Trustee (Lived Experience of Pulmonary Fibrosis)

About Action for Pulmonary Fibrosis

APF is the UK’s leading patient charity for people affected by pulmonary fibrosis. We fund research, campaign for improved care, and provide crucial support and information. Our ambition is bold, our focus is clear, and our work is driven by people living with the condition.

Key responsibilities

 Core Trustee Duties

·       Ensuring APF pursues its charitable objects

·       Helping develop and approve APF’s long-term strategy

·       Ensuring compliance with the constitution, charity law and relevant regulation

·       Ensuring APF’s resources are used solely to further its charitable purposes

·       Protecting APF’s assets and ensuring sound financial management

·       Safeguarding APF’s good name, values and reputation

·       Ensuring effective governance, policies and risk management

·       Overseeing the appointment, support and appraisal of the Chief Executive

·       Reviewing Board papers, contributing to debate and applying specialist insight

Lived Experience Contribution

In addition, the Lived Experience Trustee will:

·        Provide insight grounded in PF lived experience to shape strategic decisions

·        Highlight unmet needs, barriers to access and priorities for the PF community

·        Support APF to embed patient and carer voice across programmes and governance

·        Advise on accessibility, equity, inclusion and support for under-represented groups

·        Offer perspective to ensure services, campaigns and communications are relevant and person-centred

·        Act as an ambassador within the PF community where appropriate

Desired Additional Skills

Where possible the Board of Trustees is also looking for individuals with experience of:

·       HR and volunteer management and organisational culture and leadership

·       Fundraising and supporter engagement, contributing insight to the Board’s understanding of charitable income development