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This is a grant funded role, fixed term for two years, with the opportunity for conversion to a permanent role should funding allow.
Main Purpose of the Role:
To provide proactive, emotional, and practical support to families and individuals affected by Duchenne Muscular Dystrophy (DMD) across Scotland. The role will focus on early engagement, wellbeing assessment, community building, and delivery of workshops and events, while ensuring accurate tracking of support outcomes and data.
The successful candidate will also lead on support for young people living with Duchenne during 2 key transition points (primary to secondary school stage and moving into adulthood). They will work closely with the England-based Transitions Coordinator to deliver a joined-up programme of support across the UK.
Specific Tasks:
1. Proactive Family Support
2. Transitions Support
· Lead transition support across all nations, with a focus on Scotland, for children and young people facing key life changes, including:
· Moving between educational settings such as primary to secondary
· Transitioning from paediatric to adult health services
· Changes in mobility and independence (e.g. transitioning to using powerchairs)
· You will lead, but expected to work collaboratively with the England-based Transition Coordinator to ensure consistency and continuity of support across the UK
· Develop resources, guidance, and workshops to support families through transitions
3. Wellbeing Tracking and Outcome Measurement
· Administer wellbeing questionnaires and record scores across key domains (e.g. physical health, emotional wellbeing, financial security)
· Collaborate with families to co-create action plans and track progress
· Ensure all data is entered into CRM (E-Tapestry or similar) within the allotted timeframe, i.e. immediately after or during the call.
4. Community Engagement and Event Delivery
· Organise and deliver regional meetups (minimum one per quarter)
· Facilitate support groups (virtual and in-person) for parents, young people, and extended family
· Support delivery of workshops and events aligned with programme schedule (e.g. music, life skills, employability)
5. Stakeholder Collaboration
· Liaise with external organisations including NHS care advisors and clinics, local authorities, counselling services, and other charities
· Represent Action Duchenne in Scotland and build relationships with local networks
6. Administration and Reporting
· Maintain accurate records of all interactions and support provided
· Contribute to quarterly reporting on activity delivery, capacity utilisation, and family impact
· Support development of CRM processes and service delivery improvements
7. Key Performance Indicators (KPIs):
· New contact acknowledgement email: within 3 working days
· New contact follow-up call: within 7–10 working days
· Families contacted per week: 12–15 hours of direct contact
· Regional meetups: 1 per quarter
· Support groups delivered: 9–12 per year
· CRM data entry: within 24 hours of interaction
· Family outcomes tracked: via wellbeing questionnaire and action plan
· Transition support delivered: tracked through engagement, resources, and feedback
NB This is not an exhaustive list, the role holder will be asked to carry out additional tasks as required for the Team’s successful service delivery. Such tasks will always be reasonable and broadly in line with current knowledge levels and skill sets.
Please find below the job specification, including required skills and qualifications.
Application deadline: 24th November at 9am GMT.
Action Duchenne is a charity providing holistic support to those living with Duchenne Muscular Dystrophy (Duchenne) and their families.



The client requests no contact from agencies or media sales.
Using Anonymous Recruitment
This organisation is using Anonymous Recruitment to reduce bias in the first stages of the hiring process. Submit your application as normal and our system will anonymise it for you. Your personal information will be hidden until the recruiter contacts you.
Help support our members and their families who are diagnosed or going through diagnosis of a rare neurological condition.
Provide support to those affected by a life changing diagnosis at a very difficult time and make a difference that counts!
Myaware is a charity dedicated to ensuring that all people living with or alongside myasthenia can live well, now and in the future. Due to demands on the service we are looking to expand our crucial support team which has provided an exciting opportunity to join the team.
You will be working with our dedicated support team to advise and support our members, over the phone, via email, in online sessions and at conferences and support groups in the community. Providing a listening ear and advice on living with myasthenia is essential as they navigate their diagnosis journey and learn how to live well with the condition.
Delivering support and advice for our members also involves using our CRM database and proactively maintaining and increasing our membership. It requires ongoing essential awareness raising of our work through annual initiatives and campaigns and through growing relationships with Healthcare Professionals and other neurological organisations.
Who are we?
Myaware is the only charity in the UK dedicated solely to the care and support of people affected by myasthenia.
We are working hard to raise awareness of myasthenia, as it is a little-known condition. We provide support for people with myasthenia and their families, whilst offering advice and tips for living with the condition.
We also fund the research that brings us closer to finding a cure as well as funding specialists nurses and advisors.
Members of myaware have full access to a wide range of support services and events including our specialist welfare rights advisor.
Myaware supports people with myasthenia and their families. We campaign for better medical services for people with myasthenia and work to inform medical professionals.
The myasthenias are a group of neuromuscular conditions. They are rare but also manageable and can affect anyone, regardless of age, gender or nationality. Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault. It is thought that there are approximately 20,000 people currently living with myasthenia in the UK.
Benefits
Discretionary £1,000 increase after successful completion of probationary period
Application Instructions
Candidates should submit their CV and tailored covering letter by 23:30 on Friday 8th May 2026
Initial screening chats will take place on Thursday 14th May 2026
Interviews will be week commencing 25th May 2026
Interviews will be held over Microsoft Teams
Applications submitted without a tailored cover letter will not be considered.
This post, due to its nature, duties and responsibilities, will be subject to an enhanced check by the DBS. This is funded by Myaware.
This organisation supports anonymous recruitment. That means hiding your personal identifying information, removing bias from the hiring process.
The client requests no contact from agencies or media sales.
Job title: Head of Co Production
Location: Working from home
SCIE Vision
We are committed to building a society which enables people who draw on social care to live fulfilling lives.
At the SCIE, we are driven by our values:
· Progressive – always learning and developing.
· Inclusive – working together for equality, diversity, and fairness.
· Credible – evidence-based, robust, and reliable.
· Transparent – open and honest.
· Committed - focused on making a difference to people’s lives.
The role:
We’re looking for a senior leader to make co-production the way we work — not a project, not a principle, but embedded practice across the organisation.
This is a high-impact role shaping how lived experience drives strategy, design, delivery, and decision-making. You’ll lead a specialist team, but your influence will stretch internally and externally.
You’ll be responsible for turning ambition into action — building a clear roadmap, strengthening capability, and ensuring co-production is consistent, credible, and genuinely embedded into our work.
You’ll lead the development and delivery of new co-production products and partnerships, generating income and strengthening our position as a sector leader in co-production practice.
What we are looking for:
Example as below
• Embedding co-production across the organisation so it becomes business-as-usual.
• Developing and delivering co-production products internally and externally and generating new income streams.
• Leading a bold roadmap for culture change and continuous improvement
• Influencing partners across social care and beyond.
• Strengthening governance, accountability, and consistency of practice
If you can help shift co-production from aspiration to reality — we want to hear from you.
What we offer in return:
We offer excellent staff benefits including a competitive salary and homeworking allowance. We provide an employer pension contribution above the statutory minimum, an award-winning employee assistance programme, and an attractive holiday package which rises with length of service. Benefits of working for SCIE can be found here Work for the Social Care Institute for Excellence - SCIE
If you would like to access the application form in a different format or if would like any assistance that might help improve your experience while completing the application, please contact us.
We reserve the right to close the advert at any point we are actively reviewing applications.
Location: United Kingdom, homebased with regular travel for meetings
Contract: 1-year fixed term, Full-Time 35 hours position
Salary: Circa £45,000 per annum dependent on experience
Excellent benefits: 25 days annual leave plus bank holidays, rising to 28 days after 2 years, 30 days after 5 years. Enhanced maternity and paternity leave, employee assistance programme. New joiners are also given access to personalised coaching through More Happi to support your transition into your new role.
About us:
Since 1958 International Cat Care (iCatCare) has been advancing the care of cats worldwide by sharing evidence-based expertise, as well as inspiring individuals and communities to drive change in the understanding, treatment and respect of cats.
We have achieved this by providing cat caregivers, veterinary professionals and those working with unowned cats, with evidence-based, practical information, and the guidance and support they need to improve cat welfare. With better understanding of the species and their individual needs, we believe we can change the lives of millions of cats globally.
About the role:
We’re looking for an Accreditation & Licensing Advisor to support the review and development of iCatCare’s Cat Friendly accreditation and licensing schemes (Cat Friendly Clinic, Cat Friendly Homing, Easy to Give and Cat Friendly Approved) This role plays a key part in ensuring our programmes are strategically aligned, operationally effective, and deliver measurable impact for cat welfare.
You’ll work closely with internal teams and external stakeholders to strengthen standards, improve processes, and help ensure our schemes are sustainable, robust, and internationally relevant.
Key responsibilities
Contribute to the review and development of accreditation and licensing schemes, from application through to assessment and renewal
Monitor emerging global standards, legislation, and research relevant to animal welfare accreditation
Conduct competitor and sector analysis to inform scheme development
Support the creation of clear policies, procedures, guidance, and implementation plans
Work with data and digital teams to improve systems, reporting, and efficiency
Coordinate timelines, manage budgets, and identify risks and opportunities
Support stakeholder engagement, including scheme participants, sponsors, and partners
Gather, analyse, and report on data for accreditation submissions, performance monitoring, and impact measurement
Support financial modelling, reporting dashboards, and impact reports
Contribute to funding and sponsorship development alongside fundraising colleagues
About You:
You’ll bring experience in accreditation, licensing, quality management, compliance, or a related field, with a strong appreciation of the challenges involved in operating international accreditation and/or licensing programmes. You’ll be highly organised, comfortable managing multiple priorities, and confident working independently as well as collaboratively.
You’ll communicate clearly and thoughtfully, build positive working relationships, and feel confident using data and digital tools to support decision making and reporting. Above all, you’ll be motivated by purpose and shared values, with a genuine commitment to improving cat welfare.
This is a meaningful opportunity to play a part in improving the lives of cats worldwide, within a supportive, values driven charity where collaboration, learning, and impact matter.
Closing Date: midnight 30th April
Face to face Interviews: 12th/13th May location TBC
iCatCare actively promotes equality, diversity and inclusion. Our application process is non-bias.
We match charity needs with skills and experience of candidates, irrespective of age, disability (including hidden disabilities), gender, gender identity or gender reassignment, marriage and civil partnership, pregnancy and maternity, race, religion or belief, or sexual orientation.
The client requests no contact from agencies or media sales.
About the Nature Friendly Farming Network (NFFN)
The Nature Friendly Farming Network is a UK-wide, farmer-led organisation working to restore the balance between farming and nature.
We support farmers by sharing practical knowledge, resources and case studies that help boost food production, protect wildlife, and build climate resilience.
We influence policy to secure fair rewards for farmers who look after the environment, and we connect thousands of like-minded farmers across the UK through knowledge sharing, events and campaigns.
Membership is free and open to farmers, the public and organisations.
About the role
We are looking for a Parliamentary Engagement Officer to strengthen our engagement with policymakers across the UK.
This is an exciting opportunity to work at the intersection of farming, environment and policy. You will play a key role in ensuring that farmer experience and evidence are reflected in parliamentary discussions, helping to shape conversations that impact the future of farming.
Working directly with the Chief Executive and closely with the policy team, you will monitor parliamentary activity, identify opportunities for engagement, and support timely and well-informed interaction with MPs, peers and their teams. You will also work across the organisation, including with country teams and farmer steering groups, to ensure engagement reflects priorities across all UK nations.
This is a practical, fast-paced role suited to someone who is organised, politically aware, and able to respond quickly to emerging opportunities.
Key responsibilities
Monitor parliamentary activity across Westminster and the devolved parliaments, identifying relevant debates, questions, committees and opportunities for engagement
Maintain a forward view on key parliamentary activity and upcoming moments of influence
Produce and circulate clear, concise briefings on parliamentary activity and recommended areas for engagement
Draft and support the submission of parliamentary questions, briefings and lines for MPs, peers and their staff
Build and maintain relationships with MPs, peers, advisers and parliamentary staff across parties
Support coordinated engagement with political stakeholders, ensuring activity is timely and aligned with organisational priorities
Work with colleagues and partners to support effective and aligned parliamentary engagement
Support relationships between farmers and parliamentarians, including organising farm visits and meetings where appropriate
Translate farmer experience and insights into clear and practical input for parliamentary engagement
Support the planning and delivery of parliamentary events, meetings and roundtables
Organise meetings with MPs, peers and advisers, including preparing briefings and follow-up actions
Maintain accurate records of parliamentary contacts and engagement activity, and support internal reporting
Contribute to campaign activity and wider organisational work where required
What we are looking for
You will bring:
A working understanding of how the UK Parliament and devolved legislatures operate, and how to engage effectively with those processes
Experience engaging with political, policy or stakeholder environments
Strong writing skills, with the ability to produce clear and concise briefings and summaries
Excellent organisational skills and attention to detail
The ability to manage competing priorities and respond quickly to emerging opportunities
Strong communication and interpersonal skills, with the ability to build effective working relationships
The ability to translate complex or real-world information into clear, practical input
Confidence working independently in a remote team environment
An interest in farming, environmental issues or public policy
Additional information
The NFFN is a politically neutral organisation. This role requires the ability to engage constructively with stakeholders across all political parties and UK nations.
The client requests no contact from agencies or media sales.
The Huntington's Disease Association is a UK registered charity that supports people affected by Huntington's disease across England and Wales. We provide information, advice and support to families, friends, and healthcare professionals.
We are looking for three new team members to join our team of Specialist Huntington's Disease Advisers to support people affected by Huntington’s disease.
The roles available are:
• Bath, Somerset, Wiltshire, North & East Devon, Weston Supermare & Wiltshire Specialist Huntington’s Disease Adviser (part-time, 28 hours)
• East and South Yorkshire Specialist Huntington’s Disease Adviser (part-time, 21 hours)
• Surrey and South London Specialist Huntington’s Disease Adviser (part-time, 21 hours)
All roles available are home-based, but must be living in the area specified in the job title, as the job involves extensive travel within the region and occasional travel across England and Wales.
We are looking for an enthusiastic, self-motivated person who is dedicated and committed to the welfare of families affected by Huntington’s disease, developing and improving the quality of care that they receive. You will need to have skills gained within a Health and Social Care profession. Your main responsibilities will be to offer help, information, advice, support and education to everyone affected by Huntington’s disease and professionals involved in supporting them.
All three vacancies are on a part-time permanent contract. Due to team-wide commitments, you must be available to work on Tuesdays. All other working days (in line with contracted hours) may be flexible around your individual needs and the needs of the role. Regular working pattern will be agreed with your line manager upon successful appointment.
This is a fantastic opportunity for the right candidate to bring their knowledge, skills and experience to our organisation.
Learn more about the role in the job pack included.
We are committed to equal opportunities in our recruitment process and in order to find out how well we are doing, we collect monitoring data. This will not form part of the selection process in any way and will be used for monitoring purposes only. Providing this information is voluntary.
The Huntington's Disease Association is looking for someone with the ability to work in a way that promotes the safety and wellbeing of adults at risk, children and young people. We follow safer Recruitment practices to ensure we are safeguarding the people we work with. We require the successful candidate to provide two employment references and undergo a Disclosure and Barring Service (DBS) check for enhance disclosure before joining the charity.
Full details of how we securely handle the data you provide to us as part of the recruitment process can be found in our privacy notice for job applicants on our website.
Click on 'apply' to begin your application. To ensure your consideration, you must upload both a CV and cover letter (make sure to press 'upload' for both documents before completing the application process!).
Your application must include which of the 3 vacancies you are applying for. You must be located within the areas the role covers. Your cover letter should also include why you are applying for the role and how you meet the requirements of the person specification. The job description and person specification can be found within the job vacancy pack.
Applications submitted without a CV and cover letter will not be considered.
Closing date for applications is Sunday 17 May, 5pm.
First round interviews will be held online Thursday 4 - Friday 5 June. Second round interviews will be held in-person in London Thursday 11 - Friday 12 June.
Benefits
* 25 days annual leave plus public holidays (pro rata for part-time staff)
* 1 additional cultural or wellbeing leave day (pro rata for part-time staff)
* A pension scheme with 3% employer contribution
* Medicash scheme
* Travel-to-work scheme
* Flexible working approach
* Family forward policies
* Supportive and positive working environment
* Fantastic learning and development opportunities
We improve care and support services for people with Huntington’s disease, educate families and professionals, and champion people’s rights.



The governance and policy manager is a senior strategic and operational role responsible for leading, coordinating, and strengthening all governance-related functions across World Physiotherapy. Reporting directly to the CEO, the role ensures the organisation consistently meets the highest standards of governance, compliance, transparency, and accountability, in line with its global mission and constitutional framework.
The postholder serves as a key advisor to the CEO, board, and leadership structures, ensuring governance systems are robust, efficient, and appropriate for an international membership organisation. The role works closely with member organisations (MOs), regions, and speciality groups to enhance governance practices, ensure policy alignment, and support coherent decision-making across the global network.
The role also contributes to organisational direction by actively participating in the development and implementation of the World Physiotherapy strategic plan and supporting alignment with regional and other strategic plans.
1. Governance leadership and oversight
2. Board and executive support
3. General meeting (GM) management
4. Regional elections coordination
5. Policy development and management
6. Strategic planning and alignment
7. Support to member organisations, regions, and specialty groups
8. Stakeholder engagement and communication
9. Continuous improvement and risk management
Person specification
Education and qualifications
Essential experience and skills
Desirable
Personal attributes
Impact of the role
This role is critical to ensuring World Physiotherapy operates with excellence in governance and policy. The governance and policy manager supports effective decision-making at the highest level, strengthens organisational credibility, and contributes to a cohesive, well-governed global network aligned with its strategic objectives.
Only candidates invited for interview will be contacted.
To represent physiotherapy across the globe, advancing our profession and advocating access for all, to improve health and wellbeing.


The client requests no contact from agencies or media sales.
Actively Interviewing
This organisation is scheduling interviews as applications come in. They're ready to hire as soon as they find the right person. Don't miss your opportunity, apply now!
Research Grants Manager
We’re looking for a Research Grants Manager to join the team.
Applications from individuals who are seeking flexible working options, including reduced hours or job shares are welcomed.
Position: CE401 Research Grants Manager
Location: Home-based, UK nationwide however, occasional travel will be required as part of this role (may include team meetings or other work-related meetings)
Hours: Full-time, 35 hours per week
Salary: Circa £47,000 per annum (inner London weighting £3,950 per annum or outer London weighting £2,475 per annum may be applied in accordance to where you live)
Contract: Permanent
Benefits: 25 days’ annual leave plus bank holidays (this will increase with service up to 30 days, full time equivalent) cashback and discount scheme, employee assistance programme, learning and development, pension scheme, Life Assurance, Eye Care vouchers, Long Service Award, Tax-free childcare, Health Cash Plan, Working Pattern Agreement, flexible working opportunities available.
Closing Date: 8 May 2026. We reserve the right to close this vacancy early if we receive sufficient applications for the role.
Interview Date: 20 May 2026
The Role
The Research Grants Manager leads the design, delivery and governance of the Association’s research funding portfolio. The role ensures that all Association funded research schemes, including fellowships and project grants, are strategically configured, rigorously governed and effectively delivered in line with the Association’s Research Strategy.
The role will ensure that research funding schemes are aligned with external research developments and designed to maximise long-term impact. The role includes formal accountability for embedding high-quality, inclusive and structured lived experience participation within research funding processes.
The Research Grants Manager is the organisational lead for research funding operations, ensuring the Association maintains a sector-leading, transparent and strategically focused funding programme.
Key responsibilities will include:
About You
You will:
To fulfil the role, you must be a resident of the UK and have the right to work in the UK
Please state any preferences for flexible options in your covering letter.
Finding strength through support
The organisation is the only charity in the UK providing lifelong support for all stroke survivors and their families. Providing tailored support to tens of thousands of stroke survivors each year. This support includes one-to-one and group support, funding vital scientific research into stroke prevention, acute treatment, recovery and long-term care, and campaigning to secure the best care for everyone affected by stroke.
They are here for stroke survivors and their loved ones, from the moment they enter the new and frightening post-stroke world, supporting them every step of the way as they find their strength and their way back to life.
It’s only thanks to the generosity of supporters and donors that they can provide vital support.
The Association is driven by an ambition to improve the lives of everyone affected by stroke. This means they’re determined to create an equitable and inclusive workplace that benefits from the difference, and thrives on the diversity, of our people. Guided by an approach to solving inequity in stroke, the team are prioritising listening to, and learning from, lived experience across the charity.
The charity are working to improve the representation of this lived experience at all levels within the Association and are eager to recruit applicants from a variety of communities and backgrounds. We are keen to receive applications from people affected by stroke, people of colour, members of LGBT+ communities, and disabled people because these identities and experiences are underrepresented and would add enormous value to how the organisation work.
A Disability Confident employer, the organisation is making great progress focusing on flexible working, reasonable adjustments and access to work.
You may also have experience in areas such as Research and Grants Manager, Research Manager, Grants Manager, Scientific Research, Health, Social Science, Social Science Research.
Please note this role is advertised by the recruitment agency acting for the client, Not For Profit People. #INDNFP