Registered manager young family service jobs in Exeter, devon

Family Support Coordinator

Dravet Syndrome UK

Key Information

• Location: Home-based/remote,  with travel to national events throughout the year both for the Family Services and occasional travel for the wider needs of the organisation
• Salary: £28,000 - £32,000 per annum
• Hours: 40 hours per week
• Contract: Permanent
• Working Pattern: Monday-Friday, 9am-5.30pm, with occasional evenings and weekends (TOIL provided) 

About Us

Dravet Syndrome UK (DSUK) is the leading UK charity supporting people affected by Dravet Syndrome, a rare and severe form of epilepsy that impacts the whole family. Founded by parents in 2008, we provide family support, professional education and fund vital research to improve lives and create hope for the future. [Family Sup...JD v1 (1) | Word]

About the Role

We're looking for a compassionate and organised Family Support Coordinator to help deliver practical, emotional and financial support to families affected by Dravet Syndrome.

Working closely with the Head of Family Services, you'll be a key point of contact for families, supporting enquiries, coordinating grants, managing online communities, helping organise family events, and ensuring families can access the information and support they need.

This is a varied and rewarding role combining family support, community engagement, event coordination and administration. 

Key Responsibilities

Family Support

• Manage a caseload of families, providing practical and emotional support.
• Respond to enquiries and signpost families to appropriate services.
• Support newly diagnosed families, bereaved families, and those navigating transition to adulthood.
• Maintain accurate records using the charity's CRM system.

Grants & Community Support

• Coordinate family grant applications and payments.
• Moderate and support the charity's private Facebook community.
• Collect feedback and help improve family services.
• Escalate safeguarding concerns in line with policy.

Events & Engagement

• Support the delivery of the Annual Family Weekend Away and other family events.
• Assist with webinars, support programmes and educational activities.
• Build positive relationships with families and volunteers.
• Attend key family-facing events across the year. 

Administration

• Support reporting, record management and service administration.
• Ensure compliance with safeguarding, GDPR and organisational policies.
• Attend team meetings, training and charity events. 

About You

Essential

• Experience supporting children, adults and families.
• Experience supporting people with complex medical, learning or additional needs.
• Strong communication, organisational and relationship-building skills.
• Ability to provide empathetic, person-centred support.
• Experience using Microsoft Office and CRM/database systems.
• Understanding of safeguarding, confidentiality and GDPR.
• Ability to work independently and manage competing priorities.
• Willingness to travel and work occasional evenings and weekends.

Desirable

• Background in Health & Social Care, Mental Health, Community Development, Counselling or Education.
• Experience organising events or community activities.
• Knowledge of Dravet Syndrome or other neurological conditions.
• Full UK driving licence and access to a vehicle. 

Why Join Us?

• Make a meaningful difference to families affected by a rare and life-limiting condition.
• Join a supportive and flexible remote-working charity.
• Play a key role in delivering services that support hundreds of families across the UK.
• Be part of a passionate team committed to improving lives through support, education and research. 

Job Purpose 

To provide a physiotherapy service as part of a multi-disciplinary team, on a part-time basis

Key Working Relationships

Physiotherapists are self-employed contractors and report to the Clinical Lead.

Other key working relationships:

• Other physiotherapists within the team
• Other members of the services team
• Action for M.E. colleagues

Job Description

Key duties

• Respond to physiotherapy referrals
• Carry out assessments, provide advice and recommend interventions to manage the symptoms in patients with M.E./C.F.S. and related conditions, working with a whole person approach, and involving family/carers where appropriate
• Provide written reports for the person with M.E. and others involved in their care with consent of the patient
• Participate in clinical team meetings at least once a quarter (approximately 1 hour)
• Participate in quarterly physiotherapy team meetings (approximately 1 hour)

Key Tasks 

• Arrange and undertake consultations in the most appropriate manner for the patient - remotely by either telephone, Zoom or email.
• Record consultation details (date, length of consultation, charge) on Action for M.E.’s internal tracker for invoicing purposes
• Consider choices and in collaboration with the person with M.E., agree attainable and realistic goals, however small, during assessment
• Offer a selection of gentle progressive interventions to facilitate an improvement in their quality of life
• Offer follow-up consultations with patients by phone, Zoom or email
• Raise any safeguarding concerns to appropriate colleagues.

Working Practices  

• Seek to reduce fear associated with the illness and to create an environment for healing
• Offer clear and consistent information and advice to people with M.E. and their family/carers
• Work within Action for M.E. policies ensuring privacy and dignity.

Person Specification

Qualifications/Key requirements

• Must be registered HCPC
• Must be registered with Chartered Society of Physiotherapy or other professional body which can provide PLI
• Up to date professional indemnity insurance
• Safeguarding training to Level 3
• Eligible to work in the UK

Experience and Knowledge

May be varied but would typically include:

• Several years of post-graduate work experience in different aspects of the profession
• Familiarity with the NICE Guideline for the management of M.E. (2021)
• Experience in the management of long-term conditions
• Experience in the management of chronic pain and its impact on the quality of life
• Working in a multi-disciplinary team

Skills and Behaviours

• Excellent communication skills, in both active listening and careful word usage
• Proficient with Microsoft Office (including Word, Excel, Outlook, Teams) and the ability to quickly learn relevant bespoke software systems

Attitudes

• Understanding that ME/CFS is a complex biomedical condition
• A desire to help people holistically to manage their ME/CFS
• A willingness to think outside established protocols

The Role
We are looking for an Advice & Guidance Officer who can make a meaningful difference in the lives of deaf children, young people, and their families.

A key focus of this role will be delivering the service remotely using technology. In addition, you will use your interpersonal skills and experience working with families to connect with local community groups, raise awareness of our services, promote membership, and provide support to families, deaf young people, and professionals.
 
This role is part time, based on 21 hours per week.
 
This is a fully remote role, but will have a focus on Central Scotland Casework and will require some regional travel so applicants should live in Scotland and possess a driving licence and have access to a car.
 
 
What you'll do
 

• Deliver tailored information and advice to individuals and groups of deaf children, young people, and their families.
• Support deaf children, young people, and their families in becoming more confident in articulating their needs independently.
• Help deaf children, young people, and their families explore their options and decide on a preferred course of action.
• Develop and maintain effective relationships with professionals and organisations that support deaf children.
• Attend both in-person and online events to provide information and advice tailored to different audiences.

 
What you'll need
 

• Significant experience and understanding of the skills and practices required to deliver person-centred support to children, young people, and their families.
• Experience providing information and advice to families and young people, both digitally and face-to-face.
• A strong working knowledge of education and special educational needs, including relevant legislation, government guidance, and local implementation.
• An understanding of deafness and its impact on children, family dynamics, raising a deaf child, and child development-translating this into effective, child-centred practice.
• Strong digital skills and a sound understanding of agile values & principles.
• A criminal record check / PVG Scheme Disclosure (if offered the position).

What you'll get

• Home-based working with flexible hours.
• 25 days holiday - plus an additional 3 days at Christmas (& bank holidays).
• Pension (5.5% employer contribution).
• Healthcare Cashplan.
• Annual performance-based salary increase.
• Employee Assistance & Wellbeing Programmes.

 
What we do
 
The National Deaf Children's Society are the leading charity for deaf children. We give expert support on childhood deafness, raise awareness and campaign for deaf children's rights, so they have the same opportunities as everyone else.
 
Pre-employment Checks
 
As part of our commitment to creating a safe and trusted environment for the children, young people and families we support, all offers of employment are subject to background checks. These include Right to Work verification, Criminal Record Disclosure, and ID and address verification.
 
To complete an online Right to Work check, you will need a valid UK or Irish passport, or a government share code if you are not a British citizen. If an online check is not possible, we’ll need to verify your documents in person at our London office. Please be aware that travel time and expenses for this appointment cannot be reimbursed.
 
Disability Confidence
 
We are a Disability Confident Employer and committed to offering interviews to candidates who request to be considered under the disability confident scheme and meet the minimum requirements of the person specification.
 
The National Deaf Children’s Society is a registered charity in England and Wales no. 1016532 and in Scotland no. SC040779.

The Role
We are looking for a Prospect Researcher to play a pivotal role in developing our fundraising portfolio and in driving income growth across high-value fundraising. This role will be central to building robust pipelines and unlocking new opportunities across philanthropy and partnerships.
 
What you'll do

•  Undertaking detailed desk-based research into individuals and corporate foundations to identify prospective major donors and philanthropic partners for NDCS and DCW.
• Analysing financial capacity, philanthropic interests, networks, affiliations and giving history to assess suitability and potential
• Developing and maintain accurate prospect profiles, wealth indicators and ratings to support prioritisation and portfolio management
• Producing high-quality written briefings, profiles and talking points for meetings, events and solicitations
• Support the strategy by providing insight into supporter motivations, interests and links to NDCS’s or DCW’s work
• Tracking news, trends and updates relating to high-value prospects and current donors.

What you'll need

•  Proactive with proven experience in undertaking desk-based research to identify prospective individual and organisational donors. 
• Strong analysis skills to assess donor potential and to ensure partners are aligned with NDCS values. 
• Proven written communication skills and in developing written briefings for solicitations.
• Demonstrable ability to develop and maintain accurate and unbiased prospect profiles to enable prioritisation and decision making 
• Proven experience in maintaining accurate records in line with current regulations on a CRM system to ensure data quality and consistency.
• Strong digital skills and a sound understanding of agile values & principles.
• A criminal record check / DBS disclosure (if offered the position).

What you'll get

• Home-based working with flexible hours.
• 25 days holiday - plus an additional 3 days at Christmas (& bank holidays).
• Pension (5.5% employer contribution).
• Healthcare Cashplan.
• Annual performance-based salary increase.
• Employee Assistance & Wellbeing Programmes.

What we do
The National Deaf Children's Society are the leading charity for deaf children. We give expert support on childhood deafness, raise awareness and campaign for deaf children's rights, so they have the same opportunities as everyone else.
 
Pre-employment checks
As part of our commitment to creating a safe and trusted environment for the children, young people and families we support, all offers of employment are subject to background checks. These include Right to Work verification, Criminal Record Disclosure, and ID and address verification.
 
To complete an online Right to Work check, you will need a valid UK or Irish passport, or a government share code if you are not a British citizen. If an online check is not possible, we’ll need to verify your documents in person at our London office. Please be aware that travel time and expenses for this appointment cannot be reimbursed.
 
Disability Confidence
 
We are a Disability Confident Employer and committed to offering interviews to candidates who request to be considered under the disability confident scheme and meet the minimum requirements of the person specification. 
 
The National Deaf Children’s Society is a registered charity in England and Wales no. 1016532 and in Scotland no. SC040779.

Lead the operations, governance and compliance that enable Solving Kids' Cancer UK to deliver its mission and impact for children and families affected by neuroblastoma. Reporting to the Chief Executive, you will play a critical role in ensuring the charity operates effectively, compliantly and sustainably.

This broad and varied leadership role spans governance, risk, HR, IT, data protection and organisational operations, supporting delivery of the charity's strategy through robust systems, policies and processes. Acting as Company Secretary, you will work closely with the CEO and Board of Trustees, providing advice on governance, regulatory requirements and best practice. As a member of the Leadership Team, you will oversee key operational functions, lead cross-organisational projects and deputise for the CEO where required.

Who are we looking for?

We are looking for a strategic, highly organised and values-driven leader with strong experience in charity operations, governance and compliance. You will have a track record of ensuring organisations are well run, compliant and effectively managed, with the ability to oversee multiple operational areas and support strong governance and decision-making at Board level.

You will be comfortable working across a broad remit, including governance, risk, HR, IT and data protection, and confident providing clear, practical advice to senior leaders and trustees.

Person specification

Key requirements include:

• Significant senior-level experience in operations, governance or compliance within a charity or similar environment. 
• Strong understanding of charity governance and regulation, with experience supporting boards and senior leadership. 
• Experience overseeing organisational functions such as HR, IT, data protection or risk. 
• Proven ability to manage multiple priorities and lead cross-organisational work effectively. 
• Strong judgement, integrity and the ability to handle sensitive matters with discretion. 

See our Recruitment Pack for the full role description and specification and for information about Solving Kids' Cancer UK. 

This is an opportunity to make a significant contribution at the heart of a small, ambitious charity where strong operations are a vital enabler of impact for children and families.

Location: Home-based, within easy reach of London, with regular travel to the London office and occasional UK-wide travel.

First-stage interview: Thursday 6 August 

Second-stage interview: Thursday 13 August