Chair of the Board of Trustees of SMA UK

Spinal Muscular Atrophy (SMA) is a rare, genetic neuromuscular condition causing progressive muscle wasting (atrophy) and weakness leading to loss of movement.

Our current chair has been in the position for 6 years and after serving their maximum term, we are seeking a new Chair to lead the charity and help us deliver our four year strategic plan ‘Building a future together’.

The chair provides a pivotal role in ensuring the charity has a well governed organisation, strong staff team and board with clearly defined roles and responsibilities, with one shared goal of working towards the organisational mission underpinned by our values and principles.

The chair will support the CEO and ensure that the board functions as a unit and works closely with the senior leadership team to achieve agreed objectives. From time to time the chair will act as an ambassador and the public face of the charity in partnership with the CEO. An effective chairperson is a key player in ensuring effective governance for the charity.