Project manager jobs in edinburgh, scotland

About Pathfinders Neuromuscular Alliance

Pathfinders Neuromuscular Alliance is a national, user-led charity run by and for people with muscle-weakening conditions. We empower adults with neuromuscular conditions to live fulfilling lives through peer support, information, advocacy, and co-produced research and campaigns. Our work brings together lived experience and academic insight to influence health, social care, and disability policy.

About the Role

We are seeking a Research Officer to support a series of user-led research projects exploring:

• Access to social care and support

• Healthcare access and inequalities

• Sexual health and relationships for people with neuromuscular conditions

This is an exciting opportunity to contribute to cutting-edge, lived-experience research that aims to improve quality of life and influence national policy and practice.

You will work closely with the CEO, Research Manager, and members of our lived experience research advisory group. You’ll be involved in all aspects of the research cycle — from design to dissemination — and will ensure that our research is ethical, inclusive, and grounded in co-production principles.

Key Responsibilities

Research Design & Ethics

• Support the design of research studies in collaboration with the lived experience team and academic partners.

• Support the preparation of ethics applications, participant information sheets, and consent materials.

• Develop interview schedules, focus group guides, and surveys.

Participant Engagement

• Recruit participants through Pathfinders’ network, social media, and partner organisations.

• Ensure accessibility and inclusivity in participant communication and data collection.

• Support co-production activities (e.g., advisory groups, workshops, testing materials).

Data Collection & Analysis

• Conduct qualitative interviews and/or focus groups with participants.

• Support data transcription, coding, and thematic analysis (using NVivo or similar).

• Maintain accurate, confidential records and data management systems.

Reporting & Dissemination

• Contribute to research reports, briefings, and peer-reviewed papers.

• Present findings to internal and external audiences, including at conferences or stakeholder meetings.

• Work with communications staff to translate research findings into accessible outputs for our community and policymakers.

Collaboration & Co-Production

• Embed lived experience leadership throughout the project lifecycle.

• Liaise with academic partners and other charities to strengthen our research and advocacy work.

• Contribute to a culture of inclusive, ethical, and participatory research practice.

Person Specification

Essential

• Experience managing or delivering a research project from start to finish (e.g., Master’s dissertation, PhD, or equivalent applied research).

• Strong understanding of qualitative research methods (interviews, focus groups, thematic analysis).

• Ability to plan and manage multiple tasks, meet deadlines, and work independently.

• Excellent written and verbal communication skills, including report writing.

• Commitment to co-production, lived experience leadership, and inclusive research practices.

• Awareness of issues affecting disabled people and/or people with long-term conditions.

Desirable

• Lived experience of disability, chronic illness, or neuromuscular conditions. Applications will be prioritised where they meet this criteria.

• Experience of working with disabled people or people with neuromuscular or muscle-weakening conditions.

• Familiarity with ethical approval processes (university or NHS).

• Experience with NVivo or similar qualitative analysis software.

• Experience working in a small charity or community-based research context.

What We Offer

• Flexible, remote working arrangements.

• A supportive, inclusive environment led by people with lived experience.

• Opportunities for co-authorship, conference presentations, and career development in inclusive research.

• The chance to shape evidence that can drive change in health and social care policy.

Help shape the future of volunteering.
We are seeking passionate and committed Trustees to join the Volunteering Matters Board at an exciting moment, as we launch our new 2025–2030 strategy. 

Our work spans mentoring programmes, social action projects, community transport and youth-led campaigns – all designed with and for local people. By harnessing the power of volunteers and working in genuine partnership with communities, we create initiatives that are inclusive, relevant and sustainable, making a real and lasting difference across the UK.

Commitment to Equity, Diversity and Inclusion
We are committed to building a Board of Trustees that reflects the diversity of the communities we work with and support. We believe that a broad range of perspectives, experiences, and backgrounds strengthens our governance and enhances our ability to make well-informed decisions.

We actively encourage applications from individuals of all ages, backgrounds, and communities – particularly those who are currently underrepresented in charity leadership, including people from Black, Asian and minority ethnic backgrounds, LGBTQ+ individuals, disabled people, and those with lived experience relevant to our work.

We value the unique contributions that each person brings and are committed to creating an inclusive environment where all Trustees feel respected, supported, and able to thrive.

Join us as  A Trustee or Treasurer.

Trustee 
Are you passionate about the power of volunteering to transform lives and strengthen communities? We’re looking for new Trustees to join our Board and help guide our charity’s next chapter.

As we continue to grow and adapt to meet the changing needs of our communities, we’re particularly keen to hear from individuals with experience in one or more of the following areas:

Human Resources (HR)
Fundraising and income generation
Equity, Diversity, Inclusion and Accessibility (EDIA)
Technology, digital systems and AI
Marketing and communications
Safeguarding
Whether you’re an experienced Trustee or looking to take on your first board role, we welcome applications from people from all backgrounds to support us through an exciting time.

Join us as Treasurer
Are you a finance professional who believes in the power of volunteering to create stronger, more connected communities? We’re seeking a dedicated and skilled Treasurer to join our Board of Trustees and help guide our charity’s financial strategy as we grow and evolve.

As Treasurer, you will play a key role in overseeing our financial health, ensuring strong governance, and supporting the Board and senior leadership to make sound, sustainable decisions. You’ll bring insight, scrutiny, and strategic thinking to help us maximise our impact and reach.

We’re looking for someone who:

Has a strong background in finance, accountancy, or financial management
Understands charity finance
Can communicate complex financial information clearly to a non-financial audience
Is committed to our mission and values
Your financial expertise could help us unlock even greater potential in the communities we support through volunteering.

Please note, as the role of Treasurer is also a Trustee, please read the Trustee role profile alongside the Treasurer one. 

About Twins Trust

Twins Trust is at the heart of the multiples’ community, supporting families with twins or triplets, influencing the healthcare system and campaigning on behalf of our community.

Multiple birth families face unique challenges and we’re there for them, every step of the way. With over 40 years’ experience, we tailor our services to our families’ needs. 

Twins Trust has over 15,000 members who access our amazing community, information and courses and exclusive discounts.

Fundraising Officer

This is an exciting opportunity to join an ambitious and talented fundraising team

We are looking for an experienced Fundraising Officer to join our small and friendly fundraising team. You will support the High Value Partnerships Manager and Community & Events Fundraising Manager, both of which are already well-established income streams with lots of great potential. It’s a great opportunity to work across varied income streams including Corporate, Trusts & Grants, Community, Fundraising Events and Individual/Regular Giving.

Contract: Permanent
Hours:  37 hours per week (negotiable for the right candidate)
Flexibility: We are a flexible employer and most of our staff are juggling things (including caring for multiples!) We are great at making jobs work around life.
Salary: £24,000 - £27,000
Reports to: High Value Partnerships Manager 
Work location: Hybrid/remote. Office space in London Bridge, although entirely remote option is fine. Travel to partner meetings/events will also be required.
Closing date: Midnight 5th November 2025
Interview dates: Interviews will be virtual and take place in October/November on a rolling basis

Purpose of the role

• Reporting to the High Value Partnerships Manager you will provide support across our two priority Fundraising streams – Community Fundraising (Community, Events and Individual/Regular Giving) and High Value Partnerships (Trusts, Grants, Corporate and Sponsorship).
• Conducting prospect research (Corporate and Trusts/Grants) creating a pipeline of targeted opportunities, and submitting applications for lower level funding
• Providing excellent relationship management to those in our community who fundraise for us, whether that’s as a Regular Giver or Marathon runner
• Providing support to the Manager planning Fundraising Events, recruiting participants, attending and cheering on our fundraisers and thanking our supporters
• Accountable for delivering our annual raffle and ongoing Lottery programme
• Support the wider Development team with admin relating to Fundraising

Ideal candidate

The ideal candidate will have experience either in supporting the delivery of High Value partnerships or Community Fundraising. They will be able to demonstrate how they have researched partnerships and/or submitted funding applications, providing excellent stewardship and creating meaningful partnerships that lead to long term support for the charity.

Person specification

Essential

• Experience of donor stewardship
• Excellent relationship building skills
• Ability to research and find vision aligned funders
• Ability to project manage the delivery of partnerships and/or events
• Excellent writing, communication skills and attention to detail
• Able to collaborate with a team of various disciplines or work independently as required
• Ability to multi-task and manage several different priorities at once
• Enthusiasm for the issues we work on

Desirable

• Working understanding of admin processes relating to fundraising
• An understanding of GDPR in relation to fundraising
• Experience working in a CRM (Microsoft Dynamics experience a plus)

About LMK

Good relationships shape our health and happiness, yet we are taught so little about them. LMK (Let Me Know) is on a mission to change that. We are a young and thriving charity providing education about healthy and unhealthy behaviours so that young people have the knowledge and skills to avoid abuse and thrive in their relationships. We work in schools, community organisations and workplaces across London. 

We’re looking for an experienced and inspiring fundraising leader to take LMK’s income generation to the next level. You’ll shape our fundraising strategy, lead a small, dedicated team, and grow income from trusts and foundations, major donors, corporates and individual giving.

You’ll be strategic, collaborative and passionate about LMK’s mission — ready to use your skills to drive real, lasting change.

Working from home, but with occasional travel to London. 

Application Instructions

Please use your cover letter to give us specific information and examples of your experience against each part of the person specification of the role.If you prefer, you can provide us with a video of no longer than 3 mins rather than a cover letter. Please share your video via email.

Please note:  Interviews will be held online on Thursday, November 13th and in person on Friday, November 14th 

Drive Head of Operations

£56,959.05 - £59,180.45

A London Weighting allowance of £3,299 will be applied for those living in London

37.5 hours per week with flexible working hours and provision of an out-of-hours response as needed

Remote with travel throughout the UK

Permanent subject to funding

The Drive Partnership, formed by Respect, SafeLives and Social Finance, is working to transform the national response to perpetrators of domestic abuse. We work to end domestic abuse and protect victims by disrupting, challenging, and changing the behaviour of those who are causing harm. Together we have developed the Drive Project to address a gap in work with high-harm, high-risk perpetrators of domestic abuse. We also work to advocate for systems and policy change- to develop sustainable, national systems that respond more effectively to all perpetrators of domestic abuse. 

In July of this year the Home Office announced a £53m investment over the next four years to enable the Drive Project to roll out across England and Wales. To end domestic abuse, we must address the source of the problem - the perpetrator.  This funding will make a huge difference to our efforts to support survivors, by holding perpetrators to account, stopping them from causing further harm and giving them the chance to change. 

The Drive Head of Operations will play a central role in maintaining strategic oversight of internal operations, including project planning and risk management across workstreams, and partner coordination across the Drive Partnership. This is a senior leadership position providing operational leadership, staff management, and cross-partner coordination to ensure workstreams within the Drive Partnership function effectively, efficiently and in in alignment with the Drive Partnership's core mission. 

The role will report directly to the Drive Director, form part of the Drive Senior Management team and work alongside the Drive Deputy Director and other Senior Leads to embed a high-performing, values-led culture across The Drive Partnership.

How to apply

Application is by way of CV with a Supporting Statement. 

Please write a personal statement of not more than 3 pages of A4 (in minimum of Calibri pt 12 font) which covers:

· Why you are interested in this job

· Your experience, knowledge, skills, abilities and attitude in relation to the person specification 

Selection process and timescales

Closing date: Midnight Sunday 16th November

Preliminary interview with NFP: Wednesday 26th and Thursday 27th November

First interview: Monday 8th December

Final interview: Week commencing 15th December

Flexible within the UK

Ref JV 1423

Closing date 21/11/2025

Please note, that we are unable to provide visa sponsorship for this post. To apply for this post, you must be able to demonstrate your eligibility to work in the UK.

As a Senior Research Lead, with proven experience leading complex research projects, you’ll be responsible for Energy Saving Trust’s Energy Access research portfolio as part of the LEIA programme. You’ll shape and deliver our research strategy, manage and mentor the Energy Access research team, and build partnerships with leading organisations to produce high-quality research outputs.

Who we are

Energy Saving Trust is a leading and trusted organisation, dedicated to promoting energy efficiency, low carbon transport and sustainable energy use. We aim to address the climate emergency and deliver the wider benefits of clean energy as we transition to net zero.

At Energy Saving Trust we don’t just offer jobs – we offer careers. For our people, being part of the effort to address the climate emergency makes working for us truly meaningful and rewarding.

Here are some of the benefits we offer:

• 25 days of annual leave plus bank holidays, with additional leave earned through length of service

• Three extra days off over the Christmas period as a gesture of goodwill

• A competitive pension scheme with generous employer contributions

• Flexibility in our ways of working – work from home, in the office, or a mix of both, depending on your role

• Two paid volunteering days per year – a chance to give back to the causes that matter most to you

Please see our careers page for the full list of benefits we have to offer and why Energy Saving Trust is a great place to work.

The team

You’ll join our International Energy Access team, primarily working on the multimillion-pound Efficiency for Access Coalition including the Low Energy Inclusive Appliances (LEIA) programme that aims to double the efficiency and halve the cost of off- and weak-grid appliances in sub-Saharan Africa and South Asia. This programme is funded by UK aid, from the UK government via the Transforming Energy Access platform, and IKEA Foundation, and delivered by Energy Saving Trust in partnership with CLASP.

As part of the International Energy Access team, you’ll contribute to meaningful initiatives that have real-world impact on improving lives and livelihoods, while helping to address the climate emergency. This is an exciting opportunity to join a talented, dedicated and inclusive team to deliver this vital programme of work.

What you’ll do

• Lead the planning, delivery and reporting of our Energy Access research portfolio.

• Identify research gaps and emerging trends, ensuring alignment with user needs and funder priorities.

• Oversee the delivery of high-quality research projects in partnership with academia, industry and consultants.

• Manage and mentor a small research team, supporting their development and performance.

• Build and maintain key relationships with partners, funders and stakeholders to expand our Energy Access research portfolio.

What you’ll bring

• Strong experience leading complex research projects using qualitative and quantitative methods.

• Proven record of managing high-performing teams and delivering results on time and on budget.

• Experience and knowledge of the energy access sector.

• Excellent analytical, writing and communication skills, with the ability to present technical information clearly.

• Strong leadership, organisational and stakeholder management skills, with a collaborative and proactive mindset.

To apply visit our recruitment portal via the apply button. 

Applications close at 23.59 on 21 November 2025. Interviews are intended to be held around 8-12 December.

To avoid disappointment, you are advised to submit your application as soon as possible as we reserve the right to close the vacancy early if a high volume of applications are received. This is to ensure that we can manage application levels whilst maintaining a positive candidate experience. Unfortunately, once a vacancy has closed, we are unable to consider further applications.

Reasonable adjustments: We are a Disability Confident Committed employer. We want to ensure that our recruitment process is inclusive of and accessible for, everyone.

If you think you may need additional support or reasonable adjustments made to any part of the recruitment process, please get in touch. 

Flexible working: We offer a range of flexible working arrangements, including working from home, compressed or part-time hours, job shares and other arrangements. There is no need to justify your preferred working pattern and we encourage our people to work in whichever way helps them to perform at their best.

We will be happy to discuss this and our blended working model at the interview stage with you.

Diversity and inclusion

Energy Saving Trust is committed to creating a diverse, inclusive and equitable workplace where everyone can be themselves, with support to be their best.

We strongly encourage applicants from a wide range of backgrounds and with different identities and experiences to apply for roles with Energy Saving Trust.

We are a Disability Confident Committed employer and we ringfence a minimum number of interview slots for candidates who apply via the Disability Confident scheme and meet the minimum criteria for a role.

We’re looking for passionate, faith-filled Regional Coordinators to help raise awareness, inspire prayer, and grow support across the UK — particularly in Scotland, the Midlands, and London.

About the Role

You’ll be the local face of Barnabas Aid — building relationships with churches, supporters, and Christian communities in your region.

• Share the stories of persecuted Christians and mobilise prayer and action
• Represent Barnabas Aid at church meetings, events, and conferences
• Encourage giving and ongoing support to sustain vital projects worldwide
• Strengthen engagement through inspiring communication and personal connection

About You

• A practising Christian, actively involved in a local church
• Passionate about the global persecuted Church and Barnabas Aid’s mission
• A confident communicator and network builder
• Organised, proactive, and comfortable presenting to groups
• Able to travel within your region

Why Join Us?

You’ll be part of a mission-driven international ministry that turns compassion into action. Every conversation, event, and prayer you inspire helps bring hope and aid to Christians in need.

About the opportunity 

Working closely with the Fundraising Manager and Head of Philanthropy, you will support a range of fundraising activities, most predominantly researching new avenues for funding within trusts, foundations and corporate partners, completing grant applications, carrying out communications and reporting to existing funders and raising the profile of the charity through representing Action Tutoring at funder or networking events. This is a fantastic opportunity to gain experience in the world of fundraising activities, working with a passionate, committed and driven team.

Closing date: Sunday, 30th November 2025
Interviews: Wednesday, 10th and Thursday 11th December 2025
Start date: Monday 1st February 2026
Contract and hours: Fixed term 12 month maternity cover contract. We are open to 0.6FTE to 1FTE for the right candidate. We offer flexible hours with 9.30-4 as core hours. A full working week is 37.5 hours.
Location: This role is remote. The candidate can be based anywhere in the England. Our London office address is: x+why, 8-10, Fivefields, Grosvenor Gardens, London SW1W 0DH. Occasional travel may be required for this role.
 

Duties and responsibilities

• Research new opportunities for Action Tutoring to explore for fundraising and carry out initial enquiries to determine suitability to apply to trusts and foundations. 
• Prepare and submit grant applications to suitable trusts, foundations and corporates, carrying out careful research to ensure the applications are as strong as possible and include relevant data and case studies.
• Work alongside the Corporate Partnerships Team to encourage corporate support through donations or grants.
• Identify and lead on local fundraising opportunities in Action Tutoring’s nine key regions, for example researching and submitting applications for local grants and to local businesses.
• Research and determine suitability of profile raising opportunities or awards for Action Tutoring to apply to, such as corporate Charity of the Year opportunities, the Third Sector Awards and Charity Awards.

A full list of duties and responsibilities can be found in the job description attached to the BreatheHR advert.

Person specification 

Qualifications criteria: 

• Previous experience in fundraising, or transferable experience that shows strong writing skills.
• Right to work in the UK.

We are looking for some of the following attributes, though you might be more experienced in some areas than others: 

• Outstanding communicator; strong written and verbal communication skills; able to make an exciting and compelling case for support.
• Creative and ambitious.
• Proactive and tenacious personality; willing to seek out and pursue opportunities.
• Highly organised; able to prioritise, multi-task and manage work to deadlines.
• High computer literacy.
• Adaptable and open to learning and feedback.
• Committed to equality, diversity and inclusion.
• Committed to promoting and safeguarding the welfare of children.

You will be likely be more successful in this role if you have: 

• Prior experience of fundraising work, particularly if it is within trusts and foundations. This could be in a paid role, or on a voluntary basis or as part of work experience.
• Experience of building relationships with stakeholders.

Job Title: Head of Corporate Partnerships
Reporting To: Director of Fundraising & Communication
Manages: Corporate Partnerships Managers x 3, New Business Officer x1, Team expected to grow in line with fundraised income increase
Location: Remote (Occasional travel to Leicester office & other UK locations as necessary)
Contract: Permanent
Salary: £48,000 PA
Hours: Full time (36 hours per week).

About Home-Start UK

Home-Start is a federated charity consisting of a central national office – Home-Start UK - and over 170 geographically dispersed local Home-Start organisations, all working together under the same identity.

We recognise that being a parent has never been easy. Every Home-Start volunteer is trained to work alongside parents to overcome the challenges they are facing. We work with parents to build on their strengths and give them the support that they tell us they need. We offer no judgement – just compassionate, confidential help and expert support. This peer-to-peer support is key to the difference Home-Start makes and often our volunteers have lived experience of the challenges their families are facing themselves.

About The Role

This role will lead the Corporate Partnerships team at Home-Start UK and drive the development and implementation of a fundraising strategy that builds on a recent period of significant growth. With projected corporate income of £2.5 million in 2025/26, the successful candidate will focus on generating sustainable, high-return income. They will ensure excellent supporter-focused account management for existing partners, while also identifying and securing new partnerships to build a strong pipeline for long-term income.

Ultimately, this work will enable Home-Start UK to support more families with young children through challenging times.

If it sounds like your type of challenge, we would be delighted to hear from you.

The people at Home-Start are its most important resource. Home-Start UK has been accredited with Investors in People since March 2005, which recognises the commitment we give to developing our staff.

Benefits of working for Home-Start

• Flexible working
• Family friendly policy
• PayCare health cash plan
• Enhanced employer contribution pension
• Learning and development
• DAS Employee Assistance

The closing date for applications is 14th November 2025 at 4pm.

First interviews will take place virtually on week commencing 24th November 2025.
Second interviews will take place in-person at our Leicester office on week commencing 1st December 2025.

Interested?

If you would like to find out more, please click the apply button. You will be directed to our website to complete your application for this position.

Home-Start UK is committed to Equality of Opportunity and Diversity. We wish to encourage applications from all parts of the community irrespective of gender, race, colour, age, sexual orientation or disability.

No agencies please.

The role

We are seeking a proactive and technically skilled IT Systems Administrator.

As the IT System Administrator, you will be responsible for the development, administration and optimisation of Cruse’s Microsoft 365 environment and wider IT cloud infrastructure.

Working closely with the Head of IT, and the wider Digital Services team of 5 staff, you will ensure our systems are secure, reliable, and aligned with the needs of our staff and volunteers.

Cruse operates a cloud IT infrastructure providing IT services to staff and volunteers based across the UK and Northern Ireland. Microsoft 365 is the main IT service, but there will also be other IT systems you will need to become familiar with in this role.

Cruse makes use of a managed services IT support provider and numerous application and service provider support teams; you will be required to work with these teams making sure our issues are resolved quickly and with minimum disruption.

As part of your role, you will be involved in BAU and project work and be comfortable with competing priorities and pressures.

This is an excellent opportunity for someone wanting to advance their technical skills and experience. Where they will have input into the development of the IT systems, working with an experienced and dedicated Head of IT and digital team, for a charity that is investing in its digital strategy and services.

How to apply

Your application must consist of a CV and covering letter, which outlines your suitability for the role with reference to the Job Description and Person Specification and should be no longer than two pages. 

The closing date for applications is Friday 7th November. We reserve the right to close the advert early, as interviews will be held as suitable candidates apply.

Please be advised that if you do not hear from us by 24th November, unfortunately on this occasion you have not been shortlisted.

Cruse welcomes and encourages applications from all protected groups as defined by the Equality Act 2010. Appointment will be made on merit.

Criminal Record Checks

All staff are required to complete a Criminal Record check. Staff working directly with clients will be required to complete an enhanced check. We comply with the relevant codes of practice, and they can be viewed online: 

· Applicants in England and Wales: DBS Code of Practice

· Applicants in Northern Ireland: AccessNI Code of Practice

Previous convictions will not prevent full consideration of your application to work with Cruse. Our Recruitment of Ex-offenders' Policy & Handling Criminal Record Check Data Policy are available on request by email.

We comply with all relevant data protection legislation and process your data fairly.   

Policy Officer-Wales

Based at home, situated across Wales including regular travel around the country and to the Senedd, Cardiff.

22.5 hrs per week

Fixed term post 2 years - with possible extension

Circa £35,000 p.a FTE depending on experience

Make a difference for kidney patients in Wales!

Are you passionate about influencing policy and driving change? Do you want to be part of a growing team making a real impact on the lives of people with kidney disease?

We’re looking for a Policy Officer – Wales to help shape policy, build relationships, and advocate for better support and care for kidney patients. In this brand-new role, you’ll work for Kidney Care UK and Kidney Wales, engaging with policymakers, healthcare professionals, and those affected by kidney disease.

You’ll spend time at the Senedd, building connections with local politicians and councillors, and ensuring the voices of kidney patients are heard loud and clear. With your knowledge of Welsh Government structures (or similar UK experience), you’ll help drive our campaigns and influence change.

This is a fantastic opportunity to make a tangible difference, working flexibly in a supportive team. If you’re ready to champion kidney patients and shape policy in Wales, we’d love to hear from you!

Key Responsibilities

• Develop or participate in work programs and undertake projects to explore policy issues under the guidance of the Policy Director of Kidney Care UK and the Managing Director of Kidney Wales.
• Support the research, development and dissemination of policy positions in Wales.
• Work with other team members to deliver events/reports or campaigns as needed
• Keep up to date with the policy department and charity work to avoid duplication and ensure good communications with our colleagues.
• Contribute to the newly created All Wales Cross Party Group.
• Undertake desk-based research involving data collection and the synthesis of information from relevant sources.
• Seek out opportunities for communications and influencing in the Welsh parliament, including the need for a kidney group. 

About you

• Educated to degree level or equivalent experience. 
• Previous experience working with elected members
• Experience in conducting analysis and writing and editing reports for publication
• Can travel regularly to the Senedd Cymru Welsh Parliament in Cardiff and other parts of Wales, plus Alton Hampshire

Employee benefits

• Employee assistance programme | Generous annual leave | Pension | Cycle2Work scheme | Flexible working | Retail discounts | Family leave | Health cash plan

The advert may close earlier than the stated closing date if we receive a sufficient number of suitable applications.

About us

Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, uniting patient voices to campaign for timely diagnosis, better care, and improved access to treatments.

We host Rare Disease UK (the national campaign for implementation of the UK Rare Diseases Framework) and SWAN UK (the only dedicated support network for families of children with undiagnosed genetic conditions) and we run the annual Rare Disease Day campaign. 

About the role

This is a creative and purpose-driven role at the heart of our charity’s communications. As Senior Communications Officer, you’ll help us tell powerful stories, share our impact, and build connections with our members, supporters and partners.

You’ll lead on producing engaging digital content, managing our social media and newsletters, and keeping our website fresh and accessible. You’ll also support light-touch fundraising campaigns, helping us grow our income and supporter base.

This is an ideal role for someone who enjoys combining creativity with strategy, you’ll use your writing, design and digital skills to make our work visible and compelling, while ensuring the voices of those living with rare conditions remain at the centre of everything we do.

You’ll work closely with the Head of Membership and Communications and our new Director of Engagement and Impact, contributing ideas that strengthen how we engage all our audiences.

About you

We’re looking for someone who is:

• A strong communicator with at least two years’ experience in a communications role.

• Skilled in producing visual and written content for websites, social media and newsletters.

• Confident using digital tools (e.g. Canva, Adobe suite, Wordpress/Drupal).

• Organised, creative, and comfortable working both independently and collaboratively.

• Motivated by making a difference for people affected by genetic, rare and undiagnosed conditions.

Experience in the health, social care or charity sector would be an advantage, but curiosity and empathy matter just as much as direct experience.

What we offer

• Generous pension (5% employer, 3% employee)

• 25 days annual leave (pro rata) plus bank holidays

• Full office closure over Christmas and New Year

• Flexible, home-based working with supportive team culture

Location: Home-based (UK) – occasional travel required

Salary: £29,705 (pro rata £23,764 for 0.8 FTE)
Contract: Permanent, 28 hours per week (0.8 FTE)
Closing date: 27 November 2025

About the Role 

Neuroendocrine Cancer UK is entering an exciting phase of growth and development. To make the greatest difference, we need to grow in a way that is structured and sustainable, and that’s where you come in.

We’re looking for our first Director of Operations: a strategic, hands-on leader who can turn vision into action and passion into plans. Working closely with our new CEO, you’ll ensure that our people, systems, and processes all work together to deliver effectively for the communities we serve.

This is a unique opportunity to shape the organisation’s future. You’ll combine strategic oversight with operational delivery across key areas including HR, finance, compliance, governance, IT, and organisational processes. As a senior leadership team member, you’ll strengthen internal systems, support staff and make sure day-to-day operations align fully with our mission, values, and strategic goals.

Ultimately, you will help build the strong foundations and infrastructure that enable Neuroendocrine Cancer UK to grow sustainably, deliver high-quality services, and deepen its impact for the communities we support.

About the Charity 

We are Neuroendocrine Cancer UK. We exist to address the unmet needs voiced by the neuroendocrine cancer community, supporting patients and their loved ones with the physical and psychological burden of neuroendocrine cancers. Through awareness, research, better funding and support, we can give our community the attention it deserves

Our vision is for a world in which people know how to recognise, diagnose, treat, care for, and cure patients with neuroendocrine cancer. 

We are a Charity driven by strong values of equity, excellence, collaboration, honesty, transparency and integrity.

Key Responsibilities 

1. Operational Oversight and Delivery 

• Lead and manage a small in-house operations team (2 staff members) and oversee the work of external consultants as required to deliver operational plans aligned with strategic goals. 
   
• Drive the successful delivery of existing services, overseeing day-to-day operations, ensuring services are delivered efficiently and to a high standard while supporting the implementation of new initiatives and improvements. 

• Ensure systems and processes are fit for purpose and support delivery of strategic goals. 
   
• Management and maintenance of the Salesforce system.
   
• Maintain oversight of service development, ensuring it reflects user feedback and sector innovation (with Directors/Managers). 

• Lead audits and evaluations to ensure service effectiveness and continuous improvement. 

2. Governance and Compliance (working with CEO) 

• Maintain compliance with all relevant legislation, including safeguarding, data protection, and health & safety. 

• Develop and oversee policies and procedures that uphold good governance, safeguarding, GDPR, digital governance, and ethical standards. 

• Act as Designated Safeguarding Lead (DSL) and Data Protection Officer (DPO). 

• Provide assurance to the CEO and Board on compliance and operational risk. 

3. Financial Stewardship and Operational Management 

• Support the CEO in ensuring financial sustainability. 

• Oversee day-to-day budgeting, financial reporting, and grant management. 

• Ensure timely processing of payments, payroll, and contracts. 

• Support income generation through sound financial planning and operational oversight. 
   
• Review all processes, procedures & delegations and suggest updates as necessary.

4. People and Organisational Development 

• Support the CEO to recruit and induct staff.

• Work with CEO to oversee HR matters including performance management (with HR support). 

• Prioritise staff wellbeing, engagement, and professional development. 

• Support the CEO in succession planning and building organisational resilience. 

5. Service Quality and Improvement 

• Work with relevant management team to ensure high-quality service delivery aligned with user needs and feedback. 

• Monitor performance and report on impact to CEO and trustees. 

• Drive operational improvements and support the development of new initiatives. 

6. Insight, Data, and Continuous Improvement 

• Collect, analyse, and report operational data to support decision-making. 

• Oversee monitoring, evaluation, and audits to ensure accountability and learning. 

• Support research and innovation projects by ensuring operational systems are robust and effective. 
• Work with the board & CEO to review all processes, procedures & suggest updates as necessary.

 Person Specification 

About you

You’re an experienced operational leader who thrives on making things work — strategically, efficiently, and with people at the heart of it all. You know how to turn plans into action and are equally comfortable shaping systems, managing budgets, or guiding a team through change.

You bring strong leadership experience, a deep understanding of good people management practices, and sound knowledge of compliance, safeguarding, and data protection. You’re confident managing financial systems and overseeing budgets, and you know how to balance strategic thinking with hands-on delivery.

You’re at your best in collaborative, purposeful environments — someone who communicates clearly, builds trust, and helps others do their best work. You’re also pragmatic and calm under pressure, able to bring clarity and stability as the organisation grows and evolves.

Above all, you’re motivated by purpose. You share our commitment to the mission and values of Neuroendocrine Cancer UK, and you want to use your operational skills to help an organisation with real impact go even further.

Essential 

• Proven experience in operational leadership and management

• Strong knowledge of people management practices, compliance, safeguarding, and data protection. 

• Experience of managing budgets and overseeing financial systems. 

• Strong line management and team development, with the ability to lead staff and volunteers. 

• Excellent communication and organisational skills. 

• Ability to balance strategic thinking with hands-on delivery. 

• The ability to lead through change and embed new ways of working effectively. 

• Commitment to the mission and values of the charity. 

Desirable:

• Experience in a small charity or nonprofit organisation. 
• Experience of charity governance
• A relevant qualification in safeguarding, HR, or data protection
• Experience managing Salesforce or similar CRM systems

Why Work With Us?

• Be part of a small, passionate, and values-driven team making a tangible difference.
• Shape the future of the organisation at a pivotal stage of growth.
• Take on a broad and varied leadership role with the chance to influence across all areas.
• Receive support for professional development, training, and personal growth.
• Enjoy a remote and flexible working environment.