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About Metabolic Support
Metabolic Support is the UK umbrella patient organisation for people affected by Inherited Metabolic Disorders (IMDs) – rare, lifelong genetic conditions affecting around 40,000 people in the UK and over 1.4 million worldwide. Since 1981, we have been at the forefront of rare disease advocacy, research, newborn screening and community support, empowering people with IMDs to live well.
About the Role
This is a senior, strategic and hands-on role leading our fundraising and communications activity. You will drive sustainable income growth, raise our profile nationally and internationally, and tell our community’s stories with clarity, compassion and impact.
Working closely with the Chief Executive, you will shape and deliver an ambitious fundraising strategy, develop diverse income streams, and build strong relationships with trusts, foundations, corporates, major donors and supporters. You will also lead our communications and brand, ensuring consistent, high-quality messaging across all channels.
As part of a small, agile team, this role suits a confident self-starter with emotional intelligence, strong leadership skills and a passion for making a tangible difference in rare disease.
Key Responsibilities
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Lead and deliver an integrated fundraising and communications strategy
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Grow income across trusts & foundations, corporate partnerships, individual giving, major donors, community and events
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Act as an external ambassador for Metabolic Support
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Oversee communications, marketing, social media and brand development
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Manage donor relationships, stewardship and CRM (Nutshell)
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Provide fundraising forecasts, reports and budgets to the Board
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Ensure compliance with GDPR and fundraising regulations
About You
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Proven experience in fundraising, communications or income generation
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Strong track record in at least one key fundraising area (e.g. trusts, corporates, major donors)
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Excellent written and verbal communication skills
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Confident relationship-builder and storyteller
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Highly organised, proactive and comfortable working autonomously
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Strong alignment with Metabolic Support’s mission and values
Other Information
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UK-based with eligibility to work in the UK
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Willingness to travel and work occasional evenings/weekends
The client requests no contact from agencies or media sales.
Department: Prison delivery
Salary: £29,264 per annum
Hours: 35 hours (5 days a week)
Contract Type: Fixed Term Contract
Do you want to join an organisation committed to addressing low literacy levels amongst people in prison?
Shannon Trust are delighted to be working with His Majesty’s Prison & Probation Service (HMPPS) to provide peer-led learning programmes at HMP Whatton. Working closely with the prison and their staff, people in prison, Shannon Trust volunteers and mentors, this post will lead the delivery and development of our prison-based reading and numeracy programme, maximising opportunities for people in prison to learn to read.
Ideally you will have some experience of prison settings underpinned by the ability to build relationships and personal qualities that include resilience, determination and a problem-solving approach.
This role is a fixed term role until 31st March 2027 with the opportunity to be made permanent subject to contract renewal.
The role will be prison-based. Employee benefits include a company contribution to pension scheme of up to 5%, 30 days holiday plus bank holidays, life insurance, paid volunteering days, discounts via Reward Gateway and an Employee Assistance Programme. The biggest benefit though is our culture – our people really want to work for the organisation.
?We welcome job applications from people with lived experience of the criminal justice system and do not routinely ask for details of any criminal convictions. These roles do require prison security clearance, so we will need to ask for details of any relevant criminal convictions before an offer of employment is finalised.
Please note this role is subject to contract award
We reserve the right to withdraw this role early if it is filled internally
?Closing date is 15th March 2026.
Interviews are planned for 20th March 2026.
REF-226 854