142 Senior statutory officer jobs

Inspiring people and communities to age and live well in later life

Age UK Cornwall & The Isles of Scilly is seeking an exceptional Chief Executive to lead one of Cornwall’s most respected charities into its next chapter.

For more than 50 years, we have worked alongside older people across Cornwall and the Isles of Scilly, helping people to remain independent, connected and able to enjoy later life with dignity, purpose and confidence.

Today, we support more than 150,000 people each year through services spanning information and advice, transport, hospital and home support, community wellbeing, social connection and initiatives delivered in partnership with health, care and voluntary sector organisations.

Following the planned retirement of our Chief Executive in March 2027, we are looking for an inspiring, collaborative and values-led leader to build on strong foundations and help shape our future.

The opportunity

Our next Chief Executive will inherit a financially stable organisation with an excellent reputation, committed colleagues and volunteers, strong governance and significant reach across Cornwall and the Isles of Scilly.

But this is also a role with considerable opportunity ahead.

Cornwall has an ageing population and the environment in which health, care and voluntary organisations operate continues to change. We want Age UK Cornwall & The Isles of Scilly to be at the forefront of that change - not simply responding to need, but helping to shape how people experience later life across our communities.

You will work with our Board, colleagues, volunteers and partners to develop our strategy, strengthen and diversify our income, continue to evolve our services and increase our influence across the wider health and care system.

You will also build strong relationships across the Age UK network, ensuring that Cornwall and the Isles of Scilly contributes to and benefits from national learning, policy, collaboration and opportunities.

The leader we are seeking

We are looking for a leader who combines strategic vision with the credibility to guide a complex, service‑delivery organisation.

You will empower people to thrive, build leadership capacity and unite colleagues, volunteers and partners behind a shared purpose. You will be comfortable operating beyond organisational boundaries and developing influential relationships across health and social care, local government, commissioners, funders, businesses, communities and the wider voluntary sector.

Commercial awareness and financial acumen will be essential. You will understand what it takes to lead a sustainable organisation, diversify income and demonstrate the impact and value of our work.

Above all, you will share our belief that later life should be a time of opportunity, and that older people should have independence, choice and a meaningful voice in the decisions that affect them.

This is more than an opportunity to lead a successful charity. It is an opportunity to influence how Cornwall and the Isles of Scilly supports its ageing population and to lead an organisation with the reach, relationships and ambition to make a lasting difference.

Rays of Sunshine, recognised in The Sunday Times Best Places to Work 2026, is looking for an experienced and proactive Executive Assistant to the CEO to join our small, ambitious and collaborative team.

This is a varied part-time role at the heart of the organisation, working closely with the CEO to provide high-quality executive support and help coordinate governance, projects, organisational priorities and key operational activity.

You will be joining Rays of Sunshine at an exciting point in our development, with a clear focus on strengthening how we work, delivering our ambitions well and continuing to grow our impact for seriously ill children and their families.

This is much more than a traditional diary-management role. You will work closely with the CEO across a broad range of priorities, helping to create structure, maintain momentum and ensure important actions are followed through. The role will involve coordinating meetings, briefings and actions; supporting Committee and governance processes; helping to keep key organisational projects on track; and providing practical support across operational activity.

You will also play an important role in the wider rhythm of the organisation, helping to coordinate team meetings, collaborative sessions, away days, staff engagement activity and actions arising from staff feedback.

We are looking for someone who is highly organised, calm under pressure and confident working independently. You will need excellent judgement and absolute discretion, with the ability to handle sensitive and confidential information appropriately. You will be someone who can anticipate what is needed, take ownership of tasks through to completion and build strong relationships with colleagues, Trustees, advisers, partners and suppliers.

Our team is small, values-led and ambitious. We value collaboration, kindness, accountability and a willingness to get stuck in. Because of our size, everyone has a visible impact, and this role will suit someone who enjoys being at the centre of an organisation, understands how to keep things moving and takes pride in doing the small things exceptionally well.

Experience in governance or the charity sector would be helpful but is not essential. We are more interested in finding someone with strong EA or senior coordination experience, excellent judgement and the ability to bring structure and pace to a busy environment.

At Rays of Sunshine, we brighten the lives of seriously ill children and their families through magical wishes, hospital services and our wider Wish Community. This is an opportunity to use your skills in a role where the quality of your work will directly support the effectiveness and impact of the charity.

Applications will be reviewed as they are received, with interviews held on a rolling basis on or before 8 October 2026. An immediate start is desirable, so early applications are encouraged.

Contract: 12-month FTC with potential for a permanent contract

Sebastian’s Action Trust (SAT) supports children with life-limiting conditions and their families. We help those families navigate the emotional and practical difficulties that come with caring for a child with complex needs and provide a place where they can connect, relax and make precious memories together. 

With the planned retirement of the current CEO, we are looking for an experienced charity leader with a background in fundraising, to take the organisation forward into the next phase of its strategic development. This could be an opportunity for a senior fundraising professional to take the next step into a CEO role. 

This role combines overall leadership of the charity with responsibility for income diversification and growth, with a focus on fundraising to drive stability and sustainability. The successful candidate will oversee the delivery of high-quality services, events and support provision, ensuring that the highest standards of health, safety and safeguarding are maintained. They will also nurture relationships with partner organisations and other local charities to explore opportunities for collaboration and efficiency. 

This role will lead a small but committed team of staff and volunteers who are passionate about the work we do, so you will be comfortable combining strategic thinking with pragmatism and creativity. 

The successful candidate will have experience of charity governance and financial management, and be confident working with a committed board and with partners and stakeholders to maximise impact for service users. They will also need to demonstrate hands-on experience of fundraising, with a track record of securing significant income from trusts, corporates and major donors.

This is a challenging but rewarding opportunity to make a real and lasting difference to families facing unimaginable difficulties. If this sounds like your next step, send your CV and covering letter or email to arrange an informal chat. 

The Executive Director will provide strategic, operational and financial leadership for East London Dance, working in close partnership with the Creative Director & CEO to deliver the organisation’s vision and business plan, strengthening its position as an Arts Council England National Portfolio Organisation. The role leads people, culture, finance, governance, risk, operations, fundraising and stakeholder engagement, ensuring the organisation remains financially sustainable, well-governed and equipped to deliver high-quality artistic and community programmes.

As a senior ambassador, the Executive Director builds strong relationships with funders, partners, trustees and stakeholders, while fostering an inclusive, collaborative and values-led culture. The role creates the conditions for a thriving team, turning creative ambition into organisational reality and supporting East London Dance’s long-term success.

We’re looking for someone who can help turn our ambition into a sustainable, thriving future – building the relationships and the funding that will carry us forward, and doing it alongside a team that already cares deeply about the organisation.

If you’re someone who loves building things, who knows how to bring people and money together, and who wants to help shape what east London’s cultural life looks like for years to come – we’d love to hear from you.

Job requirements:

Must bring substantial senior leadership experience, ideally Director, Deputy CEO or equivalent level, with evidence of strategic planning, organisational growth and performance management. Must have a proven track record in fundraising, business development and income generation, including securing funding, managing funder relationships and identifying new commercial or partnership opportunities; experience leading high-performing teams, managing change and strengthening organisational culture; strong financial acumen, including understanding budgets, balance sheets and financial decision-making; knowledge of charity governance, safeguarding, health and safety, data protection and risk management frameworks; experience working with Boards of Trustees. Must demonstrate commitment to diversity, equity and inclusion, possess excellent written and verbal communication skills, be confident using Microsoft Suite, and have knowledge of ACE funding and reporting requirements.

Job Responsibilities:

Provides strategic, operational and financial leadership with Creative Director & CEO. The role translates the Business Plan into action, leads staff, freelancers and consultants, and develops an inclusive, high-performing culture. Key responsibilities include workforce planning, recruitment, HR compliance, performance management and staff wellbeing. The role oversees organisational systems, administration, IT and the operation of Talent House, including health and safety, compliance, venue hire and stakeholder relationships. They co-lead budgeting, forecasting, financial reporting, cash flow monitoring and audit processes, while driving fundraising and income generation across grants, trusts, partnerships, sponsorship and earned income. The role also leads governance, risk management and business continuity planning, supports the Board of Trustees, develops strategic partnerships, represents the organisation externally and strengthens its profile, impact and long-term sustainability.

Apply via the East London Dance Website by Thursday 8 October, 12 Noon

At Ambitious College, we're looking for a SEND Officer to join our team.

You'll co-ordinate the statutory transition and annual review process at Ambitious College. This includes having responsibility for all planning, facilitation, tracking, quality assurance, follow up, and reporting related to annual and transition reviews. This is circa 80 learners with potential for future growth.

You will be responsible for learners across one of our college campuses and supported internships across the same geographical area. We currently have settings in Southwest London / Outer London and Northeast London / Outer London.

As part of this role, to be the single point of contact for annual and transition reviews for your allocated settings and areas as such work closely with a variety of key stakeholders such as college staff, parents, learners, visitors, and local authorities. You will be one of two SEND officers within Ambitious College

We are looking for someone who has:

• Experience of working within a similar SEN organisation / school / college/ charity environment.
• Good knowledge of EHCPs and the SEND code of practice.
• Formal administrative / reception qualifications or strong experience.
• Previous experience of working within face paced, challenging environment.
• Experience of providing high-quality administration support.

In return we offer great benefits including a generous holiday allowance, commitment to continued professional development (CPD) and more!

This is a fantastic opportunity for an ambitious individual who would like to work for a forward-thinking, open and honest organisation and make a real impact to the young people we work with. Please find our full recruitment pack on the link below.

If you have any questions about the role or would like to have a confidential chat, please contact James Axford, Recruitment Officer.

Ambitious about Autism is committed to fostering equity, diversity, and inclusion at every level of our organisation. We warmly welcome applications from all qualified candidates, valuing the diverse backgrounds, experiences, and perspectives they bring. We encourage applications from individuals regardless of race, colour, nationality, ethnic or national origins, religion or belief, sex, sexual orientation, gender identity or expression, marital or civil partnership status, pregnancy or parental status, disability, or age.

Our recruitment process promotes equal opportunities, and we are committed to providing reasonable adjustments for candidates with disabilities or additional needs throughout the recruitment process. Please contact our Recruitment Team for accommodations. We recognise disability as a physical or mental impairment that significantly and long-term affects a person's ability to perform day-to-day activities, as defined by the UK Equality Act 2010. All applications will be considered solely on merit, aligned with our mission to support autistic children and young people.

Ambitious about Autism is committed to safeguarding and promoting the welfare of children and young people and successful candidates will be subject to an Enhanced DBS check. As part of our Safer Recruitment checks, an online search maybe carried out in line with Keeping Children Safe in Education.

The Safeguarding responsibilities of the post as per the job description and personal specification.
Whether the post is exempt from the rehabilitation of Offenders Act 1974 and the amendment to the Exceptions Order 1975, 2013 and 2021. This means that when applying for certain jobs and activities certain spent convictions and cautions are ‘protected', so they do not need to be disclosed to employers, and if they are disclosed, employers cannot take them into account. Further information about filtering offences can be found in the DBS Filter Guidance.

Gendered Intelligence is seeking an exceptional leader to serve as its next Chief Executive. This is a rare opportunity to lead a nationally respected, trans-led organisation with real influence on policy, professional practice and the lives of trans, non-binary and gender exploring people across the UK.

The next Chief Executive will inherit strong foundations: an experienced and committed team of just under 40 people, a distinctive and trusted public profile, and a range of services that reach communities, professionals and institutions across the country. With income of around £1.5–2m, the next Chief Executive will lead the organisation through its next phase of development at a time when that leadership matters enormously.

The role offers the chance to shape strategic direction, open new partnerships and income streams, and contribute to national conversations on trans equality and human rights, while working alongside people who are deeply committed to the mission and to each other.

We are looking for someone who combines strategic clarity with operational grounding, who leads with calm and consistency, and who understands both the privilege and the responsibility of this role. We will be honest with candidates about what the role involves, and we expect the same in return.

Full details of the role can be found on our website and in the attached recruitment pack. 

We are looking for a senior partnerships officer who will ensure our vital work to address the
environmental crisis is well funded, working to secure new partnerships and stewarding existing
funder relationships.

This multifaceted role works across teams to coordinate and deliver Green Alliance’s fundraising
activities and grant management. Collaborating with the organisation’s policy and political
experts, you support the creation of creative and impactful new project proposals that address
environmental problems and support the organisation’s strategy. You will identify funders for this
through prospecting and relationship building and will guide proposals through processes to
secure funds. You will monitor the organisation’s progress against fundraising targets and lead on
management of our funding pipeline.

Stewardship of existing funding relationships is a significant part of this role which means
ensuring we have excellent communication with our funders, making sure they receive high
quality reports on Green Alliance’s impact and supporting the team to see our funders as partners.
You will manage our Business Circle and maintain relationships with its members and support
efforts to recruit new business members into Green Alliance Task Forces.

Excellent communication skills are at the heart of this role, both written and verbal. You will be
confident, efficient, and resourceful; calm under pressure and enjoy building strong relationships
with a variety of senior stakeholders, as well as working independently. Strong skills in relation to
organisation, administration and prioritisation are essential.

You will need to understand, or be willing to learn about, the political and environmental policy
contexts we work in.

Please note that we reserve the right to close this vacancy early and interview suitable candidates as applications are received. You are encouraged to apply as soon as possible.

Stella Maris UK is looking for an experienced and confident Senior HR Manager to drive and deliver our people-focused HR strategy that supports employee wellbeing and organisational growth.

About the Role

Reporting to the Director of Resources, this is a senior leadership role with responsibility for promoting the vision, mission and values of the organisation. 

You’ll oversee all aspects of human resources, including recruitment, employee relations, performance management, learning and development, and policy implementation, and will provide leadership and support to the HR team. 

You’ll also work collaboratively across the organisation to foster a positive, inclusive and high-performing workplace culture. 

About You

We’re looking for a confident leader with experience in human resources leadership, employee relations, organisational development, workforce planning, and people management, as well as experience in leading teams and building strong relationships with a wide range of internal and external stakeholders.

You’ll;

• Have CIPD or equivalent professional HR qualification.

• Be educated to degree level or equivalent experience.

• Have experience managing HR functions within a charity, not-for-profit, public sector, or mission-driven organisation.

• Have experience of advising senior leaders on people matters.

• Have strong knowledge of UK employment law and HR best practice.

• Have strategic thinking and organisational development capability.

• Have strong communication, coaching, and influencing abilities

Senior Exercise and Wellbeing Officer

21 hours (3 days per week) Fixed-term contract to 31 March 2027, (potential to become permanent subject to funding) / Salary £18,211 Per annum (£30,352 Full Time equivalent)

A rewarding and varied role where you will make a real difference to the health, wellbeing and independence of older people.

Age UK Croydon is looking for an enthusiastic and motivated Senior Exercise and Wellbeing Officer to help guide our Healthy Lifestyles Service. Our Healthy Lifestyles Service delivers a range of activities including seated and standing exercise programmes, health checks, social engagement opportunities, health hubs and Memory Tree Cafés for people living with dementia and their carers. Services are delivered across community venues and care homes throughout Croydon.

About the Role

As our Senior Exercise and Wellbeing Officer, you will play a pivotal role in improving the health, wellbeing and independence of older people across the community. Working closely with the Healthy Lifestyles Service Manager, you will help shape and deliver a range of meaningful activities while providing day-to-day support and guidance to staff and volunteers.

Key responsibilities include (but are not limited to):

• Leading, supporting and motivating two Exercise and Wellbeing Officer and a dedicated team of volunteers.

• Delivering engaging seated and standing exercise sessions that help participants improve their mobility, strength, balance and confidence.

• Building and nurturing strong relationships with care homes, community venues, health professionals and partner organisations to maximise our reach and impact.

• Supporting the planning, development and continuous improvement of health and wellbeing programmes that make a real difference to people's lives.

This is a varied and rewarding role, offering the opportunity to combine leadership, partnership working and direct service delivery while helping older people stay active, connected and independent.

About You

We are looking for someone who is energetic, approachable and committed to supporting older people to live healthier, more connected lives. 

You will have:

• Level 2 Fitness Instructor qualification, Exercise Referral qualification, Otago Exercise Programme, REACT qualification, or another relevant physical activity, fitness, falls prevention or rehabilitation qualification.

• Experience of monitoring projects and reporting on outcomes and performance.

• Knowledge of the health and social care sector

• Strong communication, organisational and administrative skills

• Good IT skills, including Microsoft Office and database systems.

• Experience or qualifications in health promotion, nutrition, health checks, chair-based exercise or group exercise delivery.

• Experience of risk assessment and health and safety management. 

Closing date for applications: 28th September 2026

Interview Dates: TBC

 This post is subject to a Disclosure and Barring Service check

Policy has the power to change lives – do you have the engine to drive meaningful change forward?

Bring your policy expertise, political insight and energy to help MCR Pathways transform opportunities for young people across the UK.

We’re looking for a highly driven Senior UK Policy & Public Affairs Officer to help advance our mission to bridge the education, skills and opportunity gap through the transformative power of mentoring. You’ll monitor the political landscape, turn evidence and impact into compelling policy arguments, build influential relationships and identify opportunities to put mentoring at the heart of national and regional agendas.

From Westminster and Holyrood to local and combined authorities, you’ll help build the case for change, champion the Trusted Adult Guarantee and support MCR Pathways’ continued expansion across the UK.

The Role Experience

This is a hands-on policy and public affairs role that goes well beyond monitoring what’s happening in government. You’ll be immersed in the UK political and policy landscape, identifying opportunities to influence, developing policy briefings and submissions, mapping stakeholders and cultivating relationships with policymakers, parliamentarians, civil servants and strategic partners.

You’ll also be the operational engine behind senior leadership engagement. You’ll identify and progress opportunities, coordinate preparation, develop briefings, arrange meetings and drive follow-up – enabling our CEO, Development Director and other senior leaders to lead high-level engagement and representation with key policymakers and stakeholders.

Turn insight and lived experience into influence. Help make the power of mentoring a national priority.

What You’ll Bring:

• Policy & Public Affairs: Proven experience in policy, public affairs or parliamentary work, with a strong understanding of UK political systems and policy-making.

• Influencing & Relationships: The ability to map political landscapes, build strategic relationships and identify opportunities to influence policymakers and decision-makers.

• Evidence & Advocacy: Exceptional written and analytical skills, with the ability to turn complex evidence, impact data and operational experience into compelling policy arguments.

• Strategic & Operational Drive: A proactive approach, able to spot opportunities, coordinate activity and ensure high-quality preparation and follow-through for senior engagement.

• Collaboration & Purpose: A highly collaborative approach and genuine commitment to improving outcomes and opportunities for young people facing barriers to reaching their potential.

Safeguarding

MCR Pathways is committed to safeguarding and promoting the welfare of young people, and we expect you to share this commitment. This post is subject to appropriate vetting, including a criminal record check and PVG / DBS Scheme membership.

About MCR Pathways

MCR Pathways is an award-winning mentoring programme delivered in schools, further education settings and communities. We connect young people with trusted adult volunteer mentors, providing consistent guidance to help build confidence, self-belief and ambition. Through this support, young people can overcome barriers and progress towards positive destinations such as further education, apprenticeships and employment.

Love meeting donors, building relationships and securing meaningful funding for a compelling cause? 

At Target Ovarian Cancer, we're looking for a talented relationship fundraiser who thrives on connecting passionate supporters with causes that change lives. 

This is an exciting opportunity for an experienced major donor fundraiser who enjoys being out meeting people, uncovering opportunities, securing significant gifts and developing long-term partnerships that make a real difference. 

You'll inherit and grow a portfolio of high-value supporters, develop new donor relationships, and work with philanthropists and trusts and foundations who want to help stop ovarian cancer devastating lives. 

If you're energised by donor meetings, comfortable leading funding conversations, and motivated by turning warm relationships into transformational gifts, we'd love to hear from you.

About the role 

As our Senior Philanthropy & Partnerships Manager, you'll play a pivotal role in growing income from major donors, trusts and foundations, and strategic funding partners. 

Working closely with the Head of Philanthropy & Partnerships, Director of Fundraising & Engagement, Chief Executive and Trustees, you'll identify and cultivate new opportunities, develop compelling funding propositions and deliver outstanding stewardship that inspires long-term support. 

A significant proportion of this role is externally focused. You'll spend time meeting donors and prospects, building relationships, understanding motivations, presenting opportunities and making asks. 

To be successful, you'll be supported by a dedicated Philanthropy & Partnerships Programme Manager who leads on donor events, reporting, stewardship support and CRM optimisation, allowing you to focus on building relationships and generating income. 

Why join us? 

For the right candidate, this could be a career defining role at an organisation that has the credibility, leadership and propositions to deliver transformational funding growth. Working in a supportive but driven department, with two experienced high value fundraisers within the senior leadership team and a supportive board, this is a real opportunity to make your mark.

Prospectus is delighted to be supporting our client in the search for a Senior Trusts and Foundations Officer.

The organisation is a national charity tackling financial insecurity and its structural causes. They support people facing financial hardship to access the resources and opportunities they need to thrive, while working to challenge stigma and change the systems that drive financial insecurity.

This is a full-time, permanent role paying a salary of £44,000 per annum. The postholder will be working in a hybrid model from their offices in London.

The Senior Trusts and Foundations Officer will manage a number of mid-sized relationships, some of which are multi-year, so a strong demonstration of relationship management will be important. At the same time, as with all segments of the portfolio, there is substantial potential to grow this area, and the charity are keen to find someone who enjoys building new relationships as part of their role.

The charity are looking for someone with some trusts and foundations and/or statutory funding experience. You will need to be able to pick up a small number of warm relationships quickly and work with agility while the team solidifies.

At Prospectus we invest in your journey as a candidate and are committed to supporting you with your application. We welcome candidates from a diverse range of backgrounds. Please let us know if we can help you with the application process in any way. We are more than happy to make any reasonable adjustments to enable all interested candidates to apply. If you have any disability and would like assistance with completing an application please contact Ariha Semontee at Prospectus.

If you are interested in applying to this position, please submit your CV in the first instance. Should your experience be suitable, we will send you the full job description and will arrange for a call and/or meeting to brief you on the role. You’ll then have all the information you need to formally apply. We are looking forward to connecting with you soon.
 

We are the UK branch of the Commonwealth Parliamentary Association (known as CPA UK). We are based in the Houses of Parliament and represent the UK Parliament in the Commonwealth. We bring together parliamentarians to share good practice. We strengthen parliamentary democracy.

Peer to peer learning is central to how CPA UK works. We organise meetings and visits in the UK and overseas. Our aim is for UK and Commonwealth parliamentarians and officials to share knowledge and learn from each other. Our members talk about a huge variety of topics. Our key themes are eliminating violence against women and girls, tackling climate change, trade in the Commonwealth and digital transformation.

The Finance Manager is responsible for the overall management and delivery of the finance function for CPA UK. You will be responsible for financial modelling and analysis, management of finance data and preparation of the accounts in readiness for the annual external audit. You will ensure that internal finance policies are fit for purpose and that internal financial controls are applied. This includes providing guidance and support to colleagues regarding business decisions.

The Finance Manager will operate as a proactive Finance Business Partner, working closely with managers and senior leaders to provide financial insight, constructive challenge and support overcoming difficulties and answering questions. The postholder will help inform decision-making, problem-solve, improve organisational performance and ensure resources are used effectively to achieve the organisation's objectives.

The role provides a compliance function in filing accounts and recording our Executive Committee’s membership correctly with Companies House and The Charity Commission.

The finance team consists of the Finance Manager and a Finance Officer. The Finance Manager reports to the Deputy Chief Executive who is Head of the Business Strategy Team in which the role sits. CPA UK’s annual turnover is around £3M.

An exciting opportunity!

This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.

As our next Chief Executive, you will

• Define and deliver the MPS Society’s strategic vision.
• Provide confident oversight of governance, finance, compliance and reporting.
• Effectively manage the operational alignment between the MPS Society and RDRP.
• Always keep the members and family voice at the heart of strategy, service design and decision-making.
• Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
• Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
• Collaborate with other rare disease bodies, patient organisations and other key audiences.
• Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
• Encourage an open, supportive work environment allowing creativity and building staff confidence.
• Help shape the future of the MPS Society.

About you

•  Self-motivated, with the drive to lead the organisation through a period of change and transition.
• Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
• Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
• Strong self-awareness, with insight into their own leadership style and impact on others.
• Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
• A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
• Genuine passion for the Society's mission, with a family and member-first ethos.
• Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
• A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
• Confidence speaking publicly on behalf of the organisation and the people it represents.

Why join us?

A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.

• Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
• A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
• Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
• A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
• A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
• Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.

Benefits

Join us and you will be working for a caring charity offering:

• A competitive salary
• Generous annual leave
• Extra leave between Christmas and the New Year
• Contributory pension
• Life assurance (subject to the conditions of the scheme)
• Employee assistance programme offering support 24/7

Further information

The successful candidate must be eligible to work in the UK.

The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.

Salary to be agreed depending on experience and will be pro-rata for part time hours.

This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.

This senior role requires flexibility in working hours and location.  It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.

This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.

For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart.  Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.