Research officer jobs in brighton, brighton and hove

Charity Support Officer 

Location: Remote, with regular meetings in London, applicants must be based in or around London 

Salary: £27,700 - £29,000 per year 

Contract: Full-time with opportunities to work flexibly over 4 days 

Reporting to: CEO 

About AWN 

All Ways Network (AWN) is a UK-registered charity dedicated to empowering non-profits that support diverse Muslim communities across the UK, particularly those with an annual income under £1 million towards becoming fundable. 
 
We provide grassroots organisations with vital services from bid-writing and application reviews to webinars, training, and tailored charity support. This helps them access funding, strengthen governance, build capacity, and adopt best practices in a challenging funding landscape. 
 
Committed to equitable grant-making and a stronger civil society, AWN champions the vision of: “Thriving non-profits empowering Muslim communities to enrich UK society.” 

Role Overview: Knowledge in grant-funding, capacity building, organisational support

We are seeking a proactive and collaborative Charity Support Officer to help deliver AWN’s mission. You will be the first point of contact for grassroots charities, supporting them to strengthen their organisations and improve their chances of securing grant funding by offering practical guidance, signposting, and building trusted relationships that help them grow in confidence and resilience. The role includes helping organisations strengthen governance and compliance, sharing information on grant-funding opportunities, and supporting them to identify challenges and develop practical solutions.
 
The non-profits you will support work across a wide range of areas for example: women, health and wellbeing, youth, homelessness and poverty, family services, sports, faith groups, crime and gangs, prisoners and ex-offenders, refugees and asylum seekers, drug addiction, older people and rehabilitation, and many more. 
 
Bringing a strong awareness of the barriers facing small charities particularly Muslim-led groups, will be key to helping them build long-term sustainability and impact. 

Key Responsibilities:

• Act as the first point of contact for charities and community groups, managing a varied caseload and balancing priorities. 

• Carry out needs assessments to understand organisations strengths, challenges, and funding needs, and develop clear action plans. 

• Provide tailored support, including health checks on governance, compliance, finances, and funding readiness, offering recommendations and signposting to specialist services (e.g., Cranfield Trust, CVS, Charity Excellence etc). 

• Advise on funding opportunities, strategy, and application readiness, with referrals to bid-writing support where needed. 

• Deliver workshops, webinars, events, and one-to-one sessions to build skills, knowledge, and confidence of UK grassroots organisations. 

• Work collaboratively with organisations and AWN colleagues (including via the triage and referral system) to identify challenges and develop practical, sustainable solutions. 

• Build and maintain strong relationships with charities, funders, and sector partners across the voluntary, public, and charity sectors. 

• Represent AWN at external events, conferences, and meetings, helping to organise and deliver events linked to your work. 

• Keep accurate records on the CRM, gather feedback, write case studies, and contribute to monitoring, evaluation, and service development. 

• Support AWN’s communications by contributing updates for the website and social media. 

What We’re Looking For 

We’re looking for someone who is approachable, empathetic, and motivated to make a difference. You’ll have a natural ability to listen, build trust, and meet people where they are, while offering constructive and practical support. Patience, curiosity, and cultural awareness will help you understand the diverse realities of grassroots charities and the communities they serve. 
 
Alongside these personal qualities, you’ll bring a good understanding of the charity sector and the challenges facing small non-profits across the UK, for UK Muslim-led organisations. You’ll have exceptional knowledge of governance, compliance, and funding pathways, and the confidence to guide organisations towards growth, resilience, and long-term impact. 

Essential Criteria 

• 3+ years’ experience within the UK charity sector (domestic, not solely international). 

• Strong understanding of charity governance, compliance, and the UK funding and grant-making landscape. 

• Insight into the needs and challenges of small and grassroots non-profits, with awareness of the systemic barriers affecting Muslim-led organisations. 

• Experience supporting or advising charities, community groups, or local networks to build capacity and resilience. 

• Ability to work collaboratively with organisations, offering constructive and practical guidance. 

• Excellent communication and interpersonal skills with confidence in public speaking and engaging a wide range of stakeholders. 

• Strong organisational and administrative skills with attention to detail and the ability to manage multiple priorities. 

• Demonstrated ability to work independently, take initiative, and adapt in a fast-paced environment.  

• Comfortable working autonomously and as part of a small team, with minimal supervision. 

• Confident using technology to deliver support and manage work effectively, including CRM systems, Microsoft Teams, and other digital tools. 

• Experience in one or more of the following areas: 
  - Community engagement and outreach 
  - Event or project coordination (online and in-person) 
  - Delivering presentations, workshops, or training sessions 
  - Monitoring, evaluation, and learning activities 

Recruitment Process 

Interviews will take place early October 2025. 

The process will include two stages: one online and one in-person (to be held in the City of London). 

Exact dates will be confirmed before the application deadline. 

We are looking for a part-time (22.5 hours per week) social media officer to ensure our community is engaged and interacted with through our multiple social media channels. The role is focused on the creation of engaging content for our social media channels, including Facebook, TikTok, and Instagram, as well as monitoring these channels and engaging with our followers. You will be involved in the major Veganuary campaign, inspiring and supporting people to try a vegan diet – better for animals, better for the planet, and better for our health. 

This is a fixed term contract until 28 February 2026. 

We need someone available to cover the following hours:

• Monday (9.00 to 5.30)
• Friday (9.00 to 5.30)
• Sunday (half a day worked at any time)
• A further half day to be worked on any day that suits.

The National Youth Agency is looking for a new Chief Operating Officer to join our Executive Leadership Team.

Contract: Permanent
Hours: Full-time - 37 hours per week
Salary: £85,000 per annum
Remote: This role is homebased (within the UK) with occasional to meetings, events and conferences.

What we do

As the national body for youth work, the NYA has a dual function. We are the professional statutory and regulatory body (PSRB) responsible for qualifications, quality standards, and safeguarding for youth work and services in England. In line with our charity mission and aims, we also champion youth work through research, advocacy, campaigns, and programmes.

We work in partnership and believe in collaborative leadership, listening to youth workers and the youth work sector so that we can understand their needs and respond to the challenges they face. We are ambitious for youth work and for young people and integrate youth voice and influence across our work

About the Role

Responsibilities will include:

• The COO leads the day-to-day functioning of the organisation to ensure smooth, efficient, and effective delivery of services. This is vital for maintaining operational stability and achieving strategic outcomes.
• They design and execute strategies that align with the organisation’s mission and long-term goals ensuring resources are used effectively and priorities are clear.
• They promote a culture of excellence, innovation, and continuous improvement through supporting employee engagement, productivity, and organisational success.
• The COO collaborates closely with the CEO/CFO and other senior leaders to drive strategic initiatives and business growth, ensuring unified leadership and coherent decision-making.
• They partner with the CFO to manage budgets, forecasts, and resource allocation. Financial oversight ensures sustainability and supports informed investment in strategic priorities.
• Strengthen governance and risk management frameworks, aligned to regulatory expectations and best practice while proactively managing reputational and operational risks.
• The COO cultivates strong relationships with partners, clients, and stakeholders to enhance service delivery and reputation. These relationships are key to influence, collaboration, and impact.
• They lead efforts to improve processes and adopt best practices across the charity to enhance efficiency and keeps the organisation competitive and responsive.
• They ensure that daily activities support the charities long-term objectives.
• The COO mentors other directors and departmental heads and fosters leadership capabilities across teams.
• They establish and track KPIs to identify inefficiencies and guide improvements through data-driven decision-making to enhance accountability and results.
• They evaluate and refine workflows to boost productivity developing efficient processes to reduce waste and improve service quality.
• They act as a bridge between departments and the CEO to ensure cohesive execution of strategic plans preventing silos and promoting organisational synergy.
• The COO serves as a senior figure in national and cross-sector forums, conferences, and strategic partnerships to strengthens the organisation’s voice and influence.
• They demonstrate commitment to Equality, Equity, Diversity, Inclusion, and Belonging in both internal culture and external programmes to foster a fair and inclusive organisation.
• They work with the CEO, CFO and Director of Growth to identify and pursue new revenue streams and strategic partnerships. This expands the organisation’s reach and sustainability.
• They engage in public speaking, media interactions, and external representation demonstrating clear communication, credibility, and stakeholder engagement.
• They develop and embed evaluation frameworks to assess progress against strategic goals. The measuring of our impact ensures accountability and informs future planning.
• They promote the organisation’s brand at events and through networking.

The COO takes on other responsibilities as needed to support the organisation’s mission.

About You

Essential competencies of the Chief Operating Officer:

• Extensive experience in senior leadership with a proven track record in operations, financial and risk management, and delivering high-performing teams, ideally in the charity sector.
• Strong understanding of business functions such as HR, Finance, Marketing, etc.
• Excellent leadership, communication, and interpersonal skills.
• Ability to think strategically and execute effectively.
• Strong problem-solving and decision-making abilities. Commercially astute, process-driven, and highly pragmatic in approach.
• Experience in driving performance and fostering a collaborative culture.
• Bachelor’s degree in business administration or related field; MBA preferred

Why Work for NYA?

• NYA operates as a people-first organisation, prioritising the well-being and needs of its employees.
• NYA offers an exceptional flexible working approach which encourages our team to balance professional responsibilities with their personal life.
• A remote based team, spread across England, fostering inclusivity and diverse talent. Despite geographical distances between team members, NYA maintains a highly motivated and connected team through the optimisation of digital tools.
• NYA is committed to supporting the continual personal and professional development of our team and helping them achieve their ambitions.
• We provide 25 days leave plus 8 days, life assurance scheme, 5% employer pension contribution and a comprehensive Employee Assistance Programme via Spectrum.life with unlimited specialist support available to all NYA employees.

How to Apply:

To apply, please submit the following via our online application platform by 11:59pm on Monday 29th September 2025:

A detailed CV setting out your career history, with responsibilities and achievements in line with the person specification in the About You section.
A covering letter highlighting your suitability for the role and how you meet the requirements in the About You section.
We will request data for our EEDI monitoring purposes, providing this is optional.

Please note: The covering letter is an essential part of the application process and will be assessed as part of your full application. We use AI detector software, so cover letters or CV’s with over 80% AI generated content will be disregarded. We understand that AI tools can offer support to candidates who have learning differences, which is why we will accept applications with some AI assistance. CV’s will not be accepted without a cover letter.

The National Youth Agency is an equal opportunities employer.

At NYA our inclusive culture means that we embrace individual differences and understand that we need a diverse team to achieve our organisations mission.

We wish to recruit candidates from all backgrounds to ensure our team reflects the rich diversity of the communities we serve. We encourage applications from anyone regardless of disability, ethnicity, heritage, gender, sexuality, religion, socio-economic background and political beliefs but we particularly welcome applications from global majority candidates and those from other minoritised ethnic groups in the UK as they are currently underrepresented in our team.

Youth Work changes lives

Which is why we’re committed to ensuring that as many young people as possible get to benefit from it.As the national body for youth work in England, the National Youth Agency (NYA) exists to champion its transformative power. We believe all young people should have the opportunity to benefit from the life-changing impact of extraordinary youth workers and trained volunteers.

We help to grow youth work provision in ways that keep it effective, relevant, safe and engaging, to help millions of young people reach their potential and thrive. We do this by providing guidance, support, advice, training and staff development opportunities for youth workers and youth work organisations. At the heart of everything we do are young people themselves. We work hard to ensure their voices are integrated into all our work, to develop provision that truly meets their needs.

REF-223747

Title: Monitoring, Evaluation and Learning Advisor (Qualitative Evidence) 

Salary: £41,000 to £56,000 per annum 

Location: UK remote - with occasional travel to Haywards Heath, when required 

Contract: 24-month Fixed-Term Contract 

Hours: This is a full-time 35 hours per week 

Responsibilities 

About the role 

We are seeking an experienced Monitoring, Evaluation and Learning Advisor to provide sound technical advice and guidance to ensure high quality qualitative outcome measurement tools and approaches in line with our increasing portfolio in disability and social inclusion in order to continuously improve Sightsavers’ evidence base. 

As the MEL Advisor you will lead qualitative project baseline and endline data collection, coordination, reporting and learning to improve the quality of our programmes and Sightsavers impact. You will maintain and further develop Sightsavers’ qualitative outcome monitoring approach across our thematic areas and ensure high quality data collection, analysis and reporting.

Sightsavers has developed and introduced a MEL framework to measure the organisation’s strategic progress - Learning Accountability and Monitoring Progress (LAMP). The post holder will support its processes and make a significant contribution to understanding progress using qualitative evidence. 

Responsibilities include: 

Developing and strengthening practices 

• Lead on the strengthening and design of innovative and participatory monitoring and evaluation methodologies and tools to assess outcomes and impact of programmes; support the integration of successful approaches in routine MEL practice.

• Lead on the piloting, implementation and revision of Sightsavers MEL approaches in existing and new projects including strong links with LAMP; support MEL team members to implement appropriate tools. 

• Contribute to Country Office, Regional and Global capacity building plans and provide MEL-focused training and facilitation.

Technical Support and guidance 

• Strengthen the use of Theories of Change (ToC) within projects through participating in their development and ensuring clear relationships between ToC and baselines and endlines. 

• Provide technical support to logframe development during the project design process ensuring strong links with LAMP, particularly for social inclusion and inclusive education projects. 

• Contribute to project MEL planning by ensuring continuity between baseline and endline data collection tools, and annual monitoring tools. 

• Ensure the accurate design of evidence gathering elements, including clear and robust rationale, budgets and resourcing. 

• Maintain open lines of communication among internal stakeholders about project progress and escalate risk when needed. A key focus is to assist institutional funding and senior management with communications on project progress and challenges. 

Evidence generation and learning 

• Lead Country and Global teams to conduct evidence generation activities to support strategic direction including, project baseline, annual and endline data collection, reporting and learning at project and portfolio (strategy) level 

• Analyse, consolidate and disseminate indicator baseline and endline data, provide technical support to donor reporting when necessary 

• Support the integration of needs and opinions expressed by people and communities we serve 

• Collaborate with MEL team members to analyse performance data, write reports and provide recommendations 

• Ensure that learning from project baselines contributes to project design, implementation and improvements in MEL practice

• Support the design, delivery and dissemination of learning, particularly around inclusion, within and between relevant thematic areas 

The post holder is expected to travel up to eight weeks a year locally and internationally. The role offers flexible working from home and the office to be agreed upon with the line manager. 

Skills and Experience 

As the successful candidate you will possess a degree in a relevant field or subject (international development, public health, social sciences), or equivalent learning and experience. You will have a background in the comprehensive design and delivery of outcome focussed qualitative approaches/techniques including participatory MEL, tool development, data collection, analysis and reporting, and have experience of analysing rich qualitative data from multiple sources including the use of appropriate analysis methods and data analysis software tools. 

Further required knowledge, skills and experience include: 

Essential 

• Experience in monitoring, evaluation and learning gained within the international development sector in programme countries.

• Excellent technical skills in monitoring, evaluation and learning: developing and using theories of change, designing MEL plans, designing logframes, managing oversight processes, sharing evidence and communicating learning, data quality assessment.

• Experience producing analytical reports and communication materials of good quality for a wide range of audiences, particularly using qualitative data. 

• Excellent self-management and initiative with proven ability to independently manage large, complex pieces of work with multiple stakeholders in a high-pressure environment working to competing deadlines. 

• Ability to build and manage strong, effective working relationships with internal and external audiences on complex international development projects (working with multiple countries and continents) 

• Ability to balance attention to detail with understanding the big picture. 

• Sound knowledge of Microsoft Office products and relevant use of artificial intelligence (AI) software 

Desirable 

• Fluency in other Sightsavers’ languages e.g. French, Portuguese, Bengali, Kiswahili. 

• Experience in MEL for social inclusion and/or education programmes and inclusive data skills. Disability data skills are an asset. 

• Skilled in efficient working practices within a geographically disbursed team. 

• Experience of planning, monitoring and evaluating flexible adaptive programmes. 

• Understanding of operational research methodologies and approaches 

This is a highly varied and involved role, and the above is not an exhaustive list of duties or required professional skills. Please see the Job Description for full details.  

Candidates are welcome to demonstrate their ability to match the person specification by expanding on how their experience, training and/or qualifications might have provided them with the knowledge or skills required for the role. Successful candidates will be appointed on merit. 

Benefits 

Sightsavers offers some fantastic benefits. Our comprehensive benefits package includes generous annual leave allowance, pension, season ticket loan, cycle to work scheme, discounted gym memberships and wellness discounts. If you choose to work in or are visiting our collaborative, modern office space, you will find it an easy 20-minute train journey from Brighton or 45 minutes from London. 

Next steps 

To apply for this exciting new opportunity, please submit your CV via our recruitment portal. We are particularly interested in learning of your motivations for applying.

Please note that there will be an expectation that you can occasionally visit our modern and collaborative offices in Haywards Heath, West Sussex (RH16 3BW). 

Closing date: 21 September 2025 

As an equal opportunity employer, we actively encourage applications from all sections of the community. Sightsavers is a Disability Confident Leader and qualified people with a disability are particularly encouraged to apply.

Sightsavers is an employer that does not tolerate any form of harassment and has zero tolerance for sexual exploitation and abuse. All potential candidates will be subjected to rigorous background checks and controls. 

Together, the charities Sands and Tommy’s have formed a Joint Policy Unit (JPU) focussed on achieving policy change that will save more babies’ lives during pregnancy and the neonatal period and on tackling inequalities in loss, so that everyone can benefit from the best possible outcomes.

The JPU’s mission is to secure policy change that will reduce rates of miscarriage, stillbirth, pre-term birth and neonatal death, and to work to eliminate inequalities in these outcomes.

While there is widespread agreement on the need for change to improve the safety of maternity and neonatal services, what that change looks like is not clear.  To save more babies’ lives we believe that a continued focus is required, and that governments should set new commitments to reduce perinatal mortality and preterm births, focused on matching the best-performing countries in Europe.

This role will be crucial to the continued success of the JPU unit; leading, shaping and coordinating all the unit’s work. 

We are looking for an independent and assertive problem-solver, a policy expert who can manage multiple priorities, take the initiative, lead the national conversation and is as excited as we are about taking the helm of this venture for both of our organisations.

The successful candidate will need to have a substantial track record of effectively leading and implementing national policy and influencing programmes, driving change and achieving the desired impact.

You will have considerable experience across research, data analysis, policy development, public affairs and communications.  Additionally, you will be well-versed in research and data management, including analysing complex data and evaluating policy developments.

Experience of being a member of a senior management team with successful, significant and relevant management and leadership experience is also essential.

You will be joining us at a time that holds the greatest potential for fundraising in our history, following the launch of the UK Government’s Delivery Plan for ME and initial findings of the DecodeME genetics study (co-led by Action for ME) in Summer 2025. 

Building on our charity’s already established level of support from major donors, you will provide exceptional relationship management to existing donors alongside growing our network of high value supporters.

Working closely with the CEO, alongside managing a portfolio of donors and prospects ensuring excellent stewardship, you will support our Breakthrough-ME Group (a group of high net worth and highly networked individuals). There is an established level of support from major donors at Action for ME so this is a role that will require exceptional relationship management to retain our current valued supporters while growing this crucial area of fundraising. 

This would be an ideal role for an experienced philanthropy professional seeking to work for a small but ambitious charity, helping us to achieve our mission to improve the lives of all people affected by ME – better meeting their needs today while taking action to secure change for tomorrow.

Key duties

Major Donor Fundraising

• Successfully develop and implement the philanthropy strategy to secure and maximise funds from high value individuals for Action for ME achieving annual income of £250k+

• Set plans and budgets which will deliver income through major gift fundraising and philanthropic giving through family trusts and foundations, including quarterly forecasting.

• Manage a portfolio of prospects and donors at the £5k to £100k level, to develop and maintain strong and long-standing partnerships

• Work closely with the Director of Fundraising and Development and other colleagues to ensure that plans and activities for fundraising from high value individuals are integrated into the overall fundraising strategy and plan for significant growth.

• Be responsible for our Breakthrough-ME Group with high quality proposition development.  Contribution to Group fundraising activities with a specific focus on ensuring their networks support pipeline growth for future fundraising.

• Lead the delivery of our biennial fundraising gala dinner, maximising income and new opportunities from attendees.

• Develop engaging and inspiring opportunities to steward and cultivate support creating a calendar of activities including events, presentations, approaches, networking and meetings.

• Utilise the CRM database (Raisers Edge) to provide the data required to strategise your approach to philanthropy, monitor progress and provide a high-quality donor experience.

• Ensure utilisation of insight & data, producing management information data to inform planning and strategy development.

• With the Director of Fundraising & Development, create inspiring cases for support and resulting propositions with clear budgets and outcomes.

• Create adequate systems and processes to support the major donor programme.

• Undertake and manage research into prospects and major donors, preparing for approaches and presentations and briefing senior leadership and trustees for donor meetings and events.

• Develop and maintain relationships with donors, a wide range of staff and volunteers from trustee level down.

• Provide regular feedback and internal reporting to line management.

• Work with other fundraisers to ensure that all fundraising opportunities and leads are followed up – particularly in corporate, community and trust fundraising.

• Work with Trustees, the Chief Executive and members of the Leadership Team to develop relationships with major donors.

• Self-administrate including managing your own diary and meetings, keeping accurate and up to date records of activity

• Occasional travel to London, Bristol & events

Other duties

• To positively promote the work and activities of Action for M.E. at all times.

• To contribute to the team’s overall, ongoing and annual planning and budgeting.

• To undertake any other reasonable activity in line with the responsibilities of the post as requested by the Director of Fundraising and Development, Chief Executive or any other senior Action for ME management.

• Act as an advocate for the Charity and its work.

• To work in accordance with Action for ME’s values of collaboration, equity and empathy.

We are seeking an experienced fundraiser who can work with us on a part time, freelance basis (Sept/Oct 2025 - January 2026) for a fee of £16Kto produce and undertake the following specialist services:

• Research and produce a bespoke 18-month Fundraising Plan for the Trust, with a particular focus on Museums, collections, community engagement, conservation and organisational resilience. 
• To start the delivery of the plan by undertaking specialist fundraising activities to trusts and foundations and to apply for opportunities that will help generate new incomes for the Trust and boost our ability to delivery our Business plan and Museum Developments. This will include a refreshed donations plan for our sites to come into action before Christmas.
• To advise and produce a business case for a long-term fundraising resource for the Trust.

National Rural Touring Forum (NRTF) is looking for a new Director to lead our national network and champion rural arts across the UK. We’re seeking an inspiring leader with a collaborative approach to advocate for our members and sector, to strengthen partnerships and support a vibrant network that ensures creativity and culture thrive in every community.

About NRTF

NRTF is an Investment Principles Support Organisation (IPSO) within Arts Council England’s (ACE) National Portfolio. As a national membership and strategic organisation, we unite and champion the diverse parts of the rural touring sector. We advocate on behalf of our members, offering up-to-date information, advice, guidance, professional development and networking opportunities. By sharing news, stories and opportunities, supporting rural touring-focused projects and initiatives, and through our Annual National Rural Touring Conference, we raise the profile of rural touring, embedding its value in the wider cultural landscape. We celebrate the work and achievements of the volunteer promoters, professional artists and organisations who make culture accessible for rural communities. This is an exciting moment to join NRTF as we enter our third decade as an organisation and continue building the profile and impact of rural touring across the UK, while supporting the passionate and committed members at the heart of our network.

Main Purpose of the Role

The Director is the strategic and operational lead of NRTF, responsible for the organisation’s vision, management, performance, and long-term sustainability. They ensure delivery against NRTF’s mission and business plan, champion rural touring at a national level, and act as the primary liaison with Arts Council England, stakeholders, and the wider sector. Working closely with a proactive Board of Trustees, the Director provides leadership on governance and compliance in line with UK Charity Law and NRTF’s Articles of Association, ensuring the organisation operates with transparency, accountability and good practice. The Director is a visible ambassador for rural touring, building strong relationships across the cultural sector, advocating for members, and promoting the role of rural touring in ensuring that creativity and culture thrive in every community.

Key Responsibilities

Strategic Leadership

● Lead and implement NRTF’s Business Plan and strategic objectives.

● Oversee the delivery and evaluation of all funded programmes and initiatives.

● Develop and sustain relationships with our members, including the rural touring schemes, national and regional stakeholders, funders, and policy-makers.

● Ensure alignment with ACE’s Investment Principles and “Let’s Create” strategy.

● Ensure long-term sustainability through innovation, partnerships, and appropriate diversification, ensuring the organisation remains relevant and forward-thinking.

Finance and Fundraising

● Lead financial planning, budgeting, and reporting in collaboration with the Finance Officer and Treasurer.

● Ensure ACE and funder reporting is accurate and timely.

● Lead on developing new funding opportunities, working with colleagues and freelance support to secure income from trusts, foundations and diversification streams.

Membership and Sector Support

● Foster strong relationships with membership, particularly scheme members.

● Understand and respond to member needs, ensuring services and benefits are relevant.

● Foster a strong member community through events, forums, and networking opportunities.

● Together with the NRTF team, design and deliver initiatives to grow, engage, and retain members.

● Represent NRTF and advocate for member interests at national and international events, conferences, and sector forums.

Project and Event Delivery

● Provide strategic oversight of all NRTF projects, ensuring they are well-managed, impactful and aligned with the business plan.

● Lead and represent NRTF at the Annual National Rural Touring Conference and other national events, with project managers and freelance teams responsible for delivery.

● Foster partnerships with schemes and sector organisations to co-create and deliver events and projects that serve members and raise the profile of rural touring.

Communications and Advocacy

● Provide strategic leadership for NRTF’s communications and advocacy, ensuring consistency of voice and alignment with the business plan.

● Lead sector advocacy and act as spokesperson and ambassador for rural touring.

● Maintain and develop national visibility for rural touring through partnerships, media opportunities and press engagement (with support from NRTF’s freelance press agency).

● Oversee delivery of marketing and communications, working with the Marketing & Digital Coordinator to manage campaigns, content and social media.

● Build strategic partnerships with other organisations, funders, and influencers.

HR and Operations

● Lead on recruitment, contracting, staff management, and HR policy implementation.

● Line-manage employed staff, ensuring fair and effective working conditions.

● Manage Contracts for Services for freelance teams and contractors

● Maintain organisational infrastructure, including IT, office resources.

Governance and Legal

● Support and develop the Board of Trustees, ensuring sound governance practices.

● Organise and service Board meetings, the AGM, and working groups.

● Act as Company Secretary: ensure compliance with charity and company law, maintain registers, and submit returns.

Person Specification

Essential

● Proven senior leadership within arts or cultural organisations.

● Commitment to rural/community engagement.

● Strong understanding of the UK arts funding landscape, especially ACE.

● Demonstrable experience in finance, HR, governance, and fundraising.

● Experience in project delivery.

● Strategic thinker with exceptional communication skills.

● Experience of working and engaging with key stakeholders.

● Experience working with or supporting a Board of Trustees.

● Commitment to diversity, equity, and inclusion.

● Evidence of original thinking, idea making and bold ambition.

● Caring and positive leadership style.

Desirable

● Awareness of the ethos, principles and practice of rural touring.

● Knowledge of community arts and engagement, and/or cultural networks.

● Experience in legal compliance and company secretary responsibilities.

● Understanding of contemporary cultural policy and advocacy.

● Experience in digital communications, social media, and PR.

● Experience in event management and programming.

If you are excited by this role but are not sure if you fully meet the person specification, we encourage you to reach out to our Interim Head of Operations, Jo Purseglove to discuss further.

Position title: Communications Manager

Reports to: Director of Operations

Direct reports: None currently

Key stakeholders: UKMSA staff, members and volunteers, Board of Trustees, Sheds and Shedders, the public

Location: Remote (with occasional UK travel)

Salary: Level 4 – £35,000-£45,000

The Communications Manager plays a vital role in shaping how UK Men’s Sheds Association (UKMSA) communicates, both internally and externally, and with the community at its heart. Operating with a high degree of autonomy and professional expertise, the postholder leads the development and delivery of communication strategies that connect, inform, and inspire.

This is not just a messaging role. Rather, it’s about building trust, clarity, and connection across UKMSA communities. Internally, the Communications Manager helps staff feel informed, included, and united across a remote-working environment. The post holder will coordinate internal communications, shape the tone and culture of how information flows, and ensure the brand is consistently and professionally represented.

With volunteers, especially UKMSA’s Ambassadors, the Communications Manager plays a key part in ensuring people feel heard, valued, and kept in the loop, especially during moments of change or challenge. They will work closely with the Head of Volunteering and the wider team to keep the voices and experiences of Shedders, Sheds and Shed Networks at the centre of UKMSA’s communications.

Externally, the postholder curates and amplifies the stories, impact, and energy of the Shedding movement. They manage the website and social media channels, support the CEO and Chair in their digital visibility, and respond to external enquiries with professionalism and purpose.

This is a mission-driven role that sits at the heart of how UKMSA connects with the world. It requires emotional intelligence, editorial judgement, and a deep appreciation for the unique volunteer-led spirit of the movement. The postholder will be confident working across staff, volunteers, trustees, and media, joining the dots, finding the story, and ensuring communications always reflect UKMSA’s values and community.

Key responsibilities:

1. Internal communications

· Develop and deliver internal communication approaches that ensure staff across a remote-working environment are kept informed, connected, and engaged.

· Coordinate and facilitate regular team meetings, updates, and communications, including all-staff briefings, newsletters, and shared messaging.

· Work with the CEO and senior team to plan in-person staff meetings, designing the content, format and approach so the sessions align with staff and organisational requirements.

· Design and implement mechanisms that foster internal cohesion and trust, drawing on ideas and good practice for remote working teams.

· Work closely with the senior team to ensure that important updates - strategic, operational, or cultural - are communicated in a timely, consistent, and accessible way.

· Uphold and promote a consistent tone of voice across all internal messaging, ensuring that staff understand and reflect UKMSA’s values and identity in how they communicate.

· Working with the Operations Officer, support the creation and internal rollout of branded materials and ensure consistency in logo use, templates, formatting, and professional standards across the organisation.

2. Community and organisational communications

· Act as a key link between staff, trustees, volunteers (particularly Ambassadors), and other internal stakeholders to ensure information is shared clearly, consistently, and inclusively.

· Collaborate with the Head of Volunteering to ensure that UKMSA’s volunteers are kept informed and involved, particularly during organisational updates, change, or key moments.

· Help embed a culture of openness and two-way communication, ensuring volunteers and trustees feel heard, recognised, and informed, and that their contributions are visible and valued.

· Coordinate messaging across staff and teams so that different groups across UKMSA receive the right information, in the right way, at the right time.

· Support senior leaders in maintaining effective communication with the Board of Trustees, including updates, briefings, and key documents.

3. External communications

· Manage and maintain the UKMSA website and social media channels, working with our external web designer to ensure content is accurate, up to date, and aligned with the organisation’s values and tone.

· Source, shape, and share stories from Shedders, volunteers, and communities to celebrate and amplify the impact of the Shedding movement.

· Lead on the production of UKMSA’s regular newsletter Shoulder2Shoulder, Review and develop the newsletter on a regular basis, in collaboration with staff and volunteers.

· Collaborate with staff and volunteers to collect and develop case studies and lived experience content and ensure these are shared meaningfully and respectfully.

· Support the Membership Manager and Director of Income and Investments to ensure any promotional activity for external partners is aligned with UKMSA’s communications strategy, delivers clear value, and is proportionate.

· Support Director of Income and Investments to shape and deliver marketing campaigns and communications aimed at generating income and supporter engagement

· Support the CEO and Chair in their digital communications - drafting content, advising on tone and timing, and increasing the visibility of their leadership voices, in the service of UKMSA.

· Respond to media and external communications queries, draft press releases where appropriate, and act as the first point of contact for general communications enquiries.

· Monitor UKMSA’s external presence and ensure consistency in messaging, tone and branding, across platforms and partners.

Key expertise required:

· Professional communications experience, with a strong track record in planning and delivering internal and external communications in a mission-led or purpose-driven organisation.

· Excellent writing and editing skills, with the ability to tailor tone, structure, and content for different audiences: from staff and volunteers to trustees, partners, and the wider public.

· Confidence leading internal communications across a remote or distributed team, including experience developing engaging formats, regular updates, and a shared organisational voice.

· Experience working with or alongside volunteers, trustees, or community stakeholders, and a strong appreciation for the importance of inclusive, two-way communication.

· Brand and tone-of-voice awareness, with the ability to maintain consistency and quality across channels, platforms, and contributors.

· Digital confidence, with experience managing websites (e.g. WordPress), social media channels, and email communications tools (e.g. Mailchimp), and using them strategically to reach different audiences.

· Storytelling and content development skills, with the ability to source, sensitively shape, and amplify stories that reflect lived experience and community impact.

· Strong organisational and planning skills, able to manage multiple priorities, coordinate with colleagues across teams, and deliver work to deadline with attention to detail.

· Collaborative mindset, with the confidence to influence tone, content, and strategy while also being hands-on in delivery and responsive to others’ needs and input.

· Judgement and discretion, with experience handling sensitive information, managing risk in communications, and supporting senior leaders with professional external representation.

· Genuine connection to UKMSA’s mission, with a respectful, values-led approach that centres the role of volunteers and champions the voice of the Shedding movement.

What success looks like:

· Staff feel informed, connected, and part of a shared organisational culture, even while working remotely. Internal updates are timely, engaging, and reflect a consistent tone that supports clarity, trust, and inclusion.

· Volunteers and trustees feel included and valued; they know what’s happening, understand UKMSA’s direction, and feel that communication is a two-way conversation, not a broadcast.

· The organisation’s public-facing communications are professional, values-led, and consistent. Social media, the website, and external content reflect the tone, mission, and energy of the Shedding movement.

· The CEO and Chair have visible, coherent digital profiles, supported with high-quality content and strategic messaging that reflects the voice and values of UKMSA.

· Good news stories from Shedders and communities are regularly shared, boosting the visibility of the movement and building pride and momentum across the network.

· Communications activity is intentional and well-prioritised. There is a clear rhythm to communications, and reactive work is handled without pulling focus from core messaging and strategy.

· The Communications Manager is seen as a trusted and thoughtful voice, able to advise colleagues, manage sensitive messaging, and champion quality and consistency in how UKMSA speaks.

· Volunteers remain central, not just as recipients of messages, but as contributors to and shapers of UKMSA’s communication story.

This job is not:

· This is not a campaigning or advocacy role. The Communications Manager will not be responsible for policy development, public affairs, political engagement, or influencing strategy.

· This is not a research or insight role. While storytelling and community voice are central to this role, the postholder will not be responsible for conducting research, writing reports (although the post-holder will support staff to get their reports right), or managing evaluation processes.

· This is not a marketing or income generation role. Although the postholder will support the visibility and professionalism of UKMSA’s public-facing presence, they will not lead fundraising, product marketing, or commercial campaigns. They will work with the Membership Manager and Director of Income and Investment if this is required.

· This is not a senior strategic leadership role. While the postholder contributes to strategy within their area and works closely with senior colleagues, they are not expected to set or lead cross-organisational strategy.

· This is not a purely reactive or administrative role. The Communications Manager is expected to take initiative, bring ideas, and shape how UKMSA communicates - internally and externally - in proactive and creative ways.

Closing date:-9th October 1200hrs
Interview: 22nd October

Trusts and Foundations Fundraiser 

We are seeking a motivated Trusts and Foundations Fundraiser to secure vital income and build strong partnerships with funders across the UK.

Salary: £30,000 per annum (pro rata for part time hours)
Location: Remote, UK wide
Hours: 30 – 37.5 hours per week (permanent)
 

About the role

As Trusts and Foundations Fundraiser, you will play a key role in generating income to support our mission of sharing the joy of live music in care settings. You will manage a portfolio of small and medium value trusts and foundations, writing compelling funding proposals and delivering excellent stewardship to strengthen long-term relationships.

Overview of the Job:

• Preparing tailored applications to trusts and foundations in line with organisational strategy and values.
• Managing and developing relationships with funders, providing regular updates and impact reports.
• Undertaking prospect research to identify new funding opportunities.
• Supporting larger-scale applications in collaboration with the Trusts and Foundations Fundraising Manager.
• Working with internal teams to gather data, acknowledge donations, and ensure accurate reporting.
• Contributing to the strategic planning and stewardship approach for trust fundraising.

This is a fantastic opportunity to make a real difference by helping to grow sustainable income that brings music to people in all care settings around the UK.

About you

You will be an enthusiastic fundraiser with excellent written communication skills and an eye for detail. You will be confident in writing creative, persuasive proposals and tailoring them to funders’ priorities. Organised and proactive, you will enjoy building strong relationships and managing multiple deadlines.

Essential skills and experience:

• Proven experience of generating income through trusts, foundations, grants or sponsorship proposals.
• Strong written and verbal communication skills, with the ability to produce clear and engaging content.
• Excellent organisational skills, able to work independently and as part of a team.
• IT proficiency, including MS Office.

Desirable:

• Experience using CRM databases.
• Financial acumen, with knowledge of preparing budgets.
• Strong research skills for identifying potential funders.

Other roles you may have experience of could include: Grants Fundraiser, Fundraising Officer, Trust Fundraiser, Development Officer, Partnerships Officer, Bid Writer, Income Generation Officer

Head of People and Culture

Salary:  £48,000 - £51,000 - depending on experience (pro-rata)

Contract Type: Permanent 

Hours: Part Time - 3 days a week (typical example of hours 09.30-17.30 but with flexibility)

Location: Remote with periodic travel to London (to our Elephant & Castle, central London office) and external meetings as required to meet the needs of the role

Responsible To: CEO

Application Deadline: 22nd September 2025

Responsibilities

Strategic HR Leadership

• Develop and execute the overall people and culture strategy aligned with Hatch’s overall vision, values and organisational strategy.

Organisational Culture & Employee Experience

• Work with the CEO to champion a values-driven, inclusive, and purpose-led culture that supports employee engagement and well-being.

• Design and oversee initiatives to enhance employee satisfaction, psychological safety, and workplace trust.

• Lead initiatives that reinforce cultural norms and behaviours aligned with organisational values.

Diversity, Equity & Inclusion (DE&I) Leadership

• Develop and lead the Hatch’s DE&I strategy

• Set DE&I KPIs; monitor progress and report to leadership in the quarterly board papers.

• Set up and work with an internal DE&I working group to implement DE&I Strategy 

• Organise training and education programmes on unconscious bias, inclusive leadership, and anti-discrimination.

• Oversee equitable hiring, compensation, promotion, and development practices.

Employee Relations & Engagement

• Act as a senior point of contact for complex employee relations matters.

• Build systems for transparent communication, feedback, and conflict resolution.

• Analyse quarterly engagement surveys and eNPS score data and develop action plans for improvement.

Governance, Compliance & Reporting

• Deliver reports on key people and culture metrics to the Senior Leadership Group (SLG) and Board, ensuring data-driven insights support strategic decision-making.

• Ensure all people-related policies, procedures, and contracts are regularly reviewed and updated, aligning with organisational needs, values, and current employment legislation.

• Maintain compliance with employment laws and regulatory requirements, minimising organisational risk and promoting ethical practices.

• Support the organisation in responding to emerging workforce-related risks.

• Develop and manage the people and culture budget annually

Compensation and Benefits

• Ensure our pay, benefits and progression framework support employee well-being and align with DE&I principles.

Learning and Development

• Identify skill gaps and oversee the creation of learning strategies to support upskilling and reskilling.

• Promote a continuous learning culture and leadership development at all levels.

Talent Attraction, Management and Succession Planning

• Lead the design and execution of robust talent acquisition, development, and retention strategies.

• Oversee performance management frameworks to drive growth and accountability.

• Continually develop Hatch’s employee value proposition to build Hatch’s brand as an employer of choice 

• Further develop our performance management framework to encourage high performance, professional development and values alignment

• Support and enhance our approach to leadership development and succession planning and providing support and advice to the team and managers to navigate these

HR Operations

• Act as owner of the Factorial HR system, ensuring data accuracy, functionality, and ongoing optimisation.

• Review and approve staff expenses in line with Hatch’s policy.

• Oversee all onboarding and offboarding processes, ensuring a smooth employee experience across the lifecycle.

• Manage changes to staff working hours, salaries, and contractual terms.

• Lead and coordinate recruitment processes, including job postings, candidate management, interviews, and offers.

Person Specification 

Skills

• An all rounder, able to develop a big picture vision and deliver on the details

• A keen eye for identifying talent and passion for developing people (in both their professional and personal growth)

• A focus on diversity and inclusion as a competitive business advantage

• Ability to build authentic relationships across a diverse group of stakeholders 

• Excellent communicator on all levels with demonstrated empathy and strong interpersonal skills

• Analytical skills and and ability to make, and support others to make, data-informed decisions

• Project management skills

• Problem-solving skills

Experience

• Proven experience in a similar leadership role, preferably within the social enterprise or nonprofit sector

• Demonstrated experience in developing and implementing people and culture strategies, talent management, and performance management programmes

• Leadership of end to end employee life cycle

• Partnering with business stakeholders across a whole organisation, especially senior stakeholders

• Leading people & culture project rollouts

• Developing a positive performance culture

• Experience with recruitment and HR systems advantageous

Key Responsibilities:

Corporate Partnerships & Relationship Management:

• Build, manage, and steward relationships with corporate supporters, focusing on the healthcare, legal, insurance, and life sciences sectors.
• Develop and implement AvMA’s corporate partnerships offer, including sponsorship packages and bespoke opportunities.
• Identify and research new corporate prospects, working with colleagues to make approaches and secure partnerships.
• Lead the ongoing development of AvMA’s corporate fundraising strategy and toolkit, ensuring they reflect best practice and meet organisational needs.

Workplace Giving & Employee Engagement:

• Support and promote employee fundraising initiatives, matched giving, payroll giving, and workplace events.
• Provide companies and staff teams with engaging fundraising materials, advice, and digital resources.
• Develop case studies and impact content to showcase corporate and employee fundraising.

Digital Fundraising & Content Development:

• Create and maintain engaging digital content for the corporate fundraising section of AvMA’s new website.
• Use online platforms and digital channels to promote corporate giving opportunities and events.
• Work with our communications team to integrate corporate messaging into wider campaigns.

Data & Reporting

• Maintain accurate records of all corporate activity and income using Microsoft Dynamics CRM.
• Monitor, analyse, and report on performance against targets.
• Use data insights to improve supporter journeys and maximise income

General

• Attend in-person meetings and events as required (travel expenses covered).
• Contribute to AvMA’s wider fundraising strategy and cross-team projects.
• Undertake other reasonable duties as required.

Position title: Health and Wellbeing Lead

Reports to: Head of Shed Development and Sustainability

Direct reports: None currently

Location: Remote (with regular travel)

Key stakeholders: UKMSA Volunteers, Sheds and Shedders, Head of Shed Development and Sustainability and team, Head of Volunteering

Salary: Level 3 – £30,000-£35,000

As Health and Wellbeing Lead, the purpose of your role will be to work with volunteers and colleagues to support Sheds and Shed Networks to improve men’s health and wellbeing across the UK. This work is within the context of informal, peer-led, self-determined spaces, where the emphasis is on activity not health prevention, which suits many men and works well for them.

This role involves engaging directly with Sheds and Shed Networks, supporting them to foster partnerships with local health and social care organisations, as well as supporting local health and social care organisations to understand and engage effectively with Men’s Sheds in their area.

You will work with volunteers, colleagues and external experts to gather and share accurate, accessible and relevant resources, information and case studies related to men’s health and wellbeing with Sheds and Shed Networks. This will include developing and engaging with digital health tools, information and training, as well as taking an empowering and capacity building ‘train the trainer’ approach to the design and delivery of all training and workshops related to men’s health and wellbeing.

You will work closely with the Head of Volunteering to support volunteers to promote the role of Men’s Sheds in preventative and community-based health locally and will work with colleagues to support volunteers to actively contribute to promoting the role of Men’s Sheds in preventative and community-based health at a national level. 

You’ll be the main contact for volunteers, Sheds and Shed Networks for all things related to Sheds and men’s health and wellbeing.

Key responsibilities:

1. Sheds and Shed Networks

· Be the main point of contact for all Sheds and Shed Networks for all things related to Sheds and men’s health and wellbeing – ensuring you are approachable, responsive and consistent.

· Empower volunteers and colleagues to support Sheds and Shed Networks to foster partnerships with local health and social care organisations.

· Empower volunteers, colleagues and the wider Shed community to support local health and social care organisations to understand and engage effectively with Men’s Sheds in their area.

2. Information and resources

· Work with volunteers, colleagues and external experts as part of the UKMSA Advisory and Guidance Group to continuously gather, develop and update relevant resources, information and case studies related to men’s health and wellbeing. Regularly share clear and accessible information and resources with Sheds and Shed Networks.

· Work with volunteers, colleagues and external experts as part of the UKMSA Advisory and Guidance Group to build knowledge and understanding of relevant organisations and services related to men’s health and wellbeing. Regularly share clear and accessible information about organisations and services with Sheds and Shed Networks.

· Work with Sheds and volunteers to gather case studies and develop resources highlighting Sheds that demonstrate innovation and best practice in the field of health and wellbeing.

3. Training and workshops

· Work with volunteers, colleagues and external partners to develop an empowering train the trainer model to enable Shed Leaders and Shedders to plan, deliver and evaluate training and workshops related to men’s health and wellbeing.

· Work with volunteers, colleagues and external partners to co-design and deliver training and workshops related to men’s health and wellbeing at UKMSA events.

· Support peer-to-peer learning amongst Sheds and Shed Networks through regional events, online forums, and learning networks.

4. Digital health and wellbeing

· Work with volunteers and colleagues to test and empower Sheds and Shed Networks to use digital platforms for hybrid training, remote participation, or digital inclusion efforts.

• Work with volunteers and colleagues to utilise and adapt data tools (e.g. CRM, health analytics and dashboards) for monitoring health and wellbeing related outcomes and for reporting impact.

5. Monitoring and Reporting

· Work with volunteers, Sheds and Shed Networks to collect and report data in relation to men’s health and wellbeing to demonstrate the role and impact of Men’s Sheds in preventative and community-based health.

· Work with volunteers, colleagues, Sheds and Shed Networks to contribute to relevant evaluation and research projects relating to Sheds and men’s health and wellbeing.

6. Stakeholder Engagement

• Work with volunteers to build relationships with local and regional health, community, and voluntary sector organisations.
• Represent UKMSA at relevant networks, events, and conferences.
• Contribute to the planning and delivery of the annual Shedfest and other key events, coordinating and supporting volunteer involvement in relation to men’s health and wellbeing.
• Work with colleagues, including the CEO, to build effective working partnerships across the UK men’s health sector  

Key expertise required:

• Knowledge, skills and experience in men’s health and wellbeing.
• Some knowledge of how to effectively improve men’s health and wellbeing in the Shedding context, and a willingness and interest in working with volunteers to develop and share expertise in this area.
• An understanding of the importance of taking an empowering train the trainer approach to planning, delivering and evaluating training and workshops related to men’s health and wellbeing.
• Ability to build relationships with local and regional health, community, and voluntary sector organisations, and to support others to do so.
• Skilled at actively collaborating with volunteers and subject matter experts.
• Confident communicator - able to build rapport, deliver training, and manage sensitive conversations.

· Strong relationship builder - able to connect with people, build trust and maintain long term engagement.

· Willing, able and confident to travel to meet volunteers and attend Shed events regularly.

· Confident working with data and systems - including CRM tools and digital tools.

· Proactive and creative - always looking for ways to improve how things are done.

· Self-motivated and able to manage your own workload without needing close supervision.

· An understanding of the nuances and limitations of how Sheds can support health and wellbeing

What success looks like:

• Strong, collaborative relationships established between Sheds, Shed Networks and local health and community partners.
• Demonstrable improvements in the health and wellbeing of Shedders through supported activities and case studies.
• Volunteers, Sheds and Shed Networks feel empowered and equipped to deliver activities that support mental and physical health.
• Health and care organisations view Men’s Sheds as trusted, valuable partners in preventative health and social prescribing pathways.
• Resources, training, and support materials are well-received, practical, and widely adopted in Sheds and across Shed Networks.
• Clear and impactful reporting informs and supports UKMSA’s work at a national level.

This job is not:

• An expert, clinical or therapeutic health role—you will not be expected to deliver personal care, therapy, or counselling.
• Solely office-based or desk-bound—this is a varied, outreach-focused role that involves relationship-building, travel, and hands-on support.
• Focused only on one region—this is a national role, requiring awareness of regional variations across the UK.
• A short-term fixer—you’ll be building capacity and confidence in communities for long-term sustainability, not quick fixes or prescriptive solutions.

This job description is intended to outline the general responsibilities and expectations of the role. It may be reviewed and updated as the organisation evolves, and from time to time you may be asked to take on other reasonable tasks that fall outside this scope - we’re a small team, and flexibility is part of how we work.

Closing date: 9th October 1200 hrs
Interview: 17th October

Shape the future of the voice of the rare condition community.

Genetic Alliance UK is looking for an exceptional Director of Engagement and Impact to transform how we connect with our 220+ member organisations, communicate our mission, and foster a thriving, supportive team culture.

If you’re a strategic leader with a gift for building relationships, crafting compelling messages, and creating positive change, this is your opportunity to make a lasting difference for the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. 

Director of Engagement and Impact
Salary: £55,167 – £63,654 (with new starters usually starting at the lower end of the range)
Location: Home-based, UK (occasional travel required)
Contract: Permanent, full-time (35 hours per week) with applications for up to 28 hours per week considered.
Closing date: 09:00 on Monday 22 Sept 2025 

About Genetic Alliance UK
Genetic Alliance UK is the national charity working to improve the lives of the 3.5 million people in the UK affected by genetic, rare and undiagnosed conditions. We are an alliance of over 220 charities and support groups, bringing together patient voices to campaign for timely diagnosis, better care, and improved access to treatments. We host Rare Disease UK and SWAN UK, and lead national activity for Rare Disease Day.

About the role
This is a new senior leadership position designed to strengthen our membership engagement, amplify our communications impact, and support a positive, collaborative working culture.

As part of our Senior Management Team, you will:

• Lead and develop our approach to engaging and supporting our diverse membership.

• Provide strategic oversight for all communications, ensuring our messages are clear, consistent and impactful across multiple audiences.

• Champion and embed systems for staff performance, development and wellbeing, ensuring our culture is inclusive, supportive, and sustainable.

You will oversee the Head of Membership and Communications, the Communications and Engagement Manager (SWAN UK), and two new posts (Communications Officer and Project Support Officer). You will also provide operational oversight of SWAN UK, and work closely with the Policy, Public Affairs and Research teams to maximise impact.

About you
We are looking for a strategic leader who combines a talent for building relationships with outstanding communication skills. You will bring experience of leading teams, delivering organisational change, and working effectively with diverse stakeholders. You will be comfortable navigating the needs of a membership organisation, and passionate about making a tangible difference for people living with rare conditions.

What we offer

• Generous pension (5% employer, 3% employee)

• 25 days annual leave plus bank holidays and full office closure over Christmas/New Year

• Flexible, home-based working with occasional UK travel. 

• The opportunity to lead work that has a direct and lasting impact for people affected by rare conditions