You will be joining us at a time that holds the greatest potential for fundraising in our history, following the launch of the UK Government’s Delivery Plan for ME and initial findings of the DecodeME genetics study (co-led by Action for ME) in Summer 2025.
Building on our charity’s already established level of support from major donors, you will provide exceptional relationship management to existing donors alongside growing our network of high value supporters.
Working closely with the CEO, alongside managing a portfolio of donors and prospects ensuring excellent stewardship, you will support our Breakthrough-ME Group (a group of high net worth and highly networked individuals). There is an established level of support from major donors at Action for ME so this is a role that will require exceptional relationship management to retain our current valued supporters while growing this crucial area of fundraising.
This would be an ideal role for an experienced philanthropy professional seeking to work for a small but ambitious charity, helping us to achieve our mission to improve the lives of all people affected by ME – better meeting their needs today while taking action to secure change for tomorrow.
Key duties
Major Donor Fundraising
• Successfully develop and implement the philanthropy strategy to secure and maximise funds from high value individuals for Action for ME achieving annual income of £250k+
• Set plans and budgets which will deliver income through major gift fundraising and philanthropic giving through family trusts and foundations, including quarterly forecasting.
• Manage a portfolio of prospects and donors at the £5k to £100k level, to develop and maintain strong and long-standing partnerships
• Work closely with the Director of Fundraising and Development and other colleagues to ensure that plans and activities for fundraising from high value individuals are integrated into the overall fundraising strategy and plan for significant growth.
• Be responsible for our Breakthrough-ME Group with high quality proposition development. Contribution to Group fundraising activities with a specific focus on ensuring their networks support pipeline growth for future fundraising.
• Lead the delivery of our biennial fundraising gala dinner, maximising income and new opportunities from attendees.
• Develop engaging and inspiring opportunities to steward and cultivate support creating a calendar of activities including events, presentations, approaches, networking and meetings.
• Utilise the CRM database (Raisers Edge) to provide the data required to strategise your approach to philanthropy, monitor progress and provide a high-quality donor experience.
• Ensure utilisation of insight & data, producing management information data to inform planning and strategy development.
• With the Director of Fundraising & Development, create inspiring cases for support and resulting propositions with clear budgets and outcomes.
• Create adequate systems and processes to support the major donor programme.
• Undertake and manage research into prospects and major donors, preparing for approaches and presentations and briefing senior leadership and trustees for donor meetings and events.
• Develop and maintain relationships with donors, a wide range of staff and volunteers from trustee level down.
• Provide regular feedback and internal reporting to line management.
• Work with other fundraisers to ensure that all fundraising opportunities and leads are followed up – particularly in corporate, community and trust fundraising.
• Work with Trustees, the Chief Executive and members of the Leadership Team to develop relationships with major donors.
• Self-administrate including managing your own diary and meetings, keeping accurate and up to date records of activity
• Occasional travel to London, Bristol & events
Other duties
• To positively promote the work and activities of Action for M.E. at all times.
• To contribute to the team’s overall, ongoing and annual planning and budgeting.
• To undertake any other reasonable activity in line with the responsibilities of the post as requested by the Director of Fundraising and Development, Chief Executive or any other senior Action for ME management.
• Act as an advocate for the Charity and its work.
• To work in accordance with Action for ME’s values of collaboration, equity and empathy.
Registered Charity
21 - 50
Our mission is to improve the lives of people affected by ME. Better meeting their needs today while taking action to secure change for tomorrow.
The client requests no contact from agencies or media sales.
Thank you!
Using Anonymous Recruitment
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UK-based/ Colchester or Home-based with monthly travel to Colchester office. Overseas travel with trips lasting from 10-14 days.
This post requires the candidates to have independent rights to live and work in the UK
Background
Lepra is dedicated to addressing leprosy and lymphatic filariasis (LF) and their consequences through direct support, advocacy, and the promotion of inclusive communities. We work in Bangladesh and in India, through our sister organisation, LEPRA Society. We work in partnership with people affected by leprosy and LF to improve detection, ensure access to treatment and care, and promote inclusion and wellbeing. Last year we finalised our new Global Strategy for 2024-30, which will guide us in our efforts to accelerate progress towards global targets for leprosy and LF, and towards our vision of a world free from leprosy and LF.
Job Context
Our Global Strategy marks a significant evolution in our organisational direction, introducing innovative approaches and renewed priorities. This includes our first-ever global Theory of Change (ToC), our most comprehensive Monitoring, Evaluation, Accountability and Learning (MEAL) framework to date, a Research and Innovation strategy, and a dedicated Advocacy sub-strategy to guide our influencing efforts.
With the Lepra Advocacy Strategy, we will be working over the next 6 years to strengthen our approaches to our advocacy efforts. The post holder will play a key role in supporting the roll out of the Advocacy strategy working closely with the Director of Programmes and Advocacy, the Head of Research, the Senior Programme Manager, the Programme Officer and the teams where we work.
Job Purpose
This role is an exciting role within the programmes team in response to evolving needs. The incoming post holder will work within the 5 person UK’s Programme and Advocacy team and will drive, advise and support the team in relation to Lepra’s advocacy profile. We are looking for an enthusiastic, motivated, strategic and creative person who has outstanding skills to engage and work with a diverse team. We are looking for someone to work with a clear strategy and then develop, grow and successfully shape the future of Lepra’s advocacy efforts.
Working Relationships
Reports to Lepra UK’s Director of Programmes and Advocacy (DPA)
Works closely with the Programmes and Advocacy Team
Close working links with colleagues in India and in Bangladesh and the UK’s communications team
International travel as needed for programmes oversight and support, and external representation.
Key responsibilities
Advocacy Delivery (50%)
Under the supervision of the DPA implement Lepra’s global Advocacy strategy and coordinate advocacy initiatives.
Serve as the driver of advocacy efforts, facilitating the transitional year of implementation including coordinating the Advocacy Steering Group; advocacy toolkit development; action planning.
Represent Lepra in specific fora and advocacy networks and within the broader leprosy and NTD community in close coordination with the DPA.
Produce quarterly advocacy newsletters
Maintain quarterly reports on flagging areas of concern and actioning steering committee advice.
Assist in the preparation of policy documents and the presentation of papers for publication, conferences, or specific institutions and/or individuals - identifying and targeting the most appropriate audiences.
Support and contribute to the development and implementation of initiatives that foster an inclusive, equitable, and diverse environment across organisational programmes, policies, and advocacy efforts.
Support and contribute to initiatives that promote inclusion and equity, with a strong focus on developing the leadership and advocacy capacity of people with lived experience of leprosy, ensuring their voices are central in decision-making and programme design.
Knowledge management / Learning and Development (20%)
Support the preparation of Lepra advocacy and policy documents.
Disseminate knowledge so that it is integrated into Lepra’s portfolio to amplify the impact for target audiences and improve their outcomes.
Facilitate the new knowledge and learning hub and forge a clear path for its evolution.
Facilitate knowledge sharing through updating the communications team with relevant materials for the new programme folder on the website.
Organise and develop advocacy training.
Develop and take ownership of the new programme’ s team knowledge sharing approaches.
Develop a workplan of knowledge sharing events.
Support annual review meetings.
Communications (10%)
Assist the programmes team with the documentation of Lepra examples and models of best practice, at the same time identifying and developing mechanisms and avenues for the effective dissemination of this knowledge – internally and externally.
Assist the programmes team, DPO, Chief Executive and Country Programme staff in the synthesis of complex technical/scientific information adapting it to language and formats easily used by target audiences.
Contribute to content development of community engagement materials (public information, brochures, leaflets) that help explain the operations and impact of Lepra’s work to LF and/or leprosy affected communities.
Maintain good working links with Lepra’s UK Fundraising and Communications Team, contributing towards UK facing communications materials as and when required.
Prepare updates, papers, and reports for trustee meetings, funding partners, and wherever else applicable.
External representation (10%)
Support the Chief Executive, DPA and programmes team to maintain and expand existing strategic relationships with key international stakeholders to further Lepra’s advocacy strategy and advance Lepra’s agenda.
Ensure Lepra’s external profile is raised and become the go-to organisation for the leprosy community in terms of advocacy and policy briefings.
Support the preparation of documents for presentation, publication or dissemination at international fora.
Develop/support the development of country specific briefing notes/press kits with the communications team.
Represent Lepra at key events, conferences, and meetings to enhance our visibility and opportunity for impact.
Safeguarding (5%)
Promote a culture of respect, transparency, and accountability within Lepra’s implemented projects.
Ensuring that safeguarding mechanisms are in place and remain at the heart of all activities.
Support the integration of strong safeguarding and PSEA practices into project design and delivery.
Monitoring, evaluation, and impact (5%)
Ensure that all advocacy and knowledge transfer efforts are captured and embedded in appropriate results frameworks, objectives, outputs, indicators and Key Performance Indicators (KPIs). Provide inputs to Lepra’s reports, according to Lepra’s needs.
Person Specification
Qualifications
Essential
Relevant degree level of education in Public Health, Social Sciences, Global Health, Human Rights, Political Sciences or equivalent experience.
Desirable
Relevant post-graduate qualification
Relevant professional health-related qualification
Knowledge and Experience
Essential
Minimum of 2 yrs experience of advocacy/campaigning/policy work with an overseas development organisation
Experience of working to advance the rights of excluded populations
Extensive knowledge of global health issues and an up-to-date familiarity with issues and practice in the international development sector
Experience in planning and implementing successful strategies/campaigns/advocacy in Asia.
Experience in programme/project planning, budgeting, M&E and reporting, within a non-governmental organisation, including the preparation of reports for institutional donors.
Ability to analyse and act on data.
Experience of working on issues in relation to disability, mental health, gender, human rights and social inclusion.
Experience in project coordination and management.
Desirable
At least two years’ experience as an advocacy manager, preferably gained with an overseas development organisation or in academia, in a similar health focused role.
Familiarity with data visualisation tools and packages.
Proficiency in one or more Indian languages (e.g., Hindi, Tamil, Bengali, Telugu, etc.) is an asset.
Skills, Attitudes and Personal Qualities
Highly motivated individual with excellent interpersonal and communication skills, both written and verbal to build strong relationships, negotiate and persuade a wide range of audiences, with confidence at presenting and representing.
Proven strength in both written and verbal communication
Able to reach, network with and communicate to a wide range of stakeholders and potential stakeholders.
Excellent attention to detail, and organisational and time management skills
Ability to manipulate and analyse data to draw useful conclusions to improve programme delivery.
Ability to use databases, Word, excel, PowerPoint and other Office packages
Ability to work independently, be flexible and prioritise workload.
Ability to travel within the UK and overseas.
The right to work in the UK.
We operate a non-bias recruitment process and run our job advertisements through anonymous recruitment methods.
We offer a lot of flexibility in working practices and there is free reserved parking available at our Colchester office. We also offer 26 days annual leave plus public holidays (pro-rated), pension, Employee Assistance Programme and support from an in-house well-being team.
Only shortlisted candidates will be contacted and invited for interview. Please check your email inbox and spam/junk mail folder for any email correspondence for this vacancy.
If you require any reasonable considerations such as access or information in an alternative format, please inform us soon as you are able so that we can make the appropriate adjustments.
Please do not use AI to help you write cover letters, CVs and responses to any screening questions. We want to hear your original voice.
The client requests no contact from agencies or media sales.