Trustee

Sarcoidosis is a rare inflammatory disease which mostly affects the lungs, although other parts of the body such as the heart, eyes and nervous system can also be involved. It is not properly understood and there is currently no known cure.

SarcoidosisUK is a small charity with big ambitions! We want to make a difference to the lives of those affected by sarcoidosis in the UK by providing information and support, raising awareness and undertaking research into treatments and a cure.  We currently support over 9,000 people online and have strong relationships with both clinicians and patients.

We want to enlarge and strengthen our Trustee Board with the recruitment of new trustees who will bring their skills and passion to the work we do. The Trustee Board sets strategic direction for the charity, acts as guardian of our vision and values, and has responsibility for oversight and governance. 

We want our Trustee Board to represent our community, and welcome applications from anyone with an interest in sarcoidosis. To support the growth of the charity we are particularly looking for experience in the following areas:

·       Fundraising in the charity sector

·       Branding, marketing and communications

·       Strategic development

·       Community support and engagement

The Board is friendly and informal and meets online early evening each month for no more than 2 hours. We have a small staff team, currently 3 in number, and therefore Trustees may be asked to provide direct input and expertise on occasion. The role is not remunerated,  however expenses are reimbursed.

If you would like to be a considered as a Trustee for SarcoidosisUK, or would like to find out more about the role, please contact us.

Applications should outline the skills and experience you would bring to the role and tell us why you are personally interested in improving outcomes for those affected by sarcoidosis.