive continuous improvement.
• Build teams’ MEL capacities and capabilities through direct technical support and guidance on MEL systems, data use, and strategic alignment.
• Foster a culture of learning through strategic reviews with the teams, gathering evidence and learning: key insights, impact narratives and lessons learnt.
• Lead quality assurance of MEL processes to improve rigor and integrity. Assess their strengths and weaknesses and recommend improvements.
• Provide strategic MEL input to support organizational planning, grant reporting, and decision-making, providing insights that support RISE’s aim of multistakeholder action.

Program Evaluation

• Design and implement robust evaluation methodologies. Refine measurement indicators and develop tools for data collection (quantitative and qualitative).

• Develop and oversee data collection tools such as surveys, focus group protocols, and interview guides.
• Lead baseline, midline, and endline evaluations, including analysis and reporting.
• Lead on impact assessments for RISE’s program areas

Data Management, Analysis & Reporting

• Manage data collection, cleaning, analysis, and visualization using appropriate software tools.
• Ensure data integrity, consistency and compliance with ethical standards and GDPR.
• Produce high-quality, accessible impact reports for internal and external audiences.
• Develop key learning products to improve internal and external communications.
• Proactively explore innovative ways to analyze data, including the use of A.I., to support more efficient analysis.

Communications

· Demonstrate RISE’s impact through a variety of channels like external publications, reports and insights, communicating value to stakeholders.

• Engage internal and external stakeholders by showcasing social impact stories and deliverables.

Note: This Scope of Work is not exhaustive but reflects a range of duties the consultant will perform. The job description will be reviewed regularly and may be changed based on experience and in consultation with the consultant.

Person specification

Essential criteria:

• Minimum8+ years of experience in MEL roles within sustainability, development, or impact-focused organizations.
• Proven experience designing and leading MEL strategies and frameworks, preferably across multi-country or cross-sectoral programs.
• Strong background in both qualitative and quantitative methods and tools.
• Knowledge of leading global best practice and emerging trends in the collection, measurement, management and reporting of social impact data.
• Excellent analytical and research skills, including the ability to process large amounts of information, distribute it appropriately and extract critical analysis from it.
• Advanced proficiency in data analysis tools and visualization platforms.
• Demonstrated experience translating complex data into strategic insights and engaging reports.
• Strong project management, research, reporting writing and presentation skills.
• Excellent communication skills – verbal and written.

· Excellent relationship management internally and externally.

· Able to manage multiple diverse projects and prioritize workload.

· Excellent team-working and cross-team collaboration and influencing skills.

· Ability to review proposals and contribute to the development of project designs, evaluation methods, logic models, performance indicators, and monitoring and evaluation frameworks.

 

Desirable criteria:

· Excellent understanding of measuring women's empowerment and social impact programs on a global scale, and in emerging markets.

· Excellent understanding of programs that focus on workers employed in global supply chains.

· Experience designing and implementing gender equality approaches to MEL.

· Experience in technical advisory roles or equivalent.

· Flexibility to undertake overseas travel.

 Reporting and Location

The consultant will report to the RISE Program Director.  This is a remote part-time (2-3 days) role, with preference for UK-based consultants. The initial contract will be for a period of six months, at which point it will be reviewed for extension.

Marie Curie is the UK's leading end-of-life charity. We are the largest non-NHS provider of end-of-life care in the UK, the only provider across all 4 nations, delivering community nursing and hospice care across the country, while providing information and support on all aspects of dying, death, and bereavement. Our leading research pushes the boundaries of what we know about good end-of-life, and our campaigns fight for a world where everyone gets to have the best possible quality of life while living with an illness, they're likely to die from.

You'll be joining a passionate and collaborative Estates & Facilities team at Marie Curie, working closely with colleagues across health, retail, fundraising, and central operations. Our team is committed to sustainability, safety, and compliance, ensuring our environments reflect our mission of compassionate care.

As the Estates Compliance & Sustainability Lead, you'll be the driving force behind our sustainability strategy and compliance performance across the estate. Your work will support vital environmental goals - like energy efficiency, carbon reduction, and sustainable practices - while ensuring we meet statutory and internal compliance standards. This is a high-impact role, perfect for someone ready to influence culture, champion innovation, and embed sustainability into everything we do.

Main responsibilities:
- Lead and deliver Marie Curie's Sustainability and Energy Strategy.
- Oversee and enhance environmental compliance (SECR, ESOS, EPC, etc.).
- Monitor and manage energy performance, providing reporting and analysis.
- Maintain and improve waste management and carbon management policies.
- Chair the sustainability working group, promoting cross-team engagement.
- Support delivery of cleaning efficacy audits and business continuity planning.
- Support Hospice teams with audits, ensuring actions are remedied and closed in a timely manner.
- Keep compliance systems (e.g., Info Exchange) and dashboards up to date.

Key Criteria:
- Solid knowledge of environmental legislation and sustainability frameworks.
- Proven experience in facilities management and environmental compliance.
- Strong analytical skills with a data-driven approach to solution design.
- Strong communication and stakeholder engagement skills. Ability to present new ideas and influence cultural change.
- Demonstrates a sense of ownership and confidence when working independently, while also effectively collaborating as part of a team.
- Possession of IEMA membership or a relevant qualification in environmental or facility management disciplines will be an asset.

Please see the full job description .

Application & Interview Process
- As part of your online application, you will be asked for a CV and Cover Letter. Please review both the advert and job description and outline your most relevant skills, experience and knowledge for the role.
- Close date for applications: 8 June 2025. We encourage early applications as we may close the application process once we have received a sufficient number of qualified candidates.

Salary: £35,530 - 39,474 per annum, depending on experience
Contract: Permanent, full-time (35 hours per week)
Based: Home-based with occasional travel across the UK.

Benefits you'll LOVE:
- Flexible working. We're happy to discuss flexible working at the interview stage.
- 25 days annual leave (exclusive of Bank Holidays)
- Marie Curie Group Personal Pension Scheme (we will match your contribution up to 7.5%)
- Loan schemes for bikes; computers and season tickets
- Continuous professional development opportunities.
- Industry-leading training programmes
- Wellbeing and Employee Assistance Programmes
- Enhanced bereavement, family friendly and sickness benefits
- Access to Blue Light Card membership
- Subsidised Eye Care

Marie Curie is committed to its values, which underpin our work. We take stringent steps to ensure that the people who join our organisation through employment or volunteering, are suitable for their roles and are committed to safeguarding all our people from harm. This includes our staff, volunteers and all those who use or come into contact with our services. We are dedicated to creating not just a safe place to work but also a supportive and rewarding one.

We are committed to a world where everyone can thrive and fulfil their potential. We are devoted to the social justice imperatives and organisational benefits of full diversity, inclusion and equity in the workplace, and are a Stonewall champion. We actively encourage and welcome applications from candidates of diverse cultures, perspectives and lived experiences.

Fundraising lead (fixed term 12-month contract, 0.4 FTE i.e. 14 hours a week)

JustMoney Movement is seeking a part-time Fundraising lead to help us grow a more sustainable funding base. The role will work with senior staff to develop our strategic case for support to target small organisational/ institutional donors (£1-5k grants/ donations).

We are a Christian charity using education and advocacy to work towards our vision of a fairer, greener future, through the transformation of our financial system and wider economy. We want to grow and diversify our funding base, reducing our dependence on a small number of grants, and building a movement of allies who feel part of the community and are willing to financially support it.

The Fundraising lead will work with senior staff to develop a case for support for our overall strategy and use this to target small organisational/ institutional donors including small trusts; corporates and organisations; and churches. 

Role description

· Grade 3.1 expected FTE salary £35,700 pro-rated to 0.4 FTE/ 14 hours a week = £14,280 (subject to annual inflationary pay review).

· Fixed term 12-month contract. This post has funding for 1 year.  If successful, there could be scope to extend the role for longer.

· Remote based: this role will be based from home, with occasional travel to meetings in London or elsewhere in the UK, for which expenses will be payable. This role is equivalent to 2 days a week but hours can be worked flexibly through the week.

· This role requires applicants to have the right to live and work in the UK.  

· Whilst this is advertised as a staff role, we would consider applications from consultants taking on the role as part of their portfolio.

Please apply via Charity Job with your CV and a cover letter outlining how you meet the person specification below, by 9am on 2 June 2025. Interviews (via Zoom) will be on 9 or 10 June.

Role Requirements

· Develop and deliver JustMoney Movement’s core fundraising strategy for small organisational/ institutional donors (donations/ grants of between £1-5k) targeting small trusts, organisations, corporates and churches.

· Work with senior staff to create a ‘case for support’ for JustMoney Movement’s overall strategy.

· Identify, develop and steward relationships with aligned small trusts, organisations, corporates and churches (in conjunction with other staff, especially the Executive Director [ED] and Director of Movement Building [DMB]).

· Design and implement the initial year of an annual programme of fundraising communications with these audiences including proposals, stewardship and reporting.

· Work closely with the ED and DMB to ensure prospects are passed on for a bespoke approach where appropriate.

· Help to set realistic targets for the ‘foundation’ 12/18 months, and take responsibility for meeting these, providing regular updates to senior staff and trustees.

· Maintain contacts and work with others in the team to develop appropriate systems and processes to support this area of fundraising.

Person specification

Essential

· Empathy with JustMoney Movement’s vision and work.

· Experience of leading one or more of the following areas of fundraising for a charity:

o Small trusts and foundations

o Corporate/ organisational

o Churches

· Experience of developing a Case for Support.

· Creative and imaginative thinker finding new opportunities to reach new potential funders.

· Exceptional organisational skills, including attention to detail and the ability to multi-task.

· Persuasive written and verbal communication skills.

· A strong “can-do” attitude, combining practical, hands-on skills with a strategic mindset.

· Ability to work collaboratively within a small team, as well as working independently.

· An understanding of and demonstrable commitment to equal opportunities, diversity and inclusion.

· As the charity is a Christian organisation, the successful applicant will be expected to be in sympathy with the Christian faith and will demonstrate a commitment to the mission, principles, values and practices of the organisation.

Ideal

· Experience of working in a Christian charity or church setting

· Familiarity with economic justice (e.g. banking, finance or tax justice) issues, especially within a Christian framework

Pro Bono Community is seeking a Training and Volunteer Coordinator to help us achieve greater access to justice.

Pro Bono Community is a registered charity that has developed specialised training programmes for students, trainees and lawyers covering the practical skills involved in delivering free legal advice and areas of social welfare law. In conjunction with the training, the charity arranges and manages volunteering placements at Law Centres and other advice agencies. The charity’s activities include a number of grant-funded projects which the coordinator will be heavily involved in.

We are looking for individuals to join our team who share our aims and mission and are driven to make them a reality.

About the role

Pro Bono Community is looking for a Training and Volunteer Coordinator to help us run programmes aimed at improving the amount and quality of access to justice by training law students and others and then placing them to work as volunteers at advice agencies.

The Training and Volunteer Coordinator will report to and work alongside the Director to undertake work supporting the charity’s activities with a focus on recruiting and training students and lawyers and then coordinating volunteering placements for them at Law Centres and advice agencies. The role also includes administrative work relating to a pioneering digital advice clinic the charity runs in conjunction with a Citizens Advice agency in London.

This is a full-time role with a salary of £30-33,000 depending on experience and the charity is seeking to appoint someone with knowledge of training and the legal/advice sectors and/or experience in a similar role. Occasional weekend work may be required. The role will involve working from home with some travel involved to London and elsewhere in support of the charity’s activities. The role includes annual leave of 25 days and a workplace pension scheme.

Responsibilities

Training and General Administration

· Producing and printing publicity and training materials

· Maintaining databases, content management systems, websites, social media and other tools

· Dealing with enquiries, including those made via the PBC mailbox and telephone line

· Organising the location and timetabling of training programmes

· Liaising with trainers and others to facilitate training

· Attending training programmes and assessments where necessary

· Keeping attendance records

· Monitoring development of the training content and facilitating discussions between stakeholders/authors

Volunteer coordination

· Arranging volunteer placements with advice agencies

· Designing and implementing rotas for volunteering

· Managing PBC’s online volunteer portal and volunteer activity logs

· Monitoring attendance and feedback

· Reacting to problems arising from attendance and other issues

· Dealing with volunteer enquiries

· Liaising with advice agencies on volunteers’ performance

· Dealing with enquiries from advice agencies

 

Monitoring and Evaluation

· Assisting advice agencies to evaluate volunteers’ impact through focus groups, surveys and other research tools

· Collating and analysing data

· Coordinating monitoring and evaluation reporting

· Designing and implementing monitoring and feedback tools

· Reviewing and revising monitoring and evaluation processes

 

Partnership management

· Working with the Director to:

o Develop and maintain productive relationships with Law Centres, advice agencies, universities, law firms and other stakeholders

o Identify and source partnership opportunities

o Explore new ways of working with partners 

Competencies

 Essential

· Administrative experience in the legal, educational or voluntary sectors

· Excellent organisational and interpersonal skills

· Strong written and oral communication skills

· Attention to detail

· IT skills

· Ability to work well independently and as part of a team

· Very good internal and external stakeholder management skills

· Problem solving

· Ability to identify areas for improvement in processes and policies

· Ability to be flexible and assist with different aspects of the project as necessary

· Use of initiative

 

Desirable

· Legal background

· Knowledge of or experience in the free legal advice sector

· Knowledge of or experience in the training/HE sector

· Experience of working with volunteers

· Knowledge of digital training and communications tools

Do you want to help charities to change the lives of people most in need of help across Yorkshire and the Humber?

We have two permanent Funding Officer positions in the Yorkshire and the Humber regional team.

Join us as a Funding Officer and you’ll have the opportunity to make a real difference to communities across the region. Working as part of the Yorkshire and the Humber team as part of a team of 20 colleagues you will combine hybrid working - either from home, our Leeds office adjacent to Leeds station, or project visits, to understand how and where amazing people and organisations are transforming neighbourhoods.

If you have previous experience for a funder, then that is great but it’s not a necessity.

• You will need to be confident with comprehension and writing because you will be working with those applying for grants to advise and support them as necessary to develop proposals including project budgets.
• You’ll work with your colleagues to assess and recommend projects for funding. Some days you’ll be attending funders fairs, in person or online, whilst on others you may be meeting with Councils or other funders to share information about need and funding in a particular neighbourhood.
• You’ll also have responsibility for overseeing a portfolio of projects to ensure they are on track. If you have experience of the voluntary sector that would be ideal, particularly in the Yorkshire and Humber region.
• Confident in writing, comprehension and with an understanding of budgets you will be passionate about supporting communities to build on their strengths to improve lives.

Interview date:25th and 26th June. Virtual, 1st stage only interview.

Location: Leeds is the local office – Hybrid, flexible working style with a requirement to travel into the communities

Essential criteria

• Communication skills: Strong report writing skills to produce concise, written recommendations for assessment purposes within strict timescales. Listening and verbal communication skills also important.
• Analytical skills: Ability to assess a high volume of applications, make good judgements, challenge when appropriate and manage risk.
• Relational skills: Ability to nurture, develop and promote effective relationships and communication with colleagues, community organisations and other external agencies with a strong commitment to equity and inclusion.
• An ability to adapt quickly, decisively and with full commitment to new processes and systems and the confidence to use your judgement, take initiative and challenge when appropriate.
• Demonstrable IT skills and the ability to learn detailed processes quickly and accurately.

Desirable criteria

• Knowledge of Yorkshire and the Humber and the charity sector within it. Experience working with under-represented communities in the region is particularly desirable.
• Understanding of financial planning and business plans, ability to analyse accounts and numerical data.
• An ability to manage your own workload with minimal supervision.

Equity, Diversity and Inclusion  

Communities in the UK come in all shapes and sizes. National Lottery funding is for everyone – therefore, we are committed to equity, diversity and inclusion and we work hard to ensure our funding reaches where it is needed.  

We also believe our people should represent the communities, organisations and individuals we work with. That’s why The National Lottery Community Fund is committed to being an inclusive employer and a great place to work. We recognise and celebrate the fact that our people come from diverse backgrounds. We positively welcome applications from people from ethnic minority backgrounds, people with disabilities or longstanding health conditions, people who are LGBTQ+, and people from different socio-economic and educational backgrounds, as well as people of all ages. 

As a Disability Confident Employer, we take a proactive approach in making reasonable adjustments, if needed, throughout the recruitment process and during employment. (This can be related to a physical and mental health condition.) 

Social Media and Digital Officer

Location: Hybrid/Remote
Department: Policy, Campaigns & Communications
Salary: £32,580
Hours: 35
Job Type: Full time
Contract Type: Permanent
 
About the Role
 
Our client are looking for a proactive and creative Social Media and Digital Officer to join their small but mighty team . As part of their Policy, Campaigns and Communications team, you’ll play a key role in growing their brand, raising awareness of their campaigns and supporting their influencing work. You’ll lead on community management and paid and organic content across all their social channels. You’ll help them reach more young people and create a supportive and inclusive community for them in their online spaces. With a new ambitious strategy and bold rebrand, it’s a great time to join them. If you’re always the first to jump on a TikTok trend, have a talent for creating high-quality, mobile-first video content, and are passionate about making a difference, we’d love to hear from you.
 
As an organisation serving children in care and care leavers, we’re keen to receive applications from people with experience of care and recognise the importance of having care-experienced staff within their team. They are also actively seeking to bring diversity of perspectives and experience, and especially welcome applications from people from racially minoritised communities.
 
Our client is committed to tackling systemic racism and providing an inclusive, equitable workplace. They recognise that embedding equity, diversity and inclusion principles is an ongoing journey and one which they are determined to invest in.
 
Equity, Diversity and Inclusion
 
As an organisation serving children in care and young care leavers they are keen to receive applications from people with lived experience of care. They are actively seeking to bring diversity of perspectives and experience, and especially welcome applications from those from racially-minoritised communities. They ask all applicants to fill in an Equity and Diversity Monitoring from to better understand the diversity of applicants. This is anonymous and cannot be connected with your application.
 
How to apply
 
Our client asks interested applicants to answer several competency-based questions.
 
Your application and answers will be reviewed anonymously to ensure fairness and help remove bias from the application process. You’ll need to send them your CV but it will only be considered if you score well as part of the anonymous review.
 
To apply for this role, you will need to:

• Provide us with a copy of your CV;
• Answer the questions below in no more than 400 words per question, providing relevant examples to demonstrate how you meet the skills and experience required;
• Complete the Equity and Diversity Monitoring Form (this is not compulsory but the information is very useful to them).

 
Please also tell them if there are any reasonable adjustments, they can make to assist you in your application.
 
The deadline for applications to be received is the 6th June @ 11.59pm.
 
Interview details:

Interviews will have two parts:

• A session with young people;
• A panel interview with Charities staff.
• Interviews may be held virtually using a video calling app (Microsoft Teams or Zoom) or in person at our location in Central London. If access to technology/WiFi is difficult for you, please contact us so they can assist in making suitable arrangements.

 
Our client also wants to ensure fairness in all of their interviews so all successful shortlisted candidates will be sent the interview questions in advance.
 
Interviews will take place:
 
Young people’s panel: 25th June 2025
Staff panel: 30th June 2025
 
Please Note

All applicants must have a Right to Work in the UK. Although the role is hybrid, they are unable to offer work visas or sponsorship for any candidates based outside of the UK.
 
Our client is proud to be a Living Wage Employer. They are committed to #ShowingTheSalary. Their roles are #OpenToAll
 
Benefits: Real London Living Wage Employer; Generous Annual Leave Scheme; Flexible working; Pension Scheme; Life Insurance Scheme; Health Cash Plan; Access to a Rewards and Benefit Platform; Signatory of Halo Code; Disability Confident Employer; Employee Assistance Programme available 24/7; Fostering Friendly Employer; Support for Team Members with lived experience; Access to Virtual GP
 
REF-221714

We are looking for a committed, highly organised Head of Operations to join us and support JustMoney Movement's Executive Director and the wider team in turning our vision of a fairer, greener future into reality.

Background to the organisation and the role 

The JustMoney Movement is a Christian charity, with longstanding relationships across the Catholic, Anglican, Nonconformist and Pentecostal denominations. We have a vision of a fairer, greener future, and we believe money is integral to shaping that future. As Christians we believe our use of money should flow from our faith and values such as justice, compassion, the dignity of all, and the importance of caring for creation.

Our work is mostly online and our team work largely remotely, with some team members coming together in a shared office space in London regularly. We are a very small team, punching above our weight and seeking to have a significant impact on economic and financial system change. We are a values-led organisation putting a high store on the wellbeing of our staff, the quality of our relationships and collaborations, and the integrity of our ways of working.   

Our vision, strategy and activities 

The financial system and wider economy are harming people and planet, leading to crises in our climate and nature and to huge economic inequalities. We rebranded from ECCR to the JustMoney Movement in 2022 to reflect our aim to build a movement of people seeking a more just use of money. Our theory of change is that we need to draw together a diverse range of Christians, churches and Christian networks, as part of a broader movement, to help create political space for financial and wider economic system transformation.

Our current strategic priority is to increase the reach, depth and diversity of engagement of Christian individuals, congregations and networks in the UK with the JustMoney Movement, in order to have a meaningful impact on policy and practice for a fairer, greener future. We do this through a range of activities including: 

• Education and training on finance and economics e.g. our Money Makes Change hub, to harness churches’ large ‘financial footprint’ for social and environmental impact. 

• Communications and campaigning e.g. via our Church Action for Tax Justice campaign and on green and fair banking, channelling the churches’ grassroot scale, reach and influence to maximise public pressure. 

• High level influencing and thought leadership, convening faith leaders and organisations, to resource a credible, distinctive voice on economic transformation. 

This role: Head of Operations (part-time 14 hours a week) 

The Head of Operations will work closely with the ED and support the team in the smooth running of the organisation. 

Role Requirements 

​​The role would assist the ED in identifying and implementing operational processes to help turn the organisation’s vision into reality and measure its impact.​  This grade of role is expected to have a substantial degree of personal responsibility and autonomy, including responsibility for whole areas of work, the work of others and the allocation of resources. ​​ ​​​ ​​ 

​​​Particular areas of work include:​​ ​​​​ 

• ​​​​​​​​As part of the staff team, contribute to organisational strategic planning and action planning.​ 

• ​​​With the ED, maintain a strong governance framework for the organisation including working with the ED, trustees, and contractors to ensure a robust and well-functioning ​​Board  and the meeting of regulatory requirements such as around GDPR, risk assessment, and charity law. 

• ​Ensure effective financial management and processes, working with our finance contractors.​​ 

• ​​Ensure effective ​​HR​ support, including work with line managers on recruitment and induction, ​EDI, ​and liaising with our HR contractor to review existing and develop new policies and procedures. 

• ​​Ensure effective IT provision, ​​working​ with our ​IT ​contractors to support functioning of our IT system (Microsoft 365). 

• ​​​​​Support JustMoney Movement’s team in the delivery of their work e.g. helping organise team meetings and away days, ensuring good online filing and record keeping, effective planning tools and monitoring mechanisms, and effective procurement and replenishment of resources. ​​ 

• Support stakeholder relationships through oversight of our CRM and developing donor reporting tools. 

• Carry out discrete operational tasks e.g. arranging insurance and dealing with Companies House and Charity Commission queries as necessary.  

• Shared contact point for organisation with other team members, via info@ inbox.   

• Assist the Executive Director with ​​any other operational priorities as they arise. 

Person specification 

Essential 

• Empathy with JustMoney Movement’s vision and work. 

• Experience of operations responsibilities within a charity. 

• Exceptional organisational skills, including attention to detail and the ability to multi-task. 

• Ability to grasp operational complexity and yet communicate clearly to non-specialists. 

• A creative approach to problem solving and a strong “can-do” attitude. 

• Ability to work collaboratively within a small team, as well as working independently, largely on a remote and therefore digital basis. 

• Proficiency in Microsoft Office tools, particularly Teams, Sharepoint and Outlook. 

• An understanding of and demonstrable commitment to equal opportunities, diversity and inclusion.

• As the charity is a Christian organisation, the successful applicant will be expected to be in sympathy with the Christian faith and demonstrate a commitment to the mission, principles, values and practices of the organisation. 

Ideal 

• Experience of working in a Christian charity or church setting. 

• Experience of charity management and/or governance. 

• Experience of one aspect of operations in more depth, e.g. HR, IT or finance. 

• Familiarity with economic justice (e.g. banking, finance or tax justice) issues, especially within a Christian framework. 

Grade 3 on our salary scale: For roles involving a broad range of complex and technical tasks, carried out in a variety of contexts. There is a substantial degree of personal responsibility and autonomy. Responsibility for whole areas of work, the work of others and the allocation of resources is often required. Staff at this level are expected to input into organisational strategy, represent the organisation externally, and safeguard our culture and values. 

• Grade 3.1 expected FTE salary £36,771 pro-rated to 0.4 FTE/ 14 hours a week = £14,708.

• Remote based: this role will be based from home, with occasional travel to meetings in London or elsewhere in the UK. This role is equivalent to 2 days a week but hours can be worked flexibly through the week. 

• This role requires applicants to have the right to live and work in the UK.   

To apply, please send your CV and a cover letter outlining how you meet the person specification above, via Charity Jobs by 9am on 16 June 2025. Interviews (via Zoom) are provisionally set for 23 June 2025. 

 
Job Title: Community Engagement Officer 
Location: Remote with frequent travel (must be UK-based)
Reporting To: Advice and Support Lead 
Hours: Full-time 
Salary: £26,000 - £28,000 
Contract Type: Permanent  

About Us 

Metabolic Support UK (MSUK) are the leading organisation for Inherited Metabolic Disorders (IMDs), supporting thousands of people worldwide through providing individual support, building communities, and continually advocating for and empowering those living with IMDs. 

We are a small but mighty team providing individual support, advice and connection to the over 40,000 living with an IMD in the UK and more across the world. We have a strong interest in rare disease policy and campaign for the rights of our rare disease community for better healthcare services, access to treatment and to be able to live well everyday.  

Role Overview 

MSUK are seeking a passionate and proactive Community Engagement Officer to strengthen and grow our patient and family community. There are over 1500 IMDs and many of our community use social media, other patient groups and in-person events to connect and learn. This role is central to how we engage with the people we support — through social media, community groups, events, and collaborative partnerships. You’ll be the bridge between our charity and the people we serve, helping to build a supportive, inclusive, and informed community.  

Key Responsibilities 

Engagement & Social Media 

• Manage and monitor all online patient communities responding to community messages and comments with empathy and timeliness 

• Moderate relevant support online community groups, ensuring they are safe, active, and welcoming spaces 

• Identify themes and areas of interest to advocate internally for MSUK response to meeting community need 

• Signpost our Individual Support service, identify and flag individual enquiries to the Individual Support Lead 

• Working with our Campaign & Comms Lead, grow the charity’s presence across social media platforms (e.g., Facebook, Instagram, LinkedIn, X, TikTok) 

• Develop content that resonates with patients, families, and supporters, amplifying community stories and voices 

• Build and manage our lived experience co-production group ‘Metabolic Advisory Council’ 

Community Insight & Advocacy 

• Functioning as the ‘internal expert’ on IMD communities for all MSUK team members 

• Using our Contact Record Management system to log and manage community database to provide timely, relevant insight to team members when required 

• Work with Head of Insight & Advocacy to engage and support communities in relation to timelines for insight work 

Events & Campaigns 

• Plan, organise, and execute online and in-person community events (support groups, awareness days, family meetups, annual conference) 

• Collaborate with the team to deliver campaigns around awareness, fundraising, and education 

• Work with Virtual Support Assistant to coordinate speakers, logistics, communications, and follow-ups for all events with  

Relationship & Partnership Management 

• Build and maintain relationships with other patient advocacy groups, charities, and health organisations 

• Represent the charity at external events, meetings, and forums relevant to the rare disease space 

• Seek opportunities for collaboration, knowledge sharing, and joint initiatives 

Community Fundraising 

• Work with Fundraising lead on community support for individual and events fundraising including event research, donor journey support and online promotion 
   

Person Specification 

Essential 

• Experience managing online communities and/or social media platforms in a professional or volunteer capacity 

• Excellent written and verbal communication skills 

• Strong organisational skills and event planning experience 

• Empathetic and sensitive to the lived experiences of patients and carers 

• Ability to work independently, from home, and as part of a small, dynamic team 

• Confident, keen to travel and enjoys in-person events and networking  

Desirable 

• Personal or professional experience within the rare disease, health, or charity sectors 

• Experience managing partnerships or external relationships 

• Familiarity with tools such as Canva, Mailchimp, Eventbrite, or similar 

What We Offer 

• A supportive and flexible working environment. 

• Opportunities for personal and professional growth. 

• The chance to make a tangible impact in the lives of people affected by rare diseases.