185 Stakeholder engagement and events officer jobs

We’re the UK’s specialist blood cancer charity and our vision is clear: we’re here to beat blood cancer. We fund world-class research, provide information and support to patients and their loved ones, and raise awareness of blood cancer.

We’re looking for an enthusiastic and relationship-focused Researcher Engagement Officer to join our Research team and strengthen relationships with the researchers and Fellows we fund.

You’ll develop and deliver a programme of researcher engagement and stewardship, creating opportunities for collaboration, learning and long-term partnership. From webinars and conferences to researcher visits and events, you’ll help ensure our research community feels supported and connected throughout their journey with Blood Cancer UK.

You’ll build strong relationships with grant holders, Fellows and key research stakeholders, plan and deliver engagement activities, develop insight into the blood cancer research community and represent Blood Cancer UK at conferences and research events. You’ll also support research impact activity, contribute to funding rounds and partnerships, and work collaboratively across Research, Engagement and Fundraising.

We’re looking for someone with experience in the charity or research sector, an understanding of how research funding translates into impact, and excellent relationship-building and communication skills. You’ll be organised, proactive and comfortable managing multiple projects, analysing research information and using technology, data and insight to deliver results.

The role involves 1–2 days of travel per week, including meetings with researchers, conferences, team workshops and away days, as well as two all-staff away days each year. There will also be occasional evening and weekend work.

We’re committed to promoting equality, diversity and inclusivity and welcome applications from people from underrepresented groups, including minority communities and people with disabilities, to better reflect the communities we serve and broaden our perspectives.

About Picker
Picker is an Oxford-based charity with an international reputation for measuring and improving patient, service user and staff experience. Our mission is to make person-centred health and social care a reality for everyone. We work with NHS organisations, government bodies, charities and healthcare providers in the UK and internationally.

About the role
The Communications Officer plays a key role in raising Picker's profile, reputation and influence by delivering engaging communications across a range of channels. Working as part of the Platform Services team, you will help communicate Picker's research, impact and expertise to a wide range of audiences, including healthcare leaders, policymakers, researchers and the public.

You will lead the day-to-day management of Picker's website and social media channels, create high-quality content including blogs, case studies, newsletters and press releases, and support the delivery of marketing campaigns for key projects, events and publications. You'll also work closely with colleagues across the organisation and external partners to ensure Picker's work reaches and engages the right audiences.

This is an exciting opportunity for a creative and proactive communications professional who enjoys combining excellent writing skills with digital marketing, website management and audience engagement to help improve health and social care.

Skills and experience
We are looking for someone with:

• Experience working in a communications, marketing or related role.
• Excellent writing and editing skills, with experience producing content for a range of audiences and channels.
• Experience creating content such as blogs, case studies, newsletters, website copy and social media posts.
• Experience managing and developing websites, ensuring content is accurate, accessible and engaging.
• Experience using social media platforms to build engagement and develop online communities.
• Strong organisational skills, with the ability to manage multiple priorities and work to deadlines.
• Excellent communication and relationship-building skills, with the ability to work effectively with colleagues, stakeholders and external partners.
• A degree (or equivalent professional experience) in a relevant discipline.

Experience using tools such as Canva, Google Analytics, Google Ads or marketing automation software would be advantageous, as would an interest in healthcare quality and person-centred care.

If you're passionate about communicating ideas that make a difference and want to help promote work that improves people's experiences of health and care, we'd love to hear from you.

The Learning and Communities Officer will help bring AmplifyChange's community of Grantee Partners together, creating opportunities for organisations and activists working on sexual and reproductive health and rights to connect, share their expertise and learn from one another.

You'll play a hands-on role in shaping and delivering AmplifyChange's learning and community offer. From building an active online community and hosting engaging digital learning sessions to supporting in-country convenings and developing accessible learning resources, you'll help create spaces where Grantee Partners can exchange ideas, build relationships and share what works.

You'll have the opportunity to connect with a diverse network of Grantee Partners, facilitators and technical experts across Africa, South Asia and the Middle East, helping people share their knowledge and learn from one another. You'll also work closely with colleagues across AmplifyChange to bring partner experience and learning into the organisation through Grantee Partner showcases, case studies, impact briefs and other engaging content.

This is a varied and creative role for someone who enjoys bringing people together and turning ideas and experience into engaging learning opportunities. You'll have the chance to experiment with different approaches to digital learning and community engagement, including the responsible use of AI-enabled tools, while helping us continually improve how we connect with and learn alongside our Grantee Partners.

AmplifyChange is a bilingual fund working in English and French, so professional-level written French and confidence speaking French are essential for this role.

MAIN RESPONSIBILITIES

Learning and Community Engagement

Create opportunities for Grantee Partners to connect, share their expertise and learn from one another, building an active and welcoming community across AmplifyChange's network.

• Develop and coordinate an annual learning and ommunity engagement plan in collaboration with AmplifyChange colleagues and partners, ensuring activities align with organisational priorities and Grantee Partner needs.
• Build an active and welcoming online community on Circle, creating opportunities for peer learning, collaboration, knowledge sharing and sustained engagement.
• Work with the Learning, Monitoring and Evaluation Manager, Grant Managers and other colleagues to ensure learning activities are shaped by Grantee Partner priorities, experience and expertise.
• Coordinate Grantee Partner showcases and internal learning sessions that strengthen staff understanding of the grant portfolio and partner organisations.

Learning Events and Programmes

Bring learning to life through engaging, inclusive and well-run online, in-person and hybrid experiences that enable Grantee Partners to connect, participate and learn together.

• Plan, coordinate, host and deliver high-quality online, in-person, and hybrid learning events,  programmes, workshops dialogues and convenings.
• Coordinate event logistics, including scheduling, registration, speaker and facilitator liaison, accessibility, technology, and participant communications.
• Support the delivery of multi-day dialogues and convenings by managing behind-the-scenes operations, technical delivery, and participant support to create a positive and inclusive experience.
• Support the development of longer participatory learning programmes and, over time , their transformation into accessible digital learning courses
• Facilitate and host learning activities using Zoom, Microsoft Teams, livestreaming and other digital engagement platforms.
• Anticipate and manage? risks, contingencies and changing requirements to ensure effective and inclusive delivery

Communications, Content and Knowledge Management

Turn learning and partner experience into engaging, accessible content and resources that can be shared across AmplifyChange and its community.

• Work closely with the Communications team to promote learning activities and maintain consistent branding and messaging across learning and community channels.
• Coordinate the development of promotional materials, case studies, impact briefs and other learning resources, working with external designers and suppliers where required.
• Coordinate event reports, notes, recordings, and other learning outputs, ensuring they are accurate, accessible, appropriately edited and shared.
• Manage communications with Grantee Partners and other audiences through CRM systems including Constant Contact, Circle, and other digital channels.
• Use AI assisted tools appropriately to support drafting, translation and content repurposing, ensuring outputs are reviewed for accuracy, inclusivity, and quality. 
• Contribute to the development of AmplifyChange’s Learn and other digital learning resources.
• Work with colleagues, Grantee Partners facilitators, technical experts and external providers to develop high-quality learning materials, case studies, and knowledge products rooted in partner experience and evidence.
• Capture, organise and share learning from events, programmes and community activities to support organisational learning and knowledge management.

Monitoring, Evaluation and Learning

Use feedback, evidence and reflection to understand what's working and continually improve the learning and community experience for Grantee Partners.

• Work closely with the Learning, Monitoring and Evaluation Manager to collect, analyse, and report on participant feedback and learning outcomes.
• Monitor participant experience and engagement across learning events, programmes and digital platforms, identifying opportunities to strengthen participation and engagement.
• Lead reflection and continuous improvement activities. ensuring learning from evaluations and community engagement to shape future events, programmes and resources

Safeguarding, Data Protection and Security

Help create safe, inclusive and accessible learning and community spaces, ensuring activities are delivered in line with AmplifyChange's safeguarding, data protection and information security requirements.

• Ensure all learning and community activities comply with GDPR and AmplifyChange's data protection policies, working with the Operations team and Data Protection advisers as required.
• Maintain secure digital filing systems and follow organisational information security procedures.
• Support the development and implementation of appropriate safeguarding, vetting, and event security measures to create safe and inclusive learning environments where required.

Organisational Contribution

Contribute positively to the wider work and culture of AmplifyChange, collaborating with colleagues and responding flexibly to changing priorities.

• Work collaboratively across teams, sharing learning and contributing to wider organisational priorities.
• Contribute flexibly in response to emerging needs and opportunities within a fast-paced environment.
• You'll undertake any other duties reasonably required that are consistent with the scope and level of the role.

Please be aware that some of the SRHR material you will be engage with as part of your role may be of a distressing and sensitive nature. Relevant support is available in this regard.

PERSON SPECIFICATION

We're looking for an organised, creative and collaborative person who enjoys bringing people together and creating engaging learning experiences. You'll be confident building relationships across cultures and communities, comfortable using digital tools and able to manage multiple activities while keeping people and their experience at the heart of your work.

You'll bring strong communication skills, curiosity and a proactive approach, with an interest in finding new ways for people to connect, share knowledge and learn from one another.

The candidate should possess the following:

Essential

• A commitment to AmplifyChange's vision, mission and values, including support for sexual and reproductive health and rights, gender equality, LGBTQI+ rights and diverse and inclusive social movements.
• Professional-level written French and confidence speaking French, alongside excellent written and verbal communication skills in English.
• Experience of coordinating and delivering engaging learning activities, events or programmes across online, in-person and/or hybrid formats.
• Experience of building and supporting engagement within online communities or networks.
• Strong project management and organisational skills, with the ability to manage multiple priorities and coordinate activities involving a range of internal and external stakeholders.
• Strong interpersonal and relationship-building skills, with the ability to work collaboratively and sensitively with people from different countries, cultures and backgrounds.
• Confident using digital collaboration and engagement platforms, with the ability and willingness to learn new technologies.
• Strong facilitation, presentation and communication skills, with the confidence to engage different audiences and support inclusive participation.
• Ability to develop clear, engaging and accessible content and learning materials for different audiences.
• Good judgement and attention to detail, with the ability to ensure content and activities are accurate, inclusive and appropriate, particularly when working with sensitive topics.
• A proactive, collaborative and adaptable approach, with the ability to work effectively in a fast-paced environment.

Desirable

• Experience of developing digital learning content, including using Canva, Learning Management Systems, video or similar tools.
• Experience of working with external facilitators, technical experts, designers or other suppliers.
• Experience of using AI-enabled tools to support learning, communications or knowledge management, with an awareness of responsible and ethical use.
• Experience of working with geographically dispersed communities or networks.
• Experience of working within international development, sexual and reproductive health and rights, gender equality or a related field.

WORKING ARRANGEMENTS

This is a UK based, full time (37.5 hours/week) permanent position, reporting to the Head of Grant Making. AmplifyChange is based in Bath, and we operate on a hybrid working model where staff are expected to come into the office one day per week.

Requests for flexible working arrangements will be considered. We encourage applications from candidates who have knowledge and experience in countries that are eligible for funding from AmplifyChange.

Please also be aware that the Learning and Communities Officer role does not meet the minimum salary requirements for sponsorship, and we can only accept applications from those with proof of the right to work in the UK. There may be some opportunity for international travel as part of this role.

SALARY AND PACKAGE

Basic salary range        £30,000 to £33,000 

Holiday                          25 days per annum on full time basis

Pension                          8% employer contribution

Life insurance               Life assurance scheme

Benefits                         Employee Assistance Program, Health Cash Plan

Working as part of the operations team, the you will help maintain the systems, processes and practical foundations 
that enable the organisation to function effectively. This includes supporting people operations and HR administration, 
leading on governance and advisory meeting administration, acting as the first point of contact for IT queries, and helping 
FEA’s events run smoothly.

Acting as a trusted point of support for colleagues, you will help create a responsive and well-organised 
working environment where staff, trustees and members feel enabled to do their best work. The role requires exceptional 
organisation, sound judgement and a genuine pride in quality. By ensuring that the practical aspects of the organisation 
run reliably and well, you will help create the conditions that allow the Fair Education Alliance to deliver its 
mission and drive progress towards a fairer education system.

Thank you for taking an interest in applying for this role at Imperial Health Charity. We’re looking for a thoughtful, creative and enthusiastic Communications Officer to join our team.

In this varied and versatile role, you’ll work as part of the communications team to raise the charity’s profile and celebrate its positive impact for patients and NHS staff. You’ll also work closely with the charity’s grants, arts, volunteering and fundraising teams to promote key activities.

You’ll play an active role in ensuring the team’s aims and objectives are met, using a range of communications approaches including internal comms, digital marketing and public relations.

You’ll also work collaboratively with our partner NHS Trust’s communications team on a day-to-day basis. This will include building close links with members of the team in order to utilise the Trust’s internal channels and build engagement with its staff and external stakeholders.

You’ll take the lead in creating written, photographic and video content for a range of communication channels. This will include updating the charity’s website, co-ordinating social media content and producing printed and digital marketing materials, as well as supporting other charity teams with events and activities as required.

Finally, you’ll support the wider team by representing the charity at events, monitoring and evaluating performance, gathering feedback from surveys and helping to measure the impact of our work.

The Voluntary Organisations Disability Group (VODG) is the leading membership body for voluntary sector organisations that support disabled people. Representing over 145 organisations across England and Wales, we bring together leaders, experts and partners to influence change, share learning and strengthen the sector. 

We're looking for an experienced and enthusiastic Events and Engagement Manager to lead the delivery of our growing programme of conferences, professional networks, member events, learning opportunities and stakeholder engagement activities. 

This is a varied and rewarding role at the heart of the organisation. You'll be responsible for creating exceptional experiences for members and delegates, coordinating high-profile events, supporting external engagement activity, managing key relationships and identifying new opportunities to increase member participation and value. You'll also use data, feedback and insight to continually improve our offer and help shape future engagement activity. 

We're looking for someone with strong event and project management experience, excellent organisational and communication skills, and the ability to build productive relationships with a wide range of stakeholders. You'll be equally comfortable managing the detail of event delivery and contributing to wider organisational objectives.

In return, you'll join a small, ambitious and supportive team committed to improving the lives of disabled people by supporting a strong and vibrant voluntary sector.

If you're passionate about bringing people together, creating engaging experiences and making a meaningful difference, we'd love to hear from you. 

We reserve the right to close this vacancy early if we receive a high volume of applications. We encourage interested candidates to apply as soon as possible. If you require any reasonable adjustments to participate in the recruitment process, please contact us.

Age UK is one of the Richmond Group of Charities (RGC), a coalition of 15 health and care charities working together to improve care for people with long-term health conditions (LTCs).

They host the RGC's We Are Undefeatable physical activity programme which is funded by Sport England until March 2028. It aims to support people with LTCs to become more physically active, including by influencing national and local policy and practice to tackle systemic barriers as well as delivery of a social marketing campaign to encourage individual behaviour change.

To support this work, we need an Engagement Officer to play a pivotal role in driving forwards the system change we're seeking by managing impactful partnerships and collaborations.

This role is offered as a fixed term contract until 31st March 2028 and will:

* Support delivery of our engagement activity and place plan, working with external and internal, national and local stakeholders
* Report to the Senior Engagement Manager within the Influencing and Engagement Team
* Work closely across the whole We Are Undefeatable team, the Richmond Group secretariat and our coalition members.

We operate a hybrid-working model, a blend of home and office working. This role will include regular days working from our London office (minimum once per week.) Your travel costs to the London office are not covered by the charity.

Closing date for applications Friday 18th September
Interview date - Thursday 1st October - in person, at our London office. EC3N 2LB
Age UK Grade - 6L

Must haves:

The below competencies will be assessed at the indicated stage of the recruitment process: Application = A, Interview = I, Test = T, Presentation = P

Experience
* Developing and managing successful partnerships and relationships, working collaboratively to co-design projects for mutual benefit A, I
* Supporting end-to-end project delivery and the effective monitoring and evaluation of deliverables and outcomes A, I
* Coordinating, facilitating and presenting at events such as communities of practice, conferences, workshops, and seminars to a range of different stakeholders of varying seniority levels I, P

Skills and knowledge
* Knowledge of physical activity and behaviour change in the context of health A
* Well-developed understanding of the lived experience of people with multiple long term health conditions I, P
* An understanding of current practice in the sport, leisure and physical activity sector and awareness of the health landscape I, P
* Excellent organisational and administrative skills with the ability to prioritise workload, maintain systems, meet competing deadlines and work calmly and confidently under pressure A, I
* Ability to work in a fast paced, complex environment and collaborate with a diverse range of stakeholders I
* Proactive, creative and flexible approach to identifying and taking forward opportunities, shaping new ideas and partnerships I, P
* Ability to manage records, databases and monitoring systems and compile monitoring and evaluation reports I
* Excellent interpersonal, oral and written communication skills with a flair for adapting tone and message for different audiences to galvanise action A, I, P
* Excellent team working skills along with an ability to use own initiative and work independently A, I
* Proven ability to network and build effective working relationships and partnerships I, P

Great to Have's:
The below competencies will be assessed at the indicated stage of the recruitment process:
Application = A, Interview = I, Test = T, Presentation = P

Experience
* Working with external agencies I
* Working with people with long-term conditions and utilising lived experience research and insight to shape plans and delivery A, I, P

Skills and knowledge
* An awareness of system change and systems thinking A, I, P
* Awareness of different evaluation approaches for behaviour and systems change I, P

What we offer in return

• Competitive salary, 26 days annual leave + bank holidays + annual leave purchase scheme
• Excellent pension scheme, life assurance, Health cashback plan and EAP
• Car Benefit Scheme, Cycle to Work Scheme and Season Ticket Loan
• Techscheme - buy any tech from Apple or Currys, up to £1000, and spread the cost over 12 months, interest free
• Blue Light Card Scheme
• You Did It Awards - recognition awards from £100-250
• Many additional benefits

Additional Information

Supporting statements and anonymisation

Candidates are expected to provide a supporting statement that explains how they meet the competencies annotated with an 'A' in the job description, to assess suitability for the position. Age UK acknowledges and accepts that AI may be used to support the application; we do expect candidates to personalise experience, knowledge and skills and failure to do so, may result in your application being rejected.

Please submit a Word version of your CV as it will be anonymised by our recruitment system when you apply for a role. Our system is unable to anonymise supporting statements and heavily formatted CVs. Please could you remove any personal information including your name before you upload to support our inclusive recruitment process. All equalities monitoring information is also anonymised and not shared with the hiring panel. Your name and address will only be known to us if invited for interview.

Equal opportunities & Disability Confident Scheme

Age UK is an Equal Opportunities employer and positively encourages applications from suitably qualified and eligible candidates, regardless of age, sex, race, disability, sexual orientation, gender reassignment, religion or belief, marital/civil partnership status, or pregnancy and maternity. Age UK is a Disability Confident Scheme employer. Due to high numbers of applications received, Age UK reserves the right to limit the overall number of interviews offered, and therefore, it may not always be practicable or appropriate to interview all disabled people that meet the minimum criteria for the job.

Reasonable adjustments

Disabled job seekers can access reasonable adjustments at any stage of the recruitment process. All requests for reasonable adjustments are considered on a case-by-case basis, in collaboration with the disabled job seeker to best meet their needs, by contacting the Recruitment Team. Disability disclosures will be kept confidential and only shared on a need-to-know basis to support the implementation of adjustments. Disclosures will not be used to inform hiring decisions.

Age UK is committed to safeguarding adults at risk, and children, from abuse and neglect. We expect everyone who works with us to share this commitment.

Early application is encouraged as we will review applications throughout the advertising period and reserve the right to close the advert at any time.

Age UK politely requests no contact from recruitment agencies or media sales. We do not accept speculative CVs from recruitment agencies nor accept the fees associated with them.

For a full list of benefits please visit our website.

Job Title: EDIS Community and Engagement Officer (Equality, Diversity and Inclusion in Science and Health)
Reporting to: Head of EDIS
Responsible for: No direct reports
Based: Our Head Office is based in London, but we have an agile working policy enabling people to work at another UK location up to 4 days/week.  Requests for permanent remote working will be considered and we welcome applications from people based in other parts of the UK.
Hours: Full-time (35 hours per week). Requests for part-time or flexible working will be considered.
Contract: Permanent
Salary: £34,572 to £36,506 FTE per annum

About Us

The British Science Association (BSA) was founded in 1831 and is a registered charity.

We are creating a future where science is more relevant, representative, and connected to society.

We have ambitious goals to put people at the heart of science.

About the role

The EDIS Community and Engagement Officer will provide the coordination, communication and relationship-building needed to support the growth, participation and value of the EDIS membership community.

The role will support day-to-day member onboarding, engagement activity, communications, events and community-building processes across the EDIS portfolio. It will ensure that members are supported to connect with each other, contribute to EDIS priorities and access opportunities to learn, share and collaborate. You will work with the EDIS team and with BSA communications team colleagues to support their work.

A central focus will be building effective, inclusive and accessible routes for member participation. Working with EDIS members, partners and colleagues across the British Science Association, the postholder will help to ensure that engagement activity is joined up, responsive to member needs and focused on meaningful participation across the science and health research sector.

This role would suit someone who combines strong organisational approaches with proactive communication, relationship building, and a commitment to and knowledge of equity, diversity and inclusion. The successful candidate will be confident supporting communities, networks and membership groups, helping to strengthen the EDIS community while ensuring that engagement, communications and events are delivered effectively.

Key responsibilities

• Support day-to-day member onboarding and support processes, ensuring new and existing members understand how to participate in EDIS activity.
• Coordinate with the Communications Team to develop member communications, newsletters and engagement content, ensuring activity is joined up, accessible and responsive to member needs.
• Plan and support delivery of events, workshops, peer learning sessions including ‘special interest’ groups and network activity that create practical opportunities for members to learn, share and collaborate.
• Maintain accurate membership records, contact lists and engagement data, supporting clear information flow across BSA, EDIS members and partners.
• Gather member insight and feedback, identifying themes, opportunities and barriers to participation that can inform programme design and delivery.
• Apply inclusive practice in all communications, events, engagement activity and member support, reflecting a clear commitment to and knowledge of equity, diversity and inclusion.
• Support membership growth and retention by helping demonstrate the value of involvement in EDIS and strengthening routes for member participation.
• Work with the Research and Policy Officer and Programme Manager to ensure member insight informs evidence, programme design, engagement activity and delivery.
• Support the production of accessible resources, meeting materials and event content that help members connect with each other and contribute to EDIS priorities.
• Contribute to the promotion of EDIS activity across sector networks and communication channels, supporting meaningful participation across the science and health research sector.

About you

The successful candidate will bring the following experience, skills and approach.

Essential criteria

• Experience of coordinating activity within a membership organisation, community group, network, events or engagement programme.
• Strong approach to organisation, with the ability to coordinate varied tasks, manage competing priorities and work towards agreed deadlines with appropriate support.
• Demonstrable commitment to equity, diversity and inclusion, with practical experience applying inclusive approaches in events, communications, member support or engagement activity.
• Ability to communicate clearly in writing and through other appropriate channels, tailoring style and content to encourage understanding and engagement across varied audiences.
• Experience developing communications tailored to specific professional audiences, including meeting materials, event content and/or engagement updates.
• Experience maintaining accurate records, contact lists, membership information or engagement data, with attention to detail and appropriate handling of information.
• Ability to build positive working relationships with members, partners, community groups or stakeholders, supporting participation and responding constructively to different needs.
• Experience gathering feedback, insight or views from members, participants or stakeholders, and identifying practical themes that can inform activity or improvement.
• Proactive and reflective approach to problem solving and continuous improvement, with the ability to identify practical improvements and support an evolving programme.

Desirable criteria

We do not expect candidates to have all of the following, but one or more would be helpful in the role.

• Experience working in science, research, health, charity or membership settings.
• Experience using CRM, event or membership management systems.
• Experience supporting consultation, co-design or peer learning activity.
• Experience producing digital content or newsletters.

The closing date for applications is Monday 5th October 2026.
First interviews are due to take place online on 4th November 2026, with second interviews (in person in London) expected on 11th November 2026.

Interview dates have been scheduled outside the school holiday period to support participation from the broadest possible pool of candidates and to minimise potential barriers for those with caring or family responsibilities.

Interested?

If you would like to find out more, please click the apply button. You will be directed to our website to complete your application for this position.

As part of the British Science Association’s commitment to being a Disability Confident employer, all disabled applicants who meet the ‘essential criteria’ for this vacancy will be offered an interview under our guaranteed interview scheme.

No agencies please.

An exciting opportunity!

This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry disease and related lysosomal storage disorders. Following the current Chief Executive's planned move to become Managing Director of Rare Disease Research Partners (RDRP) in January 2027, the incoming CEO will take the helm of an organisation with over forty years of history, a trusted national reputation and a growing role on the international rare disease stage. The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work. It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.

As our next Chief Executive, you will

• Define and deliver the MPS Society’s strategic vision.
• Provide confident oversight of governance, finance, compliance and reporting.
• Effectively manage the operational alignment between the MPS Society and RDRP.
• Always keep the members and family voice at the heart of strategy, service design and decision-making.
• Build and maintain senior-level relationships with statutory bodies, government agencies, pharmaceutical partners, clinical expert centres and other key stakeholders to support the Society’s objectives, influence policy and practice, and protect its professional reputation.
• Act as a visible and credible public voice to raise awareness, improve visibility, support, treatment access and outcomes for people affected by MPS, Fabry disease and related conditions.
• Collaborate with other rare disease bodies, patient organisations and other key audiences.
• Lead and empower the senior leadership team through effective delegation, early involvement in strategic discussions, clear accountability and support for individuals to flourish.
• Encourage an open, supportive work environment allowing creativity and building staff confidence.
• Help shape the future of the MPS Society.

About you

•  Self-motivated, with the drive to lead the organisation through a period of change and transition.
• Unquestionable probity and personal integrity, given the trust placed in the CEO by families, trustees and partners.
• Exemplary written and verbal communication skills, able to convey complex scientific and clinical information to audiences ranging from clinicians to families with no prior knowledge of MPS disorders.
• Strong self-awareness, with insight into their own leadership style and impact on others.
• Emotional resilience, able to sustain performance while supporting a community facing life limiting conditions.
• A collaborative and empowering leadership style, able to build trust, delegate effectively and help individuals across the organisation flourish.
• Genuine passion for the Society's mission, with a family and member-first ethos.
• Confidence to build relationships across a wide range of stakeholders, from beneficiaries and Trustees to politicians, media and pharmaceutical partners.
• A proactive, positive approach, comfortable reacting to change and organising their own work to meet deadlines.
• Confidence speaking publicly on behalf of the organisation and the people it represents.

Why join us?

A close-knit, values-led culture. With just over thirty staff across the Society and RDRP combined, this is a place where the CEO can know the team personally, work closely with families day-to-day, and see the direct results of decisions rather than managing at a distance through layers of bureaucracy.

• Genuine autonomy to shape direction. The Board is explicitly looking to the new CEO to bring fresh thinking on technology, AI, and digital tools, and to give real freedom to modernise fundraising, services, and engagement rather than simply maintaining what already exists.
• A stable foundation to build from over forty years of track record, trusted relationships and a strong national reputation mean the incoming CEO can focus energy on vision and growth rather than firefighting or rebuilding credibility from scratch.
• Proximity to cutting-edge science: the Society's close relationship with RDRP gives the CEO regular exposure to advances in rare disease research and treatment access, while day-to-day research leadership sits with the RDRP Managing Director, allowing the CEO to focus on strategy, people and sustainability.
• A high-visibility, high-influence platform. Regular contact with government, pharmaceutical companies, clinicians and international rare disease bodies offers strong opportunities to build a public profile and personal network well beyond the charity sector.
• A team that already shares the mission. Staff are described as passionate about the Society's aims, and as having a family-first ethos, so the new CEO inherits a culture to lead and empower rather than one that needs to be built from the ground up.
• Work with a different kind of return. Beyond salary and career progression, this role offers the less tangible reward of knowing that strategic and financial decisions translate, into better support for families facing some of the rarest conditions in the country.

Benefits

Join us and you will be working for a caring charity offering:

• A competitive salary
• Generous annual leave
• Extra leave between Christmas and the New Year
• Contributory pension
• Life assurance (subject to the conditions of the scheme)
• Employee assistance programme offering support 24/7

Further information

The successful candidate must be eligible to work in the UK.

The main duties, responsibilities and requirements of this role can be viewed in the job description on our website.

Salary to be agreed depending on experience and will be pro-rata for part time hours.

This is an essential car user post. The applicant must hold a current UK driver’s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.

This senior role requires flexibility in working hours and location.  It is primarily offered on a hybrid basis with a minimum of 2 days in our Amersham, Buckinghamshire, office each week. As part of the role, UK and overseas travel is necessary, which may on occasion include early morning and/or evening working and sometimes overnight stays. We have policies in place to ensure that any unsociable hours worked over the weekend are fairly compensated through TOIL.

This role will require an Enhanced Disclosure and Barring check (DBS) details of which can be found in the job description.

For an informal discussion about the role or the work of the MPS Society, please contact Dr Fiona Stewart.  Contact details can be found on the full job description. Kindly note, meetings with other relevant people will be available to shortlisted candidates at interview stage.  

About the role
We are seeking a proactive, enthusiastic, and highly organised Fundraising Officer to support our individual giving, community fundraising, and small trusts and foundations activities. The Fundraising Officer will manage individual and community donor activities, and the donor database to support thanking, stewardship and targeted donor engagement. They will also play a key role in monitoring the impact of our fundraising activity to ensure continuous improvement and income growth.

This is a dynamic, hands-on role for someone who is creative, collaborative, and enjoys working across a diverse range of tasks.  They will be enthusiastic and keen to generate new ideas that strengthen supporter relationships and deliver impactful fundraising.

Main duties and responsibilities

Individual, Corporate and Community Fundraising

• Work with the Fundraising and Communications Manager and Communications Coordinator to develop and deliver three - four individual giving appeals at year (digital and offline) to increase income.
• Monitor and analyse appeal performance to inform future activity.
• Support wider donor acquisition, retention, and upgrade strategies through data-led insights.
• Work closely with colleagues in communications and service delivery to create compelling fundraising content and impact stories.
• Act as the main point of contact for community fundraisers and local events, offering guidance, support materials, and encouragement. Work closely with Communications Coordinator where needed.
• Lead on the promotion and recruitment of participants for sponsored challenge events, particularly the Oxford Half Marathon and Bike Oxford.
• Research charity of the year opportunities amongst school and local businesses and support applications as required.
• Build and maintain strong relationships with local community groups, schools and faith communities.
• Confidently represent the organisation at community events and manage a pool of volunteer speakers.
• Manage and develop a small number of local business partnerships.
• Use and optimise our CRM (Donorfy) to ensure accurate and up-to date relationship management records.  

Donor Stewardship and Prospect Research

• Ensure all donors are thanked promptly and feel valued and engaged.
• Manage and maintain accurate donor data in Donorfy, producing reports on donor activity and performance.
• Monitor and manage fundraising and donation enquiries through our development@ inbox, responding and referring them as appropriate.  
• Research new fundraising prospects and initiatives across individuals, community groups, small trusts, local businesses and other potential supporters. Maintain organised records of prospects and recommendations.

Trusts & Foundations (Small Grants)

• Support the Fundraising and Communications Manager and Trust and Foundations Fundraiser with the small grants pipeline, including prospect research, applications and reporting. 
• Work closely with appropriate staff and service coordinators on project budgets, reporting and planning as needed.

Other responsibilities

• Support and oversee volunteers and interns as required.
• Work collaboratively within a busy staff team, participate in meetings and planning processes, and contribute to organisational development.
• Undertake any other duties appropriate to the role, as agreed with the Fundraising and Communications Manager or CEO. 

Person specification

Essential:

• Demonstrable fundraising and supporter-facing experience, with the ability to manage multiple income streams simultaneously.
• Knowledge and experience of individual and community fundraising.
• Excellent verbal and written communication skills, and the ability to tailor content to different audiences.
• Experience using CRM databases, with confidence managing day-to-day data processes.
• Highly organised with the ability to prioritise and manage multiple deadlines and priorities.
• Excellent attention to detail.
• Strong research skills and a track record of writing funding bids and reports.
• Ability to build productive, collaborative relationships with internal and external stakeholders.
• A positive, creative, “can-do” attitude, with the ability to adapt to change.
• Confidence representing the organisation at community events.
• Ability to work within a budget.
• Strong analytical skills, with the ability to interpret data and measure impact.
• A demonstrable passion for, and affinity with, our cause
• Ability to communicate and work sensitively with people with lived experience of migration and tell their stories with dignity.

Desirable:

• Experience of working for a local charity.
• Knowledge of the migration and refugee sector.
• Experience in digital fundraising, social media and online giving platforms (eg JustGiving, crowd-funding platforms, social ads).
• Experience in corporate fundraising.
• Experience of working with Mailchimp and donorfy
   

Deadline for applications: Midnight Sunday 4th October 2026

Interviews: Week commencing 12th or 19th October in Oxford.  

About Action for Pulmonary Fibrosis

Action for Pulmonary Fibrosis (APF) is the UK’s leading patient charity dedicated to improving the lives of individuals and families affected by pulmonary fibrosis. Our mission is underpinned by values of compassionate, bold, expert and collaborative. We believe in creating a supportive environment in which both our employees and beneficiaries can thrive.

Founded in 2013 by people affected by PF and clinicians, APF has grown into a respected national charity rooted in community and evidence. We provide trusted information and support, help a growing network of support groups, campaign to improve access to care and invest in research to bring hope of new treatments. APF strives to be an organisation of equity and inclusion, welcoming people from all backgrounds – our team and volunteers aim to reflect the diverse communities we serve.

We have just launched an ambitious five-year strategy (2025–2030), co-created with the PF community, which focuses on expanding support, transforming care, and accelerating research. This strategy marks a step change with a clearer focus, stronger delivery model and greater ambition to ensure no one faces pulmonary fibrosis alone.

Role Purpose

We are looking for a Senior Education and Events Officer to coordinate and deliver our education and events programme for people affected by pulmonary fibrosis, healthcare professionals and wider stakeholders.

This is a hands-on role at the heart of APF’s work. You will plan and deliver education sessions, webinars, conferences and events, making sure they are welcoming, accessible, well organised and shaped around the needs of the people we support.

You will manage the full attendee journey, from registration and communications through to delivery, feedback and follow-up. You will also coordinate APF’s presence at external conferences, work with speakers, clinicians and partners, and help ensure people who engage with our events can easily access wider APF information, support and opportunities.

We are looking for someone with strong experience of organising events, education sessions, webinars, training or similar activity. You will be highly organised, confident working with a wide range of stakeholders and comfortable managing logistics, digital platforms, databases and attendee communications.

You will also be confident hosting or supporting sessions both online and in person, and able to use feedback and data to improve future activity.

This is a great opportunity to help APF deliver high-quality education and events that give people affected by pulmonary fibrosis practical information, reassurance and confidence throughout their journey.

To apply, please submit a CV and a covering letter of no more than two pages outlining your suitability for the role and how your skills and experience meet the requirements of the job description.

Interviews will be held on a rolling basis, so we encourage interested candidates to apply as soon as possible.

About the British Society for Heart Failure

The British Society for Heart Failure (BSH) is the UK's leading charity and membership organisation dedicated to improving care for people living with heart failure. We bring together healthcare professionals, researchers and decision-makers to improve prevention, diagnosis, treatment and long-term outcomes through education, awareness, research and policy influence.

This is an exciting time to join BSH as we deliver our ambitious new strategy and continue to drive forward our national 25in25 campaign to reduce mortality from heart failure and improve outcomes for patients across the UK.

About the Role

This is a high-profile opportunity to shape and deliver BSH's policy agenda and strengthen its influence across the healthcare sector.

Reporting to the Chief Executive, you will work with clinical leaders, parliamentarians, NHS stakeholders and partner organisations to ensure BSH remains a credible and influential voice on heart failure policy. You will help develop evidence-based policy positions, influence decision-makers and support improvements in heart failure prevention, diagnosis and care across the UK.

Key Responsibilities

• Lead the delivery and development of BSH's policy framework and priorities.
• Develop policy papers, briefings, consultation responses and stakeholder communications.
• Build relationships with parliamentarians, NHS leaders, policymakers and healthcare organisations.
• Represent BSH at meetings, consultations, forums and policy discussions.
• Identify opportunities to influence policy and improve outcomes for people living with heart failure.
• Work collaboratively with partner organisations on advocacy, campaigns and policy development.
• Monitor the healthcare and policy landscape, identifying emerging issues and opportunities.
• Support wider organisational activity including communications, events and strategic initiatives.

Our Commitment to Inclusion

We welcome applications from people of all backgrounds and experiences. If you're excited by this opportunity but don't meet every requirement, we'd still encourage you to apply. As this role is primarily remote we also encourage applicants from any location in the UK that enables occassional travel into London and elsewhere in the UK.

EVENTS CO-ORDINATOR

Sheffield Hospitals Charity is looking for a talented Events Co-ordinator to lead the delivery of a growing portfolio of fundraising and engagement events from flagship fundraising events to brand awareness initiatives, you'll play a key role in creating experiences that make a real difference. 

What you'll do:

• Plan and deliver a varied programme of events from concept to evaluation.
• Build strong relationships with supporters, volunteers and partners.
• Help grow participation, income and awareness of Sheffield Hospitals Charity.
• Work as part of an ambitious and supportive fundraising team. 

We'd love to hear from you if you have:

• Experience delivering successful events and managing multiple projects.
• Strong organisational and communication skills.
• A proactive, creative and solutions-focused approach.
• The ability to thrive in a fast-paced environment. 

We're looking for someone who is organised, proactive and confident managing multiple projects at once. You'll be a natural relationship-builder with a creative mindset, excellent communication skills and a passion for delivering outstanding experiences. You'll have the opportunity to shape an established events programme, bring fresh ideas to the table and help improve the lives of patients, families across Sheffield. 

If you're looking for a role where you can make your mark and deliver events with real impact, we'd love to hear from you. 

If you feel you have relevant skills and experience, please submit your CV and supporting statement to Sandra Smith, Senior Consultant via the Charisma Charity Recruitment website.

Location: Sheffield (hybrid working available) 

Closing date for applications: 21st September
First client interview: 2nd October 
Second client interview: TBC

We welcome and encourage applications from people of all backgrounds. We do not discriminate on the basis of disability, race, colour, ethnicity, gender, religion, sexual orientation, age, veteran status or other category protected by law. 

Charisma is committed to inclusive and accessible recruitment processes. If you have any reasonable adjustments or wish to apply for this role under the Disability Confident Scheme, please contact our Operations Teams. Charisma will ensure all candidates who disclose that they wish to apply under the Disability Confident Scheme and that meet the minimum criteria for the role will receive an opportunity to interview with the Charisma Consultant representing the role.

The National Lottery Community Fund is recruiting for a Stakeholder Engagement Manager, a key role in our External Affairs Team within our Communications, Impact and Influence Team.  

This role offers an exceptional opportunity to shape our stakeholder engagement during an exciting time. You will position the Fund as a convening force in civil society, advancing community priorities through evidence-based advocacy that demonstrates how our funding strengthens communities.

Using your insight into the sector, you will work with colleagues to map and manage priority stakeholder relationships relevant to our missions and the impact of our funding. You will develop targeted engagement strategies to strengthen and diversify our stakeholders, delivering key activities including communications, events, briefings and meetings to support the development of these relationships.

You will identify and act upon opportunities to demonstrate the impact of our funding on communities and how it aligns with relevant and influential stakeholders and organisations. You will have strong project management experience, with a robust approach to tracking relationships and managing stakeholder data, ideally through the use of Stakeholder Relationship Management (SRM) systems.

The ideal candidate will bring a strong communications and engagement background, as well as experience in working with senior level stakeholders. Ideally you will have had exposure to the voluntary, community and social enterprise sectors. You should excel at building relationships with diverse stakeholders and be adept at navigating complex external environments.

Key responsibilities:

• Map and prioritise the Fund's stakeholder framework, identifying key influencers and decision-makers across sectors, ensuring an effective cadence of engagement (making it clear who are we talking to, when and why)
• Design strategic engagement plans that align stakeholder relationships with our missions and corporate plan, as part of the Fund’s integrated communications strategy
• Coordinate high-profile events and engagement opportunities that strengthen the Fund's position in civil society
• Lead a range of stakeholder communications, including newsletters, bespoke emails, meetings and briefings.
• Lead the creation of stakeholder toolkits and narrative materials that enable senior leaders and colleagues to engage effectively
• Build measurement frameworks to evaluate the impact of stakeholder engagement activities
• Provide expert counsel to colleagues on relationship management and influencer engagement
• Maintain the SRM system and support colleagues across the Fund to use appropriately.

Interview Details:

Date: W/C 28th September

Format: Virtual

Location: UK Wide

We have a hybrid approach to working. Work pattern will be agreed with the successful candidate. Our offices are in Belfast, Birmingham, Cardiff, Exeter, Glasgow, Leeds, London, Manchester and Newcastle.

If you would like an informal conversation about the role specifically, please contact us.

Any questions about the recruitment process, please email us.

How to apply:

Upload your CV in word format and write a supporting statement (1000 words) with the following criteria, we will use this to score your application.

Essential criteria

• Strong experience in stakeholder engagement and partnership development, with a track record of advising at senior levels.
• Proven ability to design and deliver engagement programmes that meet organisational objectives.
• Experience in delivering high-level communications and events.
• Experience building stakeholder mapping tools and evaluation frameworks.
• Strong project management, coordinating complex engagement activities.
• Experience drafting and delivering high-quality presentation materials, often under tight timeframes.

Desirable criteria

• Understanding of, or background in VCSE, public sector or civil society partnership development.
• People management experience.

Equity, Diversity and Inclusion  

Communities in the UK come in all shapes and sizes. National Lottery funding is for everyone – therefore, we are committed to equity, diversity and inclusion and we work hard to ensure our funding reaches where it is needed.  

We also believe our people should represent the communities, organisations and individuals we work with. That’s why The National Lottery Community Fund is committed to being an inclusive employer and a great place to work. We recognise and celebrate the fact that our people come from diverse backgrounds. We positively welcome applications from people from ethnic minority backgrounds, people with disabilities or longstanding health conditions, people who are LGBTQ+, and people from different socio-economic and educational backgrounds, as well as people of all ages. 

As a Disability Confident Employer, we take a proactive approach in making reasonable adjustments, if needed, throughout the recruitment process and during employment. (This can be related to a physical and mental health condition.)