173 Research and policy officer jobs

SANE is a UK-wide mental health charity working to improve the quality of life of anyone affected by mental illness. It aims to raise awareness and understanding of all mental health conditions; fight to improve frontline mental health services for individuals and carers; provide support, information and guidance through SANEline, our Call Back service, email and text support; and promote and host research into causes, treatments and therapies through its Prince of Wales International Centre for SANE research.

We are looking for an experienced and dedicated Training and Outreach Officer to enhance the delivery of SANE’s volunteer training programs and develop our corporate training initiatives, as well as to foster outreach activities that increase partner participation. This pivotal role focuses on expanding SANE's current corporate training offerings and ensuring high-quality learning opportunities for volunteers. Additionally, the Officer will engage with a broader range of relevant partners, contributing to SANE's mission and impact. 

Working closely with the Volunteer Programme Manager and alongside the training team, you will deliver engaging and inclusive training sessions for corporate partners, volunteers and stakeholders, ensuring learning is accessible, impactful and aligned with SANE’s values and objectives. 

This is a part-time office-based role, with occasional weekend and evening work as required.

About us

The Alliance for Youth Justice is an alliance of more than 70 non-profit organisations advocating with and for children to drive positive change in youth justice across England and Wales. We mobilise our members’ frontline expertise, children’s lived experience, and evidence from research to champion a child-centred, rights-based and trauma-informed system that treats contact with the justice system as a sign of unmet need and systemic failure, prioritises support over criminalisation and gives every child the opportunity to thrive.

We're widely recognised as the most influential group campaigning for improvements to the system, with trusted access to decision makers, working towards three goals: keeping children safe from the youth justice system through prevention and diversion; racial justice across the system; and custody as a last resort for children.

About the role

Following the launch of our new strategic approach, our Influencing Manager will lead the development and delivery of AYJ's influencing, policy, public affairs and campaigning work to shift policy, legislation, practice and public narratives.

Campaigning, policy and public affairs (70%) — lead our influencing strategy alongside the CEO, spot opportunities for systemic change, develop evidence-driven policy positions and briefings, and build relationships with members, politicians, civil servants and stakeholders.

Strategic communications (30%) — ensure the reach of our influencing, write high-impact influencing content for our digital channels, and act as first point of contact for media enquiries.

Anti-opressive, anti-racist practice and youth voice run through everything, including involving children and young people with lived experience safely and meaningfully in our work.

About you

You have a proven track record of influencing for systemic change through policy, public affairs, communications or campaigning within a voluntary sector organisation or coalition, and know how to turn complex policy and research into compelling written communications for varied audiences. You have a thorough understanding of the political environment and Parliament, strong relationship-building skills, and excellent project management. You bring a genuine interest in youth justice and the issues facing children in England and Wales, alongside a personal commitment to anti-racism, social justice and child rights.

Why join us

We're a small team of three punching well above our weight, with real scope to shape how we work and few layers of hierarchy. We offer flexible, trust-based home working (within core hours), plus 25 days' leave (pro rata), Christmas office closure, and a 5% employer pension contribution.

We encourage applications from historically marginalised groups even if you don't meet every requirement, and we do not use criminal records to exclude candidates.

Please download the reruitment pack to find out more and read the full job description and person specification.

*Community Action Sutton is the host organisation for Healthwatch Sutton. This role is with Healthwatch Sutton*

We have an exciting opportunity for the right candidate to work with us to hear from the diverse communities of Sutton and to use their views to improve the health and wellbeing of local people. The successful applicant will be able to raise our profile and awareness of our work in the Borough.

We are looking for someone who is passionate about enabling local people to have a voice in the health and wellbeing agenda. You will be a strong communicator, with experience of engaging with a range of people to help identify their issues and concerns.

The ability to be able to capture people’s attention using your flare for designing engaging publicity material and publications will be essential as will the skills to manage our social media and website. You will need to have great IT skills to deliver all aspects of communications and engagement activity. Ability to create innovative, interactive online content is desirable.

Our ideal candidate will have excellent organisational and administrative skills to ensure the smooth delivery of our events, meetings and other activities.

Demonstrating your ability to deliver successful projects is a key part of the role. Problem-solving and influencing others are important skills needed to ensure our projects deliver results.

You will also need to be friendly and approachable to build relationships with our Board, volunteers and members of the public. We would like a person with an enthusiasm for improving people’s lives.

Unfortunately, we cannot accept CVs for this position.

To apply, please click 'Redirect to recruiter'and complete the application form. Please return by midnight Sunday 20th September 2026.

Interviews are expected to be held on Tuesday 6th and Wednesday 7th November.

Gendered Intelligence is seeking an exceptional leader to serve as its next Chief Executive. This is a rare opportunity to lead a nationally respected, trans-led organisation with real influence on policy, professional practice and the lives of trans, non-binary and gender exploring people across the UK.

The next Chief Executive will inherit strong foundations: an experienced and committed team of just under 40 people, a distinctive and trusted public profile, and a range of services that reach communities, professionals and institutions across the country. With income of around £1.5–2m, the next Chief Executive will lead the organisation through its next phase of development at a time when that leadership matters enormously.

The role offers the chance to shape strategic direction, open new partnerships and income streams, and contribute to national conversations on trans equality and human rights, while working alongside people who are deeply committed to the mission and to each other.

We are looking for someone who combines strategic clarity with operational grounding, who leads with calm and consistency, and who understands both the privilege and the responsibility of this role. We will be honest with candidates about what the role involves, and we expect the same in return.

Full details of the role can be found on our website and in the attached recruitment pack. 

Yorkshire Wildlife Trust is one of the UK’s fastest growing nature conservation organisations and seeks to appoint a Fundraising Research Officer.

This is a unique opportunity to join the Fundraising Team at Yorkshire Wildlife Trust, and we can’t wait to have you on board. As a member of a dynamic and fast-paced team, you’ll provide critical support in researching and mapping our internal and external networks, in addition to delivering essential work to grow the Trusts philanthropic portfolio.

A curious and inquisitive mindset is key to this role, with a desire to fact find and build connections across Yorkshire and beyond. You will have a natural skill for data processing and communication, whilst also being able to creatively interpret your findings and write reports. You will lead, develop and implement research processes and cooperate collaboratively with colleagues of all levels. You will have your finger on the pulse of fundraising sector trends and be able to provide insight in risk research, due diligence and marketing. We are a very creative and ambitious team, and so a common-sense approach to problem solving and enthusiasm are essential for success in this role.

Research skills are essential to this role, and so an undergraduate degree is required, with desired experience at postgraduate level, too.

How to apply:

Please submit an up-to-date CV and supporting statement. When writing your supporting statement, please ensure you describe your relevant knowledge, skills and experience aligned to the Person Specification within the Job Description. Please be aware that if you only submit a CV, your application may not be considered.

Please DO NOT include any personal details (name, address etc) on your supporting statement.

Closing date: Sunday 4th October at midnight

We reserve the right to close this vacancy early should we receive a high volume of suitable applications. We therefore encourage interested candidates to apply as soon as possible.

Interview date: Tuesday 20th October

Please note that applications received after the closing deadline may not be considered. The Trust regrets that it is unable to give feedback on unsuccessful applications.

We want our people to flourish, just like nature, and so we are committed to creating a movement that recognises and truly values individual differences and identities. We value diversity and creating an inclusive culture where everyone can be themselves and reach their full potential.

We are also a member of the Disability Confident Scheme. This means we are committed to offering an interview to disabled applicants who meet the minimum criteria for the post. Where a post is oversubscribed (i.e. there are more candidates meeting the minimum criteria than we can offer interviews to), we will carefully balance inviting a mix of the highest scoring disabled and non-disabled applicants.

Bible Society believes the Bible is God’s gift for God’s world. We share it because we believe it changes lives for good. We want Christians to be confident in the Bible’s truthfulness and reliability, and we want to change how people talk about it in wider society and invite them to see it as a source of wisdom and joy.

As our Impact and Evaluation Lead, you will play a vital role in helping Bible Society understand and demonstrate how our work is making a difference in people’s lives, communities and cultures around the world. Sitting within our Research and Impact team, this role leads the design and embedding of a robust organisational impact framework, supporting colleagues across England, Wales and our global partnerships to measure what matters and to learn what helps people engage with the Bible in meaningful ways. From shaping theories of change and evaluation approaches to analysing data and sharing insights with senior leaders and trustees, you will ensure evidence and learning are at the heart of our mission and strategy. 

We are looking for someone who brings strong analytical expertise alongside excellent people skills, and who enjoys helping teams use evidence, learning and insight to improve their work. If you have experience designing and delivering impact or evaluation frameworks, confidence using qualitative and quantitative research methods, and a desire to see learning shape mission and strategy in a Christian organisation, we would love to hear from you. 

If this sounds like you and you have the legal right to work and remain in the UK, we’d love to hear from you. Please provide your CV and a 250-word statement that sets out your motivation and relevant experience for the job. 

Bible Society is proud to be an Equal Opportunities Employer. We value diversity and aspire to reflect this in our workforce. We welcome applications from people representing all sections of the community.

Closing date: 5 October 2026 

Interview date: First round interviews will be held online on Monday 12 October 2026. Second round interviews will be held in person in our Swindon office on Thursday 22 October 2026.

PR Officer (Research and Campaigning) 

Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?

Brain Tumour Research is an exciting, innovative, and ambitious charity. We are passionate about finding a cure for brain tumours through the establishment of dedicated Brain Tumour Research Centres of Excellence around the UK.

After a successful 2025, we’re building on our momentum and looking ahead with ambition. As our work continues to expand, so does our impact. We are now looking for passionate people to join us on the next stage of our journey!

It is a fantastic time to be joining us and we are keen to share this with likeminded and talented individuals. We currently have an opening for a PR Officer (Research and Campaigning), to join our Marketing and Communications team.

• Do you want to make a difference in one of the most innovative and exciting medical research fundraising charities in the UK?
• Do you have a Bachelor’s degree in public relations, media communications or a related field, or similar professional level of experience of at least two years?
• Are you experienced in working in a science communications and/or policy communications role?
• Have you got a demonstrable track record of generating impactful PR coverage?

Have you answered Yes to these questions?

Does this sound like the opportunity to really take the next step in your career?

Excited to learn more about this position? Then please take a read through our recruitment pack below. 

If you have the skills and ambition that we are looking for we are excited to receive your application. We are really looking forward to welcoming a new member to our team!

We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.

We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.

Closing Date: 02nd October 2026

We are looking for people who share our passion for finding a cure for brain tumours and who have the skills and experience to make a difference. We welcome applications from candidates of all backgrounds, cultures, genders, sexual orientations, abilities, and ages. We believe that diversity enriches our organisation and helps us achieve our mission. We are committed to providing an inclusive and supportive environment where everyone can be themselves and contribute to our vision.

Head of Research and Policy
£45,000–£50,000
London (office-based with UK travel)
Full-time, Permanent

Our client is a UK-registered charity dedicated to tackling anti-Muslim hate and supporting those affected by it. Through victim support, research, community engagement and policy influence, the work to challenge Islamophobia and create lasting change.

As the Trust expands its national reach, they are strengthening the senior leadership team to increase its impact, deepen the evidence base and ensure the voices and experiences of Muslim communities are reflected in public policy and practice.

Prospectus is pleased to be working with our client to recruit a Head of Research & Policy to join the team based in

The Role
The Head of Research and Policy will lead the trust's research, evidence and advocacy work.

Reporting to the CEO, you will develop and deliver the trust's research agenda, including flagship reports on the scale and impact of anti-Muslim hate. You will turn evidence into influential policy positions, lead engagement with government, parliament, statutory agencies and the media, and ensure that the lived experiences of those the Trust support informs policy and practice.

Working closely with the CEO and COO, you will strengthen the trust's reputation as a trusted voice on anti-Muslim hate, producing high-quality research, policy briefings and consultation responses while supporting organisational growth and impact. As a member of the senior leadership team, you will also contribute to strategic planning, managing budgets and overseeing the development of the research and policy function.

This person will work closely with a Research and Campaigns Officer to deliver on overall objectives.

The Person
The successful candidate will bring significant experience in research, policy, public affairs and advocacy, ideally within the charity, equality, human rights or community sectors. You will have a strong understanding of the issues facing Muslim communities in the UK and a proven ability to use evidence to influence policy and decision-makers.

An outstanding communicator and analytical thinker, you will be confident interpreting complex data, engaging senior stakeholders and producing compelling written outputs for a wide range of audiences. A confident public speaker, you will be comfortable presenting to government officials, parliamentarians and the media whilst also able to mobilise others to advocate and campaign. You will possess sound judgement, integrity and sensitivity when dealing with confidential information, delicate issues and vulnerable individuals. Most importantly, you will share the trust's commitment to compassion, integrity, inclusion, courage and collaboration, and will be passionate about advancing equality and tackling anti-Muslim hate.

The organisation & Prospectus are both committed to creating a diverse, inclusive and equitable workplace. We welcome applications from candidates of all backgrounds and particularly encourage applications from individuals with lived experience of the issues affecting the communities the trust serves. Recruitment decisions are made solely on merit, and reasonable adjustments will be provided throughout the recruitment process where needed.

 

High Trees Community Development Trust is seeking an ambitious Head of Community Research & Impact to join our senior management team and lead one of our core service areas.

Community-led research sits at the heart of how High Trees works. Our approach aims to rebalance the role and power that communities have in deciding how research is informed, delivered and used to improve lives for Lambeth residents. Over recent years we have built a strong foundation for this work and developed two flagship community research partnerships — the Lambeth Peer Action Collective and the Lambeth Community Research Network. We are now looking for someone to significantly expand this work: building local evidence of community need, working with communities to identify solutions and appropriate responses to local challenges, and advocating for change to policy and practice where needed.

This is a broad and varied leadership role. Alongside our direct research programmes, you will lead the development of infrastructure around community-led research in Lambeth, so that voluntary and community sector (VCS) organisations can access the training, resources and networks they need to design and deliver their own research. You will also lead our Monitoring, Evaluation and Learning and Communications functions, ensuring the impact of everything we do is understood, evidenced and communicated well.

As part of High Trees’ senior management team, the Head of Community Research & Impact will not only oversee delivery in their service area, but also help shape organisational strategy, grow partnerships and income, and ensure we work as one High Trees — keeping our practice responsive, collaborative and always led by community need.

About High Trees

Based in Tulse Hill, High Trees has been rooted in the local community for nearly 30 years. We deliver community action, employment, education, youth services and community research, working in partnership with local people and local organisations to build stronger communities and create meaningful change. We are recognised for our collaborative, long-term approach and our ability to adapt and respond to the issues that matter most to local people.

About the role

As Head of Community Research & Impact, you will:

• Lead and inspire our Research & Impact team to deliver high-quality, community-led research that drives change.
• Shape and deliver High Trees’ strategic vision for community-led research, championing collaborative research practice across Lambeth.
• Take the lead on designing new research programmes, support with sourcing the funding to run them, and ensuring projects are completed to a high standard with high-quality outputs.
• Grow the infrastructure for community-led research locally, including through the Lambeth Community Research Network and the Lambeth Peer Action Collective.
• Support VCS organisations with community research training, resources and capacity building support.
• Lead and embed Monitoring, Evaluation and Learning (MEL) and Communications across High Trees and our partnership work.
• Contribute as a member of High Trees’ senior management team, ensuring a joined-up approach across all our services.

About you

We are looking for someone who brings:

• Significant professional experience in research and/or community settings, with a track record of leading research projects.
• Experience of qualitative and mixed methods research and a working knowledge of participatory research approaches.
• A proven track record of leading teams and managing multiple projects and programmes at once.
• The ability to build trust and long-lasting relationships across community, academic, public sector and voluntary sector organisations.
• A strategic mindset, balancing day-to-day delivery with long-term vision.
• A solid understanding of the context in which High Trees delivers its work

Why join us?

This is a rare opportunity to take a senior leadership role in a values-led organisation at a time of growth and ambition. You will help set the standard for community-led research and system change, creating tools, resources and practices that benefit the wider sector — and be part of a collaborative team dedicated to creating lasting change.

Ataxia UK Research Manager

This is a part-time 12 month fixed term maternity cover post 

Salary: £44,000 pa pro-rata 

Conditions: 25 days annual leave pa pro-rata (not including Bank Holidays)

5% employer contribution to a personal pension plan. 

Hours: 21 hours pw with provision for flexible working in line with Ataxia UK’s policy.  Some out of hours work may be required for which time off in lieu will be granted. 

Location: Hybrid working between home and office: Ataxia UK Office, 12 Broadbent Close, London N6 5JW.

Reporting to: Director of Research 

About Ataxia UK 

Ataxia is the umbrella term for a group of neurological conditions and Ataxia UK is the UK’s leading ataxia support and research charity. Ataxia UK collaborates with the global ataxia community through our Research team,  and we are on the board of the international non-profit association, Euro-ataxia. Our Services team focuses on helping people affected by ataxia across the UK live well with their condition. Our Helpline and Advocacy services provide information, and one-to-one support on a range of issues, while our Community Engagement services deliver activities, events and volunteering opportunities that bring the ataxia community together and help reduce isolation. 

Job Description 

Research:  

The post-holder is expected to gain an understanding of the ataxias, keep updated with developments in the ataxia research area, and liaise effectively with researchers and other stakeholders. 

Research Grants Programme:

• To support the Director of Research in implementing Ataxia UK’s research strategy 

• To manage the Research Communications Officer in implementing the peer review process (e.g. by identifying/ liaising with peer reviewers and keeping a database of potential peer reviewers) 

• To support the Scientific Advisory Committee by attending meetings, and manage the Research Communications Officer providing papers and writing minutes 

• To liaise with researchers funded by Ataxia UK

Global collaborations: 

• To represent Ataxia UK or stand in for the Director of Research on research projects (eg: representing the patient perspective) 

• To manage the meetings of the Pharma Strategy Advisory Group 

• To support the Director of Research in working with pharmaceutical and biotech companies to advance ataxia research 

• To assist the Director of Research in other research related-initiatives where required 

Research communication: 

• To manage the Research Communications officer in communications to people affected by ataxia (via Ataxia UK’s magazine, e-newsletter and website) 

• To represent Ataxia UK at ataxia meetings/conferences, write reports and do oral presentations 

• To assist in the organisation of Ataxia UK’s Research conferences 

• To make presentations to communicate research advances to people with ataxia and their families at Ataxia UK’s conferences

Support for people with ataxia: 

• To support Ataxia UK’s Helpline team to respond to research enquiries from people with ataxia 

• To manage Ataxia UK’s Internal Ethics Committee 

Improving healthcare:

• To coordinate annual reviews of current Ataxia Centres, and accreditation reviews of new Ataxia Centres 

• To coordinate the Ataxia Grand Rounds programme 

• To manage the updating of Ataxia UK’s Medical Guidelines and similar publications 

• To support the Director of Research in the development of new projects and policy work aimed at improving the healthcare of people with ataxia as required

Other: 

• Participate in supervision, and staff meetings as required 

• Undertake professional development and training 

• To manage the Research Communications Officer

• Comply with the data protection regulations, ensuring that information on clients, supporters, employees and volunteers remains confidential

• Implement Ataxia UK’s health and safety policy and procedures, ensuring that all practices and procedures are undertaken in accordance with a healthy and safe working environment and that all staff and volunteers for whom you may be responsible are aware of their responsibilities in respect of their role, monitoring data and recommending action as required 

• Administer and organise own work to ensure that it is accurate and meets quality targets, agreed deadlines and reporting requirements 

• Take responsibility for personal learning, training and development, and support the learning and development of others and the whole organisation 

• Work to embed a culture of inclusion and collaboration, within and beyond Ataxia UK 

Note: This job description sets out the duties of the post at the time it was drawn up. Such duties may vary from time to time without changing the general character of the duties or the level of responsibility entailed. Such variations are a common occurrence and cannot themselves justify a reconsideration of the grading of the post. Ataxia UK reserves the right to update the Job Description from time to time to reflect these changes in or to the post after consultation about any proposed changes. 

Person specification 

Qualifications and experience 

• Degree and higher degree in a relevant biological science or in medicine (PhD desirable) 

• Experience of working in a research environment, in a hospital or for a medical research charity

Essential Skills  

• Ability to write clear, concise, accurate English

• Ability to communicate effectively with both researchers and lay people 

• Ability to do oral presentations to large audiences

• Ability to work independently

• Excellent organisational skills

• Ability to use Microsoft Office packages

• Ability to maintain databases and generate reports

Perspectives  

• Support for the ethical use of animals in medical research and human embryonic stem cell research 

• Commitment to diversity and inclusion and knowledge and understanding of the barriers faced by people with a disability 

Personal qualities 

• Flexible approach to work 

• Adaptable to changing working hours to support work with international partners

• Willing to travel nationally and internationally with overnight stays 

Benefits of working for us 

• 25 days annual leave pro rata (rising to 30 with a length of service) 

• Extra holiday day for your birthday 

• Access to a free Employee Assistance Programme & Employee Hotline 

• Flexible hybrid working 

• Pension scheme 

• Enhanced maternity and co-parental leave 

• Cycle to work scheme 

• Training and development opportunities 

Accredited Living Wage Employer

About the British Society for Heart Failure

The British Society for Heart Failure (BSH) is the UK's leading charity and membership organisation dedicated to improving care for people living with heart failure. We bring together healthcare professionals, researchers and decision-makers to improve prevention, diagnosis, treatment and long-term outcomes through education, awareness, research and policy influence.

This is an exciting time to join BSH as we deliver our ambitious new strategy and continue to drive forward our national 25in25 campaign to reduce mortality from heart failure and improve outcomes for patients across the UK.

About the Role

This is a high-profile opportunity to shape and deliver BSH's policy agenda and strengthen its influence across the healthcare sector.

Reporting to the Chief Executive, you will work with clinical leaders, parliamentarians, NHS stakeholders and partner organisations to ensure BSH remains a credible and influential voice on heart failure policy. You will help develop evidence-based policy positions, influence decision-makers and support improvements in heart failure prevention, diagnosis and care across the UK.

Key Responsibilities

• Lead the delivery and development of BSH's policy framework and priorities.
• Develop policy papers, briefings, consultation responses and stakeholder communications.
• Build relationships with parliamentarians, NHS leaders, policymakers and healthcare organisations.
• Represent BSH at meetings, consultations, forums and policy discussions.
• Identify opportunities to influence policy and improve outcomes for people living with heart failure.
• Work collaboratively with partner organisations on advocacy, campaigns and policy development.
• Monitor the healthcare and policy landscape, identifying emerging issues and opportunities.
• Support wider organisational activity including communications, events and strategic initiatives.

Our Commitment to Inclusion

We welcome applications from people of all backgrounds and experiences. If you're excited by this opportunity but don't meet every requirement, we'd still encourage you to apply. As this role is primarily remote we also encourage applicants from any location in the UK that enables occassional travel into London and elsewhere in the UK.

About Picker
Picker is an Oxford-based charity with an international reputation for measuring and improving patient, service user and staff experience. Our mission is to make person-centred health and social care a reality for everyone. We work with NHS organisations, government bodies, charities and healthcare providers in the UK and internationally.

About the role
The Communications Officer plays a key role in raising Picker's profile, reputation and influence by delivering engaging communications across a range of channels. Working as part of the Platform Services team, you will help communicate Picker's research, impact and expertise to a wide range of audiences, including healthcare leaders, policymakers, researchers and the public.

You will lead the day-to-day management of Picker's website and social media channels, create high-quality content including blogs, case studies, newsletters and press releases, and support the delivery of marketing campaigns for key projects, events and publications. You'll also work closely with colleagues across the organisation and external partners to ensure Picker's work reaches and engages the right audiences.

This is an exciting opportunity for a creative and proactive communications professional who enjoys combining excellent writing skills with digital marketing, website management and audience engagement to help improve health and social care.

Skills and experience
We are looking for someone with:

• Experience working in a communications, marketing or related role.
• Excellent writing and editing skills, with experience producing content for a range of audiences and channels.
• Experience creating content such as blogs, case studies, newsletters, website copy and social media posts.
• Experience managing and developing websites, ensuring content is accurate, accessible and engaging.
• Experience using social media platforms to build engagement and develop online communities.
• Strong organisational skills, with the ability to manage multiple priorities and work to deadlines.
• Excellent communication and relationship-building skills, with the ability to work effectively with colleagues, stakeholders and external partners.
• A degree (or equivalent professional experience) in a relevant discipline.

Experience using tools such as Canva, Google Analytics, Google Ads or marketing automation software would be advantageous, as would an interest in healthcare quality and person-centred care.

If you're passionate about communicating ideas that make a difference and want to help promote work that improves people's experiences of health and care, we'd love to hear from you.

PR Officer

Are you ready to take on a new challenge with a leading charity making a real difference in brain tumour research?

Brain Tumour Research is an exciting, innovative, and ambitious charity. We are passionate about finding a cure for brain tumours through the establishment of dedicated Brain Tumour Research Centres of Excellence around the UK.

After a successful 2025, we’re building on our momentum and looking ahead with ambition. As our work continues to expand, so does our impact. We are now looking for passionate people to join us on the next stage of our journey!

It is a fantastic time to be joining us and we are keen to share this with likeminded and talented individuals. We currently have an opening for a PR Officer, to join our Marketing and Communications Team.

• Do you want to make a difference in one of the most innovative and exciting medical research fundraising charities in the UK?
• Do you have a Bachelor’s degree in public relations, media communications or a related field, or similar professional level of experience of at least two years?
• Do you have experience of working in a newsroom?
• Are you able to prioritise and meet deadlines whilst remaining adaptable to a fast-moving news agenda?

Have you answered Yes to these questions?

Does this sound like the opportunity to really take the next step in your career?

Excited to learn more about this position? Then please take a read through our recruitment pack below. 

If you have the skills and ambition that we are looking for we are excited to receive your application. We are really looking forward to welcoming a new member to our team!

We are asking for a CV as the first step but applicants may be asked to provide a targeted covering letter as part of the selection process.  Interviews will be conducted during the application window as appropriate, and will consist of a first interview via MS Teams, progressing, if successful to a face to face second interview, held at our offices in Milton Keynes.

We reserve the right to close the application window early and advise candidates to apply in good time to avoid disappointment.

Closing Date: 02nd October 2026

An exciting opportunity!

This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.

As our next Chief Executive, you will

• Define and deliver the MPS Society’s strategic vision.
• Provide confident oversight of governance, finance, compliance and reporting.
• Effectively manage the operational alignment between the MPS Society and RDRP.
• Always keep the members and family voice at the heart of strategy, service design and decision-making.
• Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
• Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
• Collaborate with other rare disease bodies, patient organisations and other key audiences.
• Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
• Encourage an open, supportive work environment allowing creativity and building staff confidence.
• Help shape the future of the MPS Society.

About you

•  Self-motivated, with the drive to lead the organisation through a period of change and transition.
• Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
• Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
• Strong self-awareness, with insight into their own leadership style and impact on others.
• Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
• A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
• Genuine passion for the Society's mission, with a family and member-first ethos.
• Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
• A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
• Confidence speaking publicly on behalf of the organisation and the people it represents.

Why join us?

A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.

• Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
• A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
• Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
• A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
• A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
• Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.

Benefits

Join us and you will be working for a caring charity offering:

• A competitive salary
• Generous annual leave
• Extra leave between Christmas and the New Year
• Contributory pension
• Life assurance (subject to the conditions of the scheme)
• Employee assistance programme offering support 24/7

Further information

The successful candidate must be eligible to work in the UK.

The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.

Salary to be agreed depending on experience and will be pro-rata for part time hours.

This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.

This senior role requires flexibility in working hours and location.  It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.

This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.

For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart.  Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.