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Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
The team at United Way UK is a passionate, friendly and collaborative group, committed to creating meaningful change in communities across the UK.
We value trust, strong teamwork, flexibility and reliability, and we work closely together to deliver programmes and partnerships that truly make a difference.
We have an exciting opportunity for a Programme Officer to join our small team. The role plays an important part in the planning and coordination of our core programmes and partnerships. The role is varied and would suit someone who is organised and confident in building relationships and working with a wide range of people. You will get to work with and present to corporate partners, charities and schools, travelling across the UK to ensure projects and events are delivered smoothly and professionally.
This role will help bring partners, charities and communities together to create practical, local impact across the UK.
What you will do:
Day-to-Day Responsibilities
What You’ll Need
Why Join Us
Role Responsibilities
Please see the attached job description for full details.
Please submit your CV and a cover letter/supporting statement of no more than two pages which shares relevant experience and why you want to work with us.
• Interview venue: online interviews
• Important note: All applicants must have the Right to Work in the UK.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The Senior Fundraising Manager is responsible for delivering Brightside’s fundraising activity with a core focus on grants from trusts and foundations, and major donors. Reporting to and working closely with the CEO, the postholder will forge new relationships with major donors and manage our grant applications to support Brightside to achieve its fundraising targets. The postholder will deliver high quality stewardship across our major donor relationships and act as the key point of contact for all grant activity, working closely with the delivery teams to support funder relationship management and reporting.
The postholder will work closely with colleagues across the organisation to develop clear cases for support for potential funding projects, as well as managing our approach to individual giving and increasing regular donations. The role will involve working closely with the CEO and the trustees, who will provide warm introductions to their networks of potential major donors and support in their stewardship.
Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.
Responsible for:
Trusts and foundations:
Major donors:
Individual giving
Application instructions
Our mission is to help young people make confident and informed decisions about their future

The client requests no contact from agencies or media sales.
Location: Home based within commuting distance of either Edinburgh, Cardiff or Belfast
Salary: £32,750 per annum
Hours: 35 hours per week
Closing date: Monday 19 May 2026 at midnight
Interview date: week commencing 25 May 2026 over video with possible second stage in person week commencing 1 June 2026
This is a full time fixed-term position for one year (with possible extension subject to funding).
Who we are looking for
Breakthrough T1D is the UK’s leading type 1 diabetes charity, dedicated to funding research, advocating for change, and supporting the T1D community. A year into our exciting rebrand from JDRF to Breakthrough T1D, we’re looking for a Senior Policy and Public Affairs Officer – Devolved Nations to help us build on this momentum.
The role of the Senior Policy and Public Affairs Officer - Devolved Nations is vital to achieving our UK-wide advocacy mission: to reduce health inequalities in type 1 diabetes, to widen access to type 1 diabetes treatments and technologies and to ensure that people with type 1 get access to emerging new treatments and future cures in the devolved nations.
You will lead on projects with key stakeholders and high-level Parliamentarians, such as our access to treatments and early detection work, as well as people with type 1 diabetes, policy makers and researchers. You will help to deliver Breakthrough T1D’s influencing plans, improving access to and choice of type 1 diabetes treatments and technology in the devolved nations.
Experience required
Experience of working successfully with politicians, their offices, Government departments, and other public affairs audiences to influence policy and to influence public/stakeholder discourse
Experience of leading public affairs delivery in one of more of the devolved nations
Experience in analysing Government policy in-depth and creating policy briefings
Experience of drafting briefings, reports and policy submissions
Experience of communicating across a range of parliamentary and professional stakeholders at all levels
Demonstrable knowledge, interest and experience of working in a public affairs and policy-based environment
Experience of organising stakeholder events
About Breakthrough T1D
Breakthrough T1D is the world’s leading charitable research funder into type 1 diabetes, improving lives until we find the cure. We are dedicated to our 400,000 strong type 1 community in the UK and work closely with our international affiliates across the world, including the US, Canada and Australia.
You will find a vibrant atmosphere and spirited team at Breakthrough T1D, always striving to make a difference to people living with type 1.
Employee benefits
As an employer we offer:
Hybrid working arrangements
Flexible working and will consider compressed hours
Generous annual leave entitlement – 25 days per year plus bank holidays for full-time staff with leave increasing after three and five years’ service
Health cash plan that allows you to claim for some treatments such as dental, optical and physiotherapy treatment
Season ticket and cycle loan
Pension scheme
Family-friendly policies – maternity, paternity, adoption and shared parental leave at enhanced rates
Personalised training to suit your career aspirations and professional development
Breakthrough T1D is an equal opportunity employer, we welcome applications from all individuals regardless of race, gender, disability, religious belief, sexual orientation or age.
Improving lives today and tomorrow by accelerating life-changing breakthroughs to treat, prevent, and, ultimately, cure T1D and its complications
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The Senior Partnerships Manager is responsible for developing, securing and stewarding our partnerships, with a particular focus on the corporate and higher education spaces. Reporting to and working closely with the CEO, the postholder will lead on relationship‑driven partnership development and account management, ensuring partners experience a professional, values‑aligned and impactful relationship with Brightside.
The postholder will steward these partnerships from initial engagement through to renewal, working closely with the Partnerships Lead to support renewals and identify opportunities for deeper partner engagement. The role will involve researching potential partnerships, securing meetings through outreach and networking, generating proposals, and delivering high‑quality ongoing stewardship to partners. In addition to corporate and higher education partners, the postholder will also steward relationships across government and the third sector.
Please note - this role will require extensive travel to London for partnership meetings, events and networking. Our ideal candidate would therefore be based in London or within commuting distance.
Please review the job description attachment at the end of the advert for full roles and responsibilities, application instructions, the essential criteria and further information on salary and benefits.
Responsible for
Pipeline development
Partnership management and stewardship
Application instructions
Our mission is to help young people make confident and informed decisions about their future

The client requests no contact from agencies or media sales.
This is a new role leading on engagement in the Transport for the South East area, playing a vital role in building and strengthening local networks, supporting grassroots campaigning, and ensuring that disabled people’s experiences inform both regional and national influencing work. You’ll organise campaigns and forums, represent Transport for All at events, and work with service providers and councils to make transport fairer and more equitable.
We are a small, committed and disabled-led team working to make sure that disabled people’s voices are heard in politics, the media and beyond. This role is central to ensuring lived experience drives systemic change in London’s transport system.
You must be disabled and live in the South East of England to apply for this role
This role has a genuine occupational requirement of lived experience of disability. This explicitly includes those of us who are Deaf, neurodivergent, chronically ill, have a mental health condition, have age-related impairments, and people with both visible and non-visible impairments. If you do not meet the genuine occupational requirement, your application will not be shortlisted for an interview.
Transport Justice for disabled people.
The client requests no contact from agencies or media sales.
Bowel Cancer UK is the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer. We support and fund targeted research, provide expert information and support to patients and their families, educate the public and professionals about the disease and campaign for early diagnosis and access to best treatment and care.
We currently have employees working across four nations in England, Wales, Scotland and Northern Ireland. Thanks to the generosity of our community, we’re in a privileged position to be able to deliver our ambitious new strategy, On a Mission. There are huge challenges facing bowel cancer patients across the UK and our community needs us now more than ever. We’re building a strong and united team to bring us closer to a world where nobody dies of bowel cancer.
Job Summary
As the Senior Public Affairs and Campaigns Officer, and with the support of the Senior Public Affairs and Campaigns Manager you will be responsible for the development, implementation and monitoring of public affairs and campaigns activity in order to achieve real change through influencing policy and legislation on health services which impact the lives of people affected by bowel cancer in England, with a particular focus on Westminster.
Safeguarding
Safeguarding is everyone's responsibility and at Bowel Cancer UK we are committed to safeguarding children, young people and vulnerable adults and we expect all staff and volunteers to share this commitment.
Successful candidates may be subject to either a satisfactory basic, standard or enhanced DBS check from the Disclosure and Barring Service (DBS) dependent upon the role.
We’re the UK’s leading bowel cancer charity. We’re determined to save lives and improve the quality of life of everyone affected by bowel cancer.
The client requests no contact from agencies or media sales.
What does it take to lead the national voice for special schools at a time of real change?
Chief Executive Officer (CEO) – National Association of Special Schools (NASS)
National – home-based, with regular travel across England and Wales, particularly London
£90,000–£110,000 per annum
Full-time, permanent.
About NASS
The National Association of Special Schools (NASS) is the membership association for special schools in England and Wales. We bring together independent special schools, non-maintained special schools, special academies, maintained special schools and multi-academy trusts with specialist provision.
We exist to inform, support and represent our members, helping specialist schools improve outcomes for children and young people with SEND and secure the place of specialist provision within the wider education system. NASS is known for being accessible, responsive and personal, combining national influence with practical support that members value as timely, human and trustworthy.
This is a pivotal moment for the organisation. In February this year, the Department for Education published a major white paper on SEND reform which will require NASS to both influence national policy on behalf of our members and children and young people, as well as support them to navigate the changes. Our new CEO will need to review our strategy while building on our strong platform and momentum to further deepen our influence and strengthen our internal capacity.
As our next Chief Executive, you will:
Why NASS?
Application
For full details of the role including how to apply, please download the full appointment brief. For an informal and confidential conversation about this position, please contact Jenny Hills at Harris Hill via apply button with times to speak and (optional but appreciated) a CV or professional profile which will be treated with the strictest confidence.
Closing date for applications: 9am, Monday 8th June 2026
As leading charity recruitment specialists and a certified B Corp, Harris Hill is committed to high and ever-improving standards of equitable and inclusive recruitment. We actively welcome applications from all sections of the community regardless of age, disability, gender, race, religion, sexuality and other protected characteristics.
About Adolescent Health Study
The Adolescent Health Study (AHS) (Registered Charity Number 1213337) is an ambitious new UKRI-funded initiative to establish a prospective, longitudinal population study that will generate a globally leading open science data platform and research resource. AHS aims to recruit at least 100,000 young people aged eight to 18 years from across the UK and to follow their mental and physical health and wellbeing over at least 10 years. It plans to collect data through questions and measures; to obtain bio-samples for a wide range of genomic and other high-throughput assays; and to capture linked data relevant to health and wellbeing from participants’ health, education and other administrative records.
There will be a strong emphasis on engaging with and involving young people, schools, parents and other relevant stakeholders in the design and delivery of the study, as well as on including young people that represent as wide as possible a range of backgrounds, experiences and characteristics. AHS will focus on enabling a wide range of research, including studies of the critical biological and social developments that occur during the transition from childhood to adulthood and the determinants of both mental and physical health and wellbeing in adolescents and young adults.
Purpose of the post
The Engagement and Involvement Lead will engage with young people, families, schools and other interest-holders in the process of designing, delivering and ensuring the best outputs from the Adolescent Health Study, and is critical for the success of the project. We are at the early stages of laying the foundations for this and in this new role we are seeking an experienced and passionate individual to co-ordinate and lead AHS’s cross-UK participant and public involvement and engagement activities.
This is a role that requires high levels of confidence, autonomy, enthusiasm and skill. The postholder will be responsible for delivering the project’s new Engagement and Involvement Strategy, including: coordinating a Young Persons’ Advisory Group for AHS; developing and delivering AHS public engagement and involvement activities; outsourcing and supervising engagement and involvement activities that are better provided by external partners; scoping and advising on which routes for involvement and engagement activities are best suited to different tasks.
Main responsibilities
Planning & strategy delivery
Practical engagement and involvement
Team support
Wider
Knowledge, skills and experience
Essential criteria
Engagement and involvement
Other essential criteria
Desirable criteria
Dimensions
Application Process
This post is subject to receipt of satisfactory references, an enhanced DBS check and right to work in the UK (visa sponsorship is not available).
Please apply via CharityJob, making sure to answer the screening questions in full.
The closing date for this position is midnight on Sunday 31st May.
Interviews are currently expected to be held Wednesday 1st/Thursday 2nd July.
Equal Opportunities Policy Statement
AHS is an equal opportunities employer, and as such aims to treat all employees, consultants and applicants fairly. AHS is an equal opportunities employer, and as such aims to treat all employees, consultants and applicants fairly. It is our policy to provide employment equality to all, irrespective of age, disability, gender identity or expression, marital or civil partnership status, pregnancy or maternity, race, religion or belief, sex, or sexual orientation.
Beyond these protected characteristics, we acknowledge the importance of socio-economic background, childcare and caring responsibilities, educational background, neurodiversity, and any other factors that shape an individual’s identity and opportunities. We strive to create an environment where all colleagues feel valued, supported, and able to contribute fully.
Values
It is an exciting time for the Adolescent Health Study (AHS) as we establish our senior leadership team and begin to plan the pilot studies. As the senior executive team evolves, the AHS values will be grounded in inclusivity, integrity, accountability, and collaboration.
Please ensure you answer each screening question in full, while staying within the specified word limits.
Please note cover letters will not be accepted for this role.
Transport for All has a strong reputation for leading the debate and advocating for change to improve the journeys made by disabled people. This role presents an opportunity for a strong leader with the commitment, enthusiasm and expertise to build on our success.
Our Chief Executive will be responsible for continuing to delivering the remainder of our 5-year strategy, whilst horizon-scanning to work with the team and wider DPO community to engage in the opportunities and changes ahead. We’re a small team and this is a wide-ranging role which includes:
• Representing the voice of the 16 million+ people in the disabled community by influencing policy and infrastructure decision-makers through our campaigns.
• Overseeing a highly regarded policy and public affairs function with associated communications and stakeholder engagement, maintaining our high profile and reputation with national and local governments.
• Ensuring the charity’s funding is robust and sustainable, looking at how we can diversify our income and direct it towards what matters through continuing to deliver our strategy and planning for our future.
• Overall responsibility for our successful training, research and consultancy business, building partnerships and further growth. This includes the National Accessible Transport Survey.
• Championing our award-winning support services for disabled people.
• Leading our expert teams through a period of growth and consolidation, embedding a strong organisational culture and matching our structure and systems to our upcoming challenges and increasing size.
You will report to and be supported by a well-functioning and committed Board of Trustees who are professionals with experience of working in the charity and transport sectors, as well as finance, legal and government backgrounds.
Transport Justice for disabled people.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Main Role & Responsibilities
The Director of Income Generation will lead the charity’s fundraising and income generation strategy with a particular focus on securing, managing, and growing funding linked to gambling, gaming and wider digital harm prevention, including funding overseen or commissioned via the Office for Health Improvement and Disparities (OHID).
This is a senior leadership role which sits on Ygam’s Senior Leadership Team (SLT) with responsibility for developing a diversified, sustainable income portfolio that enables the charity to deliver high-quality, UK-wide evidence-informed prevention activity aligned with national public health priorities.
The successful candidate will lead and empower a high-performing fundraising team, foster innovation, and build strong relationships with donors, funders, partners, and stakeholders across the UK. You will provide strategic direction and inspirational leadership across all income-generating activities, ensuring long-term financial resilience while upholding the charity’s values, reputation, and commitment to excellent supporter experience.
Working closely with the Chief Executive, Trustee Board, and Senior Leadership Team, you will shape organisational strategy, influence decision-making, and act as an external ambassador for the charity.
Who are we looking for?
We are looking for a strategic, values-driven fundraising leader with a strong track record of delivering income growth across multiple fundraising and business development streams.
You will bring credibility in working with or alongside public bodies such as OHID, or similar national commissioners and/or major funders, and demonstrate a clear grasp of the accountability, evaluation, and assurance requirements associated with levy-funded or statutory funding.
You will be an inspiring people manager, a confident communicator, and a credible senior leader who enjoys building relationships and making things happen at pace
The successful candidate will possess both strategic insight and hands-on experience, be networked across the charitable funding sector, combining commercial thinking with a deep understanding of the UK charity and fundraising landscape.
You will be a confident senior leader who combines strategic vision with operational rigour, has excellent stakeholder management skills. A commitment to evidence, impact, evaluation and collaboration will be central to your approach.
Above all, you will be motivated by our cause and committed to ethical, inclusive, and supporter-centred fundraising and wider income generation.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
The People & Culture Director is responsible for leading the People Team, business partnering with the SLT to provide strategic, operational and change leadership across the charity.
This role will lead all people, culture, and organisational development activities across Ygam, ensuring they are aligned with Ygam’s values, strategy, and statutory responsibilities as a UK charity employer.
Success will be consolidating and building upon our existing structures to deliver a high‑performing, values‑driven, and inclusive culture which enables Ygam to achieve our objectives both now and in the longer-term
As a trusted member of the Senior Leadership Team (SLT), the postholder will act as a coach, adviser, and culture‑builder—championing equity, wellbeing, safeguarding, and effective leadership and line management across the charity, as well as playing a full role in cross-SLT pieces of work.
The role also plays a key part in bringing colleagues together by coordinating internal events, including the planning and delivery of all-staff Together Days.
Our commitment as a People Team is to help the wider staff group on their journey within Ygam. We aim to provide an environment which brings out the best in our team, so that they can provide the best possible service to the people we support.
Who are we looking for?
This post sits on the Senior Leadership Team (SLT). We are looking for a senior. experienced, credible, and values‑driven people director, who combines strategic insight with a deeply human approach.
You will be someone who believes that culture is created through everyday behaviours, relationships, and decisions, and who is comfortable working with complexity, ambiguity, and change.
You will bring significant leadership experience at this level across the full HR and People brief. as well as strong professional judgement alongside empathy, curiosity, and humility. You will be a confident self-starter able to challenge constructively while building trust at all levels of the organisation.
Above all, you will share our commitment to high-performing culture that is driven by our mission and values and be motivated by the opportunity to help create a workplace where people and volunteers feel safe, supported, included, and able to do their best work.
The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Release Counselling and Therapy for Women is entering an exciting new chapter.
Founded in Brighton and Hove in 2013, Release has grown from a small local charity into a financially robust organisation with a growing national reach. Under the leadership of our outgoing CEO, the charity has been transformed—moving from a challenging financial position to one with strong reserves, clear sustainability, and ambitious plans for growth.
We now provide affordable 1:1 online counselling to women across the UK, alongside specialist group programmes supporting maternal mental health and key life transitions. One-to-one counselling is a core offer and a vital income stream, enabling us to extend our reach while staying true to our values.
This period has also seen Release grow to working with over 20 dedicated volunteer counsellors, strengthening our capacity and community impact.
As our CEO steps down, Release is ready for its next phase—building on strong foundations, amplifying our national impact, and remaining firmly rooted in our purpose: being a charity that supports women’s mental health, run by women, for women.
The client requests no contact from agencies or media sales.
Policy and Public Affairs Manager (England)
Reporting to: Head of Policy and Public Affairs
Line Management: 1 Policy and Public Affairs Officer England
Location of work: Remote but role holder will ideally be London-based to be able to frequently commute for meetings/ events at Westminster. The role may involve also some infrequent travel across the UK.
Contract type: Full-time, 35 hours per week, although flexible/ compressed hours will be considered. The role will require occasional evening and weekend work.
Contract Length: Permanent
Salary: £42,000
BACKGROUND
Magic Breakfast is the UK’s leading school breakfast charity and makes a difference to over 350,000 children and young people every day by offering breakfasts and expert advice to tackle child morning hunger in schools across England and Scotland.
This is an exciting time for Magic Breakfast as the benefits of school breakfast provision are increasingly recognised by policymakers, educators and the public. The Policy and Public Affairs (PPA) Team is central to this work. And through our new organisational strategy, Nourishing Futures, the work of the PPA Team is growing to meet our advocacy ambition to expand school breakfast provision and deliver our vision which would see every child in the UK nourished, empowered and thriving.
JOB PURPOSE
The role of the Policy and Public Affairs Manager is a high-impact role, central to designing and delivering Magic Breakfast’s national policy and public affairs strategy in England. The role holder will lead the development of evidence-based policy positions and work collaboratively to drive forward strategic, integrated and impactful advocacy campaigns to successfully influence decision-makers, policy change, and funding frameworks aligned with our key objectives. Specifically, you will also lead the design and implementation of our new workstream to expand school breakfast provision to secondary schools and early years settings, alongside our work to ensure the effective implementation of the Free Breakfast Club Programme.
More broadly, you will keep abreast of political developments relevant to Magic Breakfast - proactively identifying opportunities to respond, influence and shape the debate across the school food system and provide strategic, analytical and timely advice to the Senior Leadership Team.
Using your excellent communication skills, you will be able to translate complex policy into tailored and effective communications, policy briefings, positions and submissions, and will play a lead role in confidently engaging external stakeholders including UK Government Ministers, Parliamentarians, special advisers, officials and sector partners.
We are looking for someone who enjoys collaboration, who shares our passion for driving systematic change, and who can use their experience to navigate, respond to, and influence the fast-moving political environment to deliver lasting and meaningful change. You’ll be part of a collaborative and ambitious organisation, working at the intersection of policy, practice and impact – putting children and young people at the heart of everything we do and helping to ensure every child starts their day nourished, empowered and ready to thrive.
KEY RESPONSOBILITIES
Build and maintain strong relationships with UK Government Ministers, Parliamentarians, Special Advisers, officials and sector organisations, including conducting stakeholder mapping and power analysis to identify key routes to influence.
Design, lead and implement integrated advocacy campaigns to deliver maximum impact in collaboration with cross-organisational teams.
Work closely with colleagues to share expertise and intelligence, inform and shape research areas, support campaign activities aligned with advocacy objectives, and respond proactively to live developments across the organisation.
Line manage and support the development of the Public Affairs Officer.
Strong ability to translate complex policy into clear, persuasive communications tailored to specific audiences to deliver maximum impact.
Please read the full job description attached below.
WHAT WE OFFER
At Magic Breakfast we value our employees and work hard to develop offer a supportive, respectful culture which enables everyone to thrive.
Please see our job pack below
Please see our website
APPLICATION PROCCESS
Should you wish to discuss the role before applying please email our People and Culture Team, HR @ magicbreakfast .com
Shortlisting: w/c 25th and 26th May
Interview 1: w/c 1st and 2nd June
Interview 2: w/c 8th and 11th June
We reserve the right to close the vacancy early if a high volume of applications are received. This is to ensure that we can manage application levels whilst maintaining a positive candidate experience. Unfortunately, once a vacancy has closed, we are unable to consider further applications.
The client requests no contact from agencies or media sales.
We are looking for a highly motivated and organised individual with the ability to manage teams, build strategic relationships with employers to grow the Living Wage network, and develop projects that will grow our accreditations schemes and proactively influence change across a broad range of stakeholders in public life.
Direct a team and line manage multiple staff and freelancers, supporting them to deliver projects and contribute to the LWF business plan.
Monitor and evaluate the impact of our work to refine our strategy, deliver projects effectively and demonstrate the value of the real Living Wage.
Clearly communicate the evidence for positive change to grow the Living Wage movement. Encourage employers and key stakeholders to become champions of the Living Wage movement.
Oversee accreditation processes, identify and implement improvements to make our work more efficient.
Build and manage relationships with key stakeholders, policy makers and employers to support them to pay the real Living Wage and seek accreditation.
Create, develop and employ the tools and knowledge available to inform and advise employers on implementing the Living Wage throughout their organisation.
Remote role with travel across the UK particularly to Birmingham.
The client requests no contact from agencies or media sales.
Prospectus is proud to be partnering with our client, a small, specialist health charity dedicated to improving the lives of everyone affected by Dravet Syndrome.
Dravet Syndrome is a rare, life-long and life-limiting form of epilepsy that affects approximately one in every 15,000 people in the UK (around 2-4,000 people in total). It is a complex epilepsy syndrome so as well as severe, difficult-to-control seizures, people with Dravet Syndrome live with intellectual disability and a spectrum of associated difficulties including with speech and language, mobility, behaviours, eating and sleep. It is also common to have a co-diagnosis of autism and/or ADHD.
Founded in 2008 by a group of parents seeking support and information, DSUK has grown significantly over the past 17 years. Today, DSUK supports nearly 600 registered families across the UK and reaches over 2000 people in total, including parents and carers, siblings and bereaved families. As an organisation they deliver a range of impactful services aimed at improving the lives of beneficiaries through family support, professional education and medical research.
At a time of continued growth for the charity, and as medical advancements in the field continue (including clinical trials for the first gene therapies in rare epilepsy), DSUK are now looking to recruit a strategic, collaborative new CEO to help shape the next stage of their journey.
As the organisation’s new CEO, you will provide inspiring, values-driven leadership across the organisation, holding overall responsibility for the day-to-day operations and long-term growth. You will work closely with the Board of Trustees to develop and deliver the organisation’s next five-year strategy, steering organisational priorities, strengthening culture and ensuring the charity continues to grow, both in terms of scale and in impact. You will lead a small, dedicated, cross-functional team across family support, fundraising, communications and research, driving collaboration across all teams. You will also lead on impact and quality, embedding a culture of learning and continuous improvement. A key part of your role will involve developing and building strong relationships with a range of stakeholders, including families, professionals, researchers, pharmaceutical companies as well as other charities and funders. You will also represent DSUK at relevant conferences and sector events, both in the UK and occasionally internationally.
This is an exciting opportunity to shape the strategic direction of a small, specialist, growing organisation providing life-changing services. To apply for this role, you will be a confident, collaborative leader with significant senior leadership experience in the charity or not for profit sector (experience of working in a rare disease, health, disability or patient advocacy charity is desirable). You will have demonstrable experience of scaling an organisation, and navigating the complexity that growth brings. You will be a skilled communicator, confident at building relationships across health, care or community sectors. You will be resilient, adaptable and comfortable with the breadth and pace of working as a senior leader within a small charity.
If you are interested in applying for this exciting position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call to fully brief you on the role.
At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome all candidates to apply, regardless of age, sex/gender, disability, race, religion, sexual orientation, marital status or pregnancy/maternity. If you have any disability and require reasonable adjustment/s to any part of the process then please contact Victoria Savva at Prospectus.
Please note, this will be home-based with regular travel across the UK (and occasional international travel). Working hours are Monday to Friday, 09:00–17:30 (however some flexibility for evenings and weekends is required).
Recruitment Timetable:
Deadline for initial CV interest – Wednesday 20th May
Deadline for applications – Tuesday 26th May
First stage interviews - Monday 8th, Tuesday 9th or Thursday 11th June
Final stage interviews – Friday 26th June